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					         Healthcare IT-Related Organizations


                     Medem                             Continuity of Care Record          Physicians EHR Coalition          Health Level Seven (HL7)            Public Health Informatics           eHealth Initiative               National Alliance for Primary American Medical                    ASTM International               American Telemedicine             Connecting for Health               EHR Collaborative (includes
                                                       (CCR)                              (PEHRC; formerly AAFP                                                 Institute (formerly All Kids                                         Care Informatics (NAPCI)      Informatics Association             (formerly American Society       Association (ATA)                 (convened through the               American Health Information
                                                                                          Center for Healthcare                                                 Count)                                                                                             (AMIA)                              for Testing and Materials)                                         Markle Foundation)                  Management Association
                                                                                          Information Technology                                                                                                                                                                                                                                                                                              (AHIMA), American Medical
                                                                                          Joint Liaison Committee)                                                                                                                                                                                                                                                                                            Association (AMA), American
                                                                                                                                                                                                                                                                                                                                                                                                              Medical Informatics
                                                                                                                                                                                                                                                                                                                                                                                                              Association (AMIA), College of
                                                                                                                                                                                                                                                                                                                                                                                                              Healthcare Information
                                                                                                                                                                                                                                                                                                                                                                                                              Management Executives
                                                                                                                                                                                                                                                                                                                                                                                                              (CHIME), eHealth
                                                                                                                                                                                                                                                                                                                                                                                                              Initiative(eHI), Healthcare
                                                                                                                                                                                                                                                                                                                                                                                                              Information and Management
                                                                                                                                                                                                                                                                                                                                                                                                              Systems Society (HIMSS),
                                                                                                                                                                                                                                                                                                                                                                                                              National Alliance for Health
                                                                                                                                                                                                                                                                                                                                                                                                              Information Technology
                                                                                                                                                                                                                                                                                                                                                                                                              (NAHIT))
Mission/Vision       To facilitate online access       Project committee formed by        Informal group of                 To provide standards for the        To develop an action agenda for     To lead America toward an        To provide all US citizens with   The mission of the American     Provides a forum for             ATA seeks to bring together       To address the challenges of        To facilitate rapid input from
Statement            to information and care           AAFP, Massachusetts Medical        representatives from physician    exchange, management and            child health information systems    interconnected, electronic       good quality, affordable health   Medical Informatics             producers, users, ultimate       diverse groups from traditional   mobilizing information to           the healthcare community in
                     for more than 90,000              Society, Healthcare Information    membership associations to        integration of data that support    that meet medical care and          health information               care, every primary care          Association is to advance the   consumers, and those having a    medicine, academic medical        improve quality, conduct timely     the EHR standard
                     physicians, their practices       and Management Systems             discuss common, practical IT      clinical patient care and the       public health needs and to          infrastructure that will give    provider must be given the        field by fostering innovation   general interest to meet on      centers, technology and           research, empower patients to       development and other
                     and their patients, while         Society (HIMSS), and other         issues, particularly related to   management, delivery and            develop resources and tools that    consumers, clinicians and        opportunity of using an           and scientific exchange,        common ground and write          telecommunications                become full participants in their   development initiatives that
                     saving patients time and          individuals and organizations to   small primary care practices.     evaluation of healthcare            assist public health agencies in    those responsible for public     electronic ambulatory             educating professionals and     standards for materials,         companies, e-health, medical      care, and bolster the public        advance the adoption of
                     money and helping                 develop a standard format for a                                      services. Specifically, to create   developing information systems      health ready access to timely,   information system, including a   the public, and influencing     products, systems, and           societies, government and         health infrastructure.              information standards for
                     physicians generate               portable summary of important                                        flexible, cost effective            that help ensure timely delivery    relevant, reliable and secure    fully functional electronic       decision and policy makers      services. Committee E-31 on      others to overcome barriers to                                        healthcare.
                                                       patient health information that                                      approaches, standards,              of child health services and        healthcare information and       medical record with the ability   regarding the use of            Healthcare Informatics           the advancement of
                     revenue.
