empower Real People, Real Progress
a huge success:
The Arc’s convention celebrates 60th
Thanks to all of the self-
chapters, members, staff and
professionals who came to The Arc's new face!
Orlando, Florida for The Arc’s
National Convention 2010 and There is so much more to launching
celebrated 60 years; this year’s a new brand than our logo and colors.
event was a huge success. Yet, it cannot be denied that when we
revealed the future of The Arc with
a sneak peek at The Arc’s new brand
Convention Highlights identity and logo at Convention there
was great excitement and many oohs
Sprout Film Festival: and aaahs. Plus, many chapters of The
Convention activities kicked off on Wednesday for the Preconference from Arc are busy getting their paperwork
The Arc and NCE. The Sprout Film Festival featured a collection of short films prepared so they can sign on to be early
created by or starring people with intellectual and developmental disabilities. adopters when we launch the new visual
Films were screened ‘theatre style’ with popcorn, soda and concession candy. identity in March 2011.
This event kicks off The Arc’s exciting partnership with Sprout for a National Film Our new look and feel is an innova-
Festival highlighting people with intellectual and developmental disabilities in tive and dynamic image representing
2011. The Arc and Sprout have engaged chapters across the country to be one of what The Arc stands for. Close your
25 communities to join this remarkable signature event of The Arc. Look for The eyes and visualize The Arc in a whole
Arc/Sprout Film Festival in your community in 2011! new way. Imagine:
• The Arc provides a pathway
A Gleeful Convention: • The Arc offers support
At the opening plenary, actors Lauren Potter and Robin Trocki from the hit TV
• The Arc completes a circle
show Glee were presented with The Arc’s first ever Inclusion and Image Award.
• The Arc leads the way
Emmy award-winning actor Jane Lynch, who plays coach Sue Sylvester on
• The Arc is a network
the show offered congratulations via video as we honored these two amazing
• The Arc offers protection
women for their positive portrayals of people with intellectual and develop-
• The Arc is a bridge to the future
mental disabilities. Lauren and Robin spent hours signing autographs in the
We are The Arc. We are not an
Exhibit Hall, graciously talked to fans and had their pictures taken, then they
acronym. Those who meet our organi-
joined in the evening festivities.
convention 2010 continued on page 3 new face continued on page 3
“ Every American who
has an intellectual
disability and their
family have had their
looking back at a distinguished career:
paul marchand retires from the arc
After nearly 38 years of advocacy and action, Paul Marchand, longtime
Director of The Arc's Governmental Affairs Office announced his retirement
lives changed for the effective on January 2, 2011.
better by a friend
that most have Paul played instrumental
roles in most national dis-
never met. ability policy, including the
― John Dickerson, right to a free public educa-
Executive Director, tion (known as IDEA), and
The Arc of Indiana supported employment, and
empower played a significant role in
numerous disability rights
is published quarterly by The laws including the Americans
Arc located at 1660 L Street, NW,
with Disabilities Act, the Civil
Suite 301, Washington, D.C.
20036. Rights for Institutionalized
Persons Act and Baby Doe.
Officers: The Arc and UCP have appointed Seminar, a popular annual event which now
Marty Ford as Acting Staff Director of the has five additional national disability partner
Mohan Mehra Disability Policy Collaboration (DPC). groups. He is the recipient of numerous
Cortlandt Manor, NY Marty is taking over upon Paul's departure national awards and was named by the
to ensure a seamless transition of leader- National Historic Preservation Trust on
Vice President ship in our shared public policy office. Mental Retardation as one of thirty four indi-
A strong believer in collaborations and viduals who made significant contributions
Indian Head Park, IL
coalitions, Paul served for twenty-five in the 20th century.
Secretary consecutive years as the Chairman of the “In his four decades of work with The Arc,
Michael Mack Consortium for Citizens with Disabilities Paul has had a major role in every policy
Silver Spring, MD (CCD). CCD has grown from a handful of development in this country that affects
national disability organizations to over 110 people with intellectual disabilities and
Ron Brown organizations and is a powerful voice in our their families. If you receive SSI or SSDI, use
Round Rock, TX nation’s capital. Medicaid for health care, or community-
He also helped create and has directed based supports, attend public school, utilize
Immediate Past President the Disability Policy Collaboration, a vocational rehabilitation to find employ-
Lynne A. Cleveland
project of The Arc and United Cerebral ment, were able to move out of an institu-
Palsy since it was formed eight years tion for a life in the community, enjoy the
Chief Executive Officer ago. Paul is a cofounder of the American same rights as every other American – Paul
Peter V. Berns Association for People with Disabilities and touched your life in these and so many
has represented The Arc on several other other areas,” said John Dickerson, Executive
Editor boards of directors. Director of The Arc of Indiana.
