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					                 CeliaC Disease News
From   the   NatioNal Digestive Diseases iNFormatioN CleariNghouse

   Celiac Disease Awareness Campaign • w w w.celiac.nih.gov
   A service of the National Institute of Diabetes and Digestive and Kidney Diseases, NIH                  W inter 2011

   Gluten-free Camp Reduces Stress and
   Improves Self-perception for Children
   and Adolescents with Celiac Disease

            esearchers at the University of California,
            San Francisco, found that children with
            celiac disease who attended a gluten-free
   camp demonstrated an improvement in overall
   quality of life (QOL).

   “A gluten-free camp that provides an environ-
   ment of unrestricted foods can at least tempo-
   rarily alleviate stress and anxiety around food
   and social interactions,” stated Melvin Heyman,
   M.D., M.P.H., professor of pediatrics and chief
   of pediatric gastroenterology, hepatology, and                alleviate some of the isolation precipitated by the
   nutrition at the University of California, San                disease, camps that cater to children with celiac
   Francisco, Benioff Children’s Hospital, and col-              disease and who are on a gluten-free diet have
   leagues. “A gluten-free camp allows children with             recently been established across the United States.
   celiac disease to enjoy a camp experience without
   concern and preoccupation with foods they eat or                                                 Gluten-free Camp,
                                                                                                     continued on page 2
   the stigma of their underlying disease.”

   Celiac disease is a digestive disease characterized             Inside This Issue
   by intolerance to gluten. Even minimal exposure
   to gluten causes small intestinal injury that can               Celiac Disease Is Associated with
   lead to a variety of symptoms, including weight                 Restless Legs Syndrome _________________________ 3
   loss, abdominal pain, diarrhea, and irritability.               Study Finds Gluten Contamination of
   People with celiac disease must remain on a diet                Inherently Gluten-free Grains and Flours __________ 4
   that completely excludes all forms of gluten,
                                                                   HHS Launches Healthy People 2020 ______________ 5
   which is often difficult for economic, social, and
   practical reasons.                                              Administration Announces Regulations Requiring
                                                                   New Health Insurance Plans to Provide Free
   The researchers stated that a chronic illness such              Preventive Care ________________________________ 6
   as celiac disease can reduce a child’s QOL at                   NIH Pays Tribute to the First Woman Appointed
   home, at school, and during extracurricular                     Director of an NIH Institute, Ruth L. Kirschstein ____ 7
   activities. Attending camps has been difficult                  Nurik Appointed Director of NIDDK
   for children with celiac disease because of their               Information Clearinghouses _____________________ 9
   dietary restrictions. However, in an effort to                  Resources ____________________________________ 10
2	 Celiac Disease	News

                               Gluten-free Camp, continued from page 1                             The positive effects were more evident among
                                                                                                   campers who had been on a gluten-free diet for
“A gluten-free camp            Researchers studied 77 campers who attended a                       fewer than 4 years. Researchers suspected that
                               7-day gluten-free summer camp for children with                     children who had been on a gluten-free diet for
that provides an envi-
                               celiac disease to see if the camp experience leads to               4 or more years had adapted more readily to that
ronment of unrestricted
                               improved QOL. QOL was evaluated through a                           way of life.
foods can at least
                               survey intended to gauge campers’ well being, self-
temporarily alleviate                                                                              Although researchers found that a gluten-free
                               perception, and emotional outlook. The results of
stress and anxiety                                                                                 camp improved QOL, durability of these obser-
                               the survey, which was given at the beginning and
around food and social                                                                             vations on return to daily life requires additional
                               end of the camp week, showed improvement in
interactions.”                                                                                     study.
                               each category by the end of camp.
Melvin Heyman, M.D.,                                                                               The National Digestive Diseases Information
M.P.H.                         “This is the first study to evaluate the short-term
                                                                                                   Clearinghouse, an information dissemination
Professor of Pediatrics and    effect of a specialized summer camp on children
Chief of Pediatric Gastroen-                                                                       service of the National Institute of Diabetes and
                               with celiac disease in the United States,” the
terology, Hepatology, and                                                                          Digestive and Kidney Diseases, has fact sheets
Nutrition at University of     researchers stated. “We surmised that removing
                                                                                                   and easy-to-read booklets about digestive dis-
California, San Francisco,     the hindrance of daily food choices allowed chil-
Benioff Children’s Hospital,                                                                       orders and celiac disease. For more information
                               dren to evaluate themselves without the burden
and colleagues                                                                                     and to obtain copies, visit www.digestive.niddk.
                               of their chronic disease.”
                                                                                                   nih.gov and www.celiac.nih.gov. ■