                                                       can be carried by the patient or                                     guidelines, methodologies, and      follow-up.                          services to ultimately improve   to access needed clinical         information in health and       develops standards for health    telemedicine through the
                                                       forwarded by a physician when                                        related services for                                                    health and healthcare.           information at the time and       biomedicine.                    information and health           professional, ethical and
                                                       a patient is referred to a                                           interoperability between                                                                                 place of care.                                                    information systems designed     equitable improvement in
                                                       specialist or admitted to or                                         healthcare information                                                                                                                                                     to assist vendors, users, and    health care delivery.
                                                       discharged from the hospital.                                        systems.                                                                                                                                                                   anyone interested in
                                                                                                                                                                                                                                                                                                       systematizing health
                                                                                                                                                                                                                                                                                                       information.
Activities           Physician web sites with          Working with ASTM to develop       Monthly meetings; active e-mail   HL7 is organizing working           Meeting held in December 2003       Connecting Communities for       NAPCI is an organization of     Holds regular meetings and        Current standards address        Educating government about        Phase I brought organizations Education on the draft
                     content links directly from the   a standard open-model              list; established to provide a    groups on an international and      to recommend next steps;            Better Health (grant program     organizations that will work to symposia, publishes a journal, architecture, content,              telemedicine as an essential      together to begin discussing    standards and HL7 balloting
                     participating societies, HIPAA-   continuity of care record in       forum for the discussion of       national level to develop           published the Integration           with HRSA); Accelerating the     represent primary care          oversees workgroups and           portability, format, privacy,    component in the delivery of      the importance of               process.
                     compliant secure messaging        XML format for easier              Healthcare IT issues across       standards on health data to         Sourcebook identifying nine         Adoption of Computerized         providers in the movement       special interest groups that      security, and communications.    modern medical care. Serving      interoperability. Phase 2 seeks
                     and online consultations,         portability between different      the broader primary care and      ensure inter-operability of         crosscutting organizational         Prescribing in the Ambulatory    towards developing a National focus on specific areas in          Oversees workgroup               as a clearinghouse for            to develop a Roadmap of
                     consumer education web site.      computer systems or in print       ambulatory care physician         programs and services for HL7       elements essential to integrating   Environment; Connecting for      Health Information              healthcare informatics, public developing CCR standard.            telemedical information and       achieveable objectives over a
                                                       for the patient to carry.          community. Currently focusing     supporting national standards       child health information systems,   Health (with the Markle          Infrastructure and attempt to   policy initiatives (especially in                                  services. Fostering networking    12-month period, establishes
                                                                                          on certification issues and       organizations and industry          including an accompanying           Foundation); EHR                 increase the use of electronic electronic medical records),                                        and collaboration among           several working groups and
                                                                                          affordability.                    groups on data transmission.        planning and assessment tool.       Collaborative; Electronic        health records in primary care. web site/resource center,                                          interests in medicine and         expert panels, and a
                                                                                                                            HL7 is charged with developing                                          Prescribing Initiative           Under the direction of the John international collaboration.                                       technology. Promoting             demonstration project to test
                                                                                                                            the national standard for                                                                                Zapp, Director and Chair of the                                                                    research and education            and evaluate the working
                                                                                                                            electronic medical records.                                                                              Primary Care Informatics                                                                           including the sponsorship of      groups' products in real-world
                                                                                                                                                                                                                                     Working Group and NAPCI,                                                                           scientific educational meetings   setting.
                                                                                                                                                                                                                                     respectively, a strategic plan                                                                     and the Telemedicine and e-
                                                                                                                                                                                                                                     was advocated through the                                                                          Health Journal. Spearheading
                                                                                                                                                                                                                                     development of a White Paper                                                                       the development of appropriate
                                                                                                                                                                                                                                     on the role of NAPCI as a                                                                          clinical and industry policies
                                                                                                                                                                                                                                     coordinated effort to address                                                                      and standards.
