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L I F E F O U N D A T I O N ’ S M O N T H L Y N E W S L E T T E R ...................................................... V O L U M E 7 , I S S U E 7 PREVENTION FOR POSITIVES By Tony Anderson Established in 1983, Life Foundation is a Aloha, my name is Tony Anderson. I joined the non-proﬁt tax-exempt team at Life Foundation as Prevention for Posi- organization that is tives (P4P) specialist in May 2011. HIV preven- dedicated to stopping tion and education is not solely a job for me, but a the spread of HIV and to passion of mine. assisting people who are I have been diagnosed with HIV since 1990 living with and lost two family members to AIDS. I am very HIV and AIDS. familiar with many of the challenges that those living with HIV encounter --- and the stigma and Anyone seeking HIV struggles they and their families confront on a information or daily basis. I have previously served on the Com- assistance can call the munity Planning Group and have volunteered at Life Foundation at the Food Basket and various shelters as a small 808-521-AIDS way to give back to our community. (521-2437). All services I am eager to continue the interaction with our are free and absolutely community and help others by sharing my life conﬁdential. experiences --- always keeping in mind the im- portance of the work that we do, in order for us to Life Foundation achieve success and make a difference. 677 Ala Moana Blvd. The P4P program allows me to work one on Suite 226 one with other HIV infected individuals and their Honolulu, Hawaii 96813 partners on issues of status disclosure, sexual 521-AIDS risk reduction, condom use and more. As a part of the program I will collaborate with health care providers and other community agencies to insure What Is Prevention for Positives? that our population is being serviced. Additionally the P4P program will increase the awareness of outreach, prevention and other services for HIV HIV Positive people often think they infected people here on the island of Oahu. are not in need of HIV prevention INSIDE... As the P4P prevention specialist I hope to positives. However, protecting 30th Anniversary......2 build rapport with HIV positive individuals, their partners, families and the communities that serve yourself is important to avoid Ask a Case Manager.......3 them. I look forward to making myself accessible contracting different strains of HIV. Hawaii Center for AIDS..4 throughout the community including at the food basket, Gregory House, Spencer Clinic as well as Hepatitis Network of the Life Foundation Ofﬁce. Feel free to contact HIV positive people also have a huge Hawaii..5 me at any time. role in preventing the spread of HIV Save the FoodBasket.......6 to others. Learn more and make an Mahalo Calendar......7 appointment with our P4P specialists Photo of the Month......8 Tony Anderson by calling 808-521-AIDS. JULY 2011 ................................................................ RYAN WHITE FUNDS AND YOU 2010-11 Life Foundation has been fortunate to BOARD OF receive Ryan White Care Act Funds annu- DIRECTORS ally. These funds can be used for several purposes in the care of People Living with HIV/AIDS. One of the main uses for President these funds is to provide direct assistance MICHAEL GARCIA to clients in paying for medical (including Oceanic Time Warner dental) and medical-related expenses. Vice President This year (based on the federal ﬁs- REV JEFF LILLEY cal year which runs April 2011 – March Lutheran Church of Honolulu 2012) Life Foundation was expecting approximately $95,000 to use for direct Treasurer client assistance. Unfortunately, only a DWAYNE TAKENO PFK Paciﬁc Hawaii portion of it, approximately $37,000, has been released by the federal government Secretary so far. In October we will ﬁnd out if the AMANDA ROSS Resources Global Professionals rest will be released. Life Foundation clients with income Members under 300% of the Federal Poverty Level NICK AIELLO (in 2011, this means up to $37,600 annual Department of Education income for a single person) are eligible to request Ryan White funds. With this pos- CLIFFORD CHANG sibly signiﬁcant cut in funding, the Ryan Paciﬁc Islands White Committee must be extra-cautious Primary Care Association in approving requests for Ryan White LINDA CHANG, MD funds. If the rest of the annual amount is JABSOM not released in October, Life Foundation Client Agreement forms will run out of the funds much earlier than usual. • Additional documents if the request is for KAMANA‘OPONO CRABBE Ofﬁce of Hawaiian Affairs If you would like to request Ryan White funds emergency rental assistance for your medical and medical-related expenses, Approval of your request by the Ryan White please contact your case manager at (808)521- Committee is not guaranteed and each approval BABETTE GALANG 2437. is for the expense requested only, it is not ongo- Papa Ola Lokahi Keep in mind that Ryan White funds can only ing. For example, if the committee approves your TRAVIS N. GRAY