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Lung Cancer Nurses Group The Yorkshire Cancer Network

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					Lung Cancer Nurses Group
Actions of the meeting held on
Monday 14 May 2012, 13:30
Seminar Room 1, Cookridge Suite, Level 7, Bexley Wing, St James's University Hospital

Present:
Ms C Waddington                              Airedale NHS Foundation Trust
Ms T Hiley (Chair)                           Bradford Teaching Hospitals NHS Foundation Trust
Ms A Greenhowe                               Calderdale and Huddersfield NHS Foundation Trust
Mrs C Thomas
Mr S Bolton                                  Harrogate and District NHS Foundation Trust
Ms A Ashcroft                                Leeds Teaching Hospitals NHS Trust
Ms S Dixon
Ms M Allinson                                User Partnership Group
Mrs J Love                                   York Teaching Hospital NHS Foundation Trust
Mr C Sloane                                  Yorkshire Cancer Network

Apologies

Mrs M Adams, Mrs M Coleman, Ms K Henderson, Mrs T Kaye, Mr J White


1.       Welcome & apologies

Log No Action                                                                               Lead(s)    Deadline

   1     Everyone was welcomed to the meeting and apologies were noted.                     N/A           N/A



2.       Action Log from last meeting

Log No Action                                                                               Lead(s)    Deadline

   2     The action log from the last meeting was agreed to be a true record.               N/A           N/A



3.       Matters arising

Log No Action                                                                               Lead(s)    Deadline

   3     ► Educational Event                                                                S Bolton     ASAP

         Members discussed holding an educational event.

         Simon Bolton is to speak to Paul Plant regarding holding this early 2013.




                                            Produced by Clair Irving, Network Support Officer
                                         Telephone: 01423 555671 email: clair.irving@ycn.nhs.uk

printed date: 17/05/2012                                  http://www.ycn.nhs.uk/                            Page 1 of 4
Lung Cancer Nurses Group : Actions of the meeting held on Monday 14th May 2012 1:30pm


4.       Update on Patient Experience Surveys

Log No Action                                                                                Lead(s)              Deadline

   4     ► Patient Interviews                                                                C Sloane & S Dixon     ASAP

         Sandra Dixon, Marion Allinson & Colin Sloane explained to the group that
         patients who had undergone thoracic surgery (prior to Sandra Dixon being in
         post) had been invited to take part in a patient interview about their
         experience. A total of 7 patients were interviewed - the outcome was that in
         general they were happy with the service, however there were areas where
         issues were identified; pre-assessment waiting times in the department, day
         of admission and transport. It was also noted that all the patients had had
         their surgery dates cancelled & delayed. Patient information was felt to be
         good although some did not read it; all felt that the consultation with the
         surgeon was very good.

         A report has been written from the patient interviews; Marion Allinson and the
         User Partnership Group have also developed a DVD from the patient
         interviews which will be used as a model for other cancer sites.

         The intention is to repeat patient interviews following the introduction of the
         patient education programme. This is currently still being organised but it is
         planned to be held every Tuesday. Patients will be invited to attend this prior
         to their surgery and will receive education/information from; physio, dietician,
         surgeon, pain team & information regarding adjuvant treatment.

         Sandra Dixon informed the group that she has written a number of patient
         information booklets including a booklet regarding discharge, it was
         requested that all booklets be shared with the group.

         To circulate the patient interview report and recently developed patient
         information booklets.

   5     ► Patient Experience Survey                                                         T Hiley & C Sloane     ASAP

         The group decided that the survey would be sent out by the end of June
         2012 (unless already completed recent survey). Colin Sloane informed the
         group that he is happy to analyse the results but each individual CNS would
         have to input the data into SNAP.

         Tracy Hiley to forward the changes made by the group to Colin Sloane to
         amend and share with the group.