The lives of children and adults with Paul often repeated that his greatest
intellectual and developmental disabili- achievements included building and main-
ties and their families improved markedly taining a highly respected policy staff and
The Arc promotes and protects during his tenure. A self described “lifer” an ability to explain complicated federal
the human rights of people with
in the national disability empowerment laws and policies in simple terms readily
intellectual and developmental
disabilities and actively movement, Paul also served for five years understood by family members and self-
supports their full inclusion as the Executive Director of The Arc of advocates.
and participation in the Northern Rhode Island.
community throughout their
“On behalf of The Arc, we are grateful for
lifetimes. He has actively participated in the last his inestimable contributions to our move-
43 national conventions of The Arc. Paul ment. We wish him much success on his
developed The Arc’s Disability Policy future endeavors; his talents and humor will
marchand continued on page 6
convention 2010 continued from page 1
1. Robin Trocki and Lauren Potter, Glee, honored with the Inclusion and Image Award. 2. Dancing at the Fabulous Florida Sunset Party.
3. Civil Rights Music Session.
The Arc of Florida: passed Rosa’s Law and the pen used by Autism Now Overview:
The Arc of Florida held their annual President Obama to sign it will hang in This year’s Convention saw the
convention in conjunction with The Arc’s national office in Washington, launch of Autism NOW!, a national
ours to make it a very special event. D.C. thanks to Paul. autism resource and information
Approximately 250 self-advocates from center to be funded by a $1.87 mil-
Florida came in for the day on Thursday Special Guests: lion grant from the Administration
and kept things going well into the We were honored to hear from on Developmental Disabilities. Ann
night at the Fabulous Florida Sunset Sharon Lewis, the Commissioner Cameron Caldwell and Tonia Ferguson
Party. In honor of The Arc’s 60th anni- for the U.S. Administration on from The Arc laid out the plans for a
versary celebration, The Arc of Florida Developmental Disabilities, Melody four-year initiative which will provide
served towering “cakes” made of indi- Musgrove, the Director of the Office of new resources and opportunities for
vidual cupcakes. Special Education Programs for the U.S. people with ASD and other develop-
Department of Education and Kathy mental disabilities.
Lasting Legacy: An Evening to Cel- Greenlee, Assistant Secretary for the
ebrate the Career of Paul Marchand Administration on Aging. These three A Taste of the Rockies:
At the Closing Banquet we honored prominent members of the federal The Chapters of The Arc in Colorado
Paul Marchand for 38 years of service departments overseeing a large portion cordially invited everyone connected
to The Arc. A surprise guest, mayor- of services for people with intellectual with The Arc to join them in Denver in
elect of Washington, D.C. and former and developmental disabilities shared 2011 for the next national convention.
Executive Director of the D.C. chapter information on our government’s plans We’ll be “achieving new heights” a little
of The Arc Vincent Gray popped in to for the future and reassured us that they earlier next year, so go ahead and make
wish Paul well. The evening was filled are very interested in listening to our your plans to attend September 14-16,
with humorous stories and senti- concerns as we move forward with the 2011. See you in Denver!
mental praise for Paul and all he has implementation of new policy.
done for people with intellectual and
developmental disabilities. When it
was his turn at the microphone, Paul Thanks again to our Convention sponsors Mutual of America, MetLife,
surprised everyone by presenting a gift Hammer Travel, Essential Learning, Blackbaud, 501 (C) Agencies Trust,
to immediate past president of The Arc The HSC Foundation, Diversified Nonprofit Services, Orion Security,
Lynne Cleveland and Peter Berns, CEO Social Solutions and AGS.
of The Arc. A framed copy of recently-
new face continued from page 1
zation and those we serve will know what we stand for: we respect and access for people with I/DD.
are the leading advocates for people with intellectual and If you would like to know more about The Arc’s new,
developmental disabilities (I/DD). exciting visual identity, contact Trudy Jacobson, Chief
The Arc is driven by opportunity – the opportunity for Development and Marketing Officer at Jacobson@thearc.org.
hope, for growth and for change. We strengthen individuals And stay tuned for March 1, 2011, when the whole new brand
and their families and connect them across our national will be launched.
network of community based chapters. The Arc fosters
Members of the national board
heavy hitters come on board for 2010: of The Arc share a deep commit-
ment to people with intellectual and
lynne cleveland paves the way developmental disabilities (I/DD).
This diverse group of volunteer
leaders brings their expertise, vision
for future success and passion to guide the organiza-
tion toward achieving new heights.
