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Bladder Management Guide Spinal Injuries Association

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					Overseas Organisations
Fentons Solicitors LLP is one of the country's leading claimant personal injury
solicitor firms, recovering tens of millions of pounds worth of compensation for
accident victims every year.


Fentons has a specialist team dedicated to pursuing compensation claims on behalf
of victims who suffer spinal injuries in all types of accident, be it a road collision, an
accident in the workplace or whilst on holiday or travelling in a foreign country.


The firm continues to attract increasing numbers of serious injury instructions
nationally and these are often high-profile cases involving brain, spinal and /or other
catastrophic injuries. Fentons serious injury team includes leading national experts,
with many years experience of handling cases of the maximum value and complexity.


For a number of years, Fentons has been a keen supporter of the work of the Spinal
Injuries Association, which offers invaluable support and advice to those living with
spinal cord injury throughout the UK, regardless of how their injury occurred. Fentons
is proud to be the sponsor of the SIA’s Advice Line, its’ very important flagship
service.
WHAT IS SIA?


SIA is the national organisation for people with spinal cord injuries and their families. If
you, a relative or friend is paraplegic or tetraplegic, or you are interested in our work, why
not join us? We welcome all as members. Full membership (if you are spinal cord
injured) is £20 in the UK, £25 in Europe and £32 elsewhere per annum. Junior
membership (17 and under) is free. Associate membership (prices the same as Full
membership) is open to everyone interested in our work and to other disabled people.
Affiliate membership (companies and organisations) is £85 per annum, while Life
Membership is a one-off payment of £200.
SIA publishes a lively bi-monthly magazine forward packed with news and views which is
free to members. We also circulate a bi-monthly Online Newsletter, ‘e-clips’ to all who
subscribe (free) while our popular interactive Website offers Chat Rooms and a Message
Board as well as hundreds of pages of useful information.
We produce a wide range of publications (available to purchase) which deal with all
aspects of living with spinal cord injury, e.g. books on bowel and bladder management,
sexuality, publications for health care professionals, as well as sports opportunities. We
also have an extensive series of Factsheets on a wide range of topics, and, for those
pursuing a compensation claim; we publish a Directory of Personal Injury Solicitors.
Our Advice Line is accessible by e-mail, fax, post and telephone and provides accurate
and up-to-date information on subjects including welfare advice, specialist equipment,
legal rights etc as well as health related topics. We run an employment service, Workwise,
for those wishing to return to employment or take up retraining or volunteering.
Externally, our Peer Advice Service (staffed by spinal cord injured people) operates at the
Spinal Cord Injury Centres in England, Wales and Northern Ireland providing practical
advice and support for those who sustain damage to the spinal cord. Our Community Peer
Support Service provides a similar service to those who are spinal cord injured and who
are being treated in District General Hospitals and Neurological Centres.
SIA also actively campaigns on vital issues affecting the everyday lives of disabled people,
set out in our manifesto ‘Campaigning for Change’. We are represented on major
voluntary and statutory bodies and our own Governing Board is composed of spinal cord
injured people. We have our own state-of-the-art premises, SIA House, which combines
the twin principles of inclusive design and accessibility and from here we run the only
specialist spinal cord injury Library in the country as part of the activities of the SIA
Academy, the research and training arm of SIA.




                                                                                                 2
                                               Spinal Injuries Association     Updated January 2011
To find out more, or join SIA, please write to us at:
Spinal Injuries Association
SIA House
2 Trueman Place
Oldbrook
Milton Keynes MK6 2HH




Tel:   0845 678 6633 (General Office – 9-5)
       0800 980 0501 (Freephone Advice Line (9.30-1pm & 2pm–4.30pm)


Fax    0845 070 6911


Web:          www.spinal.co.uk
E-mail:       sia@spinal.co.uk




                                                                                               3
                                               Spinal Injuries Association   Updated January 2011
Overseas Organisations

This is not an exhaustive list of overseas organisations. If you are able to
visit the websites given, you may find links to further sites for spinal injuries.

