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                                  FSC NEWSFLASH – JUNE 2007
Family Support Council Meeting – Our next regular monthly meeting will be on Friday, June 8th at
11:30 at the Resource Connection Welcome Center Conference Room, 1100 Circle Drive, Fort
Worth 76119. Please call 817-569-5459 to RSVP for the $6 lunch. Dan White, Operations Director
with Goodrich Center for the Deaf and Hard of Hearing will be giving an overview of resources
available through this agency.
FSC - Transition Subcommittee Meeting – Our next meeting will be on Thursday, June 14th, at 1
PM at Easter Seals Greater NW Texas (formerly UCP of TC), 1555 Merrimac Circle. We’ll be
discussing options for the next Expo based on these results: approximately 200 exhibit attendees and
70+ workshop attendees visited the Spring 2007 Transition & Disability Resource Expo at TCU on
April 24th.
FSC – Random Acts of Kindness Subcommittee Meeting – This committee is actively seeking
nominations for recognition at the Third Annual RAK Luncheon, Wednesday, August 8th at Noon at
the Resource Connection Gym, 2300 Circle Drive, Fort Worth where Fort Worth City
Councilmember Danny Scarth will be the Keynote Speaker. The flyer and nomination form on
pages 5 & 6 this Newsflash. The next RAK planning meeting will be immediately following the FSC
meeting on Friday, June 8thth at the Resource Connection Welcome Center Conference Room, 1100
Circle Drive, Fort Worth 76119. Please contact Barbara Selman, Chair, if you’d like to help at
If you are not receiving this newsletter through e-mail, please send us your FULL NAME as it
appears on the mailing label and e-mail address to with “Requesting
FCS NewsFlash” in the subject line. This will help us cut our postage costs. Thanks!!!!!!!!!!

TxP2P State Conference - June 7-8, 2007 will offer two other half-day seminars for
those who want something other than Wrightslaw: Accessing SSI & Medicaid for
Students with Disabilities: Opportunities for Self-Support with Daniel Scarborough
AND Interest-Based Problem-Solving or How Not to Get Stuck in Conflict with
Schools with Laura Otey Omni Austin Hotel at SouthPark, 4140 Governor’s Row, Austin, Texas 78744 -
For more info call 1-866-896-6001 or go to
                      Social Opportunities, Activities, Recreational Interests and
                                Networking Group – June Activities
Saturday            June 16                           11:00 a.m.-1:00 p.m
Bowling             Westcreek Lanes                   3025 Altemesa Blvd.
Fort Worth          76133                             817-294-0501
$1.49 per game.     No cost for shoe rental.
Co-Founders and Volunteer Organizers: Barbara Selman - or
Allen Cole -
Growth and Healing Through the Creative Arts - The Art Station is offering a 6-week social skills
group for children and teens with special needs such as autism spectrum disorders, communicative
disorders, chronic illnesses, transplant patients or developmental delays and/or their siblings. Groups
will be led by Art Station staff members who are licensed therapists and professional art therapists.
These groups will utilize art therapy principles and techniques while promoting improved social skills
functioning. A Summer Art Show will conclude the program! For more info call 817-921-2401. 1616 Park Place Avenue, Fort Worth, TX 76110
July 11—August 17, 2007 (6 sessions) Session 1: Ages 4-6 Session II: Ages 10-14 - Wednesdays 1-
3pm - Session III: Ages 7-10 Session IV: Siblings Group - Fridays 1-3 pm - Cost: $150 - Medicaid and
CHIPS accepted.
Save the Date! The 2007 Texas Advocates conference is just around the corner! This
year the conference will be held in The Woodlands, TX on July 27-29 at The Woodlands
Waterway Marriott. Program and registration information will be mailed soon, and you may
contact Rona Statman or Tanya Winters with any questions at 1-800-252-9729.
"Self-advocacy means speaking up for yourself, taking control of your life and being responsible for
your actions." Read about the statewide Texas Advocates group at:
Health Care for Older Americans - an informative discussion on Medicare Part D and health care
services coverage and access for older Americans. June 1, 2007 - 2:30 p.m. to 4:30 p.m.
Botanic Garden Auditorium, 3220 Botanic Garden Boulevard - Fort Worth, Texas
The presentation will feature:
• A local snapshot on health statistics of older adults - by Elvin Adams, MD, MPH, Tarrant County
Health Authority
• A panel of local experts addressing access to health services
• Keynote speaker Leonardo Estrada, Ph.D. Dr. Estrada is a member of the AARP Board of Directors,
Class of 2012. He also serves as a liaison to AARP’s National Policy Council.
The ADRC of Tarrant County is a cross-trained coalition of human service agencies
designed to assist anyone in Tarrant County find and successfully access needed human
services currently available. If you or your agency would like to participate in this coalition,
contact Marty Skinner at 817-569-4016 or The next resource
coach training is scheduled for July 2nd and 3rd.