Welcome incoming Board mem-
In November, The Arc welcomed new members to the national bers of The Arc for joining us in
board and thanked outgoing members for their dedication and charting a course for the future!
service. This dynamism of the new members is reflected in
M.J. Bartelmay, Hermitage, PA.
their personal and professional background as leaders in their Immediate Past President of The Arc of
communities and as parents. The new board includes: a vice Pennsylvania. Elected to a second term
president of one of the world’s leading investment groups, a former on the Board.
Policy Director in the U.S. Senate, a corporate attorney, a Special Barbara Coppens, Cherry Hill, NJ,
Self-Advocate, Advocate Assistant with
Needs Executive with MetLife, a coach with the Washington Disability Rights New Jersey.
Redskins football team and other notable new members. Hugh M. Evans, CFA, Baltimore, MD.
Vice President of T. Rowe Price Group,
to a day when abuse, institutionaliza- Connie Garner, Ph.D., Burke, VA. Policy
tion and segregation have ended.” Director with the law firm of Foley Hoag
“Through Lynne’s inspired leader- LLP. Former Policy Director, Special
ship, The Arc has paved a clear course Populations for the Senate Committee on
for the future. During her tenure, we Health, Education, Labor and Pensions
(HELP) where she worked closely with
have devised a Strategic Framework the late Sen. Edward M. Kennedy.
for the Future of The Arc 2010-2019.
Thomas A. Judd, Minneapolis,
Moreover, The Arc is on its firmest Minnesota. Attorney, Fredrikson & Byron
financial footing in years and we are P.A.
poised to launch a new powerful
Joe Meadours, Sacramento, CA. Self-
brand identity. The Arc is on the Advocate and Executive Director of
upswing with our Chapters and we are People First of California. Elected to a
on the move,” said Peter V. Berns, CEO second term on the Board.
of The Arc. Pat Napoliello, San Francisco. Founder
The Arc announced incoming of the California Alliance for Inclusive
Officers to the Board. Communities and former President of
The Arc of San Francisco. Elected to a
President: Mohan Mehra served
second term on the Board.
as Secretary of The Arc and has been
Kurt Rutzen, Minneapolis, MN. Self-
a member of the Board of Directors
Advocate. Program Specialist for the
since 2004. University of Minnesota Institute on
The Arc owes special gratitude to Vice President: Nancy Webster, who Community Integration’s Research and
Lynne A. Cleveland who has served as has served on the Board since 2002. Training Center on Community Living.
the President of the national board of Treasurer: Ron Brown has served on Lou Spanos, Pittsburgh, PA.
The Arc since October, 2008 and has the Board since 2006. Linebackers coach for the Washington
served on the Board of Directors of Secretary for the Board: Michael Redskins. Previously spent 16 sea-
sons as a defensive assistant with the
The Arc since 2000. She has long been Mack, who previously served as Vice
dedicated to advancing the rights of President and as Treasurer.
people with I/DD. The Arc is also grateful our outgoing
In summing up her service and her Board members: Kim Brown, Shirley Doug Church, Oak Hill, VA. Chairman of
Virginia Heritage Bank.
hopes for The Arc, Lynne said, “We Dove, Bill Dusold, Chester Finn, Janet
have the potential to change lives – we Albert-Herman, Cindy Johnson, Kelly Piacenti, Chester, NJ. Director of
Mary V. Jordan and Deb Seman, NCE the MetLife Center for Special Needs
have the power to change history. The
Arc is a leading force that will lead us Representative to the Board.
Stacy Taylor, San Diego, CA. Partner in
the international law firm DLA Piper.
taking care of getting there are knowledgeable about
and sensitive to the chal-
disabilities for more than 85
years. Hammer Travel worked
lenges their patrons face with Sybil to make the trip
Getting from here to there – most of us take it for in situations that are taken as hassle-free and enjoyable
granted. We book a flight, jump behind the wheel of for granted by the average as possible by assuring her
a car, or catch the next train to anywhere we would traveling public. Earlier this a safe flight to and from the
like to go. The world can suddenly become very small year, The Arc partnered with Convention, arranging for a
when we are free to travel to see new places, meet new Hammer Travel LLC to pro- wheelchair-accessible van,
people and experience new things. vide such services for people accessible hotel room once
with I/DD who wanted to she got on the ground in
attend The Arc’s National Florida and providing staff
Communication with reser- Convention in Orlando, FL. support during her trip.