Australia
Disability First Stop
37 Hampden Rd, Nedlands, WA 6009
Tel: +61 (0)8 9386 7513                         Fax +61 (0)8 9386 6705
(Toll Free in Australia: 18 +193 331)
Web: www.disabilityfirststop.asn.au             Email: email@disabilityfirststop.asn.au

Disability Information and Resource Centre
195 Gilles Street, Adelaide, S A 5000
Tel: +61 8 8236 0555                       Fax: +61 8 8236 0566
Web: www.dircsa.org.au                     Email: dirc@dircsa.org.au

National Disability Services Limited
(formerly known as ACROD)
Locked Bag 3002
DEAKIN WEST ACT 26, 33 Thesiger Court, DEAKIN ACT 2600
Tel: +61 (0)2 6283 3200 (Direct)         Fax 02 6281 3488
Tel: +61 (0)2 6283 32 (Reception)
Web: www.nds.org.au                      Email: nds@nds.org.au

Independence Australia
208 Wellington St, Collingwood, Victoria, 3066
Tel: +61 (0) 1300 704 456
Web: www.independenceaustralia.com             Email:
theteam@independenceaustralia.com

People With Disabilities (WA) Inc
Suite 1, 37 Hampden Rd, Nedlands, WA 6009
Tel: +61 (0)8 9485 8900 1800 193 331 (Country Callers)    Fax +61 (0)8 9386 6705
(Toll Free in Australia: 18 +193 331)
Web: www.pwdwa.org                            Email: info@pwdwa.org

Spinal Cord Injuries Australia
PO Box 397, Matraville, NSW 2036 Australia
Tel: +61 (0)2 9661 8855                         Fax: +61 2 9661 9598
Web: www.scia.org.au                            Email: office@scia.org.au
See RollAwayz - a set of wheelchair accessible accommodation locations that operates in
Google Earth. See http://scia.org.au/publications.

Spinal Injuries Association
Head Office, Brisbane
PO Box 5651, West End, Queensland 4101
Tel: +61 0(7) 3391 2044                         Fax: +61 (0)7 3391 2088
Web: www.spinal.com.au                          E-mail: enquiries@spinal.com.au
                                                                                              4
                                             Spinal Injuries Association    Updated January 2011
Austria
Verband der Querschnittgelaehmten Oesterreich - VQOe
(Federation of Paraplegic Austria)
Sahulkastraße 3, Stg. 9, R10, A-1100, Wien, Austria
Tel/Fax: +43 (0)1 616 86 78
Web: www.vqo.at                               Email: Fritz.Gardavsky@vqo.at

Belgium
Piekernie VZW,
Heurnestraat 286, B-97 +Oudenaarde, Belgium
Tel/Fax: +32 9 357 4646
Web: www.piekernie.org                      Email: info@piekernie.org

Canada
British Columbia Paraplegic Association

780 S. W. Marine Drive
Vancouver, British Columbia, V6P 5Y7,
Canada
Tel: +1 604 324 3611 Fax: +1 604 326
                                             Email: vancouver@bcpara.org
1229
Web: www.bcpara.org

Canadian Paraplegic Association (Ontario)
520 Sutherland Drive, Toronto, Ontario, M4G 3V9, Canada
Tel: +1 416 422 5644                          Fax: +1 416 422 5943
Web: www.cpaont.org                           Email: info@cpaont.org

Canadian Paraplegic Association Inc.
CPA National Office, 1101 Prince of Wales Dr., 230, Ottawa, Ontario, K2C 3W7,Canada
Tel: +1 613 723 1033                           Fax: +1 613 723 1060
Web: www.canparaplegic.org                     Email: info@canparaplegic.org
(See website for other locations in Canada)

Croatia
Hrvatska udruga paraplegicara tetraplegicara
(Croatian Paraplegic and Tetragplegic Association)
Varicakova ulica 20, HR-10010 Zagreb-Slobostina
Tel: +385 1 38 31 195        Fax: +385 1 36 48 582
Web: www.hupt.hr                                Email: hupt@hupt.hr

