The Caregivers by ZIFT4h3


									                                    The Caregivers
     SUPPORT NET                   Cortland County Area Agency on Aging
                          A quarterly publication of the Caregivers Resource Center
                          60 Central Avenue, Cortland, NY 13045       (607) 753-5060
Spring 2012
(March, April, May)

                          Caregiver Enrichment Series
                 An important function of the Caregiver Resource Center is our effort to
                 educate caregiver families. All of our programs are open to anyone who cares
                 for an elder adult, including those who are just starting caregiving with the
                 minimal supports. All events are presented at no cost to the attendees, but we
 would appreciate reservations by calling 753-5060. These upcoming events will be held in
 Room B1 of the County Office Building.
 Caregiving 101
 Friday, March 23, 2012              1:30-3:00
 Presented by Pamela Winn, Aging Services Specialist
 Whether you assumed caregiver responsibilities after a crisis or gradually worked your way into
 them, this seminar will help you find direction and answer questions about the path you are on
 in caring for a loved one. Caregivers will also learn some ideas to get other family members
 involved. Included in the presentation will be resources for caregiver training and support.
 The Basics: Memory Loss, Dementia and Alzheimer's Disease
 Friday, April 13, 2012            1:30-3:00
 Presented by Jessica Cornell, Alzheimer’s Association, Central NY Chapter
 Alzheimer's disease is not a normal part of aging. If you or someone you know is affected by
 Alzheimer's disease or dementia, it’s time to learn the facts. This program provides information
 on detection, causes and risk factors, stages of the disease, treatment, and much more.

 What in the World is Palliative Care?
 Friday, June 29, 2012       1:30-3:00
 Presented by Mary Beach R.N., Director
 Caring Community Hospice of Cortland County
 Palliative care, hospice services and end of life decisions are surrounded by mystery and myth.
 Mary Beach will walk us through the facts of these sensitive topics.

If you would like your name removed from the mailing list or would like to make a donation, you may call 753-5060. The
Caregivers Support Net is a service of the Caregivers’ Resource Center, a program of the Area Agency on Aging and the NYS
Office of the Aging.

    Family Caregiver Support Group                     o Regular monitoring to ensure services
             4th Thursday                                are adequately meeting those needs
                7-9 p.m.                               o Assistance with bathing and other
                                                         various personal care needs, shopping,
          Caregivers Meetings                            errands, and light housekeeping
               March 22                                o Respite: short-term breaks for
                April 26                                 caregivers
                May 24                                 o Personal Emergency Response
               June 28                                   Systems
                                                       o Minor home modifications or equipment
              Located at:                                to enhance client safety
        Access to Independence
    26 North Main Street Cortland, NY                To be eligible for EISEP individuals must
      For information call 753-5060                  meet the following requirements:
                                                      Be 60 years of age or older
                                                      Need assistance with activities of daily
                                                      Have the ability to be maintained safely in
                                                        their home or apartment
       Does This Sound                                Be ineligible for other programs which
                                                        provide similar services, such as Medicaid
By Debbie Bush, Aging Services Specialist            EISEP is not designed to take the place of a
                                                     caregiver, however it can often help reduce
After working all day for your employer you’re       the hands-on duties of the caregiver. For
tired and all you want to do is go home and          more information, call NY Connects at
relax. Unfortunately you can’t. You have             756-3485.
another very important job you must do first.
As a caregiver to your loved one, you must
ensure his or her needs are met. You help
your loved one bathe, throw in a load of                       Oh No!
laundry, and run to the drug store to pick up
medications. It’s now 10:00pm. You haven’t              This Newsletter Again?!
done your own laundry or even had the
chance to sit down, and relax. You’re                        Sometimes you get too much
exhausted and overwhelmed.                           of a good thing! Are you getting
                                                     the Caregiver SupportNet even
Perhaps EISEP can help.                              though you no longer read it or
                                                     want it? We would be glad to
EISEP (Expanded In-home Services to the              remove your name from the mailing
Elderly Program) provides services to assist         list. We just need you to tell us to do
individuals with non-medical needs so that           that. If you are no longer interested in
they can safely remain in their own home or          receiving this newsletter we can stop it easily:
apartment as long as possible and eliminate                Email us at Just
or postpone the need for placement within a                  provide your name and address and say,
long term care facility.                                     “Stop the newsletter”.
                                                           Call us at 753-5060 and say that you no
Services may include:                                        longer want to receive the Caregiver
  o A specific plan for care designed to                     Support Net. Be prepared to give your
     meet individual needs                                   name and address.