                                  Would you like to know more about NIDDK-
                                  supported research?
                                  The National Institutes of Health (NIH) provides access to a variety of reporting tools, reports,
                                  data, and analyses of NIH research activities at the Research Portfolio Online Reporting Tools
                                  (RePORT) website, www.projectreporter.nih.gov/reporter.cfm. One of the tools available is
                                  RePORT Expenditures and Results (RePORTER), which allows users to search a repository of
                                  NIH-funded research projects and access and download publications and patents resulting from
                                  NIH funding. ■

                                CeliaC Disease News                                                is an initiative of the NDDIC, a service of the National Insti-
                                                                                                   tute of Diabetes and Digestive and Kidney Diseases.
                                                                                                   Visit www.celiac.nih.gov to learn more about the Awareness
                                 Celiac Disease News, an email newsletter,                         Campaign.
                                 is sent to subscribers by the National Digestive Diseases         Executive Editor: Stephen P. James, M.D.
                                 Information Clearinghouse (NDDIC). The newsletter
                                 features news about celiac disease, special events, patient and   Dr. James is the director of the Division of
                                 professional meetings, and new publications available from        Digestive Diseases and Nutrition within the
                                 the NDDIC and other organizations.                                National Institute of Diabetes and Digestive
                                                                                                   and Kidney Diseases (NIDDK). As director,
                                 Please visit www.celiac.nih.gov/Newsletter.aspx to read or        Dr. James oversees planning, implementa-
                                 download a PDF version or to subscribe to the newsletter.         tion, and evaluation of a national research
                                 The National Institutes of Health Celiac Disease Awareness        effort focused on gastrointestinal, pancreatic,
                                 Campaign provides current, comprehensive, science-based           hepatobiliary, and nutrition diseases and conditions. Before
                                 information about the symptoms, diagnosis, and treatment of       joining the NIDDK in 2001, Dr. James directed the division
                                 celiac disease, also known as celiac sprue, nontropical sprue,    of gastroenterology at the University of Maryland’s School of
                                 and gluten-sensitive enteropathy. The Awareness Campaign          Medicine for 10 years.
                                Research News                                                                          Winter 2011 			3

                           Celiac Disease Is Associated
                           with Restless Legs Syndrome

