shrinershospitalsforchildren.org | Vol. 2, No. 1 | Spring 2011
Protect your kids from
burn injuries at home | 10
Meet Bryan, a St. Louis Patient Ambassador | 2
New Treatment Helps Children with Hypophosphatasia | 15
Helping St. Louis Fathers Become “All Pro Dads” | 16
St. LouiS oRthoPAEdiCs | 314-432-3600
a st. Louis Patient Ambassador
i have been a patient at shriners is the world’s leading expert in this
hospitals for Children® — st. Louis unusual disease but is also making
since before I can remember. When I progress in treating it effectively. But
was 6 months old, a doctor diagnosed the doctors do not just research my
me with a rare bone disease called disease. There are many metabolic
X-linked hypophosphatemia, which is bone diseases they are researching
Above: Bryan is a patient at Shriners
Local News for St. Louis
a genetic form of rickets. My doctor, and treating at the Research Center.
Michael P. Whyte, is one of the world’s One of my favorite places at the Hospitals for Children® — St. Louis.
leading research doctors in metabolic hospital is Recreational Therapy,
bone diseases, and I am lucky that “RT” for short. RT is a huge room Because I have been coming to
he is right in my backyard as the Shriners Hospitals for Children®
medical and scientific director of the — St. Louis for a long time, there are
Center for Metabolic Bone Disease Lots of the always familiar faces to greet me,
and Molecular Research at Shriners many of whom know me by my first
Hospitals for Children® — St. Louis. nurses are the name. Lots of the nurses are the
While the disease that I have is same ones who same ones who cared for me when
considered rare, it has an incidence I was a baby. They have watched
of about one in 20,000. Hundreds cared for me when me grow up, which I am sure makes
of kids from all over the country
come to Shriners Hospitals for
I was a baby. They them feel good, seeing how I have
gotten better throughout the years.
have watched me
Children® — St. Louis to get expert But it makes me feel good, too,
care from a specialist who not only
grow up. because I can feel at home when I
come to the hospital. People know
me there and are happy to see me.
And that says a lot about Shriners
with all kinds of things to do like Hospitals for Children® — St. Louis.
video games, basketball, pool and
foosball tables, a piano, board
games and other fun stuff. It is sincerely,
not only therapy to keep kids
using their hands, running
around or wheeling around, as
the case may be, but it is also
a great diversion so that we
Make a Difference today!
do not focus too much on To learn more about how
any pain or discomfort. And you can support the
it is a lot of fun to meet life-changing care, innovative
other kids. There is always research and medical education
something to keep us busy provided by Shriners Hospitals
and to help us feel at home. for Children®, please visit us
You never get bored! at www.donate2shc.org.
At left: Bryan programs the light board at a local drama group
for a theater production of “Beauty and the Beast.”
What to Know
About Burn Care
About uS CAre eduCAtion reSeArCh
PAGE 4 PAGE 12 PAGE 10 PAGE 5
Changing the World Award of Gratitude Burn Prevention and Advancing Burn Care
through Caring for Kids from Mexico Awareness Efforts
PAGE 8 PAGE 14 PAGE 11 PAGE 6
Time Line Dan Caro: Turning Sharing Our Expertise Understanding
of Burn Care Adversity into Joy Keloid Scarring
What Does Shriners Hospitals for Children® Stand For?
Our miSSiOn About Shriners Hospitals for Children®
Shriners Hospitals for Children® is a health care system that is
The mission of Shriners
world renowned for pediatric specialty care, innovative research, and
Hospitals for Children® is to:
outstanding teaching programs for medical professionals. Children up to
• Provide the highest quality
age 18 with orthopaedic conditions, burns, spinal cord injuries, and cleft
care to children with
lip and palate are eligible for care and receive all services in a family-
conditions, burn injuries centered environment, regardless of the patients’ ability to pay.
and other special health care
needs within a compassionate,
family-centered and Portland Springfield
collaborative care environment.
• Provide for the education of
physicians and other health care N. California Chicago Erie
Salt Lake City Cincinnati
• Conduct research to discover
new knowledge that improves Lexington
the quality of care and quality of Los
Angeles St. Louis
life of children and families.