                                                                                                                                                                                                                                     Primary Care Informatics
                                                                                                                                                                                                                                     through "One Voice and the
                                                                                                                                                                                                                                     use of EMR in Primary Care".

AAP Considerations   AAP contributed start-up funds AAP involvement with other            AAP involvement with other        Health Level 7 is an                Dialogue with key contacts from AAP Involvement with other           NAPCI is advocating for the     AAP involvement with other        AAP involvement with other       AAP involvement with other        AAP Involvement with other          AAP Involvement with other
                     and holds a seat on the        national groups to promote IT         national groups to promote IT     organization that is healthcare     other organizations and federal national groups to promote IT        use of electronic medical       national groups to promote IT     national groups to promote IT    national groups to promote IT     national groups to promote IT       national groups to promote IT
                     Medem Board of Directors       standards.                            standards and work to ensure      specific and sets the tone on a     agencies to move the industry   standards.                           records in primary care. The    standards.                        standards.                       standards.                        standards.                          standards.
                     (expenses paid by Medem).                                            products developed meet the       national and international level    forward.                                                             benefit is that NAPCI plans to
                                                                                          needs of children and             by creating standards on how                                                                             address this on a large-scale
                                                                                          pediatricians and are             information is transmitted and                                                                           and seek funding to gain
                                                                                          affordable.                       communicated from one                                                                                    support by the government and
                                                                                                                            computer to the next. This has                                                                           to work with vendors on
                                                                                                                            significant impact on the                                                                                addressing this issue.
                                                                                                                            healthcare industry, with                                                                                Although NAPCI is not a
                                                                                                                            significant implications on                                                                              pediatric organization, it is a
                                                                                                                            pediatric practices. The                                                                                 primary care organization that
                                                                                                                            National Committee on Vital                                                                              seeks representation form
                                                                                                                            Health Statistics recommended                                                                            pediatric organizations in an
                                                                                                                            that HL7 be recognized as the                                                                            effort to support unique
                                                                                                                            core Patient Medical Record                                                                              pediatric interests for
                                                                                                                            Information Messaging                                                                                    Electronic Medical Records
                                                                                                                            Standard.                                                                                                (EMR).

Fiscal Notes         unclear                           $2,600 travel expenses for   $650 travel expenses for 1-2  $1,300 travel expenses for 2                  unclear                        $2,500 for organizational             $2,600 travel expenses for        None ($450 annual dues if the $75 annual membership dues;        None ($1,200 annual dues if       Phase I: 2 live meetings in         None
                                                       approximately 4 meetings     representatives when meetings meetings per year                                                            membership; travel costs for          approximately 4 meetings per      AAP decides to join as        includes free volume of ASTM       the AAP decides to join as        Spring 2003
                                                       annually. In addition, the   held outside of DC area.                                                                                   representative participation in       year                              institutional member)         published standards (choice of     institutional member; would
                                                       Academy may be asked to host                                                                                                            monthly Workgroup on HIT in                                                                           print, CD, or Internet version).   obtain discounted rate on
                                                       a meeting in the future.                                                                                                                Small Medical Practices                                                                                                                  individual memberships)
                                                                                                                                                                                               meetings
Liaison/AAP          Mark M. Simonian, MD, FAAP Alan Zuckerman, MD, FAAP                  Roger Suchyta, MD, FAAP           S. Andrew Spooner, MD,              Ed Gotlieb (served on planning AAP joined in December 2004;          Richard Shiffman, MD, FAAP        Robert Gerstle, MD, FAAP,       AAP staff, plus members of       S. Andrew Spooner, MD,            No AAP Involvement since            Through AMIA
Representative                                  (primary); Joseph H.                      (AAP Staff representative);       FAAP                                committee), plus AAP staff     also linkages through AMIA                                              COCIT Policy Chairperson,       COCIT have served on             FAAP, COCIT Chairperson,          Spring 2003
                                                Schneider, MD, FAAP                       Christoph U. Lehmann, MD,                                             (Carmen Mejia); several other  and HL7; Kristin Benson, MD,                                            serves on the Primary Care      subcommittees of ASTM's          become an ATA member in
                                                (secondary)                               FAAP, Physician                                                       AAP members have participated FAAP, serves the Workgroup                                               Informatics Working Group.      Committee E31 on Healthcare      2001.
