Patient and Public Involvement Forum
Working with, but independent of,
South Essex Partnership Trust
1 April 2004 - 31 March 2005
Southend Association of Voluntary Services (SAVS)
Forum Support Organisation
Commission for Patient & Public
Involvement in Health
Eastern Region, Cambridge
Forum Members Date appointed
Roy Birch - Chair December 2003
Ann G Brooker December 2003
Gary Charvetto February 2004
Linda Cook January 2005
Joyce Culling – Vice Chair December 2003
Angela Garrard February 2005
Bobbie Singer October 2004
Caroline Stradling March 2004
Bernard Tyler November 2004
During the year under review our membership fluctuated and we struggled to maintain
anything near a membership that could be as active as we would like. Nevertheless,
through informative visits, we began to familiarise ourselves with the vast range of mental
health and learning disability services provided across south Essex, by South Essex
Partnership Trust (SEPT). This is proving to be an extremely worthwhile ongoing piece of
work and we are grateful for the co-operation of Mike Waddington, Head of Patient & Public
Although low membership restricted the amount of monitoring activity we were able to do,
through our various contacts we identified areas of concern and developed a work plan
accordingly. Our forum is presently reviewing occupational therapy, A&E services and
waiting times for mental health patients at Southend and Basildon Hospitals, improving
communications with patients and carers and reducing stigma. We are also promoting the
Forum’s work to encourage recruitment of additional members and public involvement. In
addition to our agreed work plan we also pursue other issues that are brought to us from
time to time.
Working with, but independent of, SEPT we have developed a good working relationship.
We have actively participated in SEPT service provision planning days for the year 2005/6
and have therefore had the opportunity to not only monitor the planning process, but also to
influence plans, based on patient feedback and knowledge gained as a result of our
informative visits. Additionally we are frequently invited by SEPT to participate in discussions
regarding proposed new services and to review proposed NHS/Government health policies.
We are disappointed with the poor public attendance at our meetings in public, however we
believe this to be a wide scale problem where meetings in public are concerned. In an
attempt to encourage more public awareness and participation we intend to deliver
PowerPoint presentations to a variety of groups in our locality and continue to use other
methods to raise the profile of PPIF.
Towards the end of 2004 our membership increased and we now have nine members.
Membership consists of people who have a wide range of skills and interests and I believe
we are now well placed to enter the next year with high expectations.
I could not end this report without thanking members for their hard work and determination or
without paying the forum’s thanks to our Forum Co-ordinator, Gill Dawson, who commands
enormous respect from all forum members and works tirelessly on our behalf.
PPI FORUM MEETINGS
Members meet regularly on a monthly basis and have
held twelve informal meetings during the year.
The forum has held three meetings in public at which
public participation is always welcomed.
Forum Activities During the Year
In order to establish how the forum conducts its business and members’
conduct, the forum has:
Appointed Acting Chair & Vice Chair (made Roy Birch and Joyce Culling
substantive in April 2005)
Agreed the CPPIH Members Code of Conduct All members
Appointed Media Representatives Roy Birch and Joyce Culling (in liaison
with Co-ordinator and Forum)
Appointed a member to attend SEPT Board Caroline Stradling
Nominated a member to Billericay, Brentwood & Joyce Culling
Wickford PPI Forum
Appointed a member to the Essex PPI Forums Caroline Stradling (deputy: Joyce Culling)
Representatives / CPPIH Group
Appointed a member to Regional Chairs / Roy Birch (deputy: Joyce Culling)
Appointed a member to the joint SAVS / PPIF Caroline Stradling (deputy: Joyce Culling)
Agreed with SEPT PPI Lead, CPPIH/NHS All members
‘Principles for Effective Joint Working Between
PPI forums and NHS Organisations in Essex’
Agreed quarterly meetings with SEPT Chair Roy Birch, Joyce Culling & Co-ordinator
Agreed an activity / work plan All members
Please note that newly appointed members will be incorporated
Mapping their District
In order to familiarise themselves with the vast range of services provided by SEPT,
members have undertaken a range of informative visits, including:
The Taylor Centre, Southend: Mental Health Resource Centre.
Cherrydown Ward, Basildon Hospital: Continuing Care for older mentally ill
patients from the Basildon district.
Benton’s Farm, South Ockendon: Learning Disability Day Service, providing
sheltered training specialising in valued work based activities.