This mission is carried out without Shreveport
regard to race, color, creed, sex or Houston Galveston
sect or ability of a patient or
Hospital Specializing in
family to pay. Burn Care = Black Dot Mexico City
shrinershospitalsforchildren.org Spring 2011 3
ShrinerS hoSpitAlS for Children®
Changing the World through Caring for Kids
Shriners hospitals for Children®, a health care system Shriners Hospitals for Children® conducts research
of 22 hospitals, helps thousands of kids every day. that adds to the worldwide body of medical knowledge
The first Shriners Hospitals for Children® opened in and provides insights that lead to improved treatment
Shreveport, La., in 1922, and by the end of that decade, methods and better outcomes.
13 more Shriners Hospitals for Children® were in The health care system also shares its expertise with
operation. Now, the Shriners Hospitals for Children® the medical professionals of tomorrow. In the past
– 20 in the U.S. and one each in Canada and Mexico – 20 years, more than 9,500 physicians have received
make up the largest pediatric sub-specialty health care residency education or postgraduate fellowships at
system in the world. Shriners Hospitals for Children®.
The hospital system has the largest full-time staff of This three-part mission to provide care, conduct
pediatric orthopaedic surgeons in the U.S. In addition, research and offer medical education has one purpose:
the Shriners Hospitals for Children® specializing in to improve the lives of children. Be a part of the mission
burn care are the only hospitals specifically dedicated by going to www.donate2SHC.org and clicking the
to the treatment of pediatric burns, and the health care “Donate Now” link. All gifts, big or small, are welcome.
system’s spinal cord injury rehabilitation program is well
About the Shriners Fraternity
ShrinerS hoSpitalS for
Children® was founded by Shriners of
North America (now known as Shriners
International), a fraternity that began in
1872, and is based on fun, fellowship and
the Masonic principles of brotherly love,
relief and truth. There are approximately
340,000 members, with temples and
clubs located around the world.
Go to www.shrinershq.org and click
“Shriner Primer” to learn about the history
and future of this organization that counts
President Gerald Ford, astronaut “Buzz”
Aldrin, country star Brad Paisley and race
car driver Sam Hornish, Jr., as members.
AdvAnCing Burn CAre
in order to provide the best, most been proven to increase a patient’s Shriners Hospitals for Children®
innovative treatment to patients potential for survival, improve long- are dedicated to improving
with burns and burn-related injuries, term function and decrease the need long-term outcomes for patients
Shriners Hospitals for Children® for reconstructive surgeries. with burn injuries, especially in
conducts constant medical research Advances in fluid resuscitation the areas of scar development,
in the field. include the creation of a formula rehabilitation and psychological
Currently, Shriners Hospitals for based on body surface area and adjustment. For example, using
Children® is funding approximately body weight, which is more pressure garments helps minimize
41 research studies involving appropriate for pediatric patients scarring, and encouraging patients
Advancing Burn Care
different aspects of burn injury and is now used worldwide. to use an appropriate exercise
and treatment. Our research studies also proved program decreases the need for
that beginning resuscitation reconstructive surgery, improves
Disciplined Research Leads to treatment within two to four hours quality of life and eases return to the
Better Burn Care of injury improves survival, organ home community.
Researchers at Shriners Hospitals function and long-term outcomes
for Children® are responsible and of patients with severe burns. Also, Educating Tomorrow’s Experts
recognized for advances in burn understanding that inhalation injury Shriners Hospitals for Children®
care that significantly improve the causes fluid to build up in the lungs, shares its expertise in burn care
lives of those with severe burns, and that additional fluid resuscitation and research through academic
especially in the areas of: actually reduces this buildup, has led affiliations and different medical
• Burn-wound treatment to a new worldwide standard of care outreach programs. The hospitals
and healing for fluid resuscitation in pediatric offer residency and fellowship
• Fluid resuscitation (tightly burn patients. programs, and opportunities for
controlled intravenous fluid In addition, researchers at graduate students and postdoctoral
administration) Shriners Hospitals for Children® researchers interested in this field.
• Infection control have contributed to increased The emphasis on research
• Nutrition and metabolism understanding of hypermetabolism and education is proof of the
• Inhalation injury and the nutrient requirements of commitment Shriners Hospitals for
patients with burn injuries. Children® has to determining, as
Shriners Hospitals for Children® well as providing, the best care for
pioneered the groundbreaking The Goal: Improved children with
practice of improving wound Quality of Life burn injuries.
healing through prompt surgical The effects of burn injuries may
removal of burned tissue. This has last a lifetime, and researchers at
Our research relies on Your Generosity
The Shriners Hospitals for Children® health care system depends on
donations to fund all its programs, including research. For information
on ways you can support this effort, please visit www.donate2SHC.org.
