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PREVENTION FOR POSITIVES

VIEWS: 9 PAGES: 8

									                          L I F E                                                          F O U N D A T I O N ’ S                    M O N T H L Y         N E W S L E T T E R


                              ......................................................                                                          V O L U M E     7 ,   I S S U E     7




                                                                                       PREVENTION FOR POSITIVES
                                                                                       By Tony Anderson
          Established in 1983,
           Life Foundation is a                                                           Aloha, my name is Tony Anderson. I joined the
         non-profit tax-exempt                                                          team at Life Foundation as Prevention for Posi-
            organization that is                                                       tives (P4P) specialist in May 2011. HIV preven-
         dedicated to stopping                                                         tion and education is not solely a job for me, but a
      the spread of HIV and to                                                         passion of mine.
      assisting people who are                                                            I have been diagnosed with HIV since 1990
                    living with                                                        and lost two family members to AIDS. I am very
                HIV and AIDS.                                                          familiar with many of the challenges that those
                                                                                       living with HIV encounter --- and the stigma and
          Anyone seeking HIV                                                           struggles they and their families confront on a
                 information or                                                        daily basis. I have previously served on the Com-
        assistance can call the                                                        munity Planning Group and have volunteered at
            Life Foundation at                                                         the Food Basket and various shelters as a small
                 808-521-AIDS                                                          way to give back to our community.
      (521-2437). All services                                                            I am eager to continue the interaction with our
        are free and absolutely                                                        community and help others by sharing my life
                   confidential.                                                        experiences --- always keeping in mind the im-
                                                                                       portance of the work that we do, in order for us to
            Life Foundation                                                            achieve success and make a difference.
       677 Ala Moana Blvd.                                                                The P4P program allows me to work one on
                   Suite 226                                                           one with other HIV infected individuals and their
     Honolulu, Hawaii 96813                                                            partners on issues of status disclosure, sexual
                  521-AIDS                                                             risk reduction, condom use and more. As a part
                                                                                       of the program I will collaborate with health care
                                                                                       providers and other community agencies to insure         What Is Prevention for Positives?
                                                                                       that our population is being serviced. Additionally
                                                                                       the P4P program will increase the awareness of
                                                                                       outreach, prevention and other services for HIV         HIV Positive people often think they
                                                                                       infected people here on the island of Oahu.              are not in need of HIV prevention
          INSIDE...                                                                       As the P4P prevention specialist I hope to
                                                                                                                                                 positives. However, protecting
    30th Anniversary......2                                                            build rapport with HIV positive individuals, their
                                                                                       partners, families and the communities that serve          yourself is important to avoid
Ask a Case Manager.......3                                                             them. I look forward to making myself accessible        contracting different strains of HIV.
Hawaii Center for AIDS..4                                                              throughout the community including at the food
                                                                                       basket, Gregory House, Spencer Clinic as well as
      Hepatitis Network of                                                             the Life Foundation Office. Feel free to contact         HIV positive people also have a huge
                 Hawaii..5                                                             me at any time.                                         role in preventing the spread of HIV
Save the FoodBasket.......6                                                                                                                     to others. Learn more and make an
                                                                                       Mahalo
            Calendar......7                                                                                                                    appointment with our P4P specialists
  Photo of the Month......8                                                            Tony Anderson                                                 by calling 808-521-AIDS.