5.       EBUS Patient Information Leaflet

Log No Action                                                                                Lead(s)              Deadline

   6     Members were informed that the information leaflet has been sent to the             All                    ASAP
         NSSG for comments – no feed back received. The group decided that each
         Trust would adapt the information and make it specific to where the patients
         were having the test.

         Members to disseminate this information back to their own teams.




                                             Produced by Clair Irving, Network Support Officer
                                          Telephone: 01423 555671 email: clair.irving@ycn.nhs.uk

printed date: 17/05/2012                                   http://www.ycn.nhs.uk/                                      Page 2 of 4
Lung Cancer Nurses Group : Actions of the meeting held on Monday 14th May 2012 1:30pm


6.       Mesothelioma/M-NAT

Log No Action                                                                                Lead(s)    Deadline

   7     Members were informed that unfortunately no one is able to attend the next          All          ASAP
         M-NAT meeting in Basingstoke. Simon Bolton will ensure the information
         from the meeting is fedback to the group.

         A total of 21 support group surveys have been returned so far, 16 patients
         have expressed an interest in attending a Mesothelioma support group.

         Simon Bolton recently attended a support group at Papworth; this is held
         every month with approx. 50 people are attending. They had a guest speaker
         talking about symptom control followed by an informal discussion. Simon
         Bolton then attended a committee meeting which discussed finances and
         funding. The group has proved to be very successful and has been running
         now for 18 months.

         Members noted that they are still awaiting feedback whether the application
         to the YCN cancer nursing development fund for the development of the
         Mesothelioma support group has been successful.

         In the next few weeks Simon Bolton will be sending out a questionnaire to the
         CNS for individuals at local MDT’s to complete. These have been developed
         to help identify how core members of the MDT view the current state with
         emphasis on diagnosis, staging and the role of the specialist Mesothelioma
         MDT as well as access to surgery and specialist nursing support.

         The completed questionnaires are to be sent back to Simon Bolton.

   8     Simon Bolton will analyse the surveys once more when they have been                 S Bolton   20/08/2012
         returned and will feedback at the next meeting.

7.       CNS Pathway

Log No Action                                                                                Lead(s)    Deadline

   9     This item was not discussed.                                                        N/A           N/A



8.       Any Other Business

Log No Action                                                                                Lead(s)    Deadline

  10     Members were informed that Beth Cochrane has contacted Tracy Hiley                  T Hiley      ASAP
         regarding the Roy Castle support group support facilitator 2 day course,
         which is due to run 06/07/12 & 07/09/12 to confirm who is attending.

         Tracy Hiley will email the group to confirm.

  11     Members were informed that Claire Waddington is now taking over as Chair            C Irving     ASAP
         of the group; the group thanked Tracy Hiley for all her work and support over
         the past 3 years.

         Jill Kenworthy will be taking over as Vice Chair.

         Clair Irving to amend the membership details accordingly.




                                             Produced by Clair Irving, Network Support Officer
                                          Telephone: 01423 555671 email: clair.irving@ycn.nhs.uk

printed date: 17/05/2012                                     http://www.ycn.nhs.uk/                          Page 3 of 4
Lung Cancer Nurses Group : Actions of the meeting held on Monday 14th May 2012 1:30pm


         Date of Next Meeting(s)

         Monday 20th August 2012 1:30pm
         Seminar Room 1, Cookridge Suite, Level 7, Bexley Wing, St James's University Hospital

         Monday 22nd October 2012 1:30pm
         Seminar Room 1, Cookridge Suite, Level 7, Bexley Wing, St James's University Hospital

         Monday 10th December 2012 1:30pm
         Seminar Room 1, Cookridge Suite, Level 7, Bexley Wing, St James's University Hospital




                                      Produced by Clair Irving, Network Support Officer
                                   Telephone: 01423 555671 email: clair.irving@ycn.nhs.uk

printed date: 17/05/2012                            http://www.ycn.nhs.uk/                       Page 4 of 4

				
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