vation agents can be trying. From this year’s With travel obstacles
Assistance can be difficult to Convention came the per- overcome, Sybil was able
come by and schedules can fect example of how the to attend the Convention,
seem unworkable for those ability to travel freely can network and be inspired by
who need more time to get impact the life of someone her peers. She even fit in a
from point A to point B. with a disability. Sybil, a mini-vacation exploring Sea
On a daily basis The Arc 70-year-old advocate from World and Disney’s Animal
advocates for the full inclu- Massachusetts, asked her Kingdom. Sybil was able to
sion of people with I/DD, local chapter, The Arc of take advantage of a unique
For some, however, all the fighting for the kind of access Northern Bristol County to opportunity to join in with
world has to offer can seem which gives them the power help her get to Florida for the other disability advocates on
tantalizingly out of reach. For to achieve full and satisfying Convention. They quickly a national level and fully par-
people with intellectual and lives. The ability to travel pointed her to Hammer ticipate in an event that was
developmental disabilities, independently, without Travel, a nonprofit providing important to her.
who sometimes have accom- restriction goes a long way services to individuals with
panying physical disabili- toward accomplishing that
ties, travel is not nearly as mission. Travel gives people
simple as just packing up and a certain freedom which “We believe that travel should be available to everyone. New
heading out. allows for more self-determi- friends, new challenges and new experiences are just part
of what travel has to offer,” said Josh Senso, Co-Director of
For people with I/DD, it nation in what activities they
can be a complex and frus- pursue. Hammer Travel, the official travel partner of The Arc’s National
trating process. Airplanes, Thankfully, there are com- Convention. For information on Hammer Travel, please visit:
trains and buses can be only panies who specialize in www.HammerTravel.org or call 1-877-345-8599.
marginally accommodating. making travel easier. They
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the arc celebrates who has Down syndrome, self-
advocates William Washington (The
the signing of rosa's law Arc’s national office receptionist),
Jill Egle (Co-Executive Director, The
Arc of Northern Virginia) and Jeremy
It started with a 9-year-old girl and her teenage brother from Jacobson (son of The Arc’s Chief
Edgewater, Maryland who said “what you call people is how you Development and Marketing Officer
Trudy Jacobson) all of whom joined
treat them. If we change the words, maybe it will be the start of a
Paul Marchand, Staff Director of the
new attitude toward people with disabilities.”
Disability Policy Collaboration, a
partnership of The Arc and UCP .
On October 8, Rosa Marcellino “This is a huge victory for self-
and her family joined 150 people advocates and an important stepping
at the White House including staff stone for shaping future legislation,”
from The Arc, disability rights Marchand said. The Arc was
activists, government officials instrumental in the passage of Rosa’s
and singer-songwriter Stevie Law by galvanizing support across the
Wonder to witness President nation and through vigorous advocacy.
Obama sign the Twenty-First Self-advocates and The Arc have led
Century Communications and the effort to get the bill enacted as part
Video Accessibility Act of 2010 and of a nationwide effort to remove the
celebrate Rosa’s Law which was stigma of the “r-word.” The majority of
signed into law on October 5. states have altered their terminology
Rosa Marcellino, who has Down in state laws and in the names of state
syndrome is the inspiration for agencies that serve this population.
this new law to remove the words Jill Egle lobbied on behalf of The
“mentally retarded” from most Arc of Northern Virginia to change
federal health, education and labor terminology in that state’s laws. “As
statutes. The phrase “intellectual the Senate. The law is modeled after a self-advocate, passing Rosa’s Law
disability” will replace the existing a similar one enacted in the state of sends a powerful message that people
terminology. The legislation does not Maryland in 2009 with her support. with intellectual and developmental
cover entitlement programs, such as A delegation from The Arc attended disabilities deserve respect. We want
SSI, Medicare, Medicaid and Social the White House event to celebrate the same things everyone wants
Security. Rosa’s Law, including The Arc of and deserve to live full lives in the
Senator Barbara Mikulski (D-MD) Maryland board member Michael community just like everyone else, Egle
was the lead sponsor of Rosa’s Law in McLaughlin and his daughter Erin, said.”
marchand continued from page 2 Save the Date
be greatly missed. As Paul’s deputy, Marty has been mentored for 2011 Disability Policy Seminar
over the last 26 years; we are very pleased that Marty will assume February 14 – 16, 2011
this critical position. As one of the nation’s leading advocates
on issues that impact our constituency, she will ensure that our Washington
voices are heard,” said Peter V. Berns, The Arc’s CEO. Washington, DC
Paul will still be involved in DPC initiatives over the next few
*Please note this is a
months including the upcoming Disability Policy Seminar in new location.
Washington, D.C. February 14-16, where he will again be hon-
ored by his peers at a special event. Paul will then join wife Cristy Tuesday evening
includes a celebration
in New Mexico, supporting her career move from long time of Paul Marchand’s
Executive Director of The Arc of Maryland to Executive Director lasting legacy upon his
with the New Mexico Developmental Disabilities Planning retirement.