                 JULY
       2011
                              ................................................................
                                                                                                 RYAN WHITE FUNDS AND YOU
        2010-11                                                                                     Life Foundation has been fortunate to
       BOARD OF                                                                                  receive Ryan White Care Act Funds annu-
       DIRECTORS                                                                                 ally. These funds can be used for several
                                                                                                 purposes in the care of People Living with
                                                                                                 HIV/AIDS. One of the main uses for
              President                                                                          these funds is to provide direct assistance
         MICHAEL GARCIA                                                                          to clients in paying for medical (including
           Oceanic Time Warner
                                                                                                 dental) and medical-related expenses.
     Vice President                                                                                 This year (based on the federal fis-
         REV JEFF LILLEY                                                                         cal year which runs April 2011 – March
   Lutheran Church of Honolulu                                                                   2012) Life Foundation was expecting
                                                                                                 approximately $95,000 to use for direct
            Treasurer                                                                            client assistance. Unfortunately, only a
         DWAYNE TAKENO
            PFK Pacific Hawaii                                                                    portion of it, approximately $37,000, has
                                                                                                 been released by the federal government
             Secretary                                                                           so far. In October we will find out if the
            AMANDA ROSS
  Resources Global Professionals                                                                 rest will be released.
                                                                                                    Life Foundation clients with income
               Members                                                                           under 300% of the Federal Poverty Level
               NICK AIELLO                                                                       (in 2011, this means up to $37,600 annual
        Department of Education                                                                  income for a single person) are eligible to
                                                                                                 request Ryan White funds. With this pos-
         CLIFFORD CHANG                                                                          sibly significant cut in funding, the Ryan
                 Pacific Islands                                                                  White Committee must be extra-cautious
       Primary Care Association                                                                  in approving requests for Ryan White
      LINDA CHANG, MD                                                                            funds. If the rest of the annual amount is
                      JABSOM                                                                     not released in October, Life Foundation             Client Agreement forms
                                                                                                 will run out of the funds much earlier than usual.      • Additional documents if the request is for
KAMANA‘OPONO CRABBE
       Office of Hawaiian Affairs                                                                    If you would like to request Ryan White funds     emergency rental assistance
                                                                                                 for your medical and medical-related expenses,          Approval of your request by the Ryan White
                                                                                                 please contact your case manager at (808)521-        Committee is not guaranteed and each approval
        BABETTE GALANG
                                                                                                  2437.                                               is for the expense requested only, it is not ongo-
               Papa Ola Lokahi
                                                                                                    Keep in mind that Ryan White funds can only       ing. For example, if the committee approves your
          TRAVIS N. GRAY                                                                         be used as a last resort. Please exhaust all other   request to pay your pharmacy co-pay bill, it is
University of Hawai‘i Foundation                                                                 options before asking for assistance. Your case      for that particular bill only. It does not mean that
                                                                                                 manager may refer you to other sources of assis-     future bills or requests for the same type of bill
        KEVIN KANESHIRO                                                                          tance to try before making a Ryan White request.     will be paid.
               Vacations Hawaii                                                                                                                          Ryan White requests typically take about three
                                                                                                    Please be prepared to provide the following
                                                                                                 required documents, which your case manager can      weeks to process. Please get that process started
               LEANNA LUI
                                                                                                 give you more information about:                     as soon as possible so you don’t risk having a
           Community Volunteer
                                                                                                    • 2011 income verification (Social Security let-   bill sent to a collection agency or having a utility
        DIANNE ROBINSON                                                                          ter, 2 consecutive paystubs, etc)                    (such as electric) get shut off. We are not always
           Community Volunteer                                                                      • Current personal budget                         able to stop that from happening while a request is
                                                                                                    • Current itemized bill or statement for the      in process.
      CHRISTINE YASUMA
                                                                                                 expense
           Clear Channel Radio
                                                                                                    • Updated Life Foundation Authorization and
      KAMALANI WILSON
                    LGBHawaii

     KINTARO YONEKURA                                                                               Want to receive LifeBeat

       2
              Palama Settlement

                                                                                                          via email?
                                                                                                   Contact Melanie Moore at 808-521-2437 x 252 or mmoore@lifefoundation.org.


                                                                                                                                     Life Foundation
                                                                                                   ... .................................
ASK A CASE MANAGER!
Question: I cannot understand that while my
friends and I are all on the Gregory House Pro-                                                                                            ........
grams, we are paying different amounts for our
rent. Some people have much nicer apartments
and pay less than me? Why is that?