To see the how Shriners Hospitals for Children® helps children get better,
please visit shrinershospitalsforchildren.org and click “Take a tour.”
shrinershospitalsforchildren.org Spring 2011 5
understanding Keloid Scarring
Keloids are disfiguring scars that “I became interested in keloid By advancing our understanding
can impair the quality of life of scarring because of a patient with of keloid formation, novel therapies
burn survivors. Unlike normal scars, a particularly severe case,” said Dr. can be developed, leading to
keloids are overgrowths of scar Supp. “One of our plastic surgeons improved functional outcomes and
tissue that spread to adjacent skin asked if we could do something to enhanced quality of life for
and resist treatment. It is not clear figure out why this happens.” burn survivors.
why only some patients are at risk Dr. Supp and her team have This project is one of 41 research
Understanding Keloid Scarring
for keloid formation; they are more analyzed the genes that are turned initiatives related to developing
prevalent among darker-skinned on or off in keloid skin cells a better understanding of burn
individuals and younger patients. compared with normal skin cells. injuries and treatment currently
Dorothy Supp, Ph.D., a researcher They identified some key differences being funded by Shriners Hospitals
at Shriners Hospitals for Children® — that can help shed light on why cells for Children®.
Cincinnati, is the lead investigator of in keloids give rise to abnormal Learn more about the health
a project to discover and understand scars. The researchers have also care system’s commitment to
the molecular basis for keloid created models of keloid scars research and to “Changing the
scarring in order to develop more that will be used to test other World through Caring for Kids,” at
effective treatments. potential treatments. shrinershospitalsforchildren.org.
research in Action
raymond f. novak, ph.d., Corporate Dr. Novak’s academic career includes serving
direCtor of reSearCh for Shriners as a professor of pharmacology, with
Hospitals for Children® has a wealth of a joint appointment in anesthesiology, at
investigative, teaching and professional Northwestern University Medical School in
service experience. Clearly, he loves to teach, Chicago, and being both the founding director
and to help everyone understand what of the Institute of Environmental Health
research is. Sciences and a professor of pharmacology at
“Everyone does research,” Dr. Novak Wayne State University in Detroit.
said. “‘When you’re buying a car, you do In addition to teaching, Dr. Novak is an
fundamental research. I break it down into established investigator who is very well-
four parts: known in the field of environmental health
1. You need a better car – that’s sciences. He is also working to understand
your hypothesis. causes of hypertension in children.
2. You explore what’s available – Shriners Hospitals for Children® is at
that’s method. the forefront of medical discovery in
3. You exercise judgment – many pediatric disciplines.
that’s evaluation. Get a closer look by going to
4. You determine which product best shrinershospitalsforchildren.org
meets your needs – that’s conclusion.” and clicking “Research.”
for Children® to take
active role at meeting
mar Staff from the
29 four Shriners
tue Hospitals for Children
that treat burn injuries
will be actively involved in
sharing their knowledge at the
American Burn Association’s
annual meeting, scheduled for
March 29-April 1 in Chicago.
Above: A Camp Ytiliba counselor and patients at the Shriners Hospitals for Children® The burn care team from
Back to Being Kids
summer camp in Oregonia, Ohio. Bottom: A camper holds up her fresh catch. Shriners Hospitals for Children®
— Northern California will
back to being Kids be making approximately
15 presentations ranging from
burn prevention to studies of the
today, patients with severe burn For example, Shriners Hospitals use of transparent face masks.
injuries — even those affecting as for Children® — Cincinnati offers In addition, staff from Shriners
much as 90 percent of their body Camp Ytiliba every summer. Hospitals for Children® — Boston
— can survive and go on to live Typically, more than 40 children will moderate at least eight
productive, fulfilled lives. from as far away as Florida and sessions of the meeting, as well
However, the recovery process Wisconsin attend. While they are as participate in presentations.
that must occur first is long and enjoying fishing and canoeing, they Staff from the Cincinnati
difficult, involving far more than are also accepting new challenges, hospital will be making
expert medical care. Patients with gaining confidence and rebuilding six presentations, with
severe burn injuries must often deal self-esteem. The kids at Camp representation on two others. An
with accepting major changes in Ytiliba have an opportunity to be interesting topic being covered
their appearance. with others who share the experience by the Cincinnati team is the
To help young burn survivors of a burn injury, which helps them “evaluation of sleep efficiency
adjust to these new differences, realize they are not the only one during the rehabilitative phase of
and get back to the business of just coping with these differences. burn injury.”
