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							                 ROTHERHAM DONCASTER AND SOUTH HUMBER
                MENTAL HEALTH NHS FOUNDATION TRUST (RDaSH)

                   USER/CARER PARTNERSHIP COUNCIL (U/CPC)

Notes of the meeting held on Tuesday 24 November 2009 in Seminar Room, Opal Centre, St
Catherine’s, Doncaster at 1.00pm

Present
Glyn Butcher (Rotherham Mind) [Chair]
Lindsay Gillies (Involve) [Vice Chair]
Nick Arkle (Patient Experience/PSI Lead, RDaSH)
Betty Hudson (Dearne Valley Carers Support Group)
Ian Jerams (Chief Operating Officer, RDaSH)
Anita Wilson (Phoenix Carer’s Group)
Sam Murray (PALS Coordinator, RDaSH)
Helen Oldknow (Effectiveness Lead, RDaSH)
Diana Swanson (Carers 4 Carers)
Graham Estop (Involve)
Paul Morton (RDaSH Doncaster Public Governor)
Sheila Barnes (Care 4 Carers)
Kim Gostolo (Health Promotion Lead Older People, RDaSH)
Jenny Greaves (Service Manager, RDaSH)
Caroline Greenough (Physical Health and Well-Being Practice Development Lead)

Apo Apologies                                                                            Action

     Sally Wheatley (Deputy Director of Clinical Assurance/Allied Health Professions
     Lead, RDaSH), Rob Webster (Peer to Peer), Pam Webster (Peer to Peer), Nigel
     Sherburn (Bipolar Organisation), Diane Ekins (Equality and Diversity Lead,
     RDaSH), Ron Overton, Jenny Greaves (Service Manager, RDaSH), Claire Frear
     (VOICE of Service Users), Madeleine Keyworth (Chairman, RDaSH),

     Welcome and introductions

     Caroline Greenough, Physical Health and Well-Being Practice Development Lead.

     Lindsay Gillies agreed to accept her position as Vice Chair.

     Notes of Last Meeting held on Tuesday 29 September 2009

     It was noted that on page 5, it should read ‘people could be reimbursed for their
     mileage’.

     Also, apologies were given to Betty Hudson and Paul Morton for not receiving the



Page 1 of 9
     notes of the last meeting via post.

     It was agreed that the remaining notes of the last meeting held on Tuesday 29
     September 2009 were an accurate record.

     Matters Arising

     Peter Goward, Faculty Lead for User and Carer Involvement Sheffield Hallam
     University; involving service users and carers in the development of the future
     workforce strategy: Nick Arkle

     All agreed for Nick Arkle to organise with Peter Goward three dates to allow           NA/PG
     service users and carers the opportunity to give feedback on their views as to ‘what
     they think the workforce should look like’. There will be one meeting in each of the
     three areas; Doncaster, Rotherham and Scunthorpe. Nick to email all groups with
     dates and venues.

     Drama project with carers and Sheffield Hallam University: Nick Arkle

     Drama project details circulated, anyone interested please go along, they are
     meeting every Wednesday in February apart from the half term week and on the 25
     March 2010 they are doing the play in Sheffield. (It may be possible for a show to
     be held at the Library Theatre, Rotherham; The Ivanhoe Centre in Conisborough
     was suggested as another possible venue)

     Physical Health Checklist (PHC): Caroline Greenough

     Caroline Greenough presented a paper on the PHC: a physical health checklist for
     mental health service users developed by RETHINK. It has been agreed to pilot the
     assessment tool for 6 months next year. Caroline is liaising with IT to have the
     assessment tool on maracis with training to accompany it. Any feedback regarding
     the physical health checklist should be sent to Amanda Scott or alternatively email
     to amanda.scott@rdash.nhs.uk.

     Caroline will work with the User Carer Research sub-group as part of the evaluation
     of the PHC.