Answer: According to Seng Lee of Gregory
House, there are many factors which determine                                                                                              Gregory
a client’s living situation, subsidized by the pro-
gram. Everyone who qualifies pays 30% of their
                                                                                                                                           House
adjustable income toward their rent. Differences
in rent share and/or accommodations could be:                                                                                              Gregory House is
                                                                                                                                           committed to the ongoing
     1) Whether utilities are included or not;                                                                                             assessment and development
     2) Two or more people are residing in the                                                                                             of programs that meet the
     unit;
                                                                                                                                           housing needs of persons
     3) The particular program for which a cli-
     ent qualifies;                                                                                                                         living with HIV/AIDS
     4) Special consideration extended to                                                                                                  throughout Hawaii, because
     clients who have documented medical                                                                                                   housing is healthcare.
     conditions;
     5) Timing, case manager advocacy, and                                                                                                 Contact them at 592-9022
     luck
                                                                                                                                           or
Gregory House Programs currently assists 165 clients every month, and there are 75 people on the                                           www.gregoryhouse.org
wait list. If you have any questions, feel free to call GHP @ 592-9022.




                    GOT A QUESTION?
                                                          In this new regular feature in
                                                       LifeBeat, we would like to throw                                                    LifeBeat is the monthly
                                                                                                                                           newsletter of Life
                                                      out the invitation to the readers of                                                 Foundation.
                                                      Life Beat to submit questions that
                                                                                                                                           Comments and questions
                                                        you would like our case manag-                                                     can be sent to:
                                                       ers to respond to or research. For                                                  Life Foundation
                                                      example, what is the average wait                                                    Melanie Moore
                                                      time to receive housing subsidies?                                                   677 Ala Moana Blvd.
                                                                                                                                           Suite 226
                                                      What are the process and require-                                                    Honolulu, HI 96813
                                                                ments of HDAP?                                                             808-521-2437 ext. 252
                                                                                                                                           mmoore@lifefoundation.org

     We hope that by sharing the answers to these questions with all the




                                                                                                                                             3
  reader of LifeBeat, we will be able to reach a larger audience with our
 case management knowledge. We look forward to receiving your ques-
  tions! Please email them to mail@lifefoundation.org, or mail them to
LifeBeat, Life Foundation, 677 Ala Moana Blvd. Suite 226, Honolulu, HI
                                  96813.
                                                                                                   ...




                                                LifeBeat
                             ................................................................
                                                                                                PARTICIPANTS NEEDED!
                                                                                                Hawaii Center for AIDS (formerly Hawaii AIDS Clinical Research Program) is recruiting for the fol-
                                                                                                lowing studies:

                                                                                                Maraviroc Intensification Study
                                                                                                If you are HIV positive, have been taking anti-HIV meds (but not on Maraviroc) for at least six
                                     .
                                                                                                months, HIV RNA < 50 copies, and HIV-DNA within study parameters, you may be eligible for
                                                                                                this study. The study is being done to see if Maraviroc improves memory and mental difficulties by
         Hawaii                                                                                 lowering the amount of HIV DNA in cells. If interested call Nancy at 285-6846. Compensation is
     Center for                                                                                 available. 6 month study with neuro psychological testing/Maraviroc provided free.
          AIDS
                                                                                                Study for treatment of HIV related Kaposi Sarcoma
     The Hawaii Center for                                                                      This KS study uses a medication called Lenalidomide. The study is being done to find out what
   AIDS (HiCFA) is the new                                                                      doses of this medication are safe in people who have HIV infection and what effects they have on you
 name for the Hawaii AIDS                                                                       and your KS tumors. If you have KS and are interested in participating in research please call Cris at
Clinical Research Program.                                                                      285-6453.

       The HiCFA is an aca-                                                                     Cardiovascular Disease Natural History Study
       demic program in the                                                                     You may qualify for a study looking at cardiovascular risk factors in HIV positive people. If you are
   field of HIV with clinical,                                                                   HIV positive, 40 years or older, currently taking anti-HIV medications, you may be able to partici-
   translational and labora-                                                                    pate. Please call Jim at 285-6678 or Lorna at 285-6430. Study will be closing to enrollment at the
 tory research studies and a                                                                    end of July! Compensation is available.
clinic providing care to HIV
            infected patients.                                                                  Autonomic Study
                                                                                                If you fit into one of the following groups, you may qualify for a study testing your autonomic ner-
   You can contact them at                                                                      vous system. Either: 1- Never taken HIV meds and are planning to start OR 2- Failing your current
                737-2751.                                                                       HIV meds and planning to switch OR 3- Taking HIV meds and plan to stop. If interested, please call
                                                                                                Nancy at 285-6846. Compensation is available.