                          Come meet our Experts @ our Free
                           Tuesday Small Group Workshops
                    at the new ADRC in the Resource Connection
June 5th – 4-5:00 P.M. ~ Medicaid Waiver Programs ~ Molly Hurst & Neilee
  • Learn about the different Medicaid Waiver Programs in Texas; What
     services/items they cover; and How to be added to the interest lists.
June 12th – 4-5 p.m. ~ Understanding Memory Loss ~ Zanda Hilger on
behalf of the Area Agency on Aging.
  • This workshop will help you determine when memory loss is a warning sign;
     recognizing the stages of Alzheimer’s disease; Understand the steps to getting
     a diagnosis: and learn about resources to improve quality of life.

June 19th – 3-5:00 P.M. ~ Understanding Memory Loss ~ Judy Budlong
w/Alzheimer’s Association
  • This workshop will help you determine when memory loss is a warning sign;
    recognizing the stages of Alzheimer’s disease; Understand the steps to getting
    a diagnosis: and learn about resources to improve quality of life.

June 26th - 4:00-5:00 P.M. ~ Caring for the Caregiver ~ Zanda Hilger on
behalf of the Area Agency on Aging.
  • This workshop will help you examine the impact of the caregiver role on
     physical and psychological health; Identify techniques for caregiver stress
     management and have an understanding of the therapeutic benefits of humor.
 Aging and Disability Resource Center of Tarrant County (ADRC) Look
                         for the blue awning!
             1300 Circle Drive, Fort Worth, Texas 76119
            1(888) 730-2372 (ADRC) RSVP’s appreciated.
All are invited to join Easter Seals and Americorps * Vista at Applebee’s in promoting the Home
Of Your Own Program and the Accessible Housing Project for people with disabilities. This Event not
only will bring community awareness about these Housing Programs but will help those that need
specialized housing assistance. To participate, go to and
print a coupon to present at any 10 Applebee’s locations in Tarrant, Johnson or Parker County on
Wednesday, June 27th or Thursday, June 28th. Applebee’s will donate 20% of your purchase to
these housing programs for people with disabilities.
Recent News! Parents of millions win right to sue schools Supreme court By MICHAEL DOYLE,
                   McClatchy Newspapers - WASHINGTON -- The Supreme Court opened the door
                   Monday for more parents with disabled children to challenge school districts over the
                   quality of their kids' educations.
                   In a blow to school boards, the court ruled that certain parents can sue without
attorneys. That could be a green light to the courthouse for some of the 6.8 million families nationwide
with children who rely on special education plans.
"It's hardly a novel proposition to say parents have a recognized legal interest in the education and
upbringing of their child," Justice Anthony Kennedy wrote.
Kennedy's majority opinion grants parents "independent, enforceable rights" to obtain education free for
their kids who have disabilities. This means that parents who are unhappy with school district decisions
about their children with disabilities can file their own lawsuits even if they aren't trained or licensed as
The ruling, in a case involving an autistic 9-year-old boy from Ohio, subtly tilts the balance of power
away from schools and in favor of families served by the federal Individuals with Disabilities Act.
The 1975 law requires school districts to provide "free appropriate education" to children with
disabilities. Officials and parents collaborate in preparing an "individualized education program" for
each child who's identified as having disabilities.
This report includes material from The Associated Press. Online:
New Law Allows Students With Disabilities to Participate in Graduation, Receive Attendance
Certificates- (AUSTIN) — Governor Rick Perry Tuesday (May 8) signed into law Senate Bill 673,
known as "Scooter's Bill," by Senator Judith Zaffirini, D-Laredo, and Rep. Rob Eissler, R-The
Effective immediately, it will allow students with disabilities who are in individualized
education programs (IEP) and who have completed four years of high school to
participate in graduation ceremonies and receive attendance certificates. They would
receive their diplomas upon completing their IEP.
"I was proud to sponsor and pass Scooter's Bill and am delighted that it is now Scooter's Law," Senator
Zaffirini said. "The new law will provide students in IEP programs with the opportunity to graduate with
their peers and obtain a sense of closure as their classmates move on from high school. This is a fitting
and pleasant end to Scooter Long's story of hard work and advocacy on behalf of students with
The new law calls for a consistent policy throughout Texas. What's more, it will allow students to
continue their IEP programs after participating in commencement ceremonies and would not preclude
their receiving high school diplomas upon completing the program.