being a kid, Shriners Hospitals for At Shriners Hospitals for Contributions from Shriners
Children® offers several specialized Children®, efforts to Hospitals for Children® —
programs. These include the child improve the quality of Galveston include
life department’s work (especially on life of our patients are as two presentations
behalf of inpatients), the transitions important as providing by Michael Serghiou,
program for older kids, and special excellent medical care. director of outpatient
camp experiences. and rehabilitation
Learn about the
Support Camp Ytiliba! American Burn
Ytiliba is not an ancient native tribe — it is just
Association’s work at
“ability” spelled backward. Some people look at
our campers and see something backward and different,
but when the campers look in the mirror, they see their
strength and ABILITY! You can keep Camp Ytiliba going
this summer by giving generously at www.donate2SHC.org.
shrinershospitalsforchildren.org Spring 2011 7
A Time Line of Burn Care
From creation of our burn hospitals in the 1960s to our cutting-edge work in 2011,
Shriners Hospitals for Children® has always led the way in caring.
Cincinnati Shriners hospitals for Children® opens
hospitals specializing in pediatric
burn care in galveston, texas (1966),
Cincinnati (1968) and boston (1968).
Widespread use of preSSure
garmentS, a concept
developed at Shriners Hospitals
for Children®, leads to improved
• In response to growing
awareness of a need for
pediatric burn care, research • Research in excision, grafting and
and education, the governing intravenous feeding at our hospitals results
body of the ShrinerS in drastic improvements in survival rates go to page 10 to find out how
organization paSSeS a and length of stay. to prevent burns in your home.
reSolution to build and • Skin banking – a precursor of future visit www.burnawareness.org
operate pediatriC burn tissue, bone and skin procurement – is for free educational materials
hoSpitalS. pioneered at Shriners Hospitals for
• The organization approves Children® — Cincinnati.
building three hospitals that will • Shriners Hospitals for Children®, along
specialize in pediatric burn care. with United States Fire Administration and
• Awareness of burn care is Consumer Product Safety Commission,
raised throughout the medical work together to identify burn Boston
community, and the American prevention programS for
Burn Association is SChoolS and fire departments.
founded (1967). The importance of helping
children with burn injuries
successfully return to school
begins to be recognized; Shriners
Hospitals for Children® — Boston
is the first burn hospital to initiate
such a program.
• The foCuS of Care iS expanded to include
preparing patients for a successful return to their
homes and communities through summer camp
and social acceptance initiatives.
• Distraction techniques and innovative therapies
are introduced to encourage exercise as well as
reduce pain, anxiety and stress.
As advances in care and treatment improve • Shriners Hospitals for Children® that treat burns
survival rates for children with severe burn expand services to include care for nonburn
injuries, the foCuS on pSyChologiCal conditions such as port wine stains, congenital
and SoCial iSSueS for patientS ear deformities, and other complex wound and
with burnS expandS, and school skin conditions.
re-entry programs are formally adopted as a • The health Care SyStem expandS itS
program of Shriners Hospitals for Children® burn prevention effortS, and begins
in order to better meet these needs. The participating in local health fairs and offering
initiative provides resources that encourage prevention education programs to the community,
A Time Line of Burn Research and Care
patients to return to school regardless of severity especially schools.
of the burn injury. (Above: Daniel Happy, a patient
who took full advantage of the re-entry program. See
more on Happy’s story on page 13.)
Shriners Hospitals Northern
for Children® — California
California • Research efforts expand to include CliniCal
openS, serving outCome StudieS.
children with • Shriners Hospitals for Children® continues to
orthopaedic, demonstrate and be recognized for leadership. All
burn and spinal four burn hospitals have leaders who have served as
cord injuries. president of the American Burn Association. Some of
the hospitals have additional representation on the
ABA’s board of directors.