                                                                                                Biopsy Study
                                                                                                If you are HIV positive and on Truvada you may be eligible for this study. We are looking at how fat
                                                                                                cells in the body work when exposed to different medications. If interested call Cris at 285-6453.
                                                                                                Compensation is available.

                                                                                                Rosuvastatin Study
                                                                                                If you are older than 40, have an undetectable viral load and LDL (bad cholesterol) < 130, you may
                                                                                                qualify for a study evaluating rosuvastatin on your cardiovascular system. If interested, call Lorna at
                                                                                                285-6430 or Debbie at 285-6741. Compensation is available.

                                                                                                Exercise Study
                                                                                                If you are HIV positive, do LESS than 30 minutes of moderate physical activity 2 days a week and
                                                                                                have been taking anti-HIV meds for at least six months, you may be eligible for this study. We are
                                                                                                studying the use of an aerobic based exercise program and its effect on cardiovascular improvement
                                                                                                in an HIV + population. The study will conduct a group exercise program 3 days a week for at least
                                                                                                3 months. You may or may not be chosen to be in the exercise group. If interested call Nancy at 285-
                                                                                                6846. Compensation is available.

                                                                                                Treatment for HIV-infection
                                                                                                If you are HIV positive and have never taken anti-HIV medication, you may be eligible for this study
                                                                                                using an experimental single tablet regimen of rilpiverine and Truvada. You will receive either the




  4
                                                                                                experimental drug or Atripla and you will know what drug you are taking. If interested call Debbie at
                                                                                                285-6741. Compensation is available.




                                                                                                                                                                                Continued on page 5....


                                                                                                                                 Hawaii Center for AIDS
                                                                                                         ............................. .............. ....................
                                                                                                                                                                             Hepatitis
                                                                                                                                                                             Support
                                                                                                                                                                             network
                                                                                                                                                                             of Hawaii

HEPCATS SUPPORT GROUP                                                                                                                                                        The Hepatitis Support
                                                                                                                                                                             Network of Hawaii is
                             A support group for Hepatitis C                                                                                                                 a hepatitis prevention,
                                                                                                                                                                             education, treatment and
                                 Thursday, July 21th, 2011 @ 6:15 PM                                                                                                         support network for
                                        Hawaii Medical Center                                                                                                                Hawaii.
                                           2230 Liliha Street
                                  In association with the Liver Center

   Please note that the HepCats Support Group is now held in the medical board room next to the
   cafeteria on the ground floor in the back building. Call Tim at number 375-8160 if you cannot
                       find the meeting. Free validation for parking structure.



SAVE THE DATE - AUGUST 17
         Please save the date for a presentation on Inflammation & HIV, by Fred Cruz, Pharm. D.

                                      Wednesday, August 17, 2011
                                   12:00 PM – Lunch will be provided
                                            Life Foundation
                                          677 Ala Moana Blvd
                                             Honolulu, HI

     Please RSVP to Raymond Alejo at 808-853-3232 or via e-mail at ralejo@lifefoundation.org by
         August 12, and provide the number of interested parties that will be in attendance.


.....continued from page 4




                                                                                                                                                                               5
If you are HIV negative, please consider helping people living with HIV and volunteer for the
following studies:

CVD Control Study – For HIV negative individuals
This study will involve one or two visits, some neuropsychological testing, blood tests, ultrasound,
and a brain MRI scan. You may qualify if you are HIV negative, age 40 or older, and in good health. If
interested, call Nancy at 285-6846. Compensation is available.