                                                                                          Representative; David                                                 through other                  on HIT in Small Medical                                                 Kevin Johnson, MD, FAAP,        Informatics. These
                                                                                          Stockwell, MD, Physician                                              organizations/institutions.    Practices; Eugenia Marcus,                                              COCIT Technology                subcommittees develop
                                                                                          Alternate                                                                                            MD, FAAP, is also a member                                              Chairperson, serves on the      standards and committee
                                                                                                                                                                                               of the Workgroup through the                                            Board of Directors for 2005-    members vote on the draft and
                                                                                                                                                                                               AMA; Kevin Johnson (COCIT                                               2007.                           final standards.
                                                                                                                                                                                               Member) served on Electronic
Appointment Date     October 2004                      June 2005                          August 2004                       November 13, 2003                   2003                           December Initiative Steering
                                                                                                                                                                                               Prescribing2004                       January 15, 2004                  October 2003; November 2004 1997 or earlier                      May 2001                          n/a                                 n/a
Updated: 10/27/05                                                                                                                                                                                                                                                      (respectively; both elected)
         Healthcare IT-Related Organizations


                     Healthcare Information and        Certification Commission American Health                           American Health Information Workgroup for Electronic               Computer based Patient             National Alliance for Health      National Commission on              ANSI Health Informatin Logical Observation
                     Management Systems                for Health Information   Information Community                     Management Association      Data Interchange (WEDI)                Records Institute (CPRI)-          Information Technology            Systemic Interoperability           Technology Standards Identifiers Names and
                     Society (HIMSS)                   Technology               (AHIC)                                    (AHIMA)                                                            Healthcare Open Systems                                                                                  Panel (HITSP)          Codes (LOINC®)
                                                                                                                                                                                             and Trial (HOST) CPRI-
                                                                                                                                                                                             HOST (merged with HIMSS
                                                                                                                                                                                             in July 2002)




Mission/Vision       To lead change in the             Through voluntary                Per the US DHHS web site,         AHIMA is the dynamic              WEDI is dedicated to              To provide vision effective use
                                                                                                                                                                                                                            To be a leadership catalyst to        Authorized under Medicare                                             The purpose of the
Statement            healthcare information and        certification of products, the   "The AHIC will help               professional association that     improving healthcare through of electronic delivery of          achieve a higher level of patient     Modernization Act and appointed                                       LOINC database is to
                     management systems field          Commission aims to reduce        nationwide transition to          represents more than 46,000       electronic commerce. In           healthcare.                   safety, quality of care, and          by the President and Congress,      The Healthcare Information        facilitate the exchange
                     through knowledge sharing,        the risk of IT investment by     electronic health records –       specially educated health         addition, WEDI seeks to foster                                  operating efficiency through          the Commission is charged with      Technology Standards Panel        and pooling of results,
                                                                                                                                                                                                                                                                                                      has been formed to facilitate
                     advocacy, collaboration,          healthcare providers while       including common standards        information management            widespread support for the                                      the realization of true               developing a strategic plan for a   the harmonization of
                                                                                                                                                                                                                                                                                                                                        such as blood
                     innovation, and community         ensuring interoperability of     and interoperability – in a       professionals who work            electronic commerce within                                      healthcare IT interoperability by     national health information         consensus-based standards         hemoglobin, serum
                     affiliations.                     health IT products.              smooth, market-led way. The       throughout the healthcare         healthcare. WEDI seeks to                                       collaborating with other              infrastructure.                     necessary to enable the           potassium, or vital signs,
                                                       Commission formed by             AHIC, which will be formed        industry. Health information      develop policy that impact                                      healthcare leaders to define,                                             widespread interoperability of    for clinical care,
                                                                                                                                                                                                                                                                                                      healthcare information in the
                                                       HIMSS, AHIMA, and                under the auspices of the         management professionals          industries, standards initiatives                               select, coordinate, and                                                                                     outcomes management,
                                                                                                                                                                                                                                                                                                      United States. Comprised of a
                                                       NAHIT.                           Federal Advisory Committee        serve the healthcare industry     and regulations related to the                                  implement consensus-derived,                                              wide range of stakeholders, the
                                                                                                                                                                                                                                                                                                                                        and research. Currently,