Czech Republic
Svaz paraplegiků - Centrum Paraple
Ovčárská 471, 108 +Praha 108 - Malešice
Tel: +420 2 74 771 478, +420 2 74 777 973      Fax: +420 2 74 001 313
Web: www.paraple.cz                            Email: paraple@paraple.cz

                                                                                             5
                                            Spinal Injuries Association    Updated January 2011
Denmark
Dansk Handicap Idraets Forbund
Dækker Region Hovedstaden og Region Sjælland, Idrættens Hus, 2605 Brøndby
Tel: +45 4326 2626                         Fax: +45 4326 6224
Web: www.dhif.dk                           Email: handicapidraet@dhif.dk

Danske Handicaporganisationer (DH)
(Disabled Peoples Organisations Denmark - DPOD)
Kløverprisvej 10 B, DK-2650 Hvidovre
Tel: +45 3675 1777 Fax: +45 3675 1403
Web: www.handicap.dk                            Email: dh@handicap.dk

RYK - Rygmarvsskadede i Danmark
(Danish Spinal Cord Injuries Association)
Dansk Handicap Forbund,
Hans Knudsens Plads 1A,
DK 2100 Kobenhavn Ø                            Email: info@ryk.dk


Tel +45 39 29 35 55 Fax +45 39 29 55 55
Web: ryk.dk
(Note: do not enter as “www.ryk.dk”)
International contact address:
Jane Horsewell
Board Member RYK,
Springbanen 31, 2-3,
DK 2820 Gentofte
Tel +45 39 61 61 31
Email: jane@ryk.dk

Finland
Finnish Association of People with Physical Disabilities
Mannerheimintie 107, 00280 Helsinki
Tel: +358 9 613 191
Web: www.invalidilitto.fi                   Email: fdp@invalidilitto.fi

France
L’Association des Paralyses de France (Spinal Cord Injury)
17 Boulevard Auguste Blanui, 75013 Paris
Tel: +33 1 40 78 69 00
Web: www.apf.asso.fr




                                                                                            6
                                            Spinal Injuries Association   Updated January 2011
Germany
Berufsgenossenschaftliches Unfallkrankenhaus Hamburg / BG Trauma Hospital
Querschnittgelähmten-Zentrum, Bergedorfer Straße 10, D-21033, Hamburg
Tel: +49 (0)40 7306-2601    Fax: +49 (0)40,7306-2620
Web: www.buk-hamburg.de            Email: r.thietje@buk-hamburg.de

Bundessarbeitsgemeinschaft der Clubs Behinderter und ihrer Freunde
Langenmarckweg 21, 51465 Berglisch Gladbach
Tel: +49 2202 989988 11
Web: www.bagcbf.de                         Email: info@bagcbf.de

Deutscher Rollstuhl-Sportverband e. V.
(German Wheelchair Sport Federation)
Berufsgenossenschaftliches Unfallkrankenhaus Hamburg, Bergedorfer Straße 10, 21033
Hamburg
Tel. +49 (0)40 73063814                      Fax +49 (0)40 73061390
Web: www.drs.org
Email: peter.richarz@rollstuhlsport.de

Holland
Dwarslaesie Organisatie Nederland
Postbus 6124, 9702 HC Groningen
Tel: +31 (0)900 20 21 22 9
Web: www.dwarslaesie.nl                        E-mail: info@dwarslaesie.nl

Hungary
National Institute for Medical Rehabilitation
1528. Budapest, XII. Szanatórium u. 19
Tel: +36 1 391 1900                           Fax: +36 1 391 1999
Web: www.rehabint.hu                          Email: oorifoig@rehabint.hu

Iceland
Organisation of Handicapped in Iceland (OBI)
Hatuni 10, 105 Reykjavik, Iceland
Tel: +354 530 6700                         Fax: +354 530 6701
Web: www.obi.is                            Email: obi@obi.is

India
Indian Spinal Injuries Centre
Sector C, Vasant Kunj, New Delhi, 110070
Tel: +91 11 4225 5225/2689 6642/2686/8145      Fax: +91 11 2689 8810/9147
Web: www.isiconline.org                        Email: isic@nda.vsnl.net.in