                      Hepatitis Support Network of Hawai’i
                               ................ ...............................................
                                                                                                   THE FOODBASKET CORNER
                                                                                                   By James McEuen, Interim Director of Save the FoodBasket

                                                                                                   Smoking Cessation Classes

                                                                                                   Aloha everyone! The American Lung Association will be sponsoring
                                                                                                   free smoking cessation classes through Save the FoodBasket at Church
                                                                                                   of the Crossroads, 1212 University Ave., Honolulu.

                                                                                                   The first of six classes will be held on Tuesday, July 12, from 9:30 –
                                                                                                   11:30 am, and all clients and their family members are encouraged to
                                                                                                   attend. For more information and class enrollment, please call Erica at
                                                                                                   852-9176.


         Save the                                                                                  Give your health a boost and participate in our free classes!

      FoodBasket
           Save the FoodBasket’s
        mission is to provide low
                                                                                                   RECIPE OF THE MONTH
                                                                                                   TERIYAKI CHICKEN THIGHS
 income individuals and families
        living with HIV/AIDS on
     Oahu with nourishing food
      and aloha, a community to
thrive in, and a way to empower
           themselves and others.

   Contact them at 744-6377 or
   visit www.thefoodbasket.org.




                                                                                                  Make this local favorite stand out with an easy and delicious home-made marinade.
                                                                                                  Ingredients                                         Directions
                                                                                                     • 1/4 cup low-sodium soy sauce                   Combine the first seven ingredients and stir
                                                                                                     • 2 tablespoons brown sugar                      until the sugar dissolves. Transfer to a resealable
                                                                                                     • 2 tablespoons dry sherry                       plastic bag or large bowl and add the chicken.
                                                                                                     • 2 tablespoons rice vinegar                     Seal the bag or cover the bowl and marinate the
                                                                                                     • 2 garlic cloves, crushed with a garlic press   chicken in the refrigerator, turning once, for 1
                                                                                                     or minced                                        hour. The chicken can be marinated for up to 4
                                                                                                     • 1 teaspoon finely grated fresh ginger           hours.




    6
                                                                                                     • 1/4 teaspoon red pepper flakes                  Heat the broiler to high. Arrange the chicken
                                                                                                     • 2 pounds skinless chicken thighs               on a broiler pan skin side down and broil until
                                                                                                     • 2 teaspoons sesame seeds                       brown and crispy, 8 - 10 minutes. Flip the chick-
                                                                                                                                                      en and broil until almost cooked through, about 8
                                                                                                                                                      minutes longer. Sprinkle with sesame seeds and
                                                                                                                                                      cook until the seeds turn golden brown and the
                                                                                                                                                      chicken is done, 1- 2 minutes longer.

                                                                                                                                  Save the FoodBasket
                   JULY 2011 CALENDAR
       Monday              Tuesday                 Wednesday                    Thursday                    Friday
                                                                                                   1
                          Regular client service hours are as follows:

                                       Monday through                                               Open Support Grp.
                         Friday 9 a.m. to 4 p.m., except Tuesdays from                               5:30 - 6:30 p.m.
                          11:30 a.m. to 2:00 p.m. for staff meetings.
                                                                                                            Dinner
                                                                                                         6:30-7:30 p.m.



4                  5                         6                           7                         8


    Office Closed                                                                                    Open Support Grp.
                       FoodBasket Closed       Open Support Grp.             FoodBasket Closed
         for                                  11:00 a.m. - 12:00 p.m.
                                                                                                     5:30 - 6:30 p.m.
     4th of July                                                                                            Dinner
                                                      Lunch                                              6:30-7:30 p.m.
                                                    12:00 p.m.



11                 12                        13                          14                        15
                                               Open Support Grp.
                                              11:00 a.m. - 12:00 p.m.    FoodBasket Lunch and
                   FoodBasket Lunch and                                                                 Open Support Grp.
                                                                          Grocery Distribution
                    Grocery Distribution                                                                 5:30 - 6:30 p.m.
                                                      Lunch                  11 - 1:30 p.m.
                       11 - 1:30 p.m.               12:00 p.m.
                                                                                                             Dinner
                                                                                                          6:30-7:30 p.m.




