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A National Gateway to Self -Determination - AUCD

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									         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




                       funded by the
       US Department of Health and Human Services,
          Administration on Children and Families,
        Administration on Developmental Disabilities



9 November 2008                           AUCD Pre-Conference Workshop                                             1
         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities


              Introduction:
    National Training Initiative Grants
                  Jennifer Johnson
    Administration on Developmental Disabilities
      Administration for Children and Families




9 November 2008                           AUCD Pre-Conference Workshop                                             2
    A National Gateway to Self-Determination
     funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




Process for Identifying Priority Areas

 Meeting of experts in February
 Major recommendations:
    Primary topics
    Large-scale projects
    A National Gateway to Self-Determination
     funded by the US Department of Health and Human Services, Administration on Developmental Disabilities



   What do we mean by ‘scaling up self-
            determination’
 Developing tools for using self-determination
  knowledge:
    In multiple settings and contexts
    Across the age-span
    By various stakeholders
       A National Gateway to Self-Determination
       funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




                               Essential Features

 Coordination of efforts through partnerships.
     UCEDDs
     National organizations representing individuals with developmental disabilities,
      parents and guardians, siblings, and culturally and linguistically diverse populations.
 Integration with other efforts with other national initiatives
     To promote coordination
     Identify other entities implementing projects related to self-determination
 Sustainability.
     An expected outcome is the sustainability of efforts past the five-year grant period.
     Ensure continued use of the training resources, updates and modifications to the
      materials, and continued access to the materials by members of the public.
     Have a sustainability plan
     A National Gateway to Self-Determination
      funded by the US Department of Health and Human Services, Administration on Developmental Disabilities



        Phase I: Research and Planning.

 Gathering and analyzing information from current literature and on
  State and Federal initiatives
 Identify promising models and practices; gaps and variance in
  information and potential areas for cross-collaboration with other
  national initiatives.
 Planning for sustainability
 Products:
    Summary of findings
    Final plan for Phases II and III, including the strategies that will be used to
     sustain the project and the plan for integrating the project with other
     national initiatives.
      A National Gateway to Self-Determination
       funded by the US Department of Health and Human Services, Administration on Developmental Disabilities



    Phase II: Develop and Test a National
              Training Program.
 Use evidence to develop and test a national training program
 Key features:
     Be developed with input from individuals with developmental disabilities, including
      youth, young adults, and adults; and family members, including parents, siblings,
      guardians, and other relatives.
     Use multiple traditional and non-traditional modalities to maximize accessibility
      and outreach, particularly to those who are hard to reach.
     Be culturally competent in all aspects, including the modalities used.
     Promote the process of enhancing post-secondary education opportunities for
      youth and young adults with developmental disabilities.
 Products:
     The National Training Program
     Lessons learned from the pilot and strategies for adapting the National Training
      Program to various contexts
     Follow principles of universal design
    A National Gateway to Self-Determination
     funded by the US Department of Health and Human Services, Administration on Developmental Disabilities



 Phase III: National Implementation and
      Transition to Sustainability.
 Partnering with the ADD Technical Assistance Centers
  and other national organizations for large scale,
  nationwide implementation of the National Training
  Program.
 Utilize traditional and non-traditional marketing
  strategies to maximize outreach.
 Transition to maintenance of the project over time.
         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




  Overview of Gateway to Self-Determination

Carl Calkins
Andy Bacon
Tamar Heller



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         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities



                                                Beliefs
Key to this initiative are the beliefs upon which this
grant was developed – that development of self-
determination is:
       a lifelong process,
       a means to obtaining an improved quality of life,
       Viewed in a social-ecological framework,
       Guided by research to practice,
       and most importantly – that people with developmental
        disabilities must be equal partners in the process.

9 November 2008                           AUCD Pre-Conference Workshop                                             10
         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




                                                   Goal
The overall goal of this project is “to establish a
sustainable, evidence-based training system that enhances
self-determination training programs that lead to quality
of life outcomes for individuals with developmental
disabilities throughout the lifespan.”



