King County Parent Coalition by HC120730041748


									                                    King County Parent Coalition for
                                    Developmental Disabilities
                                         AGENDA: KING COUNTY PARENT COALITION FOR D.D.
                                                      April 10th, 2012 Tuesday, 7:00- 8:30pm
                        Highland Recreation Ctr, 14224 Bel-Red Road, Bellevue, Art Room
 Speakers: MaryAnne Lindeblad, Assistant Secretary, Washington State Department of Social &
 Health Services, Aging and Disability Services Administration
 Don Clintsman, Assistant Division Director, Division of Developmental Disabilities

 MaryAnne will discuss impacts to services as a result of the legislative session and other updates
 in the Aging and Disability Services Administration. (ADSA)
      Impacts of reductions in services to people with developmental disabilities.
      Update on Home & Community Based Waiver applications to Federal Govt.
      Difference between Community First Choice Waiver & 1915 (i) Waiver
      Managed Care update-Dual Eligibles (Medicare & Medicaid)
 Business: Legislative special session update
 For questions, requests for interpreters or material in alternate formats please contact Betsy
 McAlister 425-882-2010 or
                                     A Program of The Arc of King County
                To become a member or donate to The Arc go to:
                                       APRIL 2012 HANDOUTS
 KCPC MEETING SCHEDULE ..................................................................................................... 2
 May 10, 2012 “Fun In the Sun” King County Parent Coalition Meeting ....................................... 3
 EVENTS ......................................................................................................................................... 3
 April 21, 2012 It’s Natural to Belong; ............................................................................................ 6
 June 4, 2012“Challenges in Caregiving: Giving Care, Taking Care”; .......................................... 8
 July 10, 2012; Parent Advocacy Training Program; Seattle University School of Law ................ 8
 INFORMATION & ANNOUNCEMENTS ................................................................................. 10
 Upcoming The Arc of King County Luncheon ............................................................................ 10
 OEO Welcomes New Seattle Public Schools Ombudsman .......................................................... 11
 Washington Counties and DDD Employment Supports Performance Outcome Information
 System Website............................................................................................................................. 14
 LOCAL ISSUES ........................................................................................................................... 18
 Parent Coalition members in the news: ........................................................................................ 18
 WAC RULES................................................................................................................................ 20
 STATE ISSUES ............................................................................................................................ 21
 WA Dual Eligibles Proposal ......................................................................................................... 23
 SB 6384 Employment First Bill .................................................................................................... 25
 NATIONAL ISSUES.................................................................................................................... 28
 Education – New Report on Restraint and Seclusion; .................................................................. 28
                                              CONTACT INFORMATION
  Lance Morehouse, Coordinator                                         Joanne O’Neill, King County Parent Coalition                                            Training Coordinator
  206-829-7048, phone; 206-364-8140, fax                               425-746-2178, phone; 425- 746-6093, fax

  Betsy McAlister, Assistant Coordinator                               Sandy Dempsey, Assistant Coordinator                             
  425-882-2010, phone & fax                                            206-829-7038 phone; 206-364-8140 fax

The contents of these handouts are for informational purposes only. Inclusion in these handouts should not be viewed as
                    an endorsement by The King County Parent Coalition or The Arc of King County.
The Arc of King County, 233 Sixth Ave. North; 206-364-6337;

                            BELLEVUE MEETINGS
                          2nd TUESDAY OF EACH MONTH
                                  7:00 – 8:30 pm
        PLACE: HIGHLAND RECREATION CENTER (Unless noted otherwise)
                    14224 BEL-RED RD., ART ROOM; BELLEVUE

  Different Meeting time and location noted with* All other meetings held in Bellevue
  MaryAnne Lindeblad, Asst. Secretary, Aging and Disability Services
  Legislative Session Wrap-up: Impacts to Services
  Housing Options Panel
  *MAY 10th Thursday
  Fun in the Sun! Come learn about recreation opportunities for children, teens,
  and adults with a focus on South King County.
  7:00-8:30 pm
  Kent Library 212 2nd Avenue N., Kent, 98032
  June 12th TBA
 Driving Directions to Highland Center
 14224 Bel-Red Road; Bellevue WA 98007; 425-452-7686
 From I-405, take NE 8th Street exit east. Turn left at 140th Avenue NE. Turn right on NE Bel-
 Red Road. Turn left two blocks up the hill onto NE 20th Street, between the YMCA and a log
 cabin style building (Highland Center).
 From SR-520, take 148th Avenue NE exit south. Turn right on NE Bel-Red Road. Turn right
 four blocks down onto NE 20th Street, between the YMCA and a log cabin style building
 (Highland Center).
 From I-90, take exit 11B (148th Avenue NE a.k.a. Bellevue Community College) going north.
 Drive north approximately 3 miles to NE Bel-Red Road. Take a left on NE Bel-Red Road. Turn
 right four blocks down onto NE 20th Street, between the YMCA and a log cabin style building
 (Highland Center).

 For bus trip planning please see King County Metro for route information:

May 10, 2012 “Fun In the Sun” King County Parent Coalition Meeting
    King County Parent Coalition for Developmental Disabilities presents …

                                        Fun in the Sun
 Come learn about recreation opportunities for children, teens, and adults with a focus on
                                 South King County.
WHEN:             May 10, 2012 from 7:00-8:30 PM
WHERE:            Kent Library; 212 2nd Avenue N; Kent
                  (253) 859-3330

   From I-5: Take the Kent exit, (#149) onto 516, (Kent-Des Moines Road). Turn
   left onto Meeker at the stoplight at the bottom of the hill. Continue until Meeker
   passes under Hwy. 167 and curves to the left to become Smith. The library is at
   Smith and 2nd, on the right. To get to the parking lot, turn right onto 2nd, then
   left into the lot.
    From the south via 167: Take the first Kent exit and turn right onto Willis St.
    Turn left at the first stoplight onto 4th. Turn right at Smith and then right onto
    From the north via 167: Take the Kent-Auburn exit at Renton, and continue South for about 5 miles. Take the
    first Kent exit (84th Ave. S., turn left on Central/84th from either lane.) Turn right at Smith, (second stoplight
    after James). Cross the railroad tracks and the library is on the left.
    Bus routes: 150, 158, 159, 162, 164, 166, 167, 168, 169, 914, & 916. For more info:
    For questions, requests for interpreters or material in alternate formats please contact Betsy McAlister 425-
    882-2010 or

April 10, 2012; Attention Deficit Hyperactivity Disorder: A Review of Phenomenology
Diagnosis and Evidence Based Treatments; Seattle Pacific University; Demaray Hall,
Room 150, 7:00-9:00 pm. For more information please contact Bev Wilson, PhD,

April 12, 19, 26, & May 3, 10-2012: Helping the Behaviorally Challenged Child;
7pm to 9pm @ The Arc of King County; 233 6th Ave N, Seattle 98109
This 5 weeks session helps parents and educators understand and communicate with children in
order to solve behavior problems and build skills including flexibility, frustration tolerance and

 You will learn:
• What’s getting in your child’s way
• Why traditional behavior plans aren’t working
• Communication methods that will create solutions and foster independence
• Common roadblocks and how to deal with them
• How to help your child become a flexible, tolerant problem-solver
 Based in part upon the methods described in the book “Treating Explosive Kids: A
Collaborative Problem Solving Approach” by “Dr. Stuart Ablon and Dr.Ross Greene
*For more information on this method go to:

About the trainer:
Sara Gardner is the parent of a former "challenging" child, and has been a trainer for 25 years.
She teaches classes to parents and educators with children with disabilities as well as typically-
developing children. She is a Certified Professional Think: Kids trainer and works at Bellevue
College as program advisor for their Autism Spectrum Navigators program.
Fee: $90 per person, +$60 for second family member
Includes class material and email consultations with instructor during the class series.
Class size limited; Register by: Monday, April 9th

To register: Send the following to Sara Gardner 425-298-4409 :
WHAT IS YOUR: Name Address Phone Email
WHAT IS: Age of child IS YOUR CHILD: Verbal or non-verbal?
Checks can be made payable to Sara Gardner
Or you can pay through PayPal by going to
The book “The Explosive Child” is recommended reading.
You may order it through Amazon
or a limited amount of books will be available on the first day of class for $11.

April 14, 2012 Down Syndrome Community (DSC) Conference;
Blackriver Training and Conference Center in Renton.
The conference will be from 9:00 am to 3:30 pm with presentations and workshops on Nutrition,
Fitness, and Health. The Keynote address will be given by Joan Guthrie Medlen, R.D., L.D., a
dietician, the author of The Down Syndrome Nutrition Handbook, A Guide to Promoting Healthy
Lifestyles, and a Mom. Other presenters are listed in the brochure.