• The hospitals in Boston and Cincinnati reCeive
preSS ganey Summit awardS for extraordinary
• Early surgical excision and grafting reduces infections, • Shriners Hospitals for Children® —
shortens hospital stays and improves cosmetic outcomes. Northern California medical staff
• Shriners Hospitals for Children® adds outpatient clinics at member leads a national burns
the burn hospitals to provide continued care after patients outcomes project.
are discharged. • Cincinnati Transport team
• Shriners Hospitals for Children® expands burn awareness named “Fixed Wing Team of the
and prevention efforts and creates Burn Awareness Week Year” by American Association
– an annual national education campaign to reduce the of Medical Services.
number of burn injuries in children. • Three of the burn hospitals host
or co-host the World Burn Congress.
shrinershospitalsforchildren.org Spring 2011 9
burn prevention and
burn prevention is an important endeavor of Shriners Hospitals for Children®, which is why the health
care system began its Burn Awareness campaigns more than 20 years ago.
Every year, the first full week of February is to dedicated Burn Awareness Week, the kickoff of a yearlong
educational campaign aimed at burn prevention. The 2011 campaign focuses on safety at home. Previous
years’ efforts have emphasized prevention of gasoline and gasoline-related burn and scald injuries.
Some tips from the 2011 campaign, Safety Begins at Home, include the following:
1 2 3
Burn Prevention and Awareness
Safety in the Kitchen Safety in the Bathroom Safety throughout the Home
• do not throw water on a • Supervise children in the bath. • use electrical outlet covers.
grease fire. put a wet cloth • Have a latch bolt on the outside • Unplug electrical appliances
over the pot or pan. of the bathroom door so young when not in use.
• Keep children away from children cannot enter the • Install an appropriate number
everything that is hot. bathroom unsupervised. of smoke detectors – one near
• If young children are in the • The water in a child’s bath should each bedroom, one at the top
home, use placemats rather not exceed 104° F. Set your water of each stairway and one near
than tablecloths. heater no higher than 120° F. the planned escape route.
• Keep all hot items and all • Run cold water in the tub first, • Keep matches out of reach of
appliances out of reach of and then add warmer water. younger children, and allow
children and away from edges • Before placing a child in the tub, older children to use them only
of tables and counters. test the water temperature with when supervised.
• Establish a kid-free zone, your hand. If the water feels hot, it • Properly store flammable liquids.
where children can be is too hot for a child. • Have the electrical wiring
watched but are out of the • When placing children in the in your house checked
kitchen when it is in use. bathtub, face them away from professionally every 10 years.
• Keep pot handles on the the faucets and as close to the • Never use gasoline for anything
stove turned inward. other end of the tub as possible. other than to fuel an engine.
Get Free Burn Awareness Posters, Stickers and more
While Burn Awareness week in February is a targeted, specific effort, burn prevention is an
ongoing effort, and a variety of free educational materials are always available. If you are interested
in receiving some, please visit www.burnawareness.org. You can learn more about taking good care of
your family at www.familyfirst.net.
ShAring our expertiSe
Our Burn Centers Spread Their Knowledge to the World
Shriners hospitals for Children® is noted around the Partnering with the American Burn Association
world for its expertise in pediatric burn care. The health In addition to supporting the Phoenix Society and its
care system takes that responsibility quite seriously, and programs, Shriners Hospitals for Children® also has
shares its knowledge and experience. a strong leadership presence in the American Burn
For example, Shriners Hospitals for Children® — Association (ABA) – the first vice president and a
Galveston was a cohost of the Phoenix Society for Burn board member are on staff of our Northern California
Survivors’ 22nd annual World Burn Congress, held in hospital. In addition, all four of our hospitals that treat
Sharing Our Expertise
Galveston in October 2010. Our Cincinnati hospital burn injuries have chief or assistant chiefs of staff
will host the 2011 conference. The annual World Burn who have served as president of the ABA. Shriners
Congress attracts hundreds of burn survivors and Hospitals for Children® also has an important role in
their families, caregivers, burn care professionals and other professional organizations related to burn care,
firefighters. The different groups – all concerned with for example, Ronald Tompkins, M.D., Sc.D., chief of
caring for people with burn injuries in some way – learn staff, Shriners Hospitals for Children® — Boston, is past
from one another through sharing life experiences and president of the International Society for Burn Injuries.
stories, medical information and support techniques.
At least 800 attended the conference, including many
patients from the Shriners Hospitals for Children® that
treat burns and burn-related injuries, and their families.
Attendees came from across the U.S., Canada, Mexico
and even India.
Find out how the Phoenix Society for Burn gAlveSton northern
Survivors helps people with burns live life to the CAliforniA
fullest by visiting www.phoenix-society.org.
To apply for care at a burn care center, visit CinCinnAti
shrinershospitalsforchildren.org and click
“Apply for Care.”