                                                                                           7
                                           Spinal Injuries Association   Updated January 2011
Ireland
Disability Federation of Ireland
Fumbally Court Fumbally Lane Dublin 8
Tel: +353 (0)1 454 7978                        Fax: +353 (0)1 454 7981
Web: www.disability-federation.ie              Email: Info@disability-federation.ie

Irish Wheelchair Association
Blackheath Drive, Clontarf, Dublin 3
Tel: +353 (0)1 818 6400                        Fax: +353 (0)1 8333 873
Web: www.iwa.ie                                Email: info@iwa.ie

Spinal Injuries Ireland
National Rehabilitation Hospital, Rochestown Avenue, Dún Laoghaire, Co.Dublin
Tel: +353 (0)1 235 5317                        Web: www.spinalinjuries.ie     Email:
info@spinalinjuries.ie

Italy
Associazione Italiana Paraplegici Di Roma e del Lazio
via Giuseppe Cerbara, 20 - 00147 Roma, Italy
Tel: +39 (0)65 122 666                       Fax: +39 (0)65 130 517
Web: www.apromaelazio.org/aipemmei.html

Associazione Paraplegici Lombardia
via Tarvisio 13, 20125 Milano
Tel: +39 (0)2 6707 4375/4267                   Fax: +39 (0)2 6707 3112
Web: www.apl-onlus.it                          Email: segreteria@apl-onlus.it

Associazione Paraplegici tra e per Medullolesi Della Regiona Emilia Romagna
Via Viterbo, 82/a, c/o Atelier La Grande Mela, 41100, MODENA (MO) - EMILIA
ROMAGNA
Tel: +39 (0)59 365 366
                                                 Email: barbierivincenzo@libero.it

Coordinamento Para –Tetraplegici
Del Piemonte –ONLUS, Via Padova 29/a 10152 Torino Italia
Tel: +39 (0)11 381 95 03
Web: www.cptorino.it                       Email: info@cptorino.it

G.A.L.M. Verona

Gruppo Di Animazione Lesionatt Midollari
Sede Sociale e operativa: "L'Arcobaleno" - Via Camacici, 4 - 37057 - Pozzo di S.Giovanni
                                   Lupatoto (Verona)
Tel/Fax: +39 (0) 45 / 925 12 41                            Web: www.galm.it

Kenya
Kenyan Paraplegic Organization
Lenana Road, Kilimani, P.O. BOX 26047 00504, Nairobi, Kenya.

                                                                                             8
                                            Spinal Injuries Association    Updated January 2011
Tel +254 (0)20 273 3360
Web: www.kenyanparaplegic.org                 Email: talk2us@kenyanparaplegic.org

Lithuania
Northway Medicinos Centras
Zukausko g.19, Vilnius
Tel: +370 (0)5 2644466                        Fax: +370 (0)5 2644467
Web: www.nmc.lt                               Email: tomas.sinevicius@nmc.lt



New Zealand
Disability Information Service
P.O.Box 314 Worcester Street, Christchurch 8147, New Zealand
Tel: +64 (0)3 366 6189                        Fax: +64 (0)3 379 5939
Web: www.disinfo.co.nz
                                              Email: dis@disinfo.co.nz

Disability Information Service – West Coast
27 Albert Street, Greymouth, New Zealand
Tel: +64 (0)3 768 4600                      Fax: +64 0(3) 768 4605
Web: www.diswestcoast.org.nz                Email: wcdis2@minidata.co.nz

Enable New Zealand
69 Malden Street, PO Box 4547, Palmerston North 4442, New Zealand
Tel: +64 (0) 3 383 7500
Freephone: 0800 362253 (New Zealand only)
Web: www.enable.co.nz                       Email: info@enable.co.nz


New Zealand Spinal Trust
Allan Bean Centre
Burwood Hospital
255 Mairehau Road
Christchurch
Tel: (0064) 3 383 6881
Web: www.nzspinaltrust.org.nz                 Email: info@nzspinaltrust.org.nz