Community representatives of several organizations will be available for discussion, Woodbine
House books will be for sale and the DSC Library will be available for loans and returns.
We hope that you will be able to join us. Registration can be done by e-mail or regular mail
Anne Mullis; DSC Conference Coordinator; (206) 842-9027

April 14, 2012; Anat Baniel workshop in Bellevue, and free children's clinic; KIDS

Transforming the Lives of Children with Special Needs Taught by ANAT BANIEL; Workshop
for Parents and Professionals. You'll learn:
Innovative theory and practice to achieve breakthrough results with your child
The 9 essentials for waking up the brain and turning your child into a powerful learner
How to use innovative movement exercises to improve functioning
How children can improve far more and faster than their prognosis suggests
 Watch a short videoto understand what the Anat Baniel Method can do for your child.
 ** Free children's clinic on Sunday April 15 for parents who attend the workshop **
Call Meta to sign up.
Register online:
Information: Meta McDaniel (206) 898-3282

                                         Lifetime Secure Personal Assistance Network (LifeSPAN) presents…

                                         3-Part Wills & Estates
                                         Discussion Seminar – Limited to 12 families
 April 19, 2012                                        April 26, 2012                               May 3, 2012
Wills and Estates                                      Guardianship Options &                        Financial Vehicles &
                                                       Ensuring Choice & Safety                      Funding a Special Needs Trust
With: Law Offices of Larry A.                          With: Law Offices of Larry                    With: Jane Searing, CPA
      Jones                                                  A. Jones                                       Clark Nuber PS
Explore wills:                                         Consider:                                     Contemplate:
    Specific to the needs of a relative with a            Full and limited guardianships.              Funding a special needs trust
     disability.                                           Powers of Attorney                           Financial vehicles and trusts
    Inclusive of needs of the full family.                Other options to ensure choice and           Family financial planning for the
                                                            safety                                        future
About LifeSPAN:                                                              About the Presenters:
Lifetime Secure Personal Assistance Network (LifeSPAN) helps                 Larry Jones, Christy Ibrahim and Melanie Shaffer are attorneys with
families create safe, secure, quality futures for relatives with             The Law Offices of Larry A. Jones, a firm which has been specializing
disabilities. We are an independent non-profit registered in                 in legal issues for people with disabilities for many years.
Washington. Our Board co-presenters are family members of          
relatives with disabilities and leaders in advocacy for individuals with
disabilities. We are the first U.S. and international affiliate of PLAN™     Jane Searing is a tax shareholder with Clark Nuber PS, an
of British Columbia (helping families to plan for the future for more        accounting firm which provides tax, audit and investment services.
than 20 years). (“TM” denotes the trademark of PLAN, used under license to   Clark Nuber works with individuals, family businesses and nonprofit
LifeSPAN.)                                                                   organizations. Jane also has both a sibling and a son who have
                                                                             special needs and qualify for assistance.
All Presenters have donated their time & expertise                 

Dates: April 19 & 26, May 3                                                  Advance Registration Needed By April 12
Thursday Evenings, 7:00 to 8:30 pm
                                                                             $150 per family – all 3 sessions (2 people max) $_____
Place:       Coal Creek Family YMCA
             Breakfast Rotary Meeting Room
             13750 Newcastle Golf Club Road                                  Total people registering: #____             Total $_____
              Newcastle, WA 98059
                                                                             Name(s) ____________________________________
Cost:     $150 for the three-session series                                  ____________________________________________
          (Attendance limited to 12 families)
Fee is for the workshop. As an added benefit, the fee                        Email ______________________________________
includes A GOOD LIFE book by PLAN™ co-founder Al
Etmanski ($39.99 value). Attendees who have a copy of the                    Phone (________)____________________________
book are encouraged to give their additional copy to a family
member, friend, or to donate it to LifeSPAN for community                    Address ____________________________________
outreach. Thank you.
Directions:                                                                  City _____________________ST______ Zip_______
      From I-405 Southbound, , take Exit 10 (Coal Creek
          Pkwy); Left on Coal Creek Pkwy SE toward Factoria                  Payable to LifeSPAN. Online registration available
          Blvd and follow for 2.3 miles; Left on Newcastle                   at, or mail to:
          Golf Way; Left on Newcastle Golf Club Rd – YMCA                    1801 130th Ave. NE, Suite 220, Bellevue, WA 98005
          will be on your left                                               tel…425-883-9867
      From I-405 Northbound, take Exit 10 (Coal Creek
          Pkwy); Right on Coal Creek Pkwy SE toward
          Factoria Blvd and follow for 2.3 miles; Left on
          Newcastle Golf Way; Left on Newcastle Golf Club
          Rd – YMCA will be on your left

April 21, 2012 It’s Natural to Belong;
9:00am - 2:00 pm; The Arc of King County; 233 6th Ave N; Seattle, WA 98109
Creating Community Opportunities for People with Disabilities
Facilitators Melanie Richardson and Keri Parker- Community Guides from Total Living Concept

As parents, we struggle with how to create meaningful lives for our children with disabilities.
We want them to belong and participate in activities that they enjoy.
Get started by joining us as we share resources and find opportunities that best match your son's
or daughter’s interests.
Although this workshop is geared for teens and up, it is never too early to start thinking about
ways to build community for your child.

Learn to:
-Identify your child’s interests
-Discover new and old community resources
-Develop connections based on shared interests
-Discover if a place is the right match
-Troubleshoot situations that don’t go as planned
-Discuss the barriers, fears and challenges for which we often struggle to find solutions.
-Brainstorm ideas specific to your child
Click here to RSVP: R.S.V.P. for It's Natural to Belong
There is no fee for this event, so bring a sack lunch and network with other parents during the
lunch break. For questions, email Julie Caplan at or leave a
message here: 206-829-7046.

April 23-25th; The Disability Policy Seminar;
National conference in Washington D.C.

April 24th, 2012; From Single Syndromes to Shared Pathways: Implications of Genetic
Diagnoses for People with Intellectual Disabilities; Brenda Finucane, MS, CGC
9:00 AM - 4:00 PM Location: Shoreline Conference Center Auditorium
18560 1st Ave NE, Shoreline. WA 98155 (Corner of 1st NE and NE 185th)
Free Training Sponsored by DSHS Division of Developmental Disabilities Region 2

                             Genetic factors play a major role in causing intellectual disabilities. Advances
in diagnostic testing have identified many distinct genetic syndromes associated with cognitive and
behavioral symptoms. The study of shared biological pathways demonstrates how different genetic
disorders can all result in similar behavioral outcomes, including autism. This training will build on last
years’ presentation by Ms. Finucane, covering other genetic syndromes. She will review basic concepts
in diagnosis and genetic testing. Current approaches to intellectual disabilities research will be described,
including updates on targeted pharmaceutical treatments for some conditions. The practical implications
of genetic diagnoses in school, work, and residential settings will be illustrated through descriptions of
specific conditions, including: Cornelia de Lange, neurofibromatosis, untreated PKU, and several others.

                                 Brenda Finucane, MS, CGC is a certified genetic counselor and the
Executive Director of Elwyn Genetics. She is widely published and has gained international recognition
for her expertise in the behavioral and cognitive manifestations of genetic syndromes. Ms. Finucane
serves on the scientific advisory committees of several genetics support organizations and is the 2012

president of the National Society of Genetic Counselors. For over two decades at Elwyn, Ms. Finucane
has worked to create practical services that address the educational, behavioral, and health needs of
people with genetic conditions.

To Register: Email Please type “Genetics” in the subject line and include
the number of people attending and each name, your email address and phone number. If you
need a sign or language interpreter, please include this in your email. Must request at least two
weeks prior. ****Please note: Lunch is on your own and there are several area restaurants*****

April 25th, 2012, Newcastle Family Networking Meeting; 6:00 pm
Coal Creek Family YMCA; 13750 Newcastle Golf Club Rd
Newcastle, WA 98059; (425) 282-1500
The meeting is a pot luck, I will bring water, soda, plates and plastic ware.

The Topic will be APPS And iDevices.

I will bring 5 iPads, an iPod and a couple iPhones for us to share. Please bring your own devices
if you have them and APP ideas to share with the group. If you have Android devices please
bring them and share with the group as well.

It's been about at year since we last did this and I will be interested in how your family members
are using the devices and what you/they have learned while using one.

Also mark you calendars for the Ballard Cook-Off on May 22nd.
Please join us! See you on the 25th!

Sherry McNary; W.i.S.e.; My Home, My Life Family Network; 206.391.8200

April 26th, 2012 Auburn Family Networking Meeting: 6:00 pm;
Trillium Employment Services; 201 Auburn Way North Suite “B”
Auburn WA

The meeting is pot luck meeting I will be bringing plates, plastic ware, napkins, water and soda.
Our Speaker will be: Christina Brandt; Chief Executive Officer AtWork!
Changing the Face of Employment

Chris is going to be sharing with us information on the Kiwanis Aktion Club! Please bring your
son or daughter to this meeting, Aktion clubs are a great way for our family members to network
get involved and connect with the community

Kiwanis International is a global organization of volunteers dedicated to changing the world one
child and one community at a time.