                                    estless legs syndrome (RLS) was found to
                                    be frequently associated with celiac disease,
                                    researchers reported in the June 2010 issue
                           of Digestive Diseases and Sciences. These findings
“T   his study presents    could lead doctors to screen for celiac disease in patients with RLS and diagnose
the epidemiology of        and treat them for a disease they otherwise would have missed.
RLS in patients with
celiac disease, and        “Screening for celiac disease in patients with        without GI symptoms. Celiac disease should
because an association     idiopathic RLS may have importance because            also be considered in people with disorders such
between the two con-       celiac disease is a commonly overlooked silent        as osteoporosis, autoimmune diseases, infertility,
ditions has been newly     disease,” stated Leonard B. Weinstock, M.D.,          and thyroid disease.
recognized, further        Department of Internal Medicine, Washington
                           University School of Medicine, St. Louis, MO,         The study, the first to investigate the epidemiol-
studies are warranted.”
                           and colleagues. “Thus, celiac disease may be an       ogy of RLS in celiac disease, examined 85 people
Leonard B. Weinstock,
                           underlying correctable factor for some patients       with celiac disease. Researchers found that
M.D.                                                                             35 percent had RLS, compared with only 10 per-
Department of Internal
                           diagnosed with idiopathic RLS.”
                                                                                 cent of the control group. The people who were
Medicine, Washington
University School of       RLS is a central nervous system disorder that is      identified with celiac disease began a gluten-
Medicine, St. Louis, MO,   recognized by the compelling urge to move the         free diet; 50 percent of them had a substantial
and colleagues
                           legs that worsens at night. Previous neurological     improvement in their RLS symptoms. The
                           research has shown that people with RLS have          researchers stated that this improvement could
                           an iron deficiency, and the greater the iron defi-    be due to improved iron absorption.
                           ciency, the more severe the RLS. Research has
                           also shown that people with celiac disease likely     Showing the association between RLS and
                           have an iron deficiency. The researchers used         celiac disease could yield potential diagnosis and
                           this link as a basis for their study. “The original   therapeutic benefits for both groups of people.
                           rationale for this study was that both conditions     Researchers hope that treatment with a gluten-
                           often have concomitant iron deficiency,” the          free diet and aggressive iron replacement may
                           researchers stated.                                   improve the quality of life for patients with
                                                                                 celiac disease who have RLS. The researchers
                           However, researchers found that 50 percent of         concluded, “This study presents the epidemiol-
                           patients did not have iron deficiency, suggesting     ogy of RLS in patients with celiac disease, and
                           that alternative mechanisms for RLS and celiac        because an association between the two condi-
                           disease may also be at play, such as an immune        tions has been newly recognized, further studies
                           alteration as is shown in other celiac-associated     are warranted.”
                           disorders such as thyroid, ataxia, and other auto-
                           immune disorders.                                     The National Digestive Diseases Information
                                                                                 Clearinghouse, an information dissemination
                           Researchers called celiac disease the “great          service of the National Institute of Diabetes and
                           modern-day imposter” because it is often              Digestive and Kidney Diseases, has fact sheets
                           clinically silent or has mild gastrointestinal (GI)   and easy-to-read booklets about digestive disor-
                           symptoms and, therefore, may be undiagnosed           ders, including celiac disease. For more informa-
                           for many years. Celiac disease symptoms include       tion and to obtain copies, visit www.digestive.
                           diarrhea, abdominal pain, weight loss, and            niddk.nih.gov and www.celiac.nih.gov. ■
                           constipation; however, celiac disease can occur
4	 Celiac Disease	News               Research News

                                Study Finds Gluten Contamination of Inherently
                                Gluten-free Grains and Flours

                                         nder the Food Allergen and Consumer Protection
                                         Act, the U.S. Food and Drug Administration (FDA)
                                         must issue a rule for the voluntary labeling of food
                                as gluten-free. In the proposed rule, many single-ingredient
                                foods, such as millet, are considered inherently free of gluten.
“R    esults of this analysis   Researchers tested a number of these “single-ingredient
strongly suggest that not       foods” and found that some were contaminated with gluten.
all inherently gluten-free
grains, seeds, and flours       “This potential risk of contamination is a health      Crop rotation is one possible cause of grain
are indeed gluten-free          concern for people with celiac disease, who must       and seed comingling. For example, a harvest
when they are market-           follow a gluten-free diet,” said researcher Tricia     of wheat, barley, or rye could be followed by a
ready for the consumer.”        Thompson, M.S., R.D., and colleagues.                  gluten-free crop. It is likely that errant wheat,
                                                                                       barley, or rye seeds remain in the soil and result
Tricia Thompson, M.S., R.D.     Researchers tested 22 inherently gluten-free           in gluten-containing grain harvested along with
and colleagues                  grains, seeds, and flours that were not labeled        the gluten-free grain. Grain can also become
                                gluten-free, including millet, white rice flour,       comingled during shared harvesting, processing,
                                buckwheat, soy flour, basmati rice, corn meal, and     or transporting.
                                flax seed.
                                                                                       The researchers pointed out that statements such
                                According to the results, 13 of 22 samples, or         as “all millet is gluten-free” can be misleading
                                59 percent, contained less than the limit of           and potentially harmful to the consumer with
                                gluten quantification, which is 5 parts per mil-       celiac disease who requires a strict gluten-free
                                lion (ppm). Nine of 22 samples, or 44 percent,         diet.
                                contained more than the limit of quantification,
                                with mean gluten levels ranging from 8.5 to            The researchers concluded that the FDA may
                                2,925 ppm. Seven of 22 samples, or 32 percent,         want to modify their proposed rule for the label-
                                contained gluten levels that were greater than         ing of food as gluten-free, removing the require-
                                20 ppm, which would not be considered gluten-          ment that manufacturers of inherently gluten-
                                free under the proposed FDA rule for gluten-free       free grains, seeds, and flours state on product
                                labeling. Products that had gluten levels greater      labels that all foods of that type are gluten-free.
                                than 20 ppm included two types of millet flour,
                                millet grain, buckwheat flour, sorghum flour, and      The National Digestive Diseases Information
                                two types of soy flour.                                Clearinghouse, an information dissemination
                                                                                       service of the National Institute of Diabetes and
                                “Results of this analysis strongly suggest that not    Digestive and Kidney Diseases, has fact sheets
                                all inherently gluten-free grains, seeds, and flours   and easy-to-read booklets about digestive disor-
                                are indeed gluten-free when they are market-           ders, including celiac disease. For more informa-
                                ready for the consumer,” the researchers stated.       tion and to obtain copies, visit www.digestive.
                                “Inherently gluten-free grains and seeds can           niddk.nih.gov and www.celiac.nih.gov. ■
                                become contaminated with wheat, barley, or rye
                                anywhere from the field to the packaging plant.”
                                  HHS News                                                                               Winter 2011 			5