              You and Your Aging Parent Series
Planning for long term care is a vital part of the aging process. The You and Your
Aging Parent series of presentations is designed for those 40 and over who are
assisting their parents in preparing for the unexpected challenges of aging, but the
series is open to those in all ages and stages of aging. All events are presented at
no cost to the attendees, but we would appreciate reservations by calling 753-5060.
These upcoming events will be held in the dining room of the County Office Building.
Paying for Long Term Care
Monday, March 26, 2012             5:30-7:00
Presented by Patricia Walter, Aging Services Coordinator, Caregiver Resource Center
And Sara Davis, Aging Services Specialist
Health Insurance Information Counseling and Assistance Program
How is one expected to pay for medical and assistive services related to long term care? Pat and
Sara will walk participants through the process including the roles of Medicare, private assets, long
term care insurance and Medicaid.
Mid-Stage Alzheimer's Disease Training
Wednesdays, July 11, 18 & 25           5:30-7:00
Presented by Jessica Cornell, Alzheimer’s Association, Central NY Chapter
This program helps caregivers address the issues that arise with the everyday and long-term care of
someone with Alzheimer’s or a related dementia. Topics include a general discussion of Alzheimer’s
disease and dementia, communication and behavioral symptoms, activities of daily living and legal
and financial planning.

      NY Statewide Alert System for Missing Vulnerable Adults
                                  Be Ready for a Rapid Response
New York has initiated a rapid response system for missing vulnerable adults. The alert system uses
the same distribution method as the Amber Alert to notify the public of missing adults with cognitive
disorders, Down’s syndrome, autism or mental and brain disorders. Not all adults who are missing
are eligible but those with Alzheimer's disease and dementia will receive a priority. The system is
activated, when appropriate, by local law enforcement agencies.
Instrumental to a rapid response to a missing adult is to have quick access to identifying information
on the individual, including a digital photo. The Masonic Organization runs an ID program for children
and adults. In the case of adults, a volunteer conducts an interview to learn basic identifying features
and then takes a digital photograph. The adult receives an ID card, a sheet with the photo and
identifying facts and a small disc with the photo and information burned on it. The Masonic
Organization does not save or keep any of the information. The disc is handed over to the adult or
family member to keep in case of an emergency.
This service is done free of charge and the Masons will have a set-up for this process at the CNY
Maple Festival in Marathon on March 24 & 25 at the Marathon High School. Adults can drop in any
time. The whole process takes less than 15 minutes.
Another option to protect wandering adults is Project Lifesaver. This program is coordinated with the
Cortland County Sheriff’s Department through the Area Agency on Aging. Project Lifesaver provides
a wristband transmitter to be worn by an individual at risk for wandering due to dementia, Alzheimer’s
disease, Down’s syndrome or autism. Should the individual become lost, the device will assist
Sheriff’s Department personnel in locating the missing person. For more information on eligibility for
this program, call Pat Walter at the Area Agency on Aging at 753-5060.
                               Personal Care Tips
                             Caring for Someone with
                              Memory Impairment
                                By Pam Winn, Aging Services Specialist
                                     Caregiver Resource Center

Being a caregiver for someone with memory impairment can be a very challenging job. If the
caregiver’s responsibilities now include personal care for a parent or spouse the emotional and
physical burden will most likely increase. Providing personal care for your loved one while
maintaining dignity for them, as well as safety for both of you, can be done with a little bit of planning.

The following personal care tips may be helpful:

      Have a routine. It will make everyone more comfortable.

      Do what you can to give the person control and independence. Ask them to hold the shampoo
       or washcloth.

      Close doors, curtains or blinds for privacy when dressing and bathing.

      Wrap the shoulders when bathing to keep the person warm and make them feel like you are
       respecting their privacy.

      Check the water temperature to get it just right.

      Explain each step to the person as you do it. This way they will know what is happening.

      Use rubber mats in the bathroom to prevent slipping.

      Watch for dripping water or puddles to prevent slipping.

      Use a bath chair or handrails as needed.

      Keep personal habits, such as wearing make-up, part of the routine.

      If they did some of the care for themselves, tell them they did a good job.

      Wash hair in a sink if it is easier or even start having it done professionally.

      Buy multiples of the same outfit if they have a favorite.

      Choose easy to wear clothing such as pull-on pants and slip-on shoes.

      Don’t be rushed. Give the person time to do what they can. Choose the best time of day for

      Set clothes out ahead of time and gently talk them through the steps.

      Tell them they look great.