Sherry McNary; WiSe; Washington Initiative for Supported Employment
My Home My Life Family Network; 206-391-8200

April 28th, 2012; Inclusion Conference; Sponsored by the NW Down Syndrome
Conference-(but it is cross disability)
8:30 AM – 5:30 PM; Ambridge Event Center; 1333 NE MLK Blvd; Portland OR 97232
Free at Shoreline Conference Center. Enter near tennis courts with overflow parking on SW
corner of the conference center. Over 20 different sessions will be offered. Tools, networking,
and inspiration for parents and professionals.

May 2-4, 2012: Infant and Early Childhood Conference; Click here for more info.

May 12, 2012 Seattle Public Schools Family Symposium.
“Building Bridges for Summer Learning,” Chief Sealth High School in West Seattle 9:30-2:30
Please spread the word to other organizations, and especially to families. This is a chance for
families to learn about ways to help their children maintain the gains they’ve made during the
school year and about summer programs serving youth and families. Workshops will address a
spectrum of ages and issues. A light breakfast and lunch will be offered, as well as supervised
children’s activities. Contact information Bernardo Ruiz (206) 252-0693
Thank you. Mary Fickes; RTL Kindergarten Transition Support Specialist
John Stanford Center - Seattle Public Schools; 206.252-0127;

May 17, 2012: Understanding the Law: Special Education & 504 Services in the Public
Schools; Lecture in Seattle presented by the WA State Branch of the International Dyslexia
Association. Click here for more info.

June 4, 2012“Challenges in Caregiving: Giving Care, Taking Care”;
Tukwila Community Center (12424 42nd Avenue South, Tukwila). It is a day-long
conference. Call 800.725.2544, or email, to request
registration materials.

June 7, 2012; Save the Date! Children’s Alliance Voices for Children Luncheon
Thursday, June 7, 2012 from 11:30 am to 1:30 pm at the Bell Harbor Conference Center in
Seattle. For information, reservations, or to become a table captain, please contact Deborah at
206-324-0340 x11 or If you would like to nominate an
outstanding child advocate to be recognized at the event please complete a nomination available

June 22, 2012; Putting the Pieces Together
Networking & Professional Development Conference
South Seattle Community College; Join 400+ early learning, child & youth development
professionals, youth, parents, and volunteers from throughout King County to share visions,
ideas, strategies and more!

July 10, 2012; Parent Advocacy Training Program; Seattle University School of Law
8:00 am – 4:30 pm
Refreshments: Continental breakfast, morning and afternoon breaks
Location: Seattle University School of Law
Registration Fees:
$30 for Morning OR Afternoon Program
$50 for Both Programs (includes lunch)

Online Registration:

Program Details:
Morning: 9:00 am – Noon

Bullying and Children with Disabilities
James D. Gerl
Scotti & Gerl
216 South Jefferson St.; Lewisburg, WV 24901-1317
(304) 645-7345;;

Jim Gerl is a special education law consultant and is licensed to practice law in West Virginia,
Illinois and the District of Columbia. Jim is the author of the award winning Special Education
Law Blog, He has served as a mediator and a
hearing officer for West Virginia since 1989, and he now also serves as a hearing officer for
Utah; Washington, DC (also mediator); Pennsylvania (five counties and one IU); and Alaska
(conflict cases only). He has spoken on special education law topics at numerous state, regional
and national conferences, and he is a regular faculty member for the conferences of the National
Association of Hearing Officials. Jim has trained hearing officers from all states, and works with
a number of state departments of education. He has consulted with federal officials, including the
Secretary of OSERS and the Director of OSEP, concerning rural special education issues, and he
has served on a dispute resolution review panel for OSEP. Jim has received a B.A. from the
University of Illinois-Urbana with departmental distinction in political science; a masters degree
in public policy analysis from the University of Illinois-Chicago; and a law degree from the
University of San Francisco.

Afternoon: 1:15 – 4:30 pm

Mediation of Special Education Disputes
Greg Abell; Senior Partner
Sound Options Group LLP
P.O. Box 11457; Bainbridge Island, WA 98110-5457
(800) 692-2540;

As the senior partner of Sound Options, Greg coordinates the design, implementation and
delivery of all services. His particular area of expertise is in assisting agencies, organizations and
communities in designing and implementing systems for more effectively managing conflict, and
facilitating productive and collaborative work environments. He is experienced in mediating
highly contentious, multi-party community and institutional disputes. Greg’s practice as a
conflict resolution professional is driven by a core belief that everything of importance happens
within the context of interpersonal relationships. He believes that one of him strengths is his
ability to weave his experience into his consulting and teaching as he assists individuals and
organizations in reducing the costs of conflict. His background in psychology led to an interest in
mediation, and in the late 1980s he served as a founding member and the first Board President of
the Kitsap County Dispute Resolution Center. During the last 10 years, he has been a senior
consultant to the Consortium for Appropriate Dispute Resolution in Special Education (CADRE)
and Board President for the Washington Mediation Association.

Upcoming The Arc of King County Luncheon
5th Annual Legacy Luncheon May 24, 2012; Marion Oliver McCaw Hall at Seattle Center
321 Mercer Street, Seattle 98109

3 Ways to get involved:
Nominees for the Legacy Award – We are looking for individuals who have made a significant
difference in the lives of people with developmental disabilities.
Table Captains – We are looking for table captains who will sponsor or fill a table with their
friends, colleagues and families in support of The Arc.
Event Sponsors – We are looking for businesses, organizations and individuals who want to
sponsor the event at a variety of levels.

For more info about the Living Our Legacy Annual Awards Ceremony & Fundraising
Luncheon, please contact Adrianne Oglesby at 206-829-7008 or

Buttons which record information
Talk Point™, Set of 5 - ESL/ELL - Shop by Category - Teachers - Learning Resources®
Thanks to Nizar Hasan Ali
Simple buttons record and replay up to 10 seconds of clear sound. Use for activity instructions,
reminder messages, word or sound practice, math fact exercises, speech therapy and more.
Provide immediate self-assessment. Record and re-record instantly, or flip the switch to lock.
Five bright colors. Measures 1 3/4" in diameter. Grades PreK

New housing locator service off to a strong start
February 29, 2012
King County and the City of Seattle are pleased to announce the launch of a FREE housing
locator website providing information about rental housing, called It is
a web-based service supported by a toll-free, multilingual call center that lets landlords advertise
properties free of charge, while renters can search for free to find rentals that fit their needs.
As of last week, the site offered 1,221 individual vacancies for rent, with more than 18,550 rental
units registered on the site. The number of searches taking place on the site on a daily basis has
increased steadily, and the site is now averaging between 900 and 1,000 searches a day.

Properties listed on include a wide range of private market and assisted
housing across King County. Prospective tenants can search for rentals according to specific
needs, such as affordability, proximity to medical facilities, public transit and schools. Listings
can be sorted by rent amount, ZIP Code, date available and other important
factors. offers landlords 24-hour access to managing, adding and
updating property listings, and listings can highlight amenities and include photos.

Residents can search and list online at 24 hours a day or call a toll-
free, bilingual call center for assistance: 1-877-428-8844, Monday through Friday, 6 a.m. to 5
p.m. Pacific Time.

The site will be an especially helpful resource for social service agencies and nonprofit housing
providers. A training for people who want to learn more about using the site is being provided by

webinar on March 8, at 1 p.m. Pacific Time. Those interested in this free training can email to register.

We encourage you to try this invaluable resource! Organizers will be working with media in the
coming week to bring additional attention to the site. Ongoing marketing and outreach efforts are
designed to ensure that our community takes full advantage of this service. is sponsored by the City of Seattle, King County, United Way of King
County, Seattle Housing Authority, and King County Housing Authority. The Rental Housing
Association and the Tenants Union have also supported its development. For more information
about Housing Search Northwest, the consortium sponsoring,
contact, or call Jenna Smith, Seattle Housing Authority,
at 206-239-1717.

Fathers Day Camp Site
Just a note to all who are interested.
Anacortes Parks Dept and our Aktion Club Kiwanis service group will be removing and
installing new roofs on the picnic shelters at Washington Park in April. Other work will be
performed based on volunteers who show up. Some of you showed some interest in helping out.
If that is still the case get back to me at and I will give you more specific
details as I receive them.

We are looking at electricity, hot water, dry / clean fire pit area with possible benches, foot
bridge over swampy area to bathrooms and more.
Thank you; Ed Gegen

OEO Welcomes New Seattle Public Schools Ombudsman
Ron McGlone is the recently appointed Seattle Public Schools Ombudsman. His appointment
comes on the heels of Portland Public Schools also creating the same new position. Both Seattle
and Portland officials consulted with OEO when they were considering creating these offices.