18                 19                        20                          21                        22

                                                                         FoodBasket Lunch and       Open Support Grp.
                   FoodBasket Lunch and Open Support Grp.                 Grocery Distribution       5:30 - 6:30 p.m.
                    Grocery Distribution 11:00 a.m. - 12:00 p.m.             11 - 1:30 p.m.
                       11 - 1:30 p.m.                                                                        Dinner
                                                 Lunch                     HepCats Meeting                6:30-7:30 p.m.
                                               12:00 p.m.                      6:15 p.m.
                                                                         See Page 5 for location

25                 26                        27                          28                        29
                                               Open Support Grp.
                                              11:00 a.m. - 12:00 p.m.                               Open Support Grp.
                   FoodBasket Lunch and                                  FoodBasket Lunch and        5:30 - 6:30 p.m.
                    Grocery Distribution              Lunch               Grocery Distribution
                       11 - 1:30 p.m.               12:00 p.m.               11 - 1:30 p.m.                 Dinner
                                                                                                         6:30-7:30 p.m.
TWO ANNIVERSARIES -




                                                                                                         ................... ............................................
WHAT HAVE WE LEARNED?
by Heather Lusk, Program Director

  As The CHOW Project closes in on its 20th
anniversary as the statewide syringe exchange
program for Hawai‘i, we have been reflecting
on our activities and effectiveness in preventing
the transmission of HIV and other bloodborne
pathogens among people who inject drugs
across the State. Our latest evaluation found
a 2% prevalence of HIV among the random
sample of 150 clients who participated in the
research study – which is very low consider-
ing that sharing injection equipment is one of
the highest risks for acquiring HIV. National
data indicates almost 1/3 of AIDS cases are
                                                                                                                                                                            The CHOW
related to injection drug use (not to mention the    other measures have failed to effectively lower
                                                                                                                                                                            Project
partners and children of people who got HIV          the availability or consumption of drugs. Fur-
through injection drug use) and areas without        thermore, the report finds that repressive efforts                                                                      The CHOW Project’s mission
access to sterile injection equipment report 50%     directed at people who use drugs has been a                                                                            is to prevent the transmission
or higher prevalence of HIV among injection          barrier and interfered with public health inter-                                                                       of HIV/AIDS and other
drug users. The CHOW Project’s harm reduc-           ventions for HIV and other drug-related harms.
tion philosophy and commitment to providing
                                                                                                                                                                            bloodborne pathogens
                                                     Many of the report’s recommendations reflect                                                                            among high-risk drug users,
education and access to safer sex and safer          the same policies that CHOW has found to be
injection equipment to everyone – especially         successful: end the criminalization, marginal-
                                                                                                                                                                            especially injection drug
those engaged in potentially harmful behaviors       ization and stigmatization of people who use                                                                           users, in the state of Hawaii.
who are unwilling or unable to stop – has con-       drugs but do no harm to others; offer health and
tributed to keeping the HIV rate low amongst         treatment services to those in need; challenge
program participants and linked hundreds of          rather than reinforce common misconceptions
people to drug treatment and other services.         about drug use and drug users; invest in activi-
  Another anniversary just passed – the 40th an-     ties that can both prevent people from taking
niversary of the War on Drugs. A recent report       drugs and to prevent those who use drugs from
from the Global Commission on Drug Policy,           developing more serious problems. As CHOW
whose goal is “to bring to the international level   and other agencies across the State advocate
an informed, science-based discussion about          for an overhaul of Hawai‘i’s drug policies to be
humane and effective ways to reduce the harm         aligned with the report’s findings, hopefully we
caused by drugs to people and societies”, finds       will soon be celebrating another anniversary –
that the War on Drugs has failed. The report         the shift to a scientifically-proven, health-based
goes on to state that the trillion-dollar war’s      and humane response to drug use.
focus on the criminalization of drug users and




                           JULY QUOTE:
    “Liberty is always dangerous, but it is
          the safest thing we have.”
          ~Harry Emerson Fosdick
                                             LifeBeat                                                                                                                         8

								
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