Norway
The Norwegian Federation of Organisations of Disabled People (FFO)
Mariboes gate 13, 0183 Oslo
Tel: +47 815 56 940
Web: www.ffo.no       E-mail: info@ffo.no




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                                           Spinal Injuries Association   Updated January 2011
Palestine
Palestinian Medical Relief Society
Al-Bireh, PMRS Building, P.O. Box 572, Ramallah-Palestine
Tel: +970 2 2969970                           Fax: +970 2 2969999
Web: www.pmrs.ps                              Email: pmrs@pmrs.ps

Singapore
The Society for the Physically Disabled
2 Peng Nguan Street, SPD Ability Centre, Singapore 168955
Tel: +65 6579 0700                            Fax: +65 6323 7008
Web: www.spd.org.sg                           Email: information@spd.org.sg

Disabled People’s Association
#04-77 German Centre, 25 International Business Park, Singapore 609916
Tel: +65 6899 1220                            Fax: +65 6099 1232
Web: www.dpa.org.sg                           Email: dpa@dpa.org.sg

Slovenia
Slovenian National Organisation for Paraplegics and Quadriplegics
Zveza Paraplegikov Slovenije, Štihova Ulica 14, 1000 Ljubljana
Tel: +386 (0)1 432 7138                         Fax: +386 (0)1 432 7252
Web: www.zveza-paraplegikov.si                  Email: info@zveza-paraplegikov.si
(English available from Homepage)

South Africa
Disabled Women's Support Organisation
85 Baines Avenue
Harare
Zimbabwe

Tel: +263 4 292 7752
+263 773 287 703,/ +263 712 886 860,/ +263 714 162 068

Email: dwso.hre@healthnet.org.zw,/ dwso.hre@gmail.com,/ rejoicetimire@gmail.com,/
rejoicetimire@ymail.com

The National Council for Persons with Physical Disabilities in South Africa
Private Bag X10041, Eastleigh Edenvale 1610
Physical address: 82 Andries Pretorius Road, Eastleigh Edenvale 1609
Tel: +27 (0)11 452 2774
Web: www.ncppdsa.org.za                       Email: Nationaloffice@ncppdsa.org.za

QuadPara Association of South Africa
PO Box 2368, Pinetown, Kwazulu-Natal 3650

                                                                                          10
                                           Spinal Injuries Association   Updated January 2011
Tel: +27 (0)31 767 0348/52                     Fax: +27 (0)31 767 0584
Web: www.qasa.co.za                            Email: ari@qasa.co.za

Spain
Aspaym Catalunya (SCI & other major disability associations)
Pere Vergés, 1, 7a - Edifici "Piramidón", 08020, Barcelona
Tel : +34 93 278 02 94                           Fax: +34 93 278 01 74
Web: www.aspaymcatalunya.org                     Email: aspaymcat@aspaymcatalunya.org

The Institut Guttmann Garcilaso – Hospital de Neurorehabilltacio
Cami de Can Ruti, s/n 08916 Badalona (Barcelona )
Tel: +34 93 497 7700
Web: www.guttmann.com

Federacio ECOM
Gran Via de les Corts Catalanes, n 562 , Pral. 2a. 08011 Barcelona, Spain.
Tel: +34 93 451 55 50                           Fax: 34 93 451 69 04
Web: www.ecom.es                                Email: ecom@ecom.cat

Hospital Nacional de Paraplejicos de Toledo
Servicio de Salud de Castilla-La mancha, Finca La Peraleda s/n, 45071 Toledo
Tel: +34 925 247700
Web: www.infomedula.org

Sweden
DHR
(Swedish Organization for People with Mobility Impairment)
Storforsplan 44, box 43, 121 23 Farsta, Sweden
Tel: +46 8 685 80 00 Fax: +46 8 645 65 41
Web: www.dhr.se <http://www.dhr.se/>         Email: info@dhr.