"We are delighted that they both decided to go ahead and hire Ombudsmen. Here in Seattle, we
have worked with Ron McGlone and are happy that he is the new Ombudsman. OEO needs all
the help we can get as our overall complaint numbers continue to rise across the state while our
resources continue to decrease." said Adie Simmons, OEO Director.

This school year, the Office of the Education Ombudsman has so far intervened in 51 complaints
regarding Seattle Public Schools, 50% of them were related to Special Education. Last school
year, OEO responded to nearly 1,000 complaints from 156 school districts around the
State. From that total, 104 complaints were about Seattle schools, and 40 % of them were related
to Special Education.

New! When IEP Services are NOT Delivered
Wrightslaw; March 20, 2012
Once you accept an IEP, the school system must provide all the services described in that plan
right away, unless the IEP states that some services are to start at a later time.
A day or two without a service may warrant only a comment or note to the teacher. Continuous
or repeated loss of a service for several weeks may call for more formal action. There are steps
parents can take...
When IEP Services are NOT Delivered by Parent Attorney Robert Crabtree.
Does the District Need to Make-Up Therapy Sessions?
Since we signed my daughter’s IEP, she has missed 6 sessions of weekly OT. Does the district
need to make up these days?
The school needs to make up any missed time on items required in your daughter’s IEP and/or
provide a qualified substitute.
A regular ed student gets a substitute when the regular teacher is out for some reason. Why
would the special ed student any different?
Get tactics and tips in Does the District Need to Make-Up Therapy Sessions? by Ohio Advocate
Sharon Lutz.

UW Autism Center- two announcements.
Greetings! We have two new upcoming activities to tell you about...
First, the UW Autism Center is excited to announce our newest clinic program- Stepping Stones!
The Stepping Stones Program is designed for parents and caregivers of newly diagnosed young
children. Our first workshop will focus on "Getting Started," and will be held on
 Saturday March 31 from 12:30-4:30pm. Our autism specialists will provide tips and activities to
help parents and other caregivers learn strategies for understanding, teaching, and having fun
with their child. This workshop will be conducted in a small group format, and is geared for
parents and caregivers of children 5 years old and younger who are either non-verbal or have
emerging communication skills.

For more information:

Second, our director, Wendy Stone, will be providing a STAT Training Workshop in May at the
Infancy and Early Childhood Conference in Tacoma. The STAT (Screening Tool for Autism in
Toddlers) is an interactive screening measure for educational and community professionals
 working with young children. The twelve STAT activities assess social and communicative
behaviors that not only screen for autism, but also provide information that can be used for
planning teaching goals and activities.

For more information about this workshop, please see the STAT flyer attached to this email. For
more information about the STAT, please see our website:

Kara Haney | Resource Coordinator | UW Autism Center
Information and Resource Line 1.877.408.UWAC
T: 206.685.1272 | F: 206.598.7815 |
CHDD Box 357920 Seattle, WA 98195 |

Snoqualmie Valley Challenger Baseball
Dowload flyer (DOCX | 59KB)
Sign up now for Challenger Division Baseball Baseball for children with special needs
Challenger is a Little League program to provide baseball to all children with special physical
and/or mental needs for ages 5 to 18. Games and practices are adapted to fit the needs of the
players so they may participate to the best of their capabilities and learn a little about baseball.
Each player will be assigned one or more “buddies” depending on need. Buddies will be on the
playing field with them at all times. A team of coaches will support the players and buddies
throughout the season.

Games and practices will be held on Sunday afternoons with a majority being at our home
field. Some games may occur at the home fields of other Challenger teams. This will likely start
in mid-to-late April and continue into mid-June. We are fortunate to have other Challenger
programs in the area. We look forward to playing some games with them, both at home and on
their fields. All players will be on the field, there is no limit to the number of fielders. Batting is
done from a tee, with additional support and modifications if needed. If some players opt to have
a coach pitch to them, this may be done as well on a per-batter basis.

This program is still new to the valley and we are very excited to offer it for the 2ndyear. Please
help us SPREAD THE WORD by sharing the website, the information page, and
my email address. We need YOU to make Challenger successful!

If you are interested in supporting Challenger as a coach, a buddy, or a fan, please contact us.
Registration is available at the cost is $35.

Additional questions can be directed to
Stacey Cepeda; Director – Challenger; Sally Rasmussen, Charlie Carman; Challenger Committee

Survey for High School and Transition Services Graduates 2008-2014
In 2010, when our 21-year-old son graduated Transition, we realized how unprepared we were
(him and us) to deal with Educational, Employment and other Adult Services post graduation.

Two years later, we are still learning!
Has your young adult already graduated High School / Transition Program?
Is your young adult scheduled to graduate High School / Transition Program within the next few
years? Please take 3 minutes to complete the attached survey below!
(Copy and paste link below to your browser)

What is the purpose of the Survey / How will Survey results be used?
Survey responses will provide important information to guide the development of a pilot Young
Adult Program / Community that would offer:
1.    Support for post-school Young Adults to participate in experiential and aptitude / interest
assessment that will help inform their choices for engagement in work, living, social /
recreational and educational /training activities.
2. Education / information for parents / families about available resources in the community.

How / Will I be notified of the results of the survey?
The Survey results will be compiled at end of March and posted to all distribution lists;
Individuals that provide contact information may be contacted individually.
Thank you for your time! Pauline Ohare;; 425-417-5187

Age 18+ Summer Program
UW CARE Clinic launches the Networking Project, its first foray into day programming for
young adults with neurodevelopmental disabilities. The Networking Project is a six week day
program that aims to address adult transition and community integration challenges. The
Networking Project provides opportunities that help our young adults achieve success in school,
at home, in the workplace, and in society. To ensure that each and every participant is actively
engaged and productive, the Networking Project will have a ratio of 1 staff for every 2
participants. When: July 9 - August 17, 2012 (6 weeks) Monday - Friday, 9:00 AM - 4:00 PM

Who can apply: We accept applications from young adults, 18+ years old. We will form groups
at all levels and will match students along the dimensions of age and social compatibility,
ensuring an optimal Networking Project experience for all participants.
Application Deadline: May 15, 2012 Flyer & Application:
TUITION; Daily Rate $119/day ($17/hour) Participants attending at least 3 days/week will be
given priority. Weekly Rate $560/week ($16/hour) Participants attending at least 2 weeks will be
given priority.

KidsCount in Washington website launch!
KidsCount is a partnership between Children’s Alliance and the Washington State Budget &
Policy Center to gather and analyze the best emerging data on how kids are doing in our state,
and then turn that information into action on issues like poverty, hunger, health care, and
education. Learn more about KidsCount and order a “State of Washington’s Children” report by
visiting the recently launched KidsCount website.

Washington Counties and DDD Employment Supports Performance Outcome
Information System Website
I am pleased to forward to you the DSHS news release announcing the Washington DDD
Counties Employment Supports Performance Outcome Information System. The website URL

The website is the result of active collaboration between employment providers, counties, Aging
and Disabilities Services Administration, DDD, the Institute of Community Inclusion at the
University of Massachusetts Boston, and Washington’s membership in the State Employment
Leadership Network.

DDD, counties and providers are often asked for information about employment services. This
website provides anyone with internet access the opportunity to easily obtain reports of
Washington’s employment data for people with developmental disabilities. Reports are available
at a variety of levels- statewide, regional, county and provider. The reports summarize data from
DDD funded employment supports administered by Washington’s 39 counties. Employment
outcome data is available from July 2007, and is current up to the most recent completed records
upload - approximately four months prior to the current date (right now, November of 2011 is
the most current month available).

The website data reflects the individualized data reported monthly by service providers
statewide, including but not limited to hours of service received in employment and day
programs, hours worked and earnings, level of support need, type of residential setting and age
of individual. A query function also allows users to create individualized reports and graphs to
depict employment trends and outcomes.

If you are curious about national employment outcome, the Institute of Community Inclusion
annually publishes “State Data: The National Report on Employment Services and Outcomes”
found at:

I welcome your thoughts, and if you have questions about employment outcomes or services in a
particular area of our state, you are encouraged to contact the county coordinator for developmental
disabilities identified in the “Feedback” tab of the website.
Please forward this announcement to individuals, families, staff and community
members interested in Washington’s employment outcome information.

Jane Boone; Department of Social and Health Services; Employment Partnership Program
Manager; Division of Developmental Disabilities; 206-568-5628

Resources from Parent to Parent:
Thanks to Susan Atkins
Child Health Notes are a Medical Home tool developed in Washington State to provide
information for early identification and management of special health and developmental

WithinReach is a resource that can link families and providers to the many public agencies and
private non-profit organizations that can help meet a variety of health information, disease
prevention, and community resource needs of Washington's families.