     Caroline’s presentation led to much discussion around the subject of physical health
     check for people who experience severe mental illness. The need for a consistent
     approach across Primary Care and the Trust was highlighted.

     The pilot will look at communication between GPs and the Trust and the need for
     care co-ordinators and GPs to work together.

     The Council is supportive of the pilot to go ahead and looks forward to feedback       CG
     from Caroline in the future.



Page 2 of 9
     Glyn commented that for new referrals to MIND this would be a brilliant tool to
     assess physical well-being.

     Caroline confirmed that this document could be downloaded for service users to
     use.

     Caroline asked the group to consider a physical health and well-being information
     leaflet she is developing to gain feedback, the following comments were made:
           There is a risk with the information provided on the left hand side of this
              booklet is too scary and that there is too much information on the right.
           It was also suggested a brain should be part of the picture.
           The red and green combination is good.
           It was felt that it was seriously depressing.
           It was suggested that healthy eating and nutritional advice might be added.

     Any further comments, please contact Amanda on telephone number 01302 796305            ALL
     or email Amanda.scott@rdash.nhs.uk to forward to Caroline Greenough.

     Member Group Feedback (what groups are doing): Group representatives

     MIND, Rotherham –
     Glyn Butcher on behalf of Mind informed the group of the following: -

        1. Appointment of Steve Kirk, Chief Executive Officer and Liz Flanagan,
           Adult Services Manager.
        2. Rotherham Mind drop-in centre currently gets £190,000 to run the drop-in
           centre which is paid in quarter instalments but could be cut by 50% next
           April.
        3. The Direct Payment for Rotherham Mind services will be £16.70 an hour.
        4. 64 different people used the Rotherham Mind drop-in centre at least once
           last week, and out of the 64 people roughly 40 people would not qualify for
           direct payments.
        5. This will result in a reduction in service for people who do not qualify for
           direct payments.
        6. As a result of the cut in funding the time Rotherham Mind drop-in centre
           hours will have to be reduced.
        7. Carers are a priority. There are 10 regular carers that attend the carers group
           on Wednesday between 1:00 till 3:00pm and the carers also use the drop-in
           through the week. Rotherham Mind does not know as yet if carers have to
           pay £16.70 to attend the carers group.
        8. Rotherham Mind has some clients using there direct payments to access
           Rotherham Minds services. This money will go toward the shortfall in next
           years funding.




Page 3 of 9
     C4C, Rotherham -
     Diana Swanson informed the Council the following: -

        1.    They have no paid workers
        2.    Rent paid for 2 rooms
        3.    £11,000 raised by carers
        4.    Funded up to March next year
        5.    Event on 28/10/09 at Magna raised £230.00 by selling crafts - with this
              money they intend to visit Skipton.

     Anita Wilson informed the Council the following: -

        1. Donation from the Women’s Institute for the amount of £25.00
        2. Anita can be seen on
           www.bbc.co.uk/videonation/extras/headroom/carers_challenges/
        3. A group have started using the new swimming pool in Rotherham ‘Fat
           women swimming in the dark’ which only costs £2.00 per session.
        4. There are plans to contact Gok Wan to see if he would look at carers ‘look
           good naked’ and also a possibility of a Calendar to raise funds.

     C4C, Doncaster -
     Sheila Barnes informed the Council: -

        1.    The group continues to support each other at the meetings.
        2.    Communication is mainly through the newsletter.
        3.    NHS Doncaster has made a grant of £300.00 to pay for the venue.
        4.    It was suggested that the electronic newsletter could be put on the Trust   SM/NA
              website.

     Dearne Valley Carers Group
     Betty Hudson informed the Council: -

        1. The group continues to meet on a regular basis offering support to people in
           the Swinton and Wath.

     Beyond the Cuckoo’s Nest
     Nick Arkle informed the Council: -

        1. The group has secured funding for 2009/2010 which pays the salary to the
           part-time administrator.
        2. RMBC have given £1000.00 funding to the project, which pays for running
           costs.
        3. Members of the project are presenting as part of a number of Trust wide
           initiatives including induction, work related violence and aggression



Page 4 of 9
           training, and the practice development days within the Adult Inpatient
           Services.
        4. The group has been very busy presenting to Schools and Colleges in
           Rotherham and to the South Yorkshire Police Students.