 3rd Annual Random Acts of Kindness…
People Supporting People In Tarrant County
   Recognition & Awards Luncheon ‘07
     Wednesday, August 8th, 2007
  @ Noon @ The Resource Connection,
         2300 Circle Drive,
      Fort Worth, Texas 76119
         Honorary Guest Speaker:
            Danny Scarth,
      Fort Worth City Councilman

     We are searching for people in Tarrant
  County who have helped a person(s) with a
    disability just because… so we can identify
  and honor those outstanding people in our
     community who exemplify our mission of
         “People Supporting People”.

Please nominate someone you know!
                      - Nomination form on back –
          Please contact Family Support Council representatives:
   Elaine Garvin @ 817-569-5459 or Crystal Adams at 817-759-7973 or
        Email Barbara Selman @
                          for further information.
                       3rd Annual Random Acts of Kindness….
            “People Supporting People” Recognition & Awards Luncheon ‘07
     Nominate someone in the community who would not normally be recognized.
 Nominate them because they support people with disabilities, not because it’s their job or
            because they’re being paid to do it…but because they just do it!!
                 Past awards were given to service groups, volunteers, friends, extended
                       family members, recreational programs, people who’ve been
                         supportive, churches, and individuals within a church.

 NOMINATION FORM (Please complete and fax to the Family Support Council @ 817-569-5474 or mail to Elaine Garvin at 1300
                             Circle Drive, Fort Worth, TX 76119 before Wednesday, July 25th, 2007)

Name of person nominated: ________________________________________________________
Their Address: ________________________________________________________________
City: ___________________________________________ Zip Code: ___________________
Their Phone: ______________________________ Their Email: _____________________________
Eligibility guidelines: This person cannot be paid for the services provided nor can they be an immediate
family member. Please give specific detail of this person’s Random Acts of Kindness:





    Name of person completing this form: ________________________________________________
     How do you know this person? _____________________________________________________
     Your Phone: __________________________ Your Email: _______________________________

The cost of the luncheon for the nominee, awardee and their guests will be covered by the Family
Support Council (FSC).
 The FSC is a coalition of families, self-advocates, agency representatives, support group
                   representatives and concerned citizens in Tarrant County.
                    *Please be aware that not all people nominated are awarded.
The Arc of Greater Tarrant County – June 2007
1300 W. Lancaster, Suite 104, in the Child Study Center Building, Fort Worth, TX 76102. Phone 817-877-1474. Dr. Richard Garnett, Executive Director –
Financial Resources - SSI, Medicaid, HCS, CLASS, CBA, General Revenue Programs, In-Home and
Family Support will all be discussed at the June OUR SPECIAL CHILDREN meeting on Saturday, June
9th, 9 AM to 12 noon. Also, meet the Arc of GTC’s new staff member: Laverne Wilson-Smith. Go to