                             HHS Launches Healthy People 2020

                                     he U.S. Department of Health and Human
                                     Services (HHS) officially launched Healthy
                                     People 2020 on December 2, 2010, at the
                             George Washington University in Washington, D.C.
                             The event marked the formal release of the decade’s
                             national health promotion and disease prevention
“[Healthy People             objectives.
2020] should no longer
be known primarily as        Each decade since 1980, the HHS has released           eliminating disparities, and improving the health
a print-based reference      a comprehensive set of national public health          of all groups; creating social and physical envi-
book to be kept on the       objectives. Known as Healthy People, the initia-       ronments that promote good health for all; and
shelf for a decade. It
                             tive has been grounded in the notion that setting      promoting healthy development and behaviors
                             objectives and providing benchmarks to track           across every stage of life.
should also be a Web-
                             and monitor progress can motivate, guide, and
accessible database that                                                            Members of the public health community—
                             focus action.
is searchable, multilevel,                                                          especially federal, state, and local health
and interactive.”            The HHS convened the Secretary’s Advisory              agencies—have traditionally been viewed as
Advisory Committee on        Committee on National Health Promotion and             the primary audiences for Healthy People. The
National Health Promotion    Disease Prevention Objectives for 2020 to aid          Advisory Committee proposes that Healthy
and Disease Prevention       in the process of developing the next decade’s         People 2020 be designed for use by a wider range
Objectives for 2020          guidelines. The Advisory Committee was                 of groups in both the public and private sectors.
                             charged with providing advice and consultation         Tailored messages and products are needed to
                             to the Secretary: 1) to facilitate the development     make Healthy People useful for this expanded
                             and implementation of national health promo-           audience-base, which should include the gen-
                             tion and disease prevention goals and objectives,      eral public, voluntary organizations, faith-based
                             and 2) to inform the development of initiatives        organizations, businesses, health care provid-
                             that will occur during initial implementation of       ers, decision-makers, researchers, community-
                             the goals and objectives.                              based organizations, grass-roots advocates, and
                                                                                    others whose actions have significant health
                             Healthy People 2020 should assist federal agen-        consequences.
                             cies in setting priorities and in providing funding
                             and support to organizations and institutions          The December 2 launch program included
                             that are able to help achieve the objectives. The      remarks by HHS Assistant Secretary for Health
                             Advisory Committee stated that Healthy People          Howard K. Koh, M.D., and members of the
                             2020 “should no longer be known primarily as           Advisory Committee; an introduction and ori-
                             a print-based reference book to be kept on the         entation to the Healthy People 2020 website and
                             shelf for a decade. It should also be a Web-           objectives; and a panel discussion about the uses
                             accessible database that is searchable, multilevel,    of Healthy People 2020.
                             and interactive.”
                                                                                    For more information about the Healthy People
                             Healthy People 2020’s overarching goals include        2020 initiative, please visit www.healthypeople.
                             eliminating preventable disease, disability, injury,   gov/HP2020. ■
                             and premature death; achieving health equity,
6	 Celiac Disease	News           HHS News

                            Administration Announces Regulations
                            Requiring New Health Insurance Plans to
                            Provide Free Preventive Care