The Swedish Association for Survivors of Accidents and Injury
Vintergatan 2, 172 69 Sundyberg, Sweden
Tel: +46 (0)8 629 27 80                    Fax: +46 (0)8 28 15 60
Web: www.rtp.se                            Email: info@rtp.se

Switzerland
European Spinal Cord Injury Federation
c/o Swiss Paraplegic Association, Kantonstrasse 40, CH-6207 Nottwil, Switzerland
Tel: +41 41 939 5403                           Fax: +41 41 939 5439
Web: www.escif.org                             Email: info@escif.org

Schweizerischer Invaliden-Verband
Froburgstrasse 4, Postfach, 4601 Olten
Tel: +41 (0)62 206 8888                        Fax: +41 (0)62 206 8889
Web: www.procap.ch                             Email: mailto:info@procap.ch

Mobility International Schweiz (MIS)
(Mobility International Switzerland)
Froburgstrasse 4, CH-4600, Olten

                                                                                              11
                                            Spinal Injuries Association      Updated January 2011
Tel: +41 (0)62 206 8835                        Fax: +41 (0)62 206 8839
Web: www.mis-ch.ch                             Email: mis-ch@bluewin.ch

Schweizer Paraplegiker-Vereinigung
Kantonsstrasse 40, CH-6207, Nottwil, Switzerland
Tel: +41 (0)41 939 54 00                       Fax: +41 (0)41 939 54 09
Web: www.spv.ch                                E-Mail: spv@spv.ch

Turkey
The Spinal Cord Paralytics Society of Turkey
Atakoy 7-8. Kisim, Mimar Sinan Villalari Karsisi, Rekreasyon Alani Afet Yonetim Merkezi
Arkasi, Atakoy, Istanbul – Turkey
Tel:+90 (0)212 661 16 61
Web: www.tofd.org.

Uganda
Spinal Injuries Association Uganda (SIAU)
(New postal address to be advise)
Contact: Angela Bangelat
Tel: +256-312-284 713 (office), +256-772-480 007 (mob)
Email: sinjuries@yahoo.ca or bangelat@yahoo.com



USA
American Spinal Injuries Association
2020 Peachtree Road NW, Atlanta, GA 30309
Phone: +1 404 355 9772                    Fax: +1 404 355 1826
Web: www.asia-spinalinjury.org            Email: ASIA_Office@shepherd.org

National Spinal Cord Injuries Association
1 Church Street, #600, Rockville, MD 20850     Fax: +1 866-387-2196
Toll-Free Helpline: 800 962-9629 (Inside USA only)
Web: www.spinalcord.org                        Email: info@spinalcord.org

Travis Roy Foundation
111 Huntington Avenue, Prudential Center, 19th Floor, Boston, MA 02199-7613
Tel: +1 617 239-0556                          Fax: +1 617 227-4420
Web: www.travisroyfoundation.org              Email:
Administrator@travisroyfoundation.org




Zimbabwe
Disabled Women's Support Organisation (DWSO)
85 Baines Avenue, Harare, Zimbabwe                 Tel: +263 42927752, +263 11 8868


                                                                                             12
                                            Spinal Injuries Association     Updated January 2011
 Tel: +263 11886860, +263 9132877003,                     Email: dwso.hre@healthnet.org.zw
OR dwso.hre@gmail.com OR                                          Email:
rejoicetimire@ymail.com


Southern Africa Federation of the Disabled (SAFOD)
PO Box 2247, No 19 Lobenguna Street, Bulawayo, Zimbabwe
Tel: +263 9 69356
Web: www.safod.org                                   Email: info@safod.org


Disclaimer:

This factsheet has been prepared by SIA and contains general advice only which we hope will be
of use to you. Nothing in this factsheet should be construed as the giving of specific advice and it
should not be relied on as a basis for any decision or action. SIA does not accept any liability
arising from its use. We aim to ensure the information is as up to date and accurate as possible,
but please be warned that certain areas are subject to change from time to time. Please note that
the inclusion of named agencies, companies, products, services or publications in this factsheet
does not constitute a recommendation or endorsement by SIA.



Updated January 2011




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                                                  Spinal Injuries Association       Updated January 2011

				
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