transforming by jr8z8OX

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									  Transforming the quality of
  dementia care –
  Consultation on a National
  Dementia Strategy
  Neil Hunt
  Chief Executive

www.alzheimers.org.uk
Rising numbers of people
700,000 people now, 700,000 families,
1 million by 2025


2000000
1800000
1600000                                                100 & over
1400000                                                95-99
                                                       90-94
1200000
                                                       85-89
1000000                                                80-84
 800000                                                75-79
                                                       70-74
 600000
                                                       65-69
 400000
 200000
       0
              2011      2021      2031   2041   2051

www.alzheimers.org.uk
   Where are we now?




www.alzheimers.org.uk
  Rising costs

  •Total cost of dementia in the UK
   = £17 billion per annum
  •£25,000 per person with
   dementia


www.alzheimers.org.uk
Bad Quality Care
Variation in services for
people with dementia –
A case study of
prescriptions per year
per person with
dementia 2005-6




www.alzheimers.org.uk
Proportion of estimated number of
people with AD in Europe treated with
anti-dementia drugs in 2004

           60




           40




           20




            0
                                                                                                           Germany
                                                                                                                     Italy
                                                                         Belgium
                         Sweden




                                                                                                                                                                    Holland
                                                                                                                                                                              Bulgaria
                France


                                  Ireland
                                            Spain
                                                    Portugal




                                                                                                                             UK
                                                                                                                                  Poland
                                                                                                                                           Slovak Rep
                                                                                             Switzerland




                                                                                                                                                        Czech Rep
                                                               Austria


                                                                                   Denmark




 www.alzheimers.org.uk
    Where are
    we now?
    • Only 1 in 3 getting a diagnosis
    • People battling for information and help
    • Bad public and professional awareness
    • Limited access to often poor quality
      care at home
    • Poor dementia care in care homes


www.alzheimers.org.uk
                                                        Friends in
                                                        high places

        Improving services and support
        for people with dementia
        REPORT BY THE COMPTROLLER AND AUDITOR GENERAL
        HC 604 Session 2006-2007 | 4 July 2007




www.alzheimers.org.uk
     Rising public
     and political interest



www.alzheimers.org.uk
Public opinion poll
March 2008
Which medical conditions need to be
given priority?

            80
                                      Cancer
            70
            60                        Heart
            50
                                      Alzheimer's
            40                        Disease

            30
            20
            10
             0


 www.alzheimers.org.uk
                        Political support

 “I am determined that this disease is brought out of the
  shadows. We need to minimise the shame and fear
  associated with dementia so that people and their
  relatives feel able to seek support at the earliest
  possible stage in the knowledge they will get expert
  help and be treated with dignity and respect.”

www.alzheimers.org.uk
                        NHS Chief Executive
 “When we have looked at our clinical priorities as a
 whole across the NHS, we have seen that we are
 clearly making significant progress in cancer, coronary
 heart disease, waiting times, and, after the publication
 of the stroke strategy, stroke services. Dementia now
 has its place in the sun and we have the opportunity
 to put the focused attention of the system on
 improving services.”

www.alzheimers.org.uk
                        National Dementia Strategy

      P                        Ivan Lewis            E
                                                     V
      O                                              I
      L                   National Audit Office      D
                                                     E
      I                                              N
      T                       Dementia UK            C
                                                     E
      I
      C                 NICE/SCIE care guideline     B
                                                     A
      A                                              S
      L                 Hands Off Dementia Drugs     E



www.alzheimers.org.uk
    What does the
    draft strategy say?



www.alzheimers.org.uk
      National Dementia
      Strategy Themes

      1. Improving awareness of dementia


      2. Early diagnosis and intervention

      3. Improving quality of care



www.alzheimers.org.uk
Improving awareness

                         ‘Awareness is very mixed. A
                        much more ‘hidden’ disease
                        than, for example, cancer. I
                        think it is difficult for a ‘carer’
                        to explain that a partner,
                        relative or close friend has
                        dementia. Stigma remains
                        strong.’




www.alzheimers.org.uk
  Worried about your
  memory?
  Society wide public awareness
  campaign


  Leaflets and posters in GP
  surgeries


  Information & CD Rom to GPs
  and practice managers


www.alzheimers.org.uk
Draft strategy:
Improving awareness

    1. Public information campaign

    • What are the symptoms of dementia?
    • Early diagnosis is important
    • Help is available

    2. An informed and effective workforce

    • Effective basic training for all
    • Continuous professional and vocational
      development

www.alzheimers.org.uk
Early diagnosis
and intervention

                        ‘The doctor said he thought I
                        had depression and
                        prescribed anti-depressants.
                        It was a relief to be told what
                        was actually wrong.’




www.alzheimers.org.uk
Draft Strategy:
Early diagnosis and help

 3. Good quality early diagnosis and help

 Network of memory assessment services

 4. Good quality information for people

 ‘Information prescription’ on diagnosis to
  tell people what they need to know and
  what help is available


www.alzheimers.org.uk
Draft Strategy:
Early diagnosis and help
(continued)




    5. Continuity of support and advice

    Employment of dementia care advisers
    who can be a named contact for
    information and advice




www.alzheimers.org.uk
Improving quality of
dementia care

                        ‘The carer who comes to
                         the house helps me get on
                         with things. I couldn’t get
                         by without her.’

                        ‘They were often late, so I
                         would sometimes get him
                         washed and dressed
                         myself.’




www.alzheimers.org.uk
Draft Strategy:
Improving quality of care

 6. Better care in hospitals

 • A senior clinician to take a lead on dementia
 • An explicit care pathway to be developed
 • A specialist mental health team to be created

 7. Better care at home

 • Specialist dementia home care
   services to be developed

www.alzheimers.org.uk
Draft Strategy:
Improving quality of care
 8. Improved short breaks

 Improved access to respite care

 9. A joint commissioning strategy at local level

 NHS and local authorities to produce local plans

 10. Intermediate care for people with dementia

 An end to exclusion from some community services

www.alzheimers.org.uk
Draft Strategy:
Improving quality of care

   11. Better care in care homes
   • Councils to build dementia requirements in
     contracts
   • Measures to reduce the use of anti-psychotics

   12. Improved registration and inspection

   Registration should change so that all homes are
   expected to be able to care for people with
   dementia

www.alzheimers.org.uk
Draft Strategy:
Delivering the Strategy

 13. Clear information on deliver of the strategy


 14. A clear picture of research evidence

 Ministers will convene a research summit to
 get a plan for the future of dementia research

 15. Effective help to make it happen



www.alzheimers.org.uk
           A GREAT START



www.alzheimers.org.uk
    We need to....
    • Identify the priorities
    • Respond and influence
    • Press for funding and timeline
    • Campaign for it to happen
    • Develop our services


www.alzheimers.org.uk
  Between now and
  October....
  • Formal consultation response
  • Discussions with Department of Health
  • Build political pressure
  • Influence local change
  • Get ready to help make it happen

www.alzheimers.org.uk
www.alzheimers.org.uk

								
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