From Diagnosis to Self Actualization

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					From Diagnosis to
Self-Actualization
      Jodee Crace, MA
 Cindy Lawrence, MA-CCC-A
        March 4, 2005
       EHDI Conference
           Atlanta
            Introduction


Purpose of presentation: A paradigm shift
from the medical model of diagnosing
 hearing loss to an educational/human
 relations model of identity formation
      Fundamental Principle:

“People are internally compelled to respond
  to situations in ways that will support or
  be consistent with their beliefs.”

Point: Humans have the unique ability
  to define their identity, choose their
  values and establish their beliefs.
             VALUES

 “A principle that promotes well-
  being or prevents harm”
 “Our guidelines for success”

 “Our paradigm about what is
  acceptable”
              Our Challenge:

   How will UNHS-EHDI support the VALUES
    that will support the journey of
    parents/families becoming self-actualized?
   How will these processes create Deaf/HH
    babies who become self-actualized
    individuals?
         Self-Actualization

                     What?
                     How?
                    Why?
Point: When the will and the emotions are
 in conflict, the emotions most often win.
 (American Psychologist: William James)
    How do Providers Shape Families’
              Responses:
   The meaning of “diagnosis”
   Objective
   Use of equipment to measure
   Scientific
   Medically oriented: presence or absence
    of sound
        The meaning of “diagnosis”
   Diagnosis Medicine.
       The act or process of identifying or determining the
        nature and cause of a disease or injury through
        evaluation of patient history, examination, and review
        of laboratory data.
       The opinion derived from such an evaluation.
       A critical analysis of the nature of something.
       The conclusion reached by such analysis.
   Diagnosis Biology.
       A brief description of the distinguishing characteristics of an
        organism, as for taxonomic classification.
 Medical Provider Image of the
Baby: (Study - “1 in 5 doctors”)
                    Disease



        Auditory
                               Disability
        Society
                   Diagnosis



                           Medical
            Objective
                          Condition
        Explanation of Results

   Tone, Attitude, Comfort Level
   4 Approaches (Marion Downs, 1978)


                  Hit and Run
              Minimize the Problem
                   Objectivity
                 Action Oriented
           Start with Diagnosis? or
                Identification?
   Accuracy of information
   Identification of
       A disability,
       medical condition,
       or state of being?
   Medical diagnosis typically to determine
    treatment, fixing or cure.
                       Definitions
                     Identify           v. tr.
   To establish the identity of.
   To ascertain the origin, nature, or definitive
    characteristics of.
   To consider as identical or united; equate.
   To associate or affiliate (oneself) closely with a person or
    group.
   To establish an identification with another or others.
   Medieval Latin identific re, to make to resemble : Late
    Latin identit s, identity; see identity + Latin -fic re, -fy.]
    i·den ti·fi a·ble adj.
   Key Points from Definition of
           IDENTIFY:
 toassociate or affiliate
 psychological empathy

 has become common jargon
     The Koinonia Connection

“The coming together in a solidified one-
  ness in an atmosphere of openness,
  honesty, trust, affirmation, support and
  encouragement.” Greek term coined by
 Dave Weber , author of Sticks and Stones
 Exposed
     Parents’ Image of the Baby

            Imperfect Child
                          New parent
Self defeated
                            Stress


                Parents
                               Culturally
Burden
                              unaccepted

                     Unknown
         Isolation
                      territory
            Providing Messages

   Fear
   Myths
   Cultural “incompetence”
   Disability model
   Hearing perception of hearing society
                      OR
   Self analysis, our view of Deaf people

   How do our feelings set a tone and send
    messages to parents

   Understanding the self actualization
    process is critical to delivering the news
Self-Actualization
            SA


          Self
         Esteem

    Social Acceptance


      Security

       Survival
Traits of Self-Actualized Person
       Knowing who you are and your beliefs
              Comfortable with yourself
Views learning and experience as an ongoing process
                     Empowered
                      Confident
                      Insightful
                       Valuable
                  High Self-respect
                 High Self-esteem
                    Independent
How can a Deaf/HH Person be Self-
           Actualized?
              Confidence instilled at birth
          Encouragement from healthy others
              Ongoing process of learning
                  Accepting mistakes
                      Taking risks
                  Having role models
      Exposure to many opportunities/experiences
                    Being balanced
                     Feeling Whole
             Confidence is instilled at birth
          Feeling Proud as a Deaf/HH Person
       Self Determination of one’s own life plans
           Transition from:
       Diagnosis to Ability Model
Parents benefit from:
 Support in “letting go” of predetermined image
 Time to grieve in natural healthy way
 Replacing old vision with new hope
 Strategies to help them feel capable as parents
  of this child

    EMPOWERMENT***SELF AWARENESS***
          SELF-ACTUALIZATION
    From Diagnosis to Self-Actualized Person


       Medical Model          Self Actualized Model
   Failed screening         Refer

   Diagnosis                Identification

   Audiogram and ABR        Audiogram of familiar
    show hearing              sounds shows hearing
    loss/impairment: such     levels and ranges of
    as mild, moderate,        hearing
    severe, profound
    From Diagnosis to Self-Actualized Person


      Medical Model            Self Actualized Model

   Prescribes                Fits amplification
    technology/surgery

   Prescribes treatment      Teams with parents
    plan                       to find/investigate
                               resources
    From Diagnosis to Self-Actualized Person

          Medical Model                Self Actualized Model
   Clinic-directed therapy for      Relationship based
    the child                         service providing
                                      unbiased support

   Dependent on technology          Technology enhances
                                      skills and abilities
   Enables parent                   Empowers family
    (therapist/teacher)
                                      (mentors, role models as
                                      resources)
    From Diagnosis to Self-Actualized Person


       Medical Model             Self Actualized Model

   Exclusionary/isolation    Collaborative/
                             community sense
   Transmission of           Interactive-
    information                experiential learning

   Make “either/or”            Comprehensive
    choices                      opportunities
    From Diagnosis to Self-Actualized Person



       Medical Model         Self Actualized Model
   Disability              Identity



   Sub-Culture               Diversity

   Vocationally limited      Unlimited lifelong
                               potential
              Take Home Points:

   Self Analysis of our values
   Understanding the hierarchy of human needs
   Identify as “deaf” or Identify “hearing levels vs.
    diagnosis and impairment”
   Check your messages/tone: “pass/refer” (not
    fail); “hearing levels” (not loss or impairment)
   How do you identify with parents?
   How do you help parents “identify with” their
    deaf or hard of hearing baby?
       More take home points…

   Work with Deaf community
   Gain tools for teaming with members of
    the Deaf Community
   How are parents introduced to deaf and or
    hard of hearing adults? What are the
    messages and comfort levels?
             From Diagnosis to
             Self-Actualization
Thank you for coming to our presentation! For further
  inquiries and/or discussion opportunities about this topic:

Email – JCrace@isfd.state.in.us
        CLawrence@isfd.state.in.us

Websites:
http://www.performance-unlimited.com/samain.htm

http://www.performance-unlimited.com/whyaffir.htm

				
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