Parenthelp123 (a program of WithinReach) - Toll-free Family Health Hotline: 1-800-322-2588
connects families to WIC, Medicaid, free and low-cost immunization clinics, breastfeeding
support, child development screening services, family planning resources, and resources for
families with children with special health care needs.

The Spring 2012 edition of the Child Health Notes Newsletter
is now available online at -- See right side column of page to
download the newsletter including topics on well-child care for CSHCN and making the most of
Early and Periodic Screening, Diagnosis, and Treatment (EPSDT).

From: Informing Families Building Trust []
Sent: Thursday, March 15, 2012 11:30 AM
Subject: New B-3 Transition Bulletin & Office of the Education Ombudsman

 New IFBT Bulletin Focuses on Age 3 +                                      Quick Links
                                                                             IFBT Website
 The newest series of Informing Families Bulletins focus on life             DDC Website
 transitions. Our first bulletin helping families with children
                                                                             DDD Website
 ages three to six make the transition from Birth to Three to
 public school services.
 Go to Informing Families site | Go directly to the bulletin

 Office of The Education Ombudsman
 The Office of Education of Ombudsman (OEO) works to resolve
 complaints, disputes and problems between families, students,
 and public schools in all areas that affect student
 learning. Their brochure "Resolving Conflicts with Schools: A
 Guide for Families" offers clear steps on how to address
 differences with schools and school staff. More about the Office
 of the Education Ombudsman and the brochure (in English and
 Spanish) is available at our website.
 Go to the Informing Families website

 Washington State Developmental Disabilities
 Council Recruiting for New Members
 In our last bulletin we shared about volunteer opportunities with
 the Washington State Developmental Council. The Council is
 seeking candidates to fill open positions that are appointed by
 the Governor.

 Council membership includes self-advocates and family
 members representing the cultural and geographical diversity of
 Washington. Council members hold a three-year term and are
 eligible for reappointment to a second term.

 For more information about becoming a Council member, visit
 the "Become a Member" page of the DD Council website.

From: Informing Families Building Trust []
Sent: Wednesday, March 21, 2012 11:30 AM
Subject: Autism Trainings & Caregiver Conference

 Stepping Stones - Autism Workshops                                        In This Issue

 The University of Washington Autism Center's Stepping Stones              U of W - Autism
 Program holds one-day workshops to help parents and other                 Workshops
 caregivers to learn skills and strategies for understanding,
 teaching and having fun with their child with autism. Upcoming            Get Informing Families at
                                                                           Your Event
 one-day workshops are scheduled for March 31, July 14 and
 October 13, 2012. Advance registration is required and space is
 limited. More information about the workshops is at the IFBT              Caregiver Conference
                                                                           June 4
 Go to the IFBT website
                                                                           Newest IFBT Bulletin
                                                                           Focuses on Ages 3-6

 Invite Informing Families to Your Event                                       Quick Links

 The Informing Families Building Trust                                           IFBT Website
 project wants individuals with developmental
                                                                                 DDC Website
 disabilities and their families to get access to
 information. You may not know about two                                         DDD Website
 other ways we are trying to help get
 information out: attending community events
 and sending out materials (brochures, DVDs,
                                                      Informing Families
 paper newsletters) directly to those requesting          Display at
 them.                                                 Thurston County
                                                        Transition Fair
 Currently we are doing some public outreach

 at community events, such as transition fairs, family support
 events, conferences and more. If you're interested in having us
 come to your event, contact Eva Rooks by email.

 If you have a smaller event, or would just like to have some
 Informing Families materials for yourself or to share with others,
 you can go to to the Informing Families order page and request
 that Informing Families Building Trust DVDS, pamphlets and
 other information be sent to you.
 Caregiving Conference June 4, 2012
 The Department of Social and Health Services Aging and
 Disability Services Administration, Full Life and Pierce County
 Community Connections are partnering to host "Challenge in
 Caregiving: Giving Care, Taking Care: A Conference for Family
 and Paid Caregivers". This one day conference will be held at
 the Tukwila Community Center on June 4, 2012 from 9:00 AM
 to 4:30 PM. A flyer about the conference is at our website.

 Latest IFBT Bulletin Focus: Kids Ages 3-6
 As we discussed in our previous newsletter, the latest series of
 Informing Families Bulletins focus on life transitions and our first
 bulletin in the series foruses on helping families with children
 ages three to six in making the transition from the Birth to
 Three program to the public school system. In case you missed
 it, we are featuring it again.
 Go to Informing Families site | Go directly to the bulletin

From: Informing Families Building Trust []
Sent: Wednesday, April 04, 2012 11:30 AM
Subject: New High School Transition Bulletin and National Sibling Day

 Transitions Part II: Life After High School                            In This Issue
 In our March 15 Informing Families newsletter we introduced a          High School Transition
 new series focused on transitions. Our first bulletin focused on
 the multiple transitions that occur when children move from            Importance of Siblings
 Birth to Three to the public school system.
                                                                        Informing Families Goes
                                                                        on the Road
 Our next two bulletins focus on preparing for life after high
 school. Topics covered in this bulletin include: preparing for
 work, post-secondary education, and self-advocacy.                         Quick Links

                                                                              IFBT Website

 Go to Informing Families site | Go directly to the bulletin                    DDC Website

                                                                                DDD Website
 New Bulletin Focuses on Importance of Siblings
 Tuesday, April 10 is National Siblings Day. A new Informing Families
 Bulletin talks about the important role siblings play in the lives of        ABOUT IFBT
 people with developmental disabilities. It offers some resources just
 for siblings.
                                                                         Informing Families Building
                                                                               Trust (IFBT) is a
                                                                          collaborative effort of the
 In addition, the National Arc and the Sibling Leadership Network is          Washington State
 offering a free webinar for siblings and others on April 10. More       Developmental Disabilities
 information about the is on the bulletin page of our web site.           Council, the Washington
                                                                               State Division of
 Do you have tips about how you encourage the relationship of your       Developmental Disabilities
 child with developmental disabilities and your other children? Share        and other partners.
 them on our Facebook page.
                                                                           The purpose of IFBT is to
                                                                          provide information about
                                                                              issues, services and
 Go to Informing Families | Go directly to the IFBT bulletin page            supports that make a
                                                                            difference in the lives of
                                                                                 individuals with
                                                                          developmental disabilities
 Informing Families Goes on the Road                                            and their families.
                                                                         If you have information you
                                                                           think would be helpful to
 Informing Families Building Trust was at the Family Support and
                                                                             individuals or families
 Spokane County Transition Fair on Friday, March 30. The                  please feel free to contact
 Spokane Community College Student Union Building was filled                           us.
 with students, teachers, parents and local agencies, all coming
 together to think about life's next big steps for this spring's
 graduates. Informing Families Building Trust materials went
 fast, especially information about guardianship, housing and the
 Life Opportunities Trust.

 If you'd like to get Informing Families Building Trust information
 at your next event, you can invite us or go to our Order DVDs &
 Materials page to request them. The materials and postage are

Parent Coalition members in the news:
Parent Coalition member Patty Fitzpatrick’s daughter Kori in the news
Supported Employment featured on Seattle Channel!

Parent Coalition Member Danielle Olsen and her son at their local town hall meeting:

Update Metro September Service Changes
In recent months, you've helped Metro hear from nearly 10,000 transit customers about our
proposals to restructure bus service to be more productive and meet the needs of more people.
That public input has helped shape the final September 2012 plan being submitted to the
Metropolitan King County Council next week.

Most of the final recommendations support the launch of the RapidRide C and D lines that will
connect downtown Seattle to Ballard and West Seattle starting on Sept. 29. For that reason, the
changes primarily affect service in Seattle and adjacent communities. Some of the revisions,
such as the recommended changes to the routes 10, 11, 12, 123, and 125 will also improve the
flow of buses through downtown Seattle, which will produce significant efficiencies for Metro’s
overall system. Not all of the changes originally proposed for this September will be part of the
final plan. Some are being postponed for now, but could happen in the future. Several ideas
needed further review and analysis.

The following list highlights changes that have been made to the original proposals:

Postponing all routing changes to the 2 (north and south parts), 4 (north and south parts), 13, 14
(south part), 16, 24, 27, and 33;
Considering small changes to frequency and spans of service for routes 14 (north and south
parts), 24, 27, and 124 to better align service with ridership during the evening hours;
Providing service to 32nd Ave NW and North Beach via a new Route 61;
Retaining weekday and Saturday service on Route 125;
Providing service to Nickerson Street on Queen Anne by revising Route 2 Express to provide
peak service from Nickerson Street to downtown Seattle, and retaining Route 17 during weekday
peak periods to provide service from downtown Seattle to the Ballard business district
(northbound in the morning and southbound in the afternoon, with trips timed to meet Sounder
Commuter Rail trips to/from Tacoma);
Retaining service to the VA hospital on Beacon Hill with the new Route 50 and proposed Route
Revising new Route 50 to serve Alaska Junction and the North Delridge neighborhood; and
Revising Route 156 to maintain service on S 216th Street and 8th Avenue S between 200th and
Des Moines Memorial Drive S.

