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Sustaining Resilience

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					   Sustaining Resilience
When Dementia Touches Someone
         You Love



            Sienna Caspar

               CARE 4 U
    Alzheimer Society Manitoba, 2011
       My Background and
          Experience
20+ years hands on experience working
 in long-term care settings
Consultant for Geriatric Healthcare
 Consulting in California—specializing in
 dementia care
Master of Arts in Gerontology—research
 focus on quality of care in long-term care
PhD candidate—research focus on
 person-centred care in dementia care
 settings
My Background and
   Experience
My Background and
   Experience
The profound intersection of
my professional and personal
        experience
       My greatest lesson….
YOU are your loved one’s most valuable
 resource
YOU are also the most vulnerable
 resource

Therefore sustaining resilience during this
  journey of caregiving is your greatest
  priority!
        Sustaining Resilience
 Resilience defined….
 How do we sustain it?
   Right Resources
       Information
       Support
   Rejuvenation
       Taking care of yourself
   Reconnection
                Resilience

The capacity to adapt, find meaning, and
 grow even when facing the worst
 situations imaginable (Gillhan & Seligman, 1999)
      Sustaining Resilience
Find and USE the Right Resources
  Knowledge is power….
       Be careful where you find it
    Alzheimer Society of Manitoba
    Alzheimer Society of Canada

  Understanding dementia
       Behaviours, Communication, Caregiving, Medication
       Sustaining Resilience
Strengthen your emotional support
 network
     Family
     Friends
     Support Groups
     Counseling
     Pastor
     Church or spiritual community
       Sustaining Resilience
The Right Resources

Create the “If there is anything I can do
 to help, just call me” list.

Get someone to call them for you!!
       Sustaining Resilience
The Right Resources

  Create a Crisis Support Team

     “Can I call you at 2:00 a.m.?”
               Sustaining Resilience

Rejuvenate
    GET YOUR SLEEP!
    REST when you need it!
    Engage in Health-Promoting behaviour


All the time                    Rarely or Never

…1…4…6………5…….…2…3……………
      Sustaining Resilience
Rejuvenate

Create TIME for YOU!

  Day programs
  Respite
    Don’t wait until you’re sick….
      Sustaining Resilience


Find what rejuvenates you and DO IT!!
     Sustaining Resilience

Reconnect
 Family and friends
 Support groups
 Church group or spiritual community
 Organizations and clubs
 Pets
 Your loved one!
       Sustaining Resilience
Focus on the positive
    “We do not see things as they are..
         We see things as WE are…”

Keep a gratitude and success journal
      Sustaining Resilience
A word about guilt…..

Always, always, ALWAYS remember that
 you are doing the best that you can!
       Sustaining Resilience
A word about advocacy…

  Clarify the reasons…

  Gather your courage and your strength and
   do this as a gift to everyone who is touched
   by dementia
      Sustaining Resilience
You are your loved one’s most valuable
 resource

YOU are his/her personal dementia care
 specialist!!!

Time to acknowledge your strengths and
 your successes!
      Sustaining Resilience
Finally, make a promise to yourself…..
             My wish…..
That you recognize the immense and
  invaluable gift that you are giving to your
  loved one.
That you recognize the amazing and
  generous gift that you are giving to our
  society.
That you are gentle with yourself in times of
  trial.
That you celebrate yourself in times of
  triumph!

				
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