be used as a last resort. Please exhaust all other request to pay your pharmacy co-pay bill, it is University of Hawai‘i Foundation options before asking for assistance. Your case for that particular bill only. It does not mean that manager may refer you to other sources of assis- future bills or requests for the same type of bill KEVIN KANESHIRO tance to try before making a Ryan White request. will be paid. Vacations Hawaii Ryan White requests typically take about three Please be prepared to provide the following required documents, which your case manager can weeks to process. Please get that process started LEANNA LUI give you more information about: as soon as possible so you don’t risk having a Community Volunteer • 2011 income veriﬁcation (Social Security let- bill sent to a collection agency or having a utility DIANNE ROBINSON ter, 2 consecutive paystubs, etc) (such as electric) get shut off. We are not always Community Volunteer • Current personal budget able to stop that from happening while a request is • Current itemized bill or statement for the in process. CHRISTINE YASUMA expense Clear Channel Radio • Updated Life Foundation Authorization and KAMALANI WILSON LGBHawaii KINTARO YONEKURA Want to receive LifeBeat 2 Palama Settlement via email? Contact Melanie Moore at 808-521-2437 x 252 or firstname.lastname@example.org. Life Foundation ... ................................. ASK A CASE MANAGER! Question: I cannot understand that while my friends and I are all on the Gregory House Pro- ........ grams, we are paying different amounts for our rent. Some people have much nicer apartments and pay less than me? Why is that? Answer: According to Seng Lee of Gregory House, there are many factors which determine Gregory a client’s living situation, subsidized by the pro- gram. Everyone who qualiﬁes pays 30% of their House adjustable income toward their rent. Differences in rent share and/or accommodations could be: Gregory House is committed to the ongoing 1) Whether utilities are included or not; assessment and development 2) Two or more people are residing in the of programs that meet the unit; housing needs of persons 3) The particular program for which a cli- ent qualiﬁes; living with HIV/AIDS 4) Special consideration extended to throughout Hawaii, because clients who have documented medical housing is healthcare. conditions; 5) Timing, case manager advocacy, and Contact them at 592-9022 luck or Gregory House Programs currently assists 165 clients every month, and there are 75 people on the www.gregoryhouse.org wait list. If you have any questions, feel free to call GHP @ 592-9022. GOT A QUESTION? In this new regular feature in LifeBeat, we would like to throw LifeBeat is the monthly newsletter of Life out the invitation to the readers of Foundation. Life Beat to submit questions that Comments and questions you would like our case manag- can be sent to: ers to respond to or research. For Life Foundation example, what is the average wait Melanie Moore time to receive housing subsidies? 677 Ala Moana Blvd. Suite 226 What are the process and require- Honolulu, HI 96813 ments of HDAP? 808-521-2437 ext. 252 email@example.com We hope that by sharing the answers to these questions with all the 3 reader of LifeBeat, we will be able to reach a larger audience with our case management knowledge. We look forward to receiving your ques- tions! Please email them to firstname.lastname@example.org, or mail them to LifeBeat, Life Foundation, 677 Ala Moana Blvd. Suite 226, Honolulu, HI 96813. ... LifeBeat ................................................................ PARTICIPANTS NEEDED! Hawaii Center for AIDS (formerly Hawaii AIDS Clinical Research Program) is recruiting for the fol- lowing studies: Maraviroc Intensiﬁcation Study If you are HIV positive, have been taking anti-HIV meds (but not on Maraviroc) for at least six . months, HIV RNA < 50 copies, and HIV-DNA within study parameters, you may be eligible for this study. The study is being done to see if Maraviroc improves memory and mental difﬁculties by Hawaii lowering the amount of HIV DNA in cells. If interested call Nancy at 285-6846. Compensation is Center for available. 6 month study with neuro psychological testing/Maraviroc provided free. AIDS Study for treatment of HIV related Kaposi Sarcoma The Hawaii Center for This KS study uses a medication called Lenalidomide. The study is being done to ﬁnd out what AIDS (HiCFA) is the new doses of this medication are safe in people who have HIV infection and what effects they have on you name for the Hawaii AIDS and your KS tumors. If you have KS and are interested in participating in research please call Cris at Clinical Research Program. 