You can learn more about the final recommendations, by visiting:

People will have an opportunity to comment on the final September transit service plan at a
scheduled public hearing of the King County Council’s Transportation, Economy and
Environment Committee on Monday, April 16, from 6:00 pm to 8:30 pm at Sound Transit’s
Board Room at Union Station (401 S. Jackson Street, Seattle). Members of the public are
welcome to attend the meeting and to testify concerning the recommended service changes.
There will be an open house at 6:00 pm, presentation at 6:30 pm, and opportunity to provide
public testimony at 7:00 pm. To request a language interpreter or accommodations for persons
with disabilities, please contact Paul Carlson, Council staff, at (206) 296-1673 by April 9. You
may also submit comments to the King County Council email address for this topic at

The September service change will be one of the largest in Metro's recent history. Since the
September service change will take affect at the same time as the elimination of the Ride Free
Area, we need your help to begin letting the people you serve know about these changes.
Ashley DeForest and DeAnna Martin
Community Relations Planners
King County Department of Transportation

Renton Family and Fight for Insurance Reimbursement

Dear Interested Parties:

The following is a list of HCA’s recent rule-making activity. Just click on the link below the
WAC description to access the notice.
Proposed Rule Making (CR-102) (Public Hearings)

       Chapter 182-535 WAC, Dental-related Services, (WSR #12-06-038)
       Purpose: Upon order of the Governor, the Agency reduced its budget expenditures for fiscal year
       2011 by 6.3%. To achieve the expenditure reduction required under Executive Order 10-04, the
       Agency took the following actions:
       · Effective January 1, 2011, the Agency eliminated dental-related services from program benefit packages for clients
           21 years of age and older, except clients whose care is managed by the Division of Developmental Disabilities, and
           implemented an Emergency Oral Health Benefit for all other adult clients.
       ·   Effective July 1, 2011, in addition to clients whose care is managed by the Division of Developmental Disabilities,
           the Agency reinstated comprehensive dental coverage for certain clients 21 years of age and older, as specified in
           the proposed rules.
       ·   Effective October 1, 2011, the Agency reduced eligibility for the comprehensive dental benefit for certain clients of
           the Division of Developmental Disabilities, as specified in the proposed rules.

RULE Making Order (CR-103)

       WAC 182-543-5500, -9100, -9200, -9300, -9400, Durable Medical Equipment, (WSR #12-07-
       Purpose: During the reorganization of Chapter 182-543 WAC, long-standing policy language
       regarding reimbursement was unintentionally deleted. This rule making action reinstates the
       language that was deleted. This rule revision also clarifies in WAC 182-543-5500 that prior
       authorization is required for the purchase of replacement batteries for wheelchairs.

EMERGENCY Rule Making Order (CR-103)

       WAC 182-543-5500, -9100, -9200, -9300, -9400, Durable Medical Equipment, (WSR #12-07-
       Purpose: During the reorganization of Chapter 182-543 WAC, long-standing policy language
       regarding reimbursement was unintentionally deleted. This rule making action reinstates the
       language that was deleted. This rule revision also clarifies in WAC 182-543-5500 that prior
       authorization is required for the purchase of replacement batteries for wheelchairs.

You may also view these and other recent HCA rule-making notices at our WAC Notices Web

March 30, 2012

TO:              Interested Parties

FROM:            Aging and Disability Services Administration

SUBJECT:        CR-102 for Personal Care Hours

The department is amending rules to revise the assessment process for allocating personal care hours to
disabled children as a result of the Washington State Supreme Court decision regarding the Samantha A.
v. DSHS. Additionally, effective February 1, 2012, the department eliminated the add-on hours for off-
site laundry and add-on hours to those clients living more than 45 minutes from essential services as a
result of the department’s need to stay within budget appropriations.

To view the CR-102 and rules, go online to:

A hearing on these rules will be held at:
Office Building 2 – Lookout Room (4th Floor)
(DSHS Headquarters)
1115 Washington
Olympia, WA 98504

A map is available at:

Date:   May 8, 2012 at 10:00 a.m.

To: King County Parent Coalition for Developmental Disabilities (Emailed 4/5/12)

Lance Morehouse, Coordinator
Betsy McAlister, Assistant Coordinator
Joanne O’Neill, Training Coordinator
Sandy Dempsey, Assistant Coordinator


We have received many calls from families over the past year about reductions to Medicaid
Personal Care (MPC) Hours. While we understand the difficulties facing our state because of
budget deficits, we also understand the impact on individuals and families when MPC hours are
reduced. These reductions are affecting both children and adults.

We are sending this email to provide additional information about why these reductions are
occurring. Please click on the first link below to see the reductions to base hours that have been
implemented by an emergency change of rules. This change applies to both children and adults
and reduces the maximum number of hours possible through the DDD assessment. There is also
an opportunity below for people under 21 years of age to become part of a class action lawsuit
dealing with the reductions in hours to people under 21 years of age.

I just spoke to DDD Central Office and I received the following update on children’s
reassessments for MPC hours. As of March 30th, DDD has conducted 74% of the children’s re-
assessments that are required by a recent lawsuit. At this point, 78% of children assessed have
received a reduction in hours and 18.3% have received an increase while the rest have received
no change. The average reduction has been about 10% or 7.9 hours per month. DDD hopes to
conduct all of the remaining assessments b April 30, 2012 and have them all completed and final
by the end of May.

I have also requested some data about the adult assessments that have taken place over the past
year. We will pass that along to you as soon as we receive it.

We have decided to document the reductions in hours to families in King County to possibly use
in advocacy in the future. If you have received a reduction in MPC hours over the past two years
we would like to hear from you. We are collecting information on both children (under age 21)
and adults (21 years and older). Please contact Betsy McAlister at or 425-882-2010 with information about MPC hours. Because
we know that many people have received reductions in the past two years, please be patient and
brief when contacting Betsy. We are looking for some basic info including the families name as
well as the individual who receives MPC hours, their age, the month the assessment was
completed, and the number of hours in 2010, 2011, 2012.

March 19, 2012

TO:                 Interested Parties

FROM:              Aging and Disability Services Administration

SUBJECT:           Extension of CR-103E for Personal Care Hours

The department has filed an extension for the emergency CR-103E for WAC 388-106-0125,
Personal Care Hours. This filing continues emergency rules filed under WSR 11-23-092 on
November 17, 2011, while the department completes the process of permanent adoption.

To view the CR-103E and rules, go online to:

MPC cuts for kids land DRW in court, again
Disability Rights Washington and Columbia Legal Services filed a class action lawsuit to
challenge the base hours cuts for all MPC recipients under the age of 21. This lawsuit may take
several months or even years to resolve. Until then, there is very little that can be done to stop
DSHS from reducing base hours for any individual. If it is believed a child has been harmed or
will be harmed as a result of the base hour reductions, or for any questions about this information,
contact Susan Kas at Disability Rights Washington (DRW) (1-800-562-2702) or Amy Crewdson
at Columbia Legal Services (CLS) (1-800-26-6260 x. 213). While DRW and CLS cannot
guarantee individual assistance or hour restoration, one may call if interested in sharing
Read more:


WA Dual Eligibles Proposal
From: "Adams, Janet (DSHS/DDD)" <>
Date: March 13, 2012 1:16:41 PM PDT
Subject: WA Dual Eligibles Proposal

Below is the website to read the Washington’s Dual’s proposal and as way to provide comments
through a survey. It is open for a month of comments. Duals proposal can be reviewed at People can also comment on the proposal at Please ask people to read the proposal
before leaving comment.

Janet Adams
Department of Social and Health Services
Quality Programs and Services Office Chief
Division of Developmental Disabilities

Update to Managed Care Awards
Thanks to Diana Stadden
For Immediate Release: 02/07/2012
Contact: Doug Porter, Director, Health Care Authority, 360-725-1040
Heidi Robbins Brown, Deputy Director, Health Care Authority 360-725-1040
Preston Cody, Assistant Director, Health Care Authority, Health Care Services 360-725-1786

OLYMPIA – The Health Care Authority announced today (February 7, 2012) the regional
service areas tentatively assigned to the five health plans selected earlier as apparently successful
bidders on a proposal to provide managed care for up to 800,000 Medicaid clients and Basic
Health subscribers.

However, the service area awards will not be finalized until the agency and the health plans
reach final agreement on new contracts – targeted for the end of February.

The five apparently successful bidders, all managed care plans, were identified as Amerigroup,
Community Health Plan of Washington, Coordinated Care Corporation, Molina Healthcare of
Washington and UnitedHealthcare Community Plan.

The number of counties tentatively awarded to the bidders varied considerably.