United Advocates’ June Calendar
My Money My Life, Each Wednesday at 2 PM at The Arc of GTC, Child Study Center,1300 West
Lancaster, Suite 104, FW, 76102
Exercise, Each Wednesday at 4:30 PM at The Arc of GTC, Child Study Center
Tennis, Wednesday, June 6th at 6 PM at 1600 West Seminary, Fort Worth: We will ride over together,
you provide your ride home.
United Advocates meeting, Wednesday, June 13th at 5:30 PM at The Arc of GTC, Child Study Center
– Topic: Safety and Self-Defense
Stress and Anxiety Class, Thursdays June 14th, 21st, & 28th at 2 PM at The Arc of GTC, Child Study
Arc Dance, Friday, June 15th at 7 PM at 2300 Circle Drive, The Resource Connection
Volleyball, June 20th & 27th at 6 PM at the Parks & Recreation Department, 2625 Rosedale Dr., Fort
Worth: We’ll ride over together, you provide your ride home
Friday Fun Night, June 29th at 5:30 PM at The Arc of GTC, Child Study Center, TABOO and BINGO
For information about advocate activities please call Laverne Wilson-Smith at 817-877-1474 or E-mail:

June Training Opportunities at All Church Home for Children
  Youth and Self Harm: Unlocking the Mystery by Paula Hood, LMFT, LPC – June 29th, 9 AM to 12
  PM, $35, 3 CEUs
  Health and Safety Trainings: Satori Alternative to Managing Aggression (SAMSA) – June 20 & 21,
  1 to 5 PM each day, $50
  Psychotrophic Medication Management – June 20, 8 to 10:30 AM $40
  Becoming a Love and Logic Parent – Training for Parents and Professionals - Evening Trainings
   6:30pm – 8:30pm each day, $30 for six-week session (includes snack and parent handbook)
   Wednesdays, July 11 through August 15, Weekend Trainings, 9 am – 2:30pm each day, $30 for two
   sessions (includes lunch and parent handbook) Saturdays, June 9 and 16
For more info contact Cyndi McDonnough at 817-886-7131 or or
register at
The Health and Human Services Commission is accepting applications for membership on the
Children's Policy Council. The Council, created by House Bill 1478 of the 77th Texas Legislature,
assists health and human services agencies in developing, implementing, and administering family
support policies and related long-term care and health programs for children. Additionally, the Council
produces a biennial report with recommendations to the HHSC Executive Commissioner and the Texas
Legislature. Applications are currently being accepted in the following membership categories:
Family Representatives (of a child with disabilities under age 22); Advocacy Organization
Representative; Community Service Organization Representative; Faith-Based Organization
Representative; Representative from a Private Entity Providing Long-Term Care and Health Programs,
and; Representative from a State Agency Providing Long-Term Care and Health Programs.
Membership on the Council requires regular participation in Council meetings and may entail
participation in subcommittee meetings. Council members will not receive compensation (a stipend) for
participation on the Council. However, family representatives will be reimbursed for travel and for
limited respite costs. If you are interested in serving, you may apply at or contact Terry Beattie, Director,
Program Coordination for Children and Youth, Office of Health Services at 512-424-6528.
CHARGE Syndrome is a recognizable (genetic) pattern of birth defects which occurs in
about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, with
conditions differ from child to child. The vast majority of the time, there is no history of
CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE
syndrome are often born with life-threatening birth defects, including complex heart
defects and breathing problems, spend many months in the hospital and undergo many
surgeries and other treatments. Swallowing and breathing problems, hearing loss, vision
loss, and balance problems are often evident. All are likely to require medical and
educational intervention for many years.
The Texas Chargers, Inc. is a group of Texas families, friends, and professionals who
are dedicated to helping children and young adults who live with Charge Syndrome. For more info
contact Michelle Goodwin at 817-560-4796 or or go to
Extra Hands for ALS is a national voluntary service charity assisting people
with ALS, also called Lou Gehrig's disease. Extra Hands is expanding
nationally and now operates in many cities in the United States.
Developing Leaders - Students who volunteer to assist families battling ALS
become adults better capable of addressing challenges in their own lives and communities.
Through Service - By helping ALS families with household chores, students provide a valuable service
in their communities, and they learn about courage and determination from people facing one of life's
most daunting challenges. Fore more info contact Linda Allen at 817-521-6290 or at or go to
These free e-learning courses are available to everyone!
"Partners in Living" is a course created to help people with
developmental disabilities, family members, educators and
service providers understand the important concepts of self-determination, family support, community