285-6453. The HiCFA is an aca- Cardiovascular Disease Natural History Study demic program in the You may qualify for a study looking at cardiovascular risk factors in HIV positive people. If you are ﬁeld of HIV with clinical, HIV positive, 40 years or older, currently taking anti-HIV medications, you may be able to partici- translational and labora- pate. Please call Jim at 285-6678 or Lorna at 285-6430. Study will be closing to enrollment at the tory research studies and a end of July! Compensation is available. clinic providing care to HIV infected patients. Autonomic Study If you ﬁt into one of the following groups, you may qualify for a study testing your autonomic ner- You can contact them at vous system. Either: 1- Never taken HIV meds and are planning to start OR 2- Failing your current 737-2751. HIV meds and planning to switch OR 3- Taking HIV meds and plan to stop. If interested, please call Nancy at 285-6846. Compensation is available. Biopsy Study If you are HIV positive and on Truvada you may be eligible for this study. We are looking at how fat cells in the body work when exposed to different medications. If interested call Cris at 285-6453. Compensation is available. Rosuvastatin Study If you are older than 40, have an undetectable viral load and LDL (bad cholesterol) < 130, you may qualify for a study evaluating rosuvastatin on your cardiovascular system. If interested, call Lorna at 285-6430 or Debbie at 285-6741. Compensation is available. Exercise Study If you are HIV positive, do LESS than 30 minutes of moderate physical activity 2 days a week and have been taking anti-HIV meds for at least six months, you may be eligible for this study. We are studying the use of an aerobic based exercise program and its effect on cardiovascular improvement in an HIV + population. The study will conduct a group exercise program 3 days a week for at least 3 months. You may or may not be chosen to be in the exercise group. If interested call Nancy at 285- 6846. Compensation is available. Treatment for HIV-infection If you are HIV positive and have never taken anti-HIV medication, you may be eligible for this study using an experimental single tablet regimen of rilpiverine and Truvada. You will receive either the 4 experimental drug or Atripla and you will know what drug you are taking. If interested call Debbie at 285-6741. Compensation is available. Continued on page 5.... Hawaii Center for AIDS ............................. .............. .................... Hepatitis Support network of Hawaii HEPCATS SUPPORT GROUP The Hepatitis Support Network of Hawaii is A support group for Hepatitis C a hepatitis prevention, education, treatment and Thursday, July 21th, 2011 @ 6:15 PM support network for Hawaii Medical Center Hawaii. 2230 Liliha Street In association with the Liver Center Please note that the HepCats Support Group is now held in the medical board room next to the cafeteria on the ground ﬂoor in the back building. Call Tim at number 375-8160 if you cannot ﬁnd the meeting. Free validation for parking structure. SAVE THE DATE - AUGUST 17 Please save the date for a presentation on Inﬂammation & HIV, by Fred Cruz, Pharm. D. Wednesday, August 17, 2011 12:00 PM – Lunch will be provided Life Foundation 677 Ala Moana Blvd Honolulu, HI Please RSVP to Raymond Alejo at 808-853-3232 or via e-mail at email@example.com by August 12, and provide the number of interested parties that will be in attendance. .....continued from page 4 5 If you are HIV negative, please consider helping people living with HIV and volunteer for the following studies: CVD Control Study – For HIV negative individuals This study will involve one or two visits, some neuropsychological testing, blood tests, ultrasound, and a brain MRI scan. You may qualify if you are HIV negative, age 40 or older, and in good health. If interested, call Nancy at 285-6846. Compensation is available. Hepatitis Support Network of Hawai’i ................ ............................................... THE FOODBASKET CORNER By James McEuen, Interim Director of Save the FoodBasket Smoking Cessation Classes Aloha everyone! The American Lung Association will be sponsoring free smoking cessation classes through Save the FoodBasket at Church of the Crossroads, 1212 University Ave., Honolulu. The ﬁrst of six classes will be held on Tuesday, July 12, from 9:30 – 11:30 am, and all clients and their family members are encouraged to attend. For more information and class enrollment, please call Erica at 852-9176. Save the Give your health a boost and participate in our free classes! FoodBasket Save the FoodBasket’s mission is to provide low RECIPE OF THE MONTH TERIYAKI CHICKEN THIGHS income individuals and families living with HIV/AIDS on Oahu with nourishing food and aloha, a community to thrive in, and a way to empower themselves and others. Contact them at 744-6377 or visit www.thefoodbasket.org. Make this local favorite stand out with an easy and delicious home-made marinade. Ingredients Directions • 1/4 cup low-sodium soy sauce Combine the ﬁrst seven ingredients and stir • 2 tablespoons brown sugar until the sugar dissolves. Transfer to a resealable • 2 tablespoons dry sherry plastic bag or large bowl and add the chicken. • 2 tablespoons rice vinegar Seal the bag or cover the bowl and marinate the • 2 garlic cloves, crushed with a garlic press chicken in the refrigerator, turning once, for 1 or minced hour. The chicken can be marinated for up to 4 • 1 teaspoon ﬁnely grated fresh ginger hours. 