Only Coordinated Care Corporation, also known as Centene, was listed with all 39 counties in
the state, although United HealthCare was listed in every county except Clark, and Molina’s list
omitted only four counties: Island, Jefferson, Klickitat and Wahkiakum.

Amerigroup was listed with 22 counties: Columbia, Douglas, Garfield, Grays Harbor, Island,
Jefferson, King, Kitsap, Kittitas, Lewis, Mason, Pierce, San Juan, Skagit, Snohomish, Spokane,
Stevens, Thurston, Walla Walla, Whatcom, Whitman and Yakima.

Community Health Plan listed 32: Adams, Asotin, Benton, Chelan, Clark, Columbia, Cowlitz,
Douglas, Ferry, Franklin, Grant, Grays Harbor, Island, King, Kitsap, Kittitas, Lewis, Okanogan,
Pacific, Pend Oreille, Pierce, San Juan, Skagit, Snohomish, Spokane, Stevens, Thurston,
Wahkiakum, Walla Walla, Whatcom, Whitman and Yakima.
“Our next steps will be to finalize the contracts, a step the Health Care Authority intends to
complete by the end of February and begin the transition process.” said Preston Cody, Assistant
HCA Director for the Division of Health Care Services. The contracts take effect July 1, 2012,
and extend through 2013.

The Washington State contracts drew national attention since health plans across the country are
eyeing the increased enrollment anticipated by Medicaid programs once national health care
reform raises eligibility standards, effective January 1, 2014.

In Washington State, Medicaid expects to start adding up to a half million new clients at that
point, most of them childless adults not currently covered by the program. Under the Affordable
Care Act of 2009, almost all of the additional cost of their care will be picked up by the federal

The Joint Procurement contract is expected to save money for the state since it leverages the
state’s purchasing power by consolidating the regular Medicaid managed care program, called
Healthy Options, with the state’s Basic Health Plan, which provides coverage for the working
poor. Other populations in this procurement include new Healthy Options clients such as foster
children and blind and disabled Supplemental Security Income (SSI) recipients.

The Healthy Options program currently provides fully capitated, managed care services for
approximately 700,000 Temporary Assistance to Needy Families (TANF), TANF-related
Children’s Health Insurance Program (CHIP) clients, which is about 60% of Washington’s total
Medicaid/CHIP population.

HCA also intends to add about 100,000 Medicaid clients who are eligible for Supplemental
Security Income (SSI) but not Medicare under the new contracts at this time. Basic Health
currently provides subsidized health coverage for approximately 41,000 low-income adults.

For additional information and background:
The Joint Procurement website is at
The Request for Proposals is posted at
The successful bidders are posted at
Jim Stevenson, Communications, 360-725-1915 (Pager: 360-971-4067)
Sharon Michael, Communications, 360-923-2764

The Health Care Authority does not discriminate and provides equal access to its programs and
services for all persons without regard to race, color, gender, religion, creed, marital status,
national origin, sexual orientation, age, veteran’s status or the presence of any physical, sensory
or mental disability.

SB 6384 Employment First Bill
Check out the latest Olympia Insider: Governor Gregoire signs Senate Bill 6384, putting
employment first.

For Immediate Release:                               For Interview Contact:
March 19, 2012                                       Sen. Linda Evans Parlette (360) 786-7622
                                                     Download a print quality photo of Sen.

Governor signs Parlette measure to create employment opportunities
for developmentally-disabled individuals
OLYMPIA… Today Gov. Chris Gregoire signed into law Senate Bill 6384, a measure that will
help people with disabilities find and retain jobs. The measure was prime-sponsored by Sen.
Linda Evans Parlette, R-Wenatchee.

 “This is one of the most important and meaningful pieces of legislation I’ve had the honor to
sponsor during my time in the Legislature,” said Parlette. “Having the chance to work on this
proposal with developmentally-disabled individuals, their families and their advocates has been
the opportunity of a lifetime. It’s been an honor to advocate for this law that will help people
with disabilities find and keep jobs, which can make a tremendous difference in their lives.”

Parlette’s measure will reinforce Washington’s employment-first policy for people with
disabilities by:
       Directing the state to work with counties and stakeholders to strengthen and expand
       existing community-access programs that integrate disabled people into their
       communities, as well as support independent living and skills.
       Requiring that individuals 21 years of age and older be enrolled in supported
       employment for nine months, at which point they would be offered the choice of
       transitioning to community access programs. The House of Representatives amended the

        bill slightly to allow an exemption to this practice in some circumstances – a change
        Parlette believes improved upon the original bill, and one that was accepted by the Senate
        before it moved on to the governor to be signed into law today.

Employment programs in Washington help people with developmental disabilities earn $40
million in wages each year. For every dollar invested there is a return to taxpayers of $1.46. To
maintain federal matching dollars for these programs Washington must continue in the same
direction as the federal government, which is employment-focused. Parlette’s legislation
accomplishes that goal.

“Washington has long been a pioneer for ensuring disabled individuals have access to
meaningful employment; reinforcing this in state law is another step in recognizing their rights,”
Parlette said. “Celebrating with people from across Washington at today’s bill-signing was a real

PHOTO CUTLINE – Sen. Linda Evans Parlette, Gov. Gregoire, representatives of the developmentally
disabled community and others participate in the bill signing ceremony for Senate Bill 6384.

48th District Rep. Deb Eddy announces retirement

The Redmond Reporter:

Redmond Reporter Contributor
MARCH 23, 2012 · 11:34 AM

It is no secret that Deb Eddy (D-Kirkland) has been an agent for change.

As a State Representative for the 48th District, which includes parts of Redmond, she helped push the
new state law allowing for gay marriage; she has never been one to toe the party line for Democrats and
she was a big part of getting legislation passed allowing for the new Evergreen Point Floating Bridge to
be built.

But it was the last accomplishment that was not only the biggest, but the most costly.

“Honestly, it cost me my legislative career,” said Eddy, who announced last week that she will retire after
her current term has ended. “I would never be a committee chair or afforded a leadership role. Crossing
the speaker (of the House) is not a good career move.”

She said that when she was elected in 2006 it was not a big secret that Speaker of the House Frank
Chopp (D-Seattle) was generally opposed to the 520 bridge in its current design.

But Eddy is not one to back down from a fight, even if it is within her own party. The former Kirkland
mayor, who is known for working across the aisle, worked for most of her legislative career to get the
bridge replaced.

“It was apparent we needed to put pressure on him (Chopp),” said Eddy. “It was my job and it worked. But
I quickly realized I wasn’t going to accomplish things in the other areas … I am a change agent but that
means that you use up political capital very quickly. I didn’t understand that until I was in politics for a

The building of a new 520 bridge has been discussed for decades and is a major accomplishment.

“I am going to miss her in so many ways,” said House Transportation Committee Chair Judy Clibborn (D-
Mercer Island). “Her influence here over the last six years can’t be overstated. She changed the place,
but so often her work has been behind the scenes.”

Eddy began her career as an agent of change living in the Bridle Trails Neighborhood during its
annexation into Kirkland in the late 1980s. The annexation had some major zoning conflicts in relation to
horse stables.

“The city didn’t have a clue on how to deal with the zoning,” said Eddy. “We had a new owner piling
manure at the corner of his property and it became a public-health issue.”

After attempting to fight city hall, Eddy decided to fight the issue from the inside.

“I knew that if I was going to change anything I would need to get on the City Council,” said Eddy, who
won election to the council in 1993.

Eddy would serve six years on the Council, with two of those as mayor.

During her time on the council the city approved the building of the Kirkland Performance Center, planned
for the Kirkland Teen Center and acquired more land for parks.

“We also brought a level of transparency to the budget,” said Eddy.

Along with that transparency the council decided not to raise property taxes the allowable amount.

“You are tempting fate by always taking the allowable amount,” said Eddy. “If you don’t need it, you
should’t take it.”

The city also made a major change when it came to collective bargaining practices with city employees,
by instituting an interest-based bargaining system.

But Eddy has also made it a point to not overstay her welcome. “I have learned how to make a difference
but also how to step away,” said Eddy.

She has been a member of the House Technology, Energy and Communication Committee for six years
and is now a board member of the Pacific Northwest Economic Region, an association of Western states
and Canadian provinces engaged in cross-border problem-solving, including on energy and infrastructure

Eddy would like to move on to help in modernizing the power grid when she is done in Olympia later this
year. She said that with 64 power distributors in Washington State it will be difficult to transition to a smart

“Some (of the distributors) are forward thinking and some are not,” said Eddy, who added that she will not
run for public office again.

Eddy said that she has not endorsed anyone for her seat in Olympia, saying: “I am going to encourage
some people to look at it.”

She has stayed true to her views, even if they do not run along the party line. That is what has drawn
many of her constituents to her.

“What I have enjoyed so much is when people come up and say, ‘I wish there were more people like
you,’” said Eddy.

“I am a bad Democrat, but I would be an even worse Republican.”