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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




                                AUCD Pre-Conference Workshop                                             12
       A National Gateway to Self-Determination
       funded by the US Department of Health and Human Services, Administration on Developmental Disabilities


DD Act Definition of Self-Determination Activities
Activities that result in individuals with developmental disabilities, with
   appropriate assistance, having:
 the ability and opportunity to communicate and make personal decisions;
 the ability and opportunity to communicate choices and exercise control
   over the type and intensity of services, supports, and other assistance the
   individuals receive;
 the authority to control resources to obtain needed services, supports,
   and other assistance;
 opportunities to participate in, and contribute to, their communities;
 and support, including financial support, to advocate for themselves and
   others, to develop leadership skills, through training in self-advocacy, to
   participate in coalitions, to educate policymakers, and to play a role in the
   development of public policies that affect individuals with developmental
                                 AUCD Pre-Conference Workshop                   13
   disabilities.
         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities



                     UCEDD Leadership Consortium

    Carl F. Calkins, Ph.D., Co-PI                      Michael Wehmeyer, Ph.D., Co-PI
    University of Missouri Kansas City                 Kansas University Center on Dev Disabilities (UCEDD)
    Institute for Human Development (UCEDD)            at the University of Kansas


    Andy Bacon, Ph.D.                                  Tamar Heller, Ph.D.
    Westchester Institute for                          University of Illinois Chicago
    Human Development (UCEDD)                          Dept of Disability and Human Development (UCEDD)
    at New York Medical College



                                  Hill Walker, Ph.D.
                                  University of Oregon
                                  Center on Human Development (UCEDD)



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A National Gateway to Self-Determination
funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




                                AUCD Pre-Conference Workshop                                             15
         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities



                                  Alliance Members
       Self-Advocates Becoming Empowered
       the Association of University Centers on Disability including the
        Council on Community Advocacy
       the National Leadership Consortium
       College of Direct Support/Minnesota UCEDD
       National Association of Councils on Developmental Disabilities
       National Disability Rights Network
       National Association of State Directors of Developmental
        Disabilities Services
       the National Sibling Network
       National Family Voices including Kids as Self-Advocates

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         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




        Self-Determination Across the Lifespan

   Early Childhood
   School Age
   Adult
   Aging



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         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities



      Self-Determination and Key Players in an
                  Individual’s Life

   Families
   Siblings
   Direct Support Workers
   Educators



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         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




        Phase I: Overview of Planned Activities

   Approach to Literature Review
   Life Chances Planning Tool
   Mapping gaps in curricula and lack of access
   National Self Determination Guide



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         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




                  Phase I: Discussion and Feedback

 What types of SD training are available for self-
  advocates, parents, sibling, providers, or others in
  your state/community? What’s working and what’s
  not?

 Who are the people that are most in need of training
  that are not being reached and why?

9 November 2008                           AUCD Pre-Conference Workshop                                             20
         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




       Phase II: Overview of Planned Activities

 Overview of planned specialty curricula to be
  developed
 Examples: Abuse and Neglect, Siblings




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         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




                             State Demonstrations

   Complete an SD Self-Assessment
   Identify Needed SD Curricula
   Develop Implementation Plan
   Form State SD Supporting Coalitions
   Evaluate Outcomes


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         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities


                               Gateway Web Portal
   Dynamic Website
   History of Self-Determination movement and research
   SD Curricula Products
   Technical Assistance Resources
   Evidence-Based Practices
   Technology Supported Training
   Video Vignettes, Lectures
   SD Capacity Building Handbook
   Implementation Manuals
   Evaluation Frameworks
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         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




            Planning Training Delivery Methods

 Innovative Uses of Technology

 Self-Advocates as Trainers




9 November 2008                           AUCD Pre-Conference Workshop                                             24
          A National Gateway to Self-Determination
           funded by the US Department of Health and Human Services, Administration on Developmental Disabilities



               Phase II: Discussion and Feedback
 What is the best way (ideal methods) to provide SD
  training to self-advocates, parents, sibling, providers, or
  others (e.g. technology, self-advocates as trainers)? In
  your experience, what works and what doesn’t work?

 Laura highlighted the planned components of a SD
  Gateway Online Portal, what features do you perceive
  to be the most beneficial and what else should be
  included?
 9 November 2008                           AUCD Pre-Conference Workshop                                             25
         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




       Phase III: Overview of Planned Activities

   Marketing
   Sustainability
   Implementation
   Diffusion



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         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




             Phase III: Feedback and Discussion

 Do you know of any projects providing self-
  determination training that we should contact and
  coordinate our efforts with?

 If we were all to meet here again in 5 years to share
  the many successes of this project, what one
  outcome would be most important to you?

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         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




                         Thanks for attending.

  We appreciate your interest and input.



9 November 2008                           AUCD Pre-Conference Workshop                                             28
         A National Gateway to Self-Determination
          funded by the US Department of Health and Human Services, Administration on Developmental Disabilities




This document was supported, in part, by a cooperative agreement from the
Administration on Developmental Disabilities, Administration for Children
and Families, Department of Health and Human Services. Grantees
undertaking projects under government sponsorship are encouraged to
express freely their findings and conclusions. Points of view or opinions do
not, therefore, necessarily represent official Administration on
Developmental Disabilities policy.”



9 November 2008                           AUCD Pre-Conference Workshop                                             29

								
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