     Update - Infopoint Help Points: Samantha Murray

     Sam informed the group that there was still no progress with regards to securing the
     taxi sponsorship for Doncaster and Scunthorpe and that Ben Clarke from Infopoint
     had agreed that he would contact her again on 15 December 2009 to give an update.
     In the meantime she had requested information on the usage of the Infopoint and
     reported the following:

             Martini Taxis had been used 81 times in the months June, July and August.
             Mind – 3 times.
             Speaking Up – 1 time

     Sheila Barnes said she may be able to make some enquiries with regards to
     obtaining a taxi sponsorship for Doncaster and Scunthorpe.

     Service Developments: Ian Jerams

     Ian informed the group that he had made the Assistant Directors aware of the issues
     raised by Speaking Up around appointment times not being kept to and that he            IJ
     would monitor this. It was also mentioned that in some Mental Health Trusts, ward
     rounds are no longer run and this might be something RDaSH will consider. Please
     contact or email any issues/comments to amanda.scott@rdash.nhs.uk to be
     forwarded to Ian Jerams.

     It was suggested that we invite Mark Caulfield from Speaking Up or a                    NA/AS
     representative from Cloverleaf to report to the council on a twice yearly basis.

     Meetings 2010: Glyn Butcher and Nick Arkle

     The Council discussed whether the meetings should be held in different parts of the
     Trust rather than a central meeting in Doncaster. Service users and carers from
     North Lincolnshire have not attended the past few meetings.

     The difficulties of travelling to meetings across the Trust was discussed, however it
     was felt that the meetings should be held at Doncaster.

     The possibility of having local Council meetings was discussed, and this may offer a
     way for North Lincolnshire to feed views to the UCPC.

     Annual Conference Feedback: Nick Arkle



Page 5 of 9
     The Annual Conference, Kingsway Centre, Scunthorpe on Friday 9 October 2009
     was a success with 55 people attending. Most of the comments received were
     positive, however the air conditioning and parking was an issue for some people.

     It was felt that there was insufficient time to make comments on the New Horizons
     Consultation, due to it being such a large document. It was also felt that the
     document was aimed at professionals and not service users/carers.

     Nick to feedback on questions raised at the conference.                                   NA

     Sub-group reports and updates

     Employment Sub-group Update:

     Nick informed the group on behalf of Gillian Whall that the group had delivered the
     initial action plan. The group is to be reviewed as to whether it should continue in
     its current form. There is a need to ensure that the action plan is applied in practice
     and this should be evaluated.

     Care Programme Approach (CPA): Steve Crann

     Steve Crann asked the Council to consider a checklist he is developing. This is
     titled ‘My Care’ which may support service users and carers and help them consider
     questions they may ask of staff.

     The Council offered the following feedback: -

             It’s really good because it puts you in the driving seat and in charge of your
              own recovery.
             It’s asking professionals what they will be doing and explaining the
              treatment they will be giving which is very important to me.
             The questionnaire is asking you to participate in your own recovery and to
              work in partnership with professionals.
             The questionnaire helps you to take responsibility for your own recovery.
             Very good, good detail, covering all the relevant questions, it’s good as a
              reminder.
             Very helpful, a good starting template.
             The checklist; is it for service users or care co-ordinators
             Very wordy
             Needs to be simplified and structured into sections
             Not happy with the term ‘treatment’

     Communications: Rob Webster

     Unfortunately, Rob Webster was unable to attend the meeting to show the UCPC
     the newsletter which would report on service users and sub-groups issues.