                                     he U.S. Departments of Health and
                                     Human Services (HHS), Labor, and
                                     the Treasury issued new regulations in
                            July requiring new private health plans to cover
                            evidence-based preventive services and eliminate
“Getting access to          cost-sharing requirements for such services. The
early care and screenings   new rules will help Americans gain easier access
will go a long way in       to services such as blood pressure, diabetes, and
preventing chronic          cholesterol tests; many cancer screenings; routine 

illnesses like diabetes,
heart disease, and high
                            vaccinations; prenatal care; and regular wellness visits for infants and children.
blood pressure.”
                            “Today, too many Americans do not get the            “Getting access to early care and screenings will
Michelle Obama              high-quality preventive care they need to stay       go a long way in preventing chronic illnesses like
First Lady                  healthy, avoid or delay the onset of disease, lead   diabetes, heart disease, and high blood pres-
                            productive lives, and reduce health care costs,”     sure,” said First Lady Michelle Obama. “And
                            said HHS Secretary Kathleen Sebelius. “From          good [preventive] care will also help tackle an
                            the Recovery Act to the First Lady’s Let’s Move      issue that is particularly important to me as First
                            Campaign to the Affordable Care Act, the             Lady and as a mother—and that is the epidemic
                            Administration is laying the foundation to help      of childhood obesity in America today. These
                            transform the health care system from a system       are important tools, and now it’s up to us to use
                            that focuses on treating the sick to a system that   them.”
                            focuses on keeping every American healthy.”
                                                                                 “One of the best ways to improve the quality of
                            Chronic diseases, such as heart disease, cancer,     your life—and control health care costs—is to
                            and diabetes, are responsible for seven of           prevent illness in the first place,” said Second
                            10 deaths among Americans each year and              Lady Jill Biden. “Focusing on prevention and
                            account for 75 percent of the nation’s health        early treatment makes more sense than trying to
                            spending—and often are preventable. Nationally,      play catch-up with a potentially deadly disease.
                            Americans use preventive services at about half      Quite simply, these [preventive] services will save
                            the recommended rate. An estimated 11 million        lives.”
                            children and 59 million adults have private insur-
                            ance that does not adequately cover immuniza-        Under the recently issued regulations, new health
                            tion, for instance. Studies have shown that cost     plans beginning on or after September 23, 2010,
                            sharing, including deductibles, coinsurance, and     must cover preventive services that have strong
                            copayments, reduces the likelihood that people       scientific evidence of their health benefits, and
                            will use preventive services.                        these plans may no longer charge a patient a

                                                                                                             free preventive Care,
                                                                                                                 continued on page 8
                                     NIH News                                                                                Winter 2011 			7

                                NIH Pays Tribute to the First Woman
                                Appointed Director of an NIH
                                Institute, Ruth L. Kirschstein

                                        urrent and former National Institutes of Health (NIH) 

                                        scientists and staff, as well as members of Congress,
                                        honored Ruth L. Kirschstein, M.D., the first woman appointed director 

“Ruth Kirschstein was           of an NIH Institute, for the positive impact she made as a leader in the scientific 