living and assistive technology. Go to to review these courses.
"Partners in Time" is a course created to help people with developmental disabilities, their parents,
family members and friends, educators and service providers understand the history of society's
treatment of people with disabilities from ancient times through the present. Go to
"Partners in Education" is a course to help parents with children with developmental disabilities better
understand and maximize the benefits of special education services and inclusion for their children. Go
"Making Your Case" is a course on how to communicate with public officials by effectively telling your
personal story, writing a letter, providing testimony, and communicating in positive ways. Go to
"Partners in Employment" is a course on how to find a job, write a resume, participate in an interview,
and plan for your career. Go to
Texas Medicaid Waiver Programs, overview, and interest list contact info:
Medicaid home and community-based waiver programs provide services and supports to persons with
mental retardation who live in their own or their family's home or in other home-like settings in the
community. They are called "waivers" because certain ICF/MR (Intermediate Care Facility/Mental
Retardation) requirements are "waived."
In most situations an individual who is eligible for the ICF/MR Program is also eligible to participate in
one of the waiver programs. An important and distinguishing feature of funding provided in the waiver
programs is the funding’s ability to move with the individual to any part of the state. For example, if an
individual enrolled in a waiver program in Houston, then moves to El Paso, he or she can continue to
participate in the waiver program in El Paso. An individual also can change providers within the same
city or area of the state. Public or private entities may provide waiver program services and supports.
Reference: Explanation of Services and Supports –
 Waiver Program Name                                    Ages Served              Interest List   Contact Number
 Home and Community-based Services (HCS) Program            All                    Lengthy       817-569-4140 for
                                                                                                  Tarrant County
 Community Living Assistance and Support Services     All, if disability began     Lengthy       1-877-438-5658
 (CLASS) Program                                           under age 22
 Community-Based Alternatives (CBA) Program           Ages 21 & older              Lengthy       1-877-438-5658
 Deaf-Blind Multiple Disabilities Program             Ages 18 & older               Short        1-877-438-5658
 Medically Dependent Children’s Program (MDCP)        Ages 21 & under              Lengthy       1-877-438-5658
Because the demand for Texas Department of Aging and Disability Services community-based
services and supports often outweighs available resources, applicants' names may be placed on an
interest list until services are available. Please use the above numbers to be placed on the interest
list(s) if you haven’t already done so or to check you status on the list(s).
                            Please share information about the Come Read with Me program with
                            anyone you think might find it helpful.
                            Please checkout the list of classes:
                            See also a tentative June Calendar:
Students may register online for classes and they may join us as the summer progresses.
The program will not be taking off the usual third week of each month since everyone comes and goes
throughout the summertime. Due to the pending trip to Palo Duro Canyon in August, classes will be in
session for only the first two weeks of August, then classes will suspend until September. Families are
welcome as the group goes to the panhandle of Texas to take in the show of the canyon August 18th
and enjoy a little dry heat! Learn more at or contact
Martha Kate Downey at or 817-283-4114.

Watch this inspiring, newly-released, short video about a young man with Down Syndrome who
truly made a difference in his workplace and in his community. Go to

Portions of this e-mail newsletter were excerpted from the National Center on Secondary Education and Transition E-
                              News, which can be found at
       The NEWSFLASH is brought to you by the Family Support Council & MHMRTC, MR Essential Services.
     Your help in alerting us to community information is greatly appreciated. Please forward to Dan Gadbury @
     or call Elaine Garvin @ 817-569-5459 – feel free to leave a voice mail!
 If you have received this mailing and would prefer not to be on our e-mailing list, please send back a reply with
                                               REMOVE in the subject line.
              Thanks so much for your patience as we constantly strive to maintain the most up-to-date e-mail list.
                   Para mas informacion en espanol, por favor llamar a Ruth Valdez al (817) 569-4014.

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