Page 6 of 9
     Service User and Carer Research: Helen Oldknow

     Data collection for ‘Care of inpatients who are identified as posing a significant risk
     to themselves or others policy' will be completed this week and then, work on
     analysis and report writing will commence.

     Managing Work Related Violence (MWRV) August:

     Dr Roby and Dr Bottomley’s junior doctor is now involved in this work and is
     liaising with the group, regarding data collection.

     St/nurse evaluation:

     RDaSH Education link facilitator returned to clinical practice, new facilitator
     joining Trust. Helen will meet with to progress this work

     Physical Health Pilot

     Physical Health and Well-being lead has asked the group to be involved in a pilot
     evaluation. She will attend the group meeting later in the year to discuss the
     evaluation details.

     Essence of care.

     Deb Wildgoose discussed this with the group at the last meeting and the group is
     happy to help if required.

     Trust Update:

     The national picture on Swine Flu is that the Second surge is not as bad as
     anticipated, however; there is a possibility that it could become more serious, and
     may have a re-surge in Spring. The Trust will continue to be vigilant. All staff are
     being encouraged to attend for the Swine Flu vaccination.

     The ground breaking ceremony for the new Older Peoples Mental Health Inpatient
     Unit on the Rotherham General Hospital site has just taken place as part of the
     development of inpatient services in Rotherham.

     The new service model for Trust services is still on track, being led by Gail Hebdon.
     There are plans to develop information leaflets and opportunities for service users
     and carers to meet with managers to publicise the changes and to consult. The
     timetable for the changes remains;
         Doncaster-April 2010
         Rotherham-October 2010
         North Lincolnshire-April 2011


Page 7 of 9
       No changes will occur for service users without them being included in the
       discussion and decision making process.

       There are plans to modernise the Carer Unit in North Lincolnshire to provide a
       modern inpatient setting for older people.

       The Trust is in the process of changing the management of services through the
       development of Business Units. Each unit will focus on delivering high quality
       services to service users and carers. This is a model of delivering health services
       which has being very successful in other parts of the country and will support the
       core business of the Trust in improving service delivery and quality, operating
       efficiently at a time when there is a challenging financial climate.

       Wellness Recovery Action Plan (WRAP): Nick Arkle

       Nick is writing a briefing to show what is happening across the Trust for WRAP and NA
       will present it at the next meeting.
       1,000 of the Little Book of WRAP have been ordered and should arrive before
       Christmas.

       Any Other Business

       Glyn asked whether there are any Hearing Voices groups in the Trust. Nick                 GB
       informed him that there is one starting in Doncaster, which will be led by staff, for
       people who are known to the West CMHT, based at Stapleton Road. Glyn said that
       the Sheffield group was very active. It was suggested he contact Sheffield hearing
       voices to see if they could give us advice on setting one up in Rotherham.
        (The contact for the Sheffield group is: Peter Bullimore: Tel 0114 271 8210,
       Email: peterbullimore@yahoo.co.uk.)

       Nick informed the group that South CMHT were trying to put together a service
       information leaflet. Nick asked whether the sub-groups could take the leaflet and
       questionnaire that goes with it to their groups as he needs 10 responses as part of the
       Get It Write process.


       Date, Time and Venue of Next Meeting
       Please see table below for 2010 dates and venues


Date                               Time                      Venue

Tuesday 19 January 2010            1:00 – 4:00pm             Boardroom 1, St. Catherine’s House




Page 8 of 9
Tuesday 23 March 2010       1:00 – 4:00pm   Boardroom 1, St. Catherine’s House


Tuesday 18 May 2010         1:00 – 4:00pm   Boardroom 1, St. Catherine’s House


Tuesday 20 July 2010        1:00 – 4:00pm   Boardroom 1, St. Catherine’s House


Tuesday 21 September 2010   1:00 – 4:00pm   Boardroom 1, St. Catherine’s House


Tuesday 23 November 2010    1:00 – 4:00pm   Boardroom 1, St. Catherine’s House




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