a legendary scientist and       community.
                                “Ruth embodied the spirit of NIH. She was an         after graduating magna cum laude in 1947 from
David Obey
U.S. Representative, Chairman
                                icon. She was loved and admired by so many at        Long Island University. She then went to Tulane
of the House Appropriations     the NIH, across the medical research community,      University School of Medicine, where she was
Committee                       among hundreds of members of Congress, and           one of 10 women in a class of 100 men.
                                around the world. There are few at the NIH
                                who have not been touched by her warmth,             She interned in medicine and surgery at Kings
                                wisdom, interest, and mentorship,” said Francis      County Hospital in Brooklyn and completed
                                S. Collins, M.D., Ph.D., director of the NIH.        residencies in pathology in Detroit, New
                                                                                     Orleans, and the then new NIH Clinical Center.
                                Kirschstein, who passed away in 2009, was            In 1957, Kirschstein joined the Federal Govern-
                                honored in 2010 with a tribute and symposium         ment, beginning a 15-year stint as an experimen-
                                in her honor that featured four sessions with        tal pathologist at the NIH Division of Biologics
                                11 featured speakers and ended with a reception.     Standards, now known as the U.S. Food and
                                Scientists and researchers who received funds        Drug Administration (FDA) Center for Biolog-
                                from the Ruth L. Kirschstein National Research       ics Evaluation and Research.
                                Service Award presented the sessions. The
                                awards have supported the work of thousands of       In her first major accomplishment as a scientist,
                                researchers, and the quality of their research has   Kirschstein led the development of a safety test
                                elevated the program to the ranks of Fulbright       for the polio vaccine in the 1950s and 1960s.
                                Awards and Rhodes Scholarships.                      Ultimately, her work led to widespread adoption
                                                                                     of the Sabin oral vaccine, especially in develop-
                                As the first woman director of an NIH                ing countries. Kirschstein continued to develop
                                Institute—the National Institute of General          tests for the safety of vaccines for other diseases,
                                Medical Sciences (NIGMS)—Kirschstein                 including measles.
                                was known for mentoring young researchers,
                                especially women and minorities. In 1993,            In 1974, after 2 years with the FDA, Kirschstein
                                Kirschstein became acting director of the NIH,       was appointed director of the NIGMS, a post
                                and then served as the deputy director under         she held for nearly 20 years. One of her most
                                NIH Director Harold Varmus for the next              significant accomplishments as NIGMS direc-
                                6 years. She was acting director again from          tor was her dedication to funding HIV/AIDS
                                2000 to 2002.                                        research and helping to establish the Genbank
                                                                                     nucleic acid sequence database, which has been a
                                A Brooklyn native, Kirschstein wanted to be a
                                doctor from a young age and fulfilled her dream                                     ruth l. KirsChstein,
                                                                                                                      continued on page 8
8	 Celiac Disease	News

                         free preventive Care, continued from page 6             Services Administration with the American
                                                                                 Academy of Pediatrics. These guidelines
                         copayment, coinsurance, or deductible for these         provide pediatricians and other health care
                         services when they are delivered by a network           professionals with recommendations on the
                         provider. Specifically, these recommendations           services they should provide to children from
                         include the following:                                  birth to age 21 to keep them healthy and
                         •	� Evidence-based preventive services. The             improve their chances of becoming healthy
                             U.S. Preventive Services Task Force, an             adults. The types of services that will be
                             independent panel of scientific experts, rates      covered include regular pediatrician visits,
                             preventive services based on the strength of        vision and hearing screenings, developmental
                             the scientific evidence documenting their           assessments, immunizations, and screening
                             benefits. Preventive services with a “grade”        and counseling to address obesity and help
                             of A or B—such as tobacco cessation coun-           children maintain a healthy weight.
                             seling and screenings for breast and colon       •	� Preventive care for women. Health plans
                             cancer, vitamin deficiencies during pregnancy,       will cover preventive care provided to women
                             diabetes, high cholesterol, and high blood           under both the Task Force recommenda-
                             pressure—will be covered under these rules.          tions and new guidelines being developed
                         •	� Routine vaccines. Health plans will cover            by an independent group of experts, includ-
                             a set of standard vaccines recommended by            ing doctors, nurses, and scientists, which are
                             the Advisory Committee on Immunization               expected to be issued by August 1, 2011.
                             Practices. Such vaccines range from routine      More information about the Affordable Care
                             childhood immunizations to periodic tetanus      Act’s new rules on preventive care can be found
                             shots for adults.                                at www.healthcare.gov/law/about/provisions/
                         •	� Preventive care for children. Health plans       services/index.html.
                             will cover preventive care for children recom-
                                                                              The regulations can be found at www.healthcare.
                             mended under the Bright Futures guidelines,
                                                                              gov/center/regulations/prevention/regs.html. ■
                             developed by the Health Resources and

                         ruth l. KirsChstein, continued from page 7           predoctoral programs,” said U.S. Representative
                                                                              David Obey, chairman of the House Appropria-
                         critical tool for biomedical research. She cham-     tions Committee.
                         pioned myriad programs in basic biomedical
                         research and research training that have helped      Kirschstein remained active at the NIH in
                         to transform biomedical research.                    her later years as a senior adviser; she was on
                                                                              a conference call with NIH Director Collins a
                         “Ruth Kirschstein was a legendary scientist and      week before her death. Kirschstein embodied
                         administrator . . . a pioneer . . . a champion for   the spirit of the NIH and was responsible for the
                         the advancement of women and minorities in           career development of innumerable scientists and
                         biomedical research . . . a strong advocate for      administrators. ■
                         research training, especially interdisciplinary
                                     NIDDK News                                                                           Winter 2011 			9