                                                                                        Act, will provide input and       and the public by managing,       transmission of information                                     pragmatic IT standards. The                                               Panel will assist in the          most laboratories and
                                                                                        recommendations to HHS on         analyzing, and utilizing data     and electronic commerce.                                        Alliance believes involvement                                             development of the U.S.           other diagnostic services
                                                                                        how to make health records        vital for patient care -- and                                                                     and input across all healthcare                                           Nationwide Health Information     use HL7 to send their
                                                                                                                                                                                                                                                                                                      Network (NHIN) by addressing
                                                                                        digital and interoperable, and    making it accessible to                                                                           organizations (providers,                                                                                   results electronically
                                                                                                                                                                                                                                                                                                      issues such as privacy and
                                                                                        assure that the privacy and       healthcare providers when it is                                                                   suppliers, payors, IT, and other                                          security within a shared          from their reporting
                                                                                        security of those records are     needed most.                                                                                      organizations) will result in the                                         healthcare information system.    systems to their care
Activities           HIMSS frames and leads            Will begin pilot certification   protected."has the following
                                                                                        The AHIC                          Educates its members on           WEDI has several advisory       CPRI-HOST seeks to              Bar standards for the field and
                                                                                                                                                                                                                            bestCode Initiative,Standards         Objective: To provide a strategic To identify appropriate             systems. However, most
                                                                                                                                                                                                                                                                                                                                        The LOINC laboratory
                     healthcare public policy and      process for ambulatory           tasks:                            HIPAA, EMRs, and related          groups in various areas within represent all stakeholders in    Inventory Initiative, Patient         plan for the NHII to Congress by health information                   terms set provides a
                     industry practices through its    EHRs in late 2005/early          1) Make recommendations           issues; issues position           healthcare including claims     healthcare nformation systems Safety Initiative, EMR Initiative       October 31, 2005.                 technology standards                standard set of universal
                     advocacy, educational and         2006.                            on how to protect privacy         statements; collaborates with     attachments, HIPAA Task         and to serve as a neutral forum                                                                         and harmonize between               names and codes for
                     professional development                                           and security;                     other organizations.              Group, Transactions and Code for bringing diverse interests                                                                             competing standards in              identifying individual
                     initiatives designed to promote                                    2) Identify and make                                                Sets, and Security to name a    together to raise issues,                                                                               the industry.                       laboratory and clinical
                     information and management                                         recommendations for                                                 few. WEDI is currently          exchange ideas, and develop                                                                                                                 results. LOINC codes
                     systems' contributions to                                          prioritizing health information                                     developing policy on healthcare common solutions for the                                                                                                                    allow users to merge
                     ensuring quality patient care.                                     technology achievements                                             data issues.                    management of health                                                                                                                        clinical results from
                     Professional certification                                         that will provide immediate                                                                         information.                                                                                                                                many sources into one
                     program. The Overcoming                                            benefits to consumers of                                                                                                                                                                                                                        database for patient
                     Barriers Task Force has been                                       health care;                                                                                                                                                                                                                                    care, clinical research,
                     established with the following                                     3) Make recommendations                                                                                                                                                                                                                         or management. The
                     objectives: 1. Identify key and                                    regarding the creation of a                                                                                                                                                                                                                     LOINC database
                     emerging barriers to IT                                            private-sector, consensus-                                                                                                                                                                                                                      currently contains about
                     adoption in ambulatory care,                                       based standard-setting and                                                                                                                                                                                                                      41,000 observation
                     focusing on policy, regulatory,                                    harmonization process, and                                                                                                                                                                                                                      terms. Nearly 31,000 of
                     and financial issues                                               a separate product                                                                                                                                                                                                                              these observational