                     Be Good to Your Digestive Tract
                              By: Patricia Armstrong, Nutrition Program Director

March is the designated month for Colorectal Cancer Awareness but you should be good to your
digestive system every day.

Colorectal Cancer is the second leading cause of cancer related deaths and 90% of those cases are
in people age 50 or older. Colorectal cancer can be prevented with regular screenings that can find
precancerous polyps and remove them before they turn into cancer. People at a higher risk may
need earlier or more frequent tests than others. Individuals at higher risk should talk to their doctor
about when to begin screening and how often they should be tested.

Your digestive system is highly affected by what you eat. Frequent trips to the vending machine,
consuming junk and fast food can also increase your risk for colon cancer.

You can be kind to your digestive system by eating plenty of fiber like fruits, vegetables, dried beans
and peas and whole grains. The new My Plate and the American Institute for Cancer Research
recommends at least 2/3 of your plate be filled with fruits, vegetables, whole grains and beans.

Keep fresh, frozen and/or canned fruit in natural juice available. Whole grain bread (make sure the
first ingredient is whole wheat) should be your bread choice. Peanut butter on rinsed carrots and
celery sticks makes a great snack.

High fiber foods are also full of vitamins and minerals and even though supplements are available, it
is the whole food with everything acting together that gives you the most benefit.

Tips to Follow:

Stay hydrated – water is your friend
Limit fats and keep a healthy weight – use portion sizes, avoid overeating and eat sweets only as an
                                       occasional treat.
Get regular daily exercise

All of these tips can help to prevent diseases of the digestive tract and reduce the need for some
medications. Remember eating for digestive health is eating for good health in general.

                           Cauliflower, Cabbage & Carrot Salad
½ small cauliflower or equivalent of fresh or frozen broccoli
½ cup red or green cabbage                              ½ tsp Mustard
1 medium carrot                                         ½ Tbsp extra virgin olive oil
½ small onion (preferably red) finely chopped           ½ Tbsp light (or regular) mayonnaise
¼ cup walnuts (optional)
½ Tbsp white vinegar

Toss all vegetables, and walnuts (if using them)
Whisk together vinegar and mustard. Add mayonnaise and oil and whisk.
Pour over salad and mix well.

                               Ombudsman Program
                       Seeking a Few Good Men and Women
Do you possess the ability to build trust and maintain confidentiality? Do you have an aptitude for
recognizing problems and finding a way to work through them? Are you willing to spend a few hours
a week volunteering your time and energy to advocate for the rights of residents of long-term care
facilities? If so, the Long Term Care Ombudsman Program may have a place for you.

An ombudsman is a trained and certified volunteer who works with residents, their families and staff
members of long-term care facilities. The ombudsman acts as an advocate of the resident to help
resolve issues and/or complaints. The ombudsman is supported by the New York State Ombudsman
Office and by the local Area Agency on Aging and is not an employee of the nursing home, nor a
representative of the nursing home administration. There is a need for ombudsman in all the long-
term care facilities in Cortland County.

All residents of long-term care facilities have rights that enhance their quality of life. An ombudsman
serves to educate residents, their families and the facility staff of those rights and benefits. The
ombudsman receives and investigates residents’ complaints or problems and works with the facility
staff to find the best possible solutions. Though an ombudsman is very aware of the activities and
conditions of the facility, he or she is not part of a regulatory agency.

An ombudsman visits a facility on a regular basis and is likely to attend the Residents’ Council
meetings as an observer. He will speak with the residents and observe the conditions and activities
that are going on during the visit. If a resident has a problem, the ombudsman will first attempt to
empower the resident and include him in the process of solving the problem. All communication with
the resident is confidential and any activity that the ombudsman engages in to resolve an issue must
have the approval of the resident involved. Family members may also wish to speak with the
ombudsman if they have a concern. The ombudsman, with the permission of the resident, will assist
the family in addressing that concern.

Volunteers will receive an extensive training program that includes orientation to different types of
long-term care facilities, residents’ rights, mediation and communication skills, fraud and neglect
recognition and sensitivity to the aging process. They will then have a shadowing experience with a
current ombudsman before a final determination is made regarding placement.

The Long Term Care Ombudsman Program is administered by the New York State Office for the
Aging under the provisions of the federal Older Americans Act. The local Long Term Care
Ombudsman Program is in the forefront of the State’s advocacy efforts for residents and their families.
If you have further questions regarding the role of the ombudsman please call the Area Agency on
Aging at 753-5060

 Submitted by Patricia Walter, Aging Services Coordinator at the Area Agency on Aging.