                                Nurik Appointed Director of NIDDK
                                Information Clearinghouses

                                    ody Nurik has been named director of the National
                                    Institute of Diabetes and Digestive and Kidney Diseases
                                    (NIDDK) Information Clearinghouses. She will
                                  oversee long- and short-range plans and operations for
                                the NIDDK’s three national health information Clearing-
“Jody is extremely              houses and manage the Clearinghouses’ support contract.
detail-oriented and             Nurik will also manage the update and production of more
gifted in big-picture-
                                than 300 award-winning print and online publications and
planning too.”
                                three national awareness campaigns—bladder control for
Kathy Kranzfelder
Director, Office of Commu-      women, celiac disease, and bowel incontinence.
nications and Public Liaison,
NIDDK, NIH                      The Clearinghouses disseminate science-             Prior to joining the NIDDK, Nurik was direc-
                                based health information to the public, health      tor of product marketing at Resolution Health/
                                professionals, and the media. In 2009, the          WellPoint, Inc., where she developed and
                                Clearinghouses handled nearly 79,000 informa-       managed health communications for health care
                                tion requests, received 6 million visitors to the   providers and the public. In this role, Nurik led
                                NIDDK health information website, and distrib-      plain language initiatives, outreach campaigns,
                                uted more than 1 million publications.              and market research with physicians and con-
                                                                                    sumers to improve content and design.
                                In 2004, Nurik oversaw the transition and
                                establishment of all NIDDK Clearinghouse            Nurik has also managed an information center
                                support contract operations to Circle Solutions,    for the Health Resources and Services Admin-
                                Inc., where she served as project manager. “Jody    istration, also part of the U.S. Department of
                                is extremely detail-oriented and gifted in big-     Health and Human Services, and has launched
                                picture-planning too,” noted Kathy Kranzfelder,     adult and pediatric diabetes disease management
                                director, Office of Communications and Public       programs at one of the largest home health com-
                                Liaison, NIDDK, National Institutes of Health,      panies in the United States. Nurik began her
                                and former director of the Clearinghouses.          career as a nurse, moving up to supervise urology
                                “From inquiry response to materials develop-        units of a hospital affiliated with Baylor College
                                ment to inventory database management to            of Medicine.
                                exhibit staffing and scheduling to reporting—the
                                Clearinghouses will definitely benefit from new     To learn more about the NIDDK Information
                                perspective and deep experience from Jody.”         Clearinghouses, visit www.niddk.nih.gov. ■
10	 Celiac Disease	News         Resources

                          New Fact Sheets                                           Updated Easy-to-Read Booklets
                          The National Digestive Diseases Information               The NDDIC has updated the following
                          Clearinghouse (NDDIC) has published the fol-              easy-to-read booklets:
                          lowing new fact sheets:                                   •	� What I need to know about Lactose Intolerance
                          •	� Colonoscopy (Spanish)                                 •	� What I need to know about Liver
                          •	� Flexible Sigmoidoscopy (Spanish)                          Transplantation
                          •	� H. pylori and Peptic Ulcers (Spanish)                 These publications are available at
                          •	� Liver Biopsy (Spanish)                                www.digestive.niddk.nih.gov. ■
                          •	� Lower GI Series (Spanish)
                          •	� Upper Endoscopy (Spanish)
                          •	� Upper GI Series (Spanish)
                          •	� Virtual Colonoscopy (Spanish)

                          These publications are available at

                          Updated Fact Sheets
                          The NDDIC has updated the following fact
                          •	� Chronic Hepatitis C: Current Disease
                          •	� Digestive Diseases Statistics for the United States
                          •	� Gastritis
                          •	� H. pylori and Peptic Ulcers
                          •	� Liver Transplantation
                          •	� Microscopic Colitis: Collagenous Colitis and
                              Lymphocytic Colitis
                          •	� NSAIDs and Peptic Ulcers

                          These publications are available at

                          Upcoming Meetings, Workshops, and Conferences
                          The National Institute of Diabetes and Digestive and Kidney Diseases Information Clearinghouses
                          will exhibit at the following upcoming event:

                          Digestive Disease Week
                          May 7–10 in Chicago.
                          For more information, visit www.ddw.org. ■

                                                                                                                 NIH Publication No. 11–6246
                                                                                                                                January 2011

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