Eddy’s future plans also include spending time with her family and traveling. She is married to professor
Jon Eddy, currently director of the Asian Law Center at the University of Washington Law School, and
has three children and two grandchildren.

Contact Redmond Reporter Contributor Matt Phelps at

Capitol Insider The Arc of United States
for the Week of March 19, 2012

Medicaid – The Arc Comments on Long Term Services and Supports and Dually Eligible
Citizens in Massachusetts

The Arc submitted comments to the Medicare-Medicaid Coordination Office in CMS concerning
Massachusetts’ proposal to integrate care for individuals dually eligible for both programs. The
Commonwealth was the first to submit a proposal. Several other states have proposals in the
pipeline which The Arc will review as well.

Education – New Report on Restraint and Seclusion;
The Arc Supports Legislation to Limit the Practice
The American Association of School Administrators (AASA) issued a report opposing the
Keeping All Students Safe Act (S. 2020, HR 1381) introduced by Senator Tom Harkin (D-IA)
and Congressman George Miller (D-CA). The bill allows the use of physical restraint only when
someone is in danger of being harmed, while ensuring that personnel receive proper training, that
parents are aware of any restraint or seclusion used with their children, and that the most
dangerous types of restraint and seclusion are eliminated. AASA argued that no federal
legislation is necessary and school districts should have freedom to make decisions about
restraint/seclusion on their own.

The Arc sent a letter to Senator Harkin, who is the Chairman of the Health, Education, Labor and
Pensions Committee, reiterating our support for restraint and seclusion legislation. We also
signed on to a Consortium for Citizens with Disabilities (CCD) letter that detailed how children
with disabilities, minorities, and other children have been harmed, injured, and killed by this
practice. That letter also states our strong support for the Harkin and Miller bills.

Capitol Insider The Arc of United States
For the week of March 26th
Major Events Last Week

Budget – House Republican Fiscal Year 2013 Budget Request Released; Would Be Very
Harmful to People with Disabilities

On March 20, House Budget Chairman Paul Ryan (R-WI) released his Fiscal Year 2013 Budget
Resolution, a blueprint for spending and tax policy. The release of the “Ryan budget” is the first
Congressional step in what is sure to be a lengthy, partisan battle over appropriations levels, tax
policy, and deficit reduction. This plan would cut nondefense spending by $5.3 trillion over 10
years, while cutting taxes for corporations and upper income individuals. It would be very
harmful for people with disabilities as mandatory programs that people with disabilities rely on
(Medicaid, Medicare) would be significantly cut and/or restructured, funding for critical
discretionary programs (such as housing, education, employment, & transportation) would be
slashed, and the health care reform law would be repealed. Specifically:

      Medicaid would be cut by $810 billion over 10 years (a 33% cut), converted to a block
       grant, and all "dual eligibles" would be placed entirely in the Medicare program.
      Medicare would be converted to a “premium support program” by offering vouchers to
       purchase private insurance or the traditional Medicare program starting in FY 2023 for
       new beneficiaries. This would end the Medicare guarantee and raise health care costs for
       people with disabilities and seniors.
      Non-Defense Discretionary programs would be cut by $800 billion below the amount
       of the automatic spending cuts from the Budget Control Act (an approximate cut of 9%).
      Social Security reforms to provide solvency over the next 75 years would be considered
       under an expedited Congressional process, as opposed to normal deliberation.

 The following day, the House Budget Committee narrowly passed a fairly clean version of the
Ryan Budget and the full House of Representatives is scheduled to vote on it this week. The
Senate, however, is not likely to vote on a FY 2013 Budget as the Budget Control Act already set
spending caps for FY 2012 to 2021.
It is doubtful that federal funding issues, including the automatic spending cuts scheduled to take
effect in January 2013, will be resolved before the November election. If not, then Congress
could reconvene in a post-election “lame duck” session to try and resolve the issues and any
other outstanding matters.

Employment – Bill Introduced to Reauthorize the Workforce Investment Act
Representatives George Miller (D-CA), John Tierney (D-MA), and Ruben Hinojosa (D-TX)
introduced H.R. 4227, the Workforce Investment Act of 2012. The bill seeks to reauthorize and
modernize the Workforce Investment Act of 1998. Provisions related to vocational rehabilitation
services for people with disabilities would require training to be tied to competitive employment
opportunities, expand training for self-employment and microenterprises, expand in-school and
post-school pre-employment services, expand outreach and services to employers, and expand
independent living services and resources. The bill was referred to the House Committee on
Education and the Workforce.

Social Security - House Holds 3rd Hearing on Securing the Future of SSDI

The House Committee on Ways and Means, Subcommittee on Social Security held the third in a
hearing series on “Securing the Future of the Social Security Disability Insurance Program.” The
hearing focused on how Social Security Disability Insurance eligibility decisions are made,
including the definition of disability and the Federal-State relationship. At the hearing,
Subcommittee Chairman Sam Johnson (R-TX) announced that the next hearing in the series will
focus on the appeals process. Visit the Committee web site to review testimony or to view a
webcast of the hearing.

Major Events Ahead
Health Care – U.S. Supreme Court Hears Arguments in Landmark
Affordable Care Act Case
The U.S. Supreme Court will hear arguments on four issues in the consolidated cases on the
Affordable Care Act (ACA) being heard this week from March 26 – 28. The questions are:

1. Whether Congress had the power to enact the minimum health insurance coverage provision,
or individual mandate to have coverage.
2. Whether that provision is severable from the remainder of the ACA if the minimum coverage
provision is found unconstitutional. (In other words, is it possible to remove this provision
without making the entire law unworkable?)
3. Whether the ACA’s requirement that states expand Medicaid eligibility or risk losing federal
funds is unduly coercive.
4. Whether the minimum coverage provision is a tax for the purposes of the Anti-Injunction Act
(if it is a tax, then plaintiffs seeking to challenge the provision cannot do so until it goes into
effect in 2014).

The Court will hear oral arguments on the Anti-Injunction Act issues on Monday morning
(3/26); on the minimum coverage issue on Tuesday morning (3/27); on the severability issue on
Wednesday (3/28) morning, and on the Medicaid issue on Wednesday afternoon.

The Arc participated in two amicus curiae (“friend of the court”) briefs in support of the
constitutionality of the ACA. The Supreme Court allowed organizations to participate in up to
one amicus brief per each of the four questions that the Court is considering. The Arc
participated in briefs in the following cases/issues:

Department of Health and Human Services, et al, v. Florida –
Minimum Coverage (Individual Mandate) Issue: The Arc joined several other advocacy and
consumer organizations in filing a brief that supports the ACA’s requirement for individuals to
purchase health insurance. The brief argues that a law requiring health insurers to cover people
with pre-existing conditions cannot function unless it also requires nearly everyone to carry
insurance. This is because, if allowed, people will delay the purchase of insurance until they
need expensive care, thereby draining the insurance plan of funds without individuals paying
their share. This behavior is known as “adverse selection”. Seven states have already tried to
enact a pre-existing conditions law without a minimum coverage requirement and all seven states
saw skyrocketing premiums or worse. Meanwhile, Massachusetts, the one state to enact both pre-
existing conditions coverage as well as minimum coverage, saw its premiums go down 40

Florida, et al, v. Department of Health and Human Services –
Expansion of Medicaid Coverage Issue: The Arc joined several other advocacy and consumer
organizations in filing a brief that supports the ACA’s expansion of Medicaid coverage. The
brief argues that the ACA’s Medicaid expansion is a valid exercise of Congress’ authority to
enact legislation under the Constitution’s “Spending Clause,” which empowers Congress to offer
money to the states with strings attached. The amicus brief addresses the potential impact of a
finding of unconstitutionality on the Medicaid program as well as on other programs in which
states similarly receive federal funds in exchange for complying with federal requirements.

Audio Recordings Available: Because of the extraordinary public interest in this case, the Court
will provide the audio recordings and transcripts of the oral arguments on an expedited basis
through the Court's website. The audio recordings and transcripts of the March 26-28 morning
sessions should be available no later than 2 p.m. on the day of the discussion. The recording and
transcript of the March 28 afternoon session should be available no later than 4 p.m. that day.
The Court’s website currently provides links to the orders, briefs, and other information about
the case.

Affordable Care Act Medicaid coverage expansion:
On March 16, 2012, CMS released its eligibility and enrollment final rule to assist States in
implementing the Affordable Care Act Medicaid coverage expansion.

New Autism Prevalence rates 1 in 88 children:
Thanks to Diana Stadden
New prevalence estimates from the Autism and Developmental Disabilities Monitoring (ADDM)
Network were released today. Please follow the links below for copies of the Morbidity and
Mortality Weekly Report (MMWR) Surveillance Summary report and the ADDM 2012
Community Report.

MMWR Report:
Web Link to the ADDM 2012 Community Report:


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