   The mission of the Area Agency on Aging is to advocate, plan, develop and provide a
   coordinated system of programs and services on behalf of all senior citizens of Cortland
   County so that they may live with maximum independence, autonomy and dignity.

           Long Distance                                  available to make a home visit to complete an
                                                          assessment and assist you in navigating the
            Caregiving                                    long term care system. Once you have
                                                          returned home the specialist will be available to
It may sound impossible but the truth is that             provide you with assistance through telephone
many adult children who serve as primary                  and/or e-mail contact.
caregivers for their aging parents reside                 Assistance in forming short and long term
hundreds of miles away from them. Long                    plans can ease caregiving stress. It’s
distance caregiving is becoming more and                  important to remain flexible and be willing to
more the norm. There are an estimated 7                   review and revise these plans on a regular
million long-distance caregivers in the U.S.,             basis.
with many families having one or more
caregivers out of the area. Long distance                 For more information contact the Caregivers
caregivers can be very valuable no matter how             Resource Center at the Cortland County Area
far away they are.                                        Agency on Aging at 607-753-5060.
Adult children sometimes experience a rude
awaking when first discovering that their aging
parents just are not able to function as they                   SENIOR
once did. For children who do not see their                ENRICHMENT DAY
parents often, this can be particularly upsetting.
                                                           IS COMING EARLY!
 If you are a long distance caregiver and are
only able to visit your parents a few times per              SAVE THE DATE
year, the following tips will help you make the               TUESDAY, JUNE 12, 2012
most of your visits:
                                                                   17TH ANNUAL
 If your parent is still driving, take a ride with          SENIOR ENRICHMENT DAY
  him/her and quietly assess their driving
  ability. It’s a good idea to drive the car              At Senior Enrichment Day, the Area Agency on
  yourself to insure basic maintenance is                 Aging hosts individuals of all ages from all
  being done.                                             around the county. Attendees will have the
 Look for unopened mail or unpaid bills.                 opportunity to listen to an inspiring keynote
 Take a look in the refrigerator to see if there         address, visit tables of community
  is food available and it is fresh and healthy.          organizations and businesses, enjoy a
  Look for a change in weight.                            delicious lunch and select from over 16
 Observe the daily routine to determine if               workshops throughout 4 sessions of topics that
  medications are being taken correctly.                  will inform and entertain. Here is a great
                                                          opportunity for you as a caregiver to have a
 Notice if there is a decline in personal                day of respite.
  hygiene or the cleanliness of the home.
 Talk to neighbors and friends to see if they            Mark your calendars for a day of fun and
  have any concerns. Just by asking you                                enlightenment!
  may establish a relationship which can
                                                          Details and registration will be included
  provide you with support after you return
  home.                                                        in the May/June Issue of the
                                                          Senior News or you may call 753-5060
 It is also suggested that you contact the local                after May 1st for a brochure.
County Area Agency on Aging to obtain
information about services available in the                Keynote Speaker               Workshops
community. The Cortland County Area Agency                          Community Services Fair
on Aging has aging services specialists                   Food             Fun          Friends
       How do I Navigate the Maze of Long Term Care Services?
                               Deborah Walls, Aging Services Specialist
                                Cortland County Area Agency on Aging

Trying to find out what long term care services are available and how to access them can feel like you
are lost in a maze. There are several different ways to proceed but you’re not sure which one will lead
you to the answers you need. Long term care services can include an overwhelming range of medical
and social services. People who are experiencing a change in lifestyle due to an illness, disability,
retirement and other changes related to aging may seek long term care services. NY Connects of
Cortland County can lead you to the answers you need!

There are a myriad of reasons you may be in search of information and referrals for long term care. A
need for long term care services may arise at any time. It can be a sudden occurrence or part of a
long term care plan. A need may arise while recovering from joint replacement, heart, eye or any
other types of surgery. The need for extra help may be anticipated prior to discharge or it may occur
once a person is home. At other times a need for long term care is part of a plan for a progressive
illness or disability. An individual or their caregivers may realize that they need more assistance as
dementia, pulmonary disease, rheumatoid arthritis, Parkinson’s and other debilitating diseases
progress. People on fixed incomes faced with the rising cost of living expenses may look for services
to assist them in maintaining their independence in the community.
People once thought long term care meant moving to a nursing home. According to the U.S. Bureau
of the Census (2008), slightly over 5 percent of the 65+ population occupy nursing homes, congregate
care, assisted living, and board-and-care homes. This reflects the improved health of seniors and
more choices of care for the elderly.

