Presentation Title Goes Right Here by jolinmilioncherie


									                Tissue Banks
                and Pathology
                Tools and DSIC

                DSIC Face to Face
                Ian Fore D.Phil.
                May 15, 2007

December 2006
TBPT agenda for caBIG year 4

•   Implementation of caTissue Core 1.2
     • Deployment at adopter centers
     • Sharing data
     • Putting consent tracking into practice
•   Prostate SPORE deployment
     • Address IRB issues
•   Development of caTissue Suite 1.0
•   Public vs private datastore model
Is authentication enough?

•   caBIG model based on protection of data by authentication and roles
     • Authentication - usually username and password
     • Roles authorize which data you see
     • Control access to PHI
•   Public-Private datastore model
     • PHI only in database behind firewall
     • Deidentified data only in copy of database used for external access
     • Disadvantages
         • Significant issue to keep database copies in sync
         • No caBIG infrastructure support
The Gap

•   Are we being realistic in comparison to standards used elsewhere?
•   I can access much personal information about myself with no more than a
    username and password
      • Address, Phone, email etc
      • Bank Accounts
      • Paycheck
      • Health Insurance
         • Claim history
     • Car insurance
         • Accidents
         • Speeding tickets etc
     • Utility accounts
How can DSIC support the needs of the TBPT

•   Lead IRBs though the issues
•   Share information between IRBs
•   Educate domain workspaces
     • Understand the real issues - dispel myths
•   Data sharing
     • Establish models for incentives for sharing
     • Engage in debate in key scientific forums
•   Do the cost-benefit analysis
•   Research best practices from other industries
     • Banking
     • Insurance
How will the respective WS work plans be

•   Insertion of DSIC into TBPT workspace activities
     • Review practical solutions
         • E.g. caTissue Consent Tracking
     • Participate in calls where data sharing is discussed
•   Engage cross-cutting workspaces
     • Ensure architectural solutions are suitable

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