involving patients in a research project with primary healthcare teams by RBiJ4vQ4

VIEWS: 4 PAGES: 8

									An exploration of the experience
 of patients who participate in
 research as co-learners with
      primary care teams

     Louise Worswick, PhD Student/Researcher,
              Bournemouth University
           lworswick@bournemouth.ac.uk
     Patient involvement in research
• Consumerist approach to public service delivery
• Organisational duty to involve
• Benefits, impact, barriers to involvement are
  widely reported
• The debate rages about the impact of
  involvement on research outcomes
• Little consensus about who, why and how to
  involve
• Ongoing arguments of tokenism and ‘ticking the
  box’
      A gap in this body of research
• What is it like for those who get involved?
• What is the patient perspective?
• What can we learn about their experience
  of being involved in research?
• Could our learning about the experience
  be relevant to future involvement
  activities?
       Using LIMBIC as a case study
LIMBIC -     Learning to Improve the Management
             of Back pain In the Community

•   Interprofessional education
•   Management of back pain
•   Using evidence to influence improvement
•   Principles and methods of quality improvement
•   Improvement learning
•   User involvement
                                 High level evaluation
                                                                        Quantitative approach
Patient                        Baseline data collection
representatives                                                        Before and after outcome
join the project
                     Nine practices from two Primary Care Trusts       measures through
                                                                       questionnaires with
☻☻☻
                                                                       patients


                               Practice level evaluation
                                                                       Qualitative approach
Patient              Eight half day workshops with the nine practice
                                                                       Focus group interviews
representatives
participate in the
                                 teams over 9 months ☻                 with workshop participants;
workshops             Practice improvement projects undertaken ☻       GP, Practice nurse,
                                                                       receptionist, patient
☻☻☻☻☻☻☻
                      Practice level evaluation after workshops ☻      representative☻, Fast
                                                                       Feedback evaluation



 Patient
 representatives               High level evaluation
 describe their                                                         Quantitative approach
 experiences
 ☻☻☻☻☻☻☻
                                Repeat data collection                 Before and after outcome
                                                                       measures through
                     Nine practices from two Primary Care Trusts       questionnaires with
                                                                       patients
   Patient involvement in LIMBIC
                 Workshop
                 participants
    Patient                              Writing       Conference
    stories                              papers        presentations

                 Workshop
                 evaluation            Workshop
Mutual                                 presentations      Celebratory
support group                                             event
                                  Commissionin
                                  g meetings
       Practice
                                                       LIMBIC
       improvement
                                                       film
       teams                    Wiki
                     Findings to date
• Shift in understanding of the value of patient involvement

        “This project has perhaps made me more aware of the value of
        involving patients in making changes”                 GP

• Patients influenced the choice of Practices’ improvement projects

        “Made the process more relevant and gave a purposeful
        perspective”                                          Physio

• Attitudinal shift regarding benefit of shared working and
  interprofessional education

        “It was very valuable to hear the patient’s experiences and made
        our team see things from their perspective…their contribution
        was much appreciated and valued at the workshops”
                                                        Practice Manager
                Next steps

• Continued engagement with patient research
  participants
• Dissemination processes for LIMBIC project
• Identification of relevant LIMBIC project data
• Interviews with patient representatives and
  project team
• Analysis of data from interviews and project
  data
• Report findings

								
To top