Today long term care services can be provided anywhere, including your home, an assisted living
facility, an adult home or a skilled nursing home. NY Connects walks you through the maze by
providing information and referrals for long term care and services including:
      Home care services                                     Medical & assistive equipment
      Home delivered meals                                   Transportation
      Counseling and support                                 Residential housing options
      Support groups                                         Home modifications
      Respite care                                           Personal emergency response systems

NY Connects can be reached Monday through Friday 8 a.m. to 4 p.m. A specialist will listen to an
individual’s concerns and ask questions to determine his or her needs. If the information provided
indicates the need for a comprehensive assessment then an in-person visit can be scheduled. After a
thorough needs assessment is completed the specialist will offer information and referrals to
resources to meet individual needs. The specialist will also be able to assist and/or advocate for the
person if they are unable to access services independently. The specialist will continue to be a
resource for them as their needs change.

NY Connects will assist older adults, people of all ages with disabilities, caregivers, family members,
friends, neighbors and human service and health care professionals. Contact NY Connects at 607
756-3485 or 753-5060 or by email at NY Connects is located in
room B-6 of the County Office Building at 60 Central Avenue, Cortland, NY.

                                             The Nursing Home
                                                       Pamela Winn
                                                  Aging Services Specialist
In the past I have worked as a nursing home social worker for over 20 years. An important portion of
my job was to support and educate professional caregivers as well as the family caregiver on how to
best work together for the good of the care receiver. I have noticed over the years that there are
many similarities between the professional and family caregiver. I have also noted the struggles that
they both deal with while trying to provide the best care. Professional and family caregivers tend not
to completely understand the roles that they both play in providing quality of life for the senior.
Defining family and staff as caregivers is the first step in realizing that you are a team working toward
the same goal.
Deciding it is time to place a loved one in a nursing home can be a very difficult decision. As a
caregiver you have given up so much of yourself to make sure the person you are caring for has the
best quality of life. Placing someone in a long term care facility is not giving up; it is simply moving to
the next chapter in caregiving. You will soon find out that even though you continue to be a caregiver
after placement, you now have a bigger team to help you provide the best care possible.
Your role as a caregiver will be redefined after placement and it may take you some time to figure out
where you fit in. You probably will be relieved of the physical burden of caregiving and will now be
able to focus on the social, emotional and spiritual aspects of the care.
The admission process can be overwhelming for both you and your loved one. Take a minute to write
down some of your questions and concerns before you meet with the staff. Take a family member or
friend with you the day of admission to help you process all of the information you will receive. It
helps to have someone to discuss the information with after you leave.
Be patient for the first couple of weeks. Everyone is adjusting to a new situation. Share information
about your loved one’s likes and dislikes, daily routine and life history. The more the staff knows about
you and your loved one, the better they will be able to provide care.
You will be invited to a Care Plan meeting shortly after admission. The meeting is a team meeting that
generally includes staff from all of the departments. This is a good time to get to know the people
taking care of your loved one, and determine what aspects of the care you are able to assist with.
Some family members visit daily to assist at meals or transport to activities. Others visit less often and
may take responsibility for laundry, closet cleaning or other tasks they are comfortable with. You may
just sit and visit with your loved one or advocate to the staff for him or her. Whatever role works for
you will be beneficial to the staff and your loved one.
The Long Term Care Ombudsman Program assigns a trained volunteer ombudsman to each nursing
home. The ombudsman acts as an advocate for the resident and can assist with any questions or
concerns you or your loved one may have. It is a good idea to address your question or concerns with
the staff first, but if you don’t feel you have accomplished your objective the ombudsman can help.
Whatever caregiver role you find yourself in, make sure you take care of yourself as well. Caregiver
support, education and respite remain important even after your loved one resides at the nursing
home. The Cortland County Area Agency on Aging’s Caregivers Resource Center provides services
to family caregivers of nursing home residents. For more information call (607)753-5060.

Cortland County                                                                           PRESORTED STANDARD
Area Agency on Aging                                                                        US POSTAGE PAID
60 Central Ave                                                                             CORTLAND, NY 13045
Cortland, NY 13045                                                                            PERMIT NO. 1


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      The Caregivers Resource Center,
     60 Central Ave, Cortland, NY 13045
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 The Cortland county Area Agency on Aging is sponsored by the Cortland County Legislature in conjunction with the New York State Office for the
                                    Aging under Title III of the Older Americans Act of 2006, as amended.


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