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People with Intellectual Disabilities

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					People with Intellectual
Disabilities Facilitating Better
Health and Access to
Mainstream Services
   People with Intellectual Disabilities
 Facilitating Better Health and Access to
           Mainstream services
  CONTENT OF SESSION:
• To look at what we know about the health of people with
  intellectual disabilities
• An overview of Valuing People – White Paper
• Health Facilitation and Health Action Planning
• An Introduction to Other Health Initiatives
 What Do We Know about the
Health of People with Intellectual
           Disabilities?
•   Death rate
•   Respiratory diseases
•   Screening
•   Hearing loss
•   Mental health
•   Greater health needs
•   Dementia
•   Discrimination
•   Community care
•   Collaboration
          GROUP EXERCISE
• What are some of the health issues for people
  with intellectual disability that you encounter?

• How do you support and involve people with
  intellectual disability in addressing these issues?

• What partnerships exist with others to facilitate
  and promote better health for people with
  intellectual disabilities
               Valuing People
A new strategy for learning disability for the 21st Century
• Launched 2001
• Recognised that people with learning disability can lead
  full and rewarding lives
• Highlighted how some people with learning disability are
  discriminated against
• Set up Partnership Boards to oversee its delivery
        The New Vision
FOUR KEY PRINCIPLES OF:
• Rights
• Independence
• Choice
• Inclusion
      Valuing People Looks At:
•   Children and Young People
•   Choice and Control
•   Supporting Carers
•   Improving Health for People with Learning
    Disability
•   Housing and Employment
•   Quality Services
•   Partnership Working
•   Making Change Happen
           Health Facilitation

• Every person with a learning disability will
  be offered a health facilitator if they wish to
  have one

• Target date 2003
Two levels of Health Facilitation
1. Service development level
2. At individual level person to person with
   personal health outcomes
Health Facilitation is a Role with
       Specific Outcomes
•   To improve health
•   To support them to access best health care
•   To end discriminatory practice
•   Training & advice
•   Supporting good health
Health Facilitation Will Involve:
 • Giving people choices about health and
   lifestyles
 • Supporting people to access services
 • Providing accessible information
 • Developing Health Action Plans with
   individuals
 • Liaison with health professionals
    Health Facilitation Within Acute
               Hospitals
•   PURPOSE
    To promote genuine acceptance that people with an
    intellectual disability have the same right of access to
    services as everyone but may need support to use these
     Aims of Acute Nurse Liaison
                Post
•   Raise awareness within acute services
•   Partnership working
•   Influence and advise primary care trusts
•   Share best practice initiatives
•   Promote networking
•   Develop national standards
•   Audit services against benchmark
         Patient-Focused Benchmark
             Acute Hospital Care
Area:
  Acute hospital care for people with learning
  disabilities
Outcomes:
  All people accessing hospital services will receive
  appropriate, individualised quality care
         BENCHMARK OF BEST
             PRACTICE
Information to Access Hospital
Specialist Knowledge and Skills
Attitudes and Behaviours
Support
Information
Communication
Awareness Raising
Equipment
Balancing Observation and Privacy
Activity
  Health Action Planning (HAP)
By 2005 all people who have a learning
disability will be offered the opportunity to
have a personal Health Action Plan

Health Action Planning requires a commitment
to person centred healthcare
     Principles of Health Action
              Planning
•   CHOICE
•   INDEPENDENCE
•   RIGHTS
•   INCLUSION
 Health Action Planning Process
Health Action Plans need to be person centred

All people involved with the individual may
have a part to play in the process
 My Involvement in Health Action
           Planning
• Partnership working
• Project and findings
• Health and well-being was effected by all aspects
  of the individual’s life
• Health Action Planning involved input from a
  range of people
• A Good Practice Guide was needed
• Broader issues
  Other Issues for Consideration
• Interpretation of what a Health Action Plan
  Is
• Capacity and consent
• Family History
Content of a Health Action Plan
A good HAP will include:

Actions to improve health
Actions to maintain health
Areas to learn more about
Choices
  What a Health Action Plan is
            NOT
• A checklist
• A Nursing Assessment or Care Assessment
• A piece of paper that is ‘fixed’ or
  ‘immoveable’
• One size fits all
• A form to be filled in
• A quick fix
Health Action Plan Evaluation and
            Outcomes
Benchmark of Best Practice
(Every Health Action Plan is person
centred)
     Benchmark of Best Practice for
               HAPS
1.   Choice, Consent and Confidentiality
2.   Gathering Information
3    Responsibilities
4    Facilitation and Support
5    Health Action Plan
6    Primary Care
7    Outcomes
Health Action Planning and
Health Facilitation Scenarios
Group Exercise
    Role of Community Nurses in
    Health Facilitation and Health
           Action Planning
•   GP Liaison
•   Acute Liaison
•   Health Screening
•   Health Education (Group Work)
•   Health Action Planning with Service Users
•   Health Facilitation at Level 1 and 2
        Other Health Initiatives
•   My Health Book
•   Osteoporosis Screening Tool
•   Healthy Heart Group
•   Women’s Group
•   Men’s Group
•   GP Project
•   Acute Nurse Liaison Project
  Other Health Initiatives (cont)
• Surrey-Wide Healthcare Group
• National Networks
• For 2004 –   Epilepsy Group,
               First Aid Group
               Health Fair
PEOPLE WITH INTELLECTUAL
DISABILITIES CAN NOT BE SOCIALLY
INCLUDED IF IN POOR HEALTH.

HEALTH IS A STARTING POINT TO SO
MANY OTHER OPPORTUNITIES
For further information please contact:

Phil Boulter
Nurse Consultant
Surrey Oaklands NHS Trust
Coulsdon Road
Caterham
Surrey CR3 5YA
Tel: 01883 383539

email: phil.boulter@surreyoaklands.nhs.uk

				
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