UBelong: A New Program
The 2010 conference included the first-ever
UBelong: Families, Teens and Kids Together in
Burn Recovery program, for children ages 7 to BoSton
17. Many of the more than 40 participants were
our patients. The program included activities
and discussions to build social skills and self-
awareness for the children, as well as programs to help
the families of children with burn injuries understand
the impact of the injury on the family, and how to best
support one another. At the conference, Bernadette
Martinez-Wright, a clinical social worker for Shriners
Hospitals for Children® — Northern California, was
awarded the Alan and Delwyn Breslau Award for her
work in developing the UBelong program.
shrinershospitalsforchildren.org Spring 2011 11
on July 20, 2010, felipe Calderón, president of for their prompt
Mexico, publicly acknowledged the efforts of support.” He
Shriners hospitals for Children® on behalf of children also said his wife
injured in the fire at the ABC day care center in had followed
Hermosillo, Mexico, on June 9, 2009. the treatment, progress and medical attention provided
More than 140 children were at the day care center by Shriners Hospitals for Children®, and clearly the
when the fire erupted; more than 40 lost their lives and attention given the children was “as if they were their
at least another 40 were hospitalized. Nine children, own children, and we are very, very grateful.”
with burns covering from 17 to 80 percent of their body
surface, were treated at Shriners Hospitals for Children® A Humbling Moment
— Northern California, and three at Shriners Hospitals Peter Armstrong, M.D., chief medical officer for
for Children® — Cincinnati. At least five children were in Shriners Hospitals for Children®, was on hand
critical condition on arrival. to accept a beautiful plaque from the Mexican
government. Dr. Armstrong was most touched by
Going Where Help is Needed President Calderón’s comment that Shriners Hospitals
In the days following the fire, medical teams from the for Children® looked after the children as if they were
Northern California and Los Angeles Shriners Hospitals their own. While that is extremely high praise, Dr.
traveled to Hermosillo to assist Armstrong said, “That is what Shriners Hospitals for
local health care providers. Children® does for every child we treat. That is just what
Later, children with injuries we’re all about.”
were also seen at the outreach Still, it was quite an honor to have that deep level of
clinics that Shriners Hospitals dedication and commitment recognized by a sitting
for Children® — Northern president. “This was a very proud day for Shriners
California holds in the area Hospitals for Children®,” said Dr. Armstrong. “It is not
on a regular basis. As is true often that a president of a country so publicly praises
for all patients of the health our organization.”
care system, these children will The Mexican government, together with Shriners
be cared for until they are 18, Hospitals for Children®, is committed to improving
regardless of their ability to pay medical knowledge of and care for burn injuries in
for services. Mexico, and is already funding two one-year fellowships
Of the efforts of Shriners for burn surgeons in partnership with the University
Hospitals for Children®, President of California, Davis, School of Medicine. See the latest
Calderón said, “We are deeply grateful developments at shrinershospitalsforchildren.org.
Daniel is Still Smiling
when a plane CraShed into Daniel Happy’s
Sanford, Fla., home in 2007, his life changed forever.
Daniel sustained second- and third-degree burns
over 95 percent of his body. His parents sustained
burns as well, and his 4-year-old sister Gabrielle
was killed in the horrific accident that made
Dr. Peter Armstrong, holding plaque, Only hours after the crash, Daniel was airlifted from
Burn Care Success Stories
accepts an award of gratitude from a local hospital to Shriners Hospitals for Children®
Mexican President Felipe Calderón. — Cincinnati. He spent seven months in the hospital
undergoing multiple surgeries and enduring grueling
Daniel’s mother decided it would be in her
son’s best interest to relocate to Cincinnati so he
could continue his treatment on an outpatient basis.
When Daniel was ready to return to school, the
hospital’s school re-entry program helped
ease him back into the school setting by
making the rounds at 35,000 Feet providing his classmates with lessons on empathy
and acceptance. Extremely outgoing and a good
student, 13-year old Daniel flourished at his new
the Chief mediCal offiCer for Shriners Hospitals for Children®, school and even started a campuswide fundraising
the largest pediatric sub-specialty health care system in the world, program called “Happy Tabs for Shriners Hospitals.”