                     2. Come up with solutions,                                         certification process;                                                                                                                                                                                                                          terms relate to laboratory
                     working synergistically with                                       4) Make recommendations                                                                                                                                                                                                                         testing. Each record in
                     other HIMSS teams as well as                                       for a nationwide architecture                                                                                                                                                                                                                   the LOINC database
                     other organizations.                                               that uses the Internet to                                                                                                                                                                                                                       identifies a clinical
AAP Considerations   3. Disseminate the knowledge
                     AAP Involvement with other        Advocacy for inclusion of        share health information in a
                                                                                        Advocacy for inclusion of         AAP Involvement with other        WEDI has been actively                                              AAP involvement with other        New organization founded in    AAP involvement with                   observation and contains
                                                                                                                                                                                                                                                                                                                                        AAP involvement with
                     national groups to promote IT     pediatric -specific              pediatric-specific                national groups to promote IT     involved in HIPAA through it's                                      national groups to promote IT     October 2004; members include other national groups to                other national groups to
                     adoption by clinicians.           requirements in certification    requirements in the National      adoption by clinicians.           advisory group. Advisors on                                         standards.                        the president/CEO of NAHIT,    promote IT standards.                  promote IT standards.
                                                       criteria.                        Health Information Network.                                         WEDI have gained access to                                                                            the president/CEO of AMIA, and
                                                                                                                                                            instrumental government                                                                               executives from various
                                                                                                                                                            agencies including CMS and                                                                            healthcare and information
                                                                                                                                                            the DHHS as HIPAA continues                                                                           technology corporations.
                                                                                                                                                            to demand the attention of all
                                                                                                                                                            covered entities. Despite
                                                                                                                                                            WEDI's involvement with the
                                                                                                                                                            Administrative Simplification
                                                                                                                                                            portion of HIPAA it was
                                                                                                                                                            decided that the Academy
                                                                                                                                                            could reasonably discontinue
                                                                                                                                                            representation to the WEDI
                                                                                                                                                            BOD. The SCOCIT will
                                                                                                                                                            monitor WEDI activities and
                                                                                                                                                            support issues that are
                                                                                                                                                            relevant to AAP activities and
Fiscal Notes         none- membership focused on       $650/representative/meeting                                        None - no organizational          goals.                                                              $10,000 annual membership         n/a                                 unclear - Most work to  None
                     IT vendors and individuals;       when necessary. Most                                               membership category                                                                                   dues                                                                  be completed by phone,
                     Overcoming Barriers Task          business conducted by                                                                                                                                                                                                                          e-mail, and local
                     Force meets by conference         phone call/e-mail.                                                                                                                                                                                                                             meetings in the DC area
                     call.

Liaison/AAP          Robert Gerstle, MD, FAAP, is      Functionality Workgroup:    none                                   none                                                                                                  As of December 2003, opted        None                                Alan Zuckerman, MD,               No official
Representative       participating in Overcoming       Eugenia Marcus, MD, FAAP                                                                                                                                                 not to join for now (large cost                                       FAAP                              representative, though
                     Barriers Task Force.              Interoperability Workgroup:                                                                                                                                              for unclear benefit). Will                                                                              COCIT member Willa
                                                       Alan Zuckerman, MD, FAAP                                                                                                                                                 monitor for possible future                                                                             Drummond, MD, FAAP,
                                                       Certification Process                                                                                                                                                    reconsideration.                                                                                        participates in meetings.
                                                       Workgroup: Joseph
                                                       Schneider, MD, MBA, FAAP




Appointment Date     November 2004                     November 2004                    n/a                               n/a                                                                                                                                     n/a                                 October 2005                      n/a
Updated: 10/27/05

				
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