6 • 1/4 teaspoon red pepper ﬂakes Heat the broiler to high. Arrange the chicken • 2 pounds skinless chicken thighs on a broiler pan skin side down and broil until • 2 teaspoons sesame seeds brown and crispy, 8 - 10 minutes. Flip the chick- en and broil until almost cooked through, about 8 minutes longer. Sprinkle with sesame seeds and cook until the seeds turn golden brown and the chicken is done, 1- 2 minutes longer. Save the FoodBasket JULY 2011 CALENDAR Monday Tuesday Wednesday Thursday Friday 1 Regular client service hours are as follows: Monday through Open Support Grp. Friday 9 a.m. to 4 p.m., except Tuesdays from 5:30 - 6:30 p.m. 11:30 a.m. to 2:00 p.m. for staff meetings. Dinner 6:30-7:30 p.m. 4 5 6 7 8 Ofﬁce Closed Open Support Grp. FoodBasket Closed Open Support Grp. FoodBasket Closed for 11:00 a.m. - 12:00 p.m. 5:30 - 6:30 p.m. 4th of July Dinner Lunch 6:30-7:30 p.m. 12:00 p.m. 11 12 13 14 15 Open Support Grp. 11:00 a.m. - 12:00 p.m. FoodBasket Lunch and FoodBasket Lunch and Open Support Grp. Grocery Distribution Grocery Distribution 5:30 - 6:30 p.m. Lunch 11 - 1:30 p.m. 11 - 1:30 p.m. 12:00 p.m. Dinner 6:30-7:30 p.m. 18 19 20 21 22 FoodBasket Lunch and Open Support Grp. FoodBasket Lunch and Open Support Grp. Grocery Distribution 5:30 - 6:30 p.m. Grocery Distribution 11:00 a.m. - 12:00 p.m. 11 - 1:30 p.m. 11 - 1:30 p.m. Dinner Lunch HepCats Meeting 6:30-7:30 p.m. 12:00 p.m. 6:15 p.m. See Page 5 for location 25 26 27 28 29 Open Support Grp. 11:00 a.m. - 12:00 p.m. Open Support Grp. FoodBasket Lunch and FoodBasket Lunch and 5:30 - 6:30 p.m. Grocery Distribution Lunch Grocery Distribution 11 - 1:30 p.m. 12:00 p.m. 11 - 1:30 p.m. Dinner 6:30-7:30 p.m. TWO ANNIVERSARIES - ................... ............................................ WHAT HAVE WE LEARNED? by Heather Lusk, Program Director As The CHOW Project closes in on its 20th anniversary as the statewide syringe exchange program for Hawai‘i, we have been reﬂecting on our activities and effectiveness in preventing the transmission of HIV and other bloodborne pathogens among people who inject drugs across the State. Our latest evaluation found a 2% prevalence of HIV among the random sample of 150 clients who participated in the research study – which is very low consider- ing that sharing injection equipment is one of the highest risks for acquiring HIV. National data indicates almost 1/3 of AIDS cases are The CHOW related to injection drug use (not to mention the other measures have failed to effectively lower Project partners and children of people who got HIV the availability or consumption of drugs. Fur- through injection drug use) and areas without thermore, the report ﬁnds that repressive efforts The CHOW Project’s mission access to sterile injection equipment report 50% directed at people who use drugs has been a is to prevent the transmission or higher prevalence of HIV among injection barrier and interfered with public health inter- of HIV/AIDS and other drug users. The CHOW Project’s harm reduc- ventions for HIV and other drug-related harms. tion philosophy and commitment to providing bloodborne pathogens Many of the report’s recommendations reﬂect among high-risk drug users, education and access to safer sex and safer the same policies that CHOW has found to be injection equipment to everyone – especially successful: end the criminalization, marginal- especially injection drug those engaged in potentially harmful behaviors ization and stigmatization of people who use users, in the state of Hawaii. who are unwilling or unable to stop – has con- drugs but do no harm to others; offer health and tributed to keeping the HIV rate low amongst treatment services to those in need; challenge program participants and linked hundreds of rather than reinforce common misconceptions people to drug treatment and other services. about drug use and drug users; invest in activi- Another anniversary just passed – the 40th an- ties that can both prevent people from taking niversary of the War on Drugs. A recent report drugs and to prevent those who use drugs from from the Global Commission on Drug Policy, developing more serious problems. As CHOW whose goal is “to bring to the international level and other agencies across the State advocate an informed, science-based discussion about for an overhaul of Hawai‘i’s drug policies to be humane and effective ways to reduce the harm aligned with the report’s ﬁndings, hopefully we caused by drugs to people and societies”, ﬁnds will soon be celebrating another anniversary – that the War on Drugs has failed. The report the shift to a scientiﬁcally-proven, health-based goes on to state that the trillion-dollar war’s and humane response to drug use. focus on the criminalization of drug users and JULY QUOTE: “Liberty is always dangerous, but it is the safest thing we have.” ~Harry Emerson Fosdick LifeBeat 8
"PREVENTION FOR POSITIVES"