Peter Armstrong, M.D., has a humorous way of looking at his job. In recognition of his accomplishments, Daniel
“I fly around in airplanes,” said Dr. Armstrong, an orthopaedic was selected to represent Shriners Hospitals for
surgeon for more than 30 years. Though he may be a frequent flyer, Dr. Children® as one of two national patient ambassadors
Armstrong is also a frequent visitor to the 22 hospitals in the system for the 2010-2011 year. You can support kids like
and the 23 chiefs of staff he oversees. Each visit allows him to provide Daniel by going to www.donate2ShC.org.
needed support, to see that the best practices are in place, and to
share the wealth of research and education that all of the Shriners
Hospitals for Children® are involved in around North America.
“I see it as my job to keep the leadership informed on every level,”
said Dr. Armstrong. “We’re a team, and the motivation among all the
team members is strong. Every doctor is here because of the mission.”
Part of that mission is passing on the research findings that are
developed by the doctors in the system. “You can’t have this level of
care without the research that we do,” he said.
At the end of a long day of air travel, Dr. Armstrong does not feel
the jet lag that others might. “When you have the opportunity to do
something for children that will help improve their lives, there’s no other
feeling that beats that.”
For more information about our physicians, please visit us at
shrinershospitalsforchildren.org Spring 2011 13
turning Adversity into
Achievement and J y
dan Caro is one busy guy. “The hospital staff were endlessly
He released his first book this I don’t look at supportive, and instrumental in
year, “The Gift of Fire: How I Made anything as negative. me finding my own way, and my
Adversity Work for Me,” and has independence – both physically and
been traveling all over the place, It’s fun and exciting emotionally,” Caro said. “I never saw
to work through
sharing his philosophy of life, myself as different because of the
fulfilling more than 80 speaking support of Shriners Hospitals for
anything,” Caro said.
engagements, including being a Children® and the Shriners.”
“I wouldn’t trade a
Dan Caro: Turning Adversity into Joy
featured speaker at the World Burn
Congress in Galveston, Texas, in second of my life. I A Musician and Motivator
October. He is also a successful Evolves
musician and an ambassador for
was designed to As a result of the burn injuries, Caro
Shriners International. And, he lost his right hand, and most of his
has a new passion for skiing. left, and was severely scarred. In the
Caro is also a very positive person.
share joy. mid-1980s, reconstructive surgery
“I don’t look at anything as gave Caro the use of a movable
negative. It’s fun and exciting to This inspiring, active person thumb on his left hand. This allowed
work through anything,” Caro said. nearly lost his life 29 years ago, at him to pursue a lifelong dream of
“I wouldn’t trade a second of my life. the age of 2. There was a gasoline playing the drums. And when he
I was designed to experience and explosion in the family garage, and played, Caro’s style, passion and
share joy.” Caro sustained third-degree burns ability were noticed; he became a
on more than 70 percent of his body. known figure on the New Orleans
After being rescued by firefighters, music scene.
he was rushed to a hospital in New Although performing provides
Orleans. Doctors caring for him did audiences with a glimpse of his
not expect Caro to live more than a personality and perspective, Caro
few days; he was in such pain that his wanted to give more to people. And
parents prayed God would take him so, as he said, he decided to “take
to heaven. the drums on stage and add words.”
This has become Caro’s basic – and
Putting a Boy Back Together highly successful and popular –
Ultimately, he was flown to Shriners format for his inspirational and
Hospitals for Children® — Boston, keynote speeches.
where he underwent about 50 No matter how powerful the
surgical procedures to, as he story, Caro is still a musician. For
said, “put him back together.” In him, this is not a career change,
1989, Caro became a patient at “it’s an evolution.”
Shriners Hospitals for Children®
— Galveston, where he also had Visit www.dancaro.com
about 30 surgeries that would to read about more
provide long-term benefits and about Caro and his
improve his quality of life. latest endeavors.
Above: Dan Caro
Photo by Paula Casentini.
helps Children with hypophosphatasia
hypophosphatasia is a rare, and children with hypophosphatasia. stealing home base and otherwise
sometimes fatal, metabolic disease In a recent and ongoing study acting like typical, healthy kids.
that affects the development sponsored by Enobia Pharma in “ENB-40 is a promising therapy
of bones and teeth. An enzyme Montreal, Canada, children with for these children. There was clear-
deficiency in this condition disrupts hypophosphatasia who were cut radiographic X-ray improvement;
a process called mineralization, in given injections of ENB-40, a also walking speed, agility, pain
which calcium and phosphorus are bone-targeted fusion protein and disability indices improved,
deposited in developing bones and containing the mission enzyme, with a high degree of statistical
teeth. Mineralization is critical for the achieved significant improvements significance. More importantly,
formation of bones that are strong in bone health, muscle strength, their functional improvement was
and rigid. agility, endurance and mobility remarkable,” Dr. Whyte said.