Council in Santa Fe. The Arc wishes the two of them much hap-
Go to www.disabilitypolicyseminar.org for more
piness in their new surroundings as they embark on a new and
the ambassador's council: Jim Gardner (1990-1992), Quincy
Abbott (1996-1998), Leo Bergreen
powering the arc with experience (2004-2006), Mary V. Jordan (2006-
2008), Lynne A. Cleveland (2008-2010)
and Mohan Mehra (2010-2012) met,
aptly enough in the Presidential
The passion is still there. As strong as when they each accepted Suite. As one of Cleveland’s last offi-
the biggest volunteer mantle The Arc could bestow upon them cial duties she officially launched the
— President of the National Board of Directors of The Arc of the Ambassador’s Council as an advisory
United States. For the first time, four past presidents along with group to the Board. Their talents, expe-
the current sitting President of The Arc and the President about to rience and institutional knowledge will
be enlisted by The Arc in order to focus
occupy the office, joined at The Arc’s 2010 National Convention. on our many new initiatives, especially
This most exclusive club gathered to share ideas and concepts as it relates to growing our donor base,
about how their years of experience could continue to be an asset and aligned with that our volunteer
and enable The Arc to become stronger and more sustainable. leadership.
The Council provides an opportunity
for these leaders to collectively build
Armed with decades of deep strength of leadership will remain their legacy in chapters, in leadership
institutional knowledge, this group intact now and for the future. This as well as in solidifying our financial
comprises a brain trust for the orga- distinguished group brings a depth footing. Those gathered were most
nization. They recognized that it was of commitment and appreciation for appreciative of the opportunity to be
time to officially create a leadership what has been accomplished and all asked to be a part of the workings of
council composed of past presidents that still remains in order for The Arc to this incredible organization and to
of The Arc in order to assure that the be successful in its mission. again put their passion into purpose.
boycott of a haunted house priate uses of the property should be
considered, such as the placement
of a university, health care facility, or
The Arc, The Arc of Pennsylvania, The Arc of Chester County, community park, for example. Any
and hundreds of advocates for people with intellectual and so-called haunted attraction, espe-
developmental disabilities (I/DD) in neighboring states banded cially one that profits from negative
together to call for a boycott of a haunted house attraction on stereotypes of people with intellectual
the former site of the Pennhurst State School that opened in late and developmental disabilities, is
September. simply not acceptable to The Arc of
Pennhurst, situated on a 110-acre plans guided by family members. Developer Richard Chakejian and
site in suburban Philadelphia, was Recently, the site was transformed his partner Randy Bates targeted
forced to close in 1987 in the wake of by two developers into a commer- customers between 12 and 20 years
allegations that residents had been cial horror house attraction called old. Plans included an electro-shock
abused, neglected, beaten, and sexu- “Pennhurst Asylum” to coincide with therapy scene with a Frankenstein-like
ally assaulted. The Arc of Pennsylvania Halloween. Advocates from The Arc monster and an autopsy room con-
was a key plaintiff in the litigation that of Pennsylvania, The Arc of Chester taining some artifacts found on the
resulted in Pennhurst’s closure to stop County and other disability rights property.
overcrowding and abuse. activists joined to condemn the attrac- “Pennhurst Asylum” exploits the suf-
The closing sparked the pro- tion for glorifying one of our nation’s fering that took place there and under-
cess of deinstitutionalization and most notorious state institutions. mines meaningful efforts to eradicate
the remaining 460 patients from In a public statement, The Arc of stereotypes and negative perceptions
Pennhurst were discharged to live in Pennsylvania said, “With respect to the that persist in society against people
the community, transferred to other vacant Pennhurst lot and buildings, with disabilities,” said Peter V. Berns,
facilities or provided with treatment we believe only tasteful and appro- CEO of The Arc.
1660 L Street, NW, Suite 301
Washington, D.C. 20036
Visit The Arc's new,
expanded website at
CFC season is here:
support The Arc!
The Arc helps families and people with intellectual disabilities every
single day. Your contribution means a great deal to us, but even more to those
we serve in the community and at the state and federal levels.
With your ongoing support we are creating real opportunities for people with dis-
abilities that lead to living full lives.
The Arc is not a government agency, we must rely on the generosity of the American public. With your ongoing
support, we will continue our work today and tomorrow.
The charities you support through your CFC focus on people who really need help.
Please elect to support The Arc #11296, with your financial gift
to the Combined Federal Campaign this year.
Together, we are changing lives. meeting high standards!
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