sometimes within weeks of
Promising New Therapy beginning treatment, said Michael Making It to First Base
Enzyme replacement therapy using P. Whyte, M.D., a physician The study has thus far yielded a
bone-targeted tissue-nonspecific number of heartwarming anecdotes,
alkaline phosphatase (TNSALP) is a according to Dr. Whyte. “There was
promising experimental treatment for One of our a boy who wanted to make it to first
patients wanted base in T-ball before being tagged out.
He was not able to run because of his
to make it to first wobbly gait, but after three months
of this new therapy, he improved so
base while playing much that he became ‘all-county’ for
T-ball before being
his T-ball team and represented at
the state level,” said Dr. Whyte. “We
tagged out. have seen parents who were planning
for their disabled child by starting to
adapt their homes to accommodate
specializing in endocrinology and such a boy or girl, and suddenly they
metabolism at Shriners Hospitals were startled to find that what they
for Children® — St. Louis. have is essentially a fully functioning,
“I have been doing work in rambunctious child. Those are the
this field for 35 years and have anecdotes that we love to hear, and
tried a variety of treatments for there are many of them.”
hypophosphatasia without much
success,” said Dr. Whyte. “The Refer a Patient
results with this new treatment To refer a patient to Shriners
have been extremely gratifying.” Hospitals for Children®
After receiving thrice-weekly — St. Louis, call the patient referral
injections of ENB-40, children line at 813-866-7740. You can
who were barely able to walk up also e-mail patientreferrals@
stairs were now climbing trees, shrinenet.org for referrals.
Photo is for illustrative purposes only.
shrinershospitalsforchildren.org Spring 2011 15
Leaders in paid
Vol. 2, no. 1 | spring 2011 CHiLDren
ShRineRS hoSPitaLS foR ChiLDRen® PO Box 31356
Tampa, FL 33631
Vice President, Communications,
Development and Public Relations
Roma Lane, Corporate Director,
Public Relations, Communications
Amy Ritzel, Manager, Marketing
Victoria Beck, Senior Editor and Writer
Contact shriners Hospitals for Children®
Please Recycle 10418MU shriners Hospitals for Children® — st. Louis | shrinershospitalsforchildren.org
helping st. Louis Fathers Become
“all Pro dads”
On Saturday, December 4, nearly 1,400 fathers
Above: Dads and their kids enjoy
and their kids rushed onto the practice field at face painting by Shriner clowns in
the St. Louis Rams’ training facility for the All Pro the hospital’s “Fun Zone.”
Dad Father and Kids Experience, sponsored by their child’s eyes, tell him or her “I love
Shriners Hospitals for Children® — St. Louis. you” and give their child a 30-second
full-contact bear hug.
the hospital teamed up with former with strong parents and striving to be a During the event, before and after the
nFL player Aeneas Williams, the strong parent for his four children. All Pro Dad activities, Shriners Hospitals
St. Louis Rams and several other sponsors “There is one thing about being a dad: for Children® — St. Louis and the Shriners
to partner with the national nonprofit You do not need the supernatural level fraternity hosted a “Fun Zone” for kids
Family First and bring its fatherhood of talent that is required in the NFL to and dads that included clowns, balloon
program, All Pro Dad, to St. Louis. be an All Pro Dad,” he said. “You do not animals, face painting and activities
This hands-on football-themed have to be a perfect dad; you just have such as wheelchair hockey to help kids
event provided inspirational bonding to spend time with your kids and be learn (in a fun way) what it is like to have
opportunities for dads and their kids. involved. What made a difference in my a disability and how it does not have to
Aeneas said the event had special life was my dad’s mentorship to me.” stop them from having fun.
meaning for him, having grown up All Pro Dad volunteers and staff
members used football-themed activities
and drills to help teach dads lessons Save the Date!
about becoming closer to their kids and The next All Pro Dad event
to help kids reach out to their dads. A is scheduled for Saturday,
favorite activity for many was the station April 16 in Tampa, Fla. To learn more,
where coaches asked dads to look in please visit familyfirst.net.
At left: Hospital staff members and volunteers host a few rousing games of wheelchair hockey
so that kids with and without disabilities can participate in the same game.