Ashingdon Ward, Runwell Hospital: Assessment ward for older people with an
organic mental illness, from Southend, Castle Point and Rochford districts.
Elm Ward, Runwell Hospital: Sampled Hospital Catering
Steeple View, Runwell Hospital: Forensic, low secure rehabilitation.
Sankey House, Basildon: Open referral, drug and alcohol service.
These visits have not only given members an insight into the services provided, but have
also afforded them an opportunity to meet and speak with services users and staff, sharpen
their focus for future visits and further develop their work plans.
Promotion of Forum
Members have promoted the PPI Forum through attendance at conferences, display stands,
informative visits, High Street events, leaflet handouts, etc. Members have links with
Service User Groups, various mental health organisations/associations, local patient
advocacy groups (SEENA), Citizens Advice Bureau and voluntary services contacts which
are all very useful networking opportunities. The forum also has regular reporting space in
newsletters/magazines, including, ‘SAVS Newsletter’ and ‘Your News’, a SEPT magazine
for service users and friends. Forums have also publicised their work and role in Southend
Borough’s Civic News. Meetings in public are advertised via local media, libraries, Civic
Centre, SAVS and many other groups and organisations that we have made contact with. A
joint SAVS Forums’ Publicity Group was formed towards the end of 2004 and
representatives from each of our four Forums have been working with Forum co-ordinators
and SAVS publicity assistant on promotional materials and joint publicity events. As a result
of this work joint we designed flyers, pop-up display boards, organised a successful High
Street publicity drive, and plan further publicity events and presentations to local groups.
Recruitment to Forum
Great efforts have been made to recruit additional members to our forum. We started out
with just six members and lost two within the first couple of months. As our forum covers the
whole of south Essex (500 square miles and 700,000 population), this made the need for
recruitment imperative. We have made countless postal and personal contacts and sought
and taken every opportunity that we can to get our numbers up. The Forum has participated
at health partners’ events with PPI displays and in all of our publicity we emphasise that we
are still recruiting to the forum. We have worked with the Eastern Regional CPPIH and also
put considerable effort into a proposal for Development Funds for south Essex full-page
newspaper advertising. Unfortunately our proposal was rejected by the CPPIH. Some of
our efforts have been fruitful and membership now stands at nine. We are also aware of two
further applicants who are awaiting confirmation of their appointment to the Forum.
The following is an illustrative rather than exhaustive list of some of the contacts that have
been made to promote the Forum and to encourage recruitment and patient and public
Southend Advocacy Services
Essex Racial Equality Council
Southend District Mental Health Association
Multi Cultural Association
Marigold Family Resource Centre
HARP (homeless night and day centres)
Cluny Square, Hamlet Court, and Shoeburyness Information Shops
Milton Community Partnership
Citizens’ Advice Bureaux (Southend, Rochford/Rayleigh, Castle Point, Wickford
The Dove Project
Basildon & Thurrock Independent Advocacy Service
National Childbirth Trust
Southend Police Community Liaison
Terrence Higgins Trust
Service User Groups
South East Essex Advocacy for Older People
Informative Visits to SEPT Services
Media Publicity, meetings in public, regular forum updates in a variety of outlets.
Monitoring / Reviewing of NHS Services
Through many contacts and informative visits areas of concern were identified and
have formed the basis of activities/workplan. Lead members have been nominated for
some activities, however all issues are considered and agreed by the forum:
Activity Lead Members
Informative visits (mapping district): To familiarise members with All members
the full range of services provided by SEPT
Monitoring PALS: As well as the forum monitoring the level of All members /
complaints a member was invited to join the PALS Review Group Joyce Culling
A& E Mental Health Services: Concern over lengthy waits and Caroline Stradling,
waiting conditions. Presently undertaking a comparative study Roy Birch /
between Southend and Basildon Hospitals’ A&E services for patients All members
with mental health problems.
Occupational Therapy Inpatient Services: In response to service Bobbie Singer
users’ complaints the forum raised the issue of insufficient OT for Ann Brooker /
inpatients. The Trust has now assured us that they have their full PT All members
complement. We will continue to monitor.
Activity Lead Members
Communication Barrier, not all staff speak fluent English: In Roy Birch /
response to raising this concern, the Trust has advised that they are All members
shortly to undertake an audit in ward areas of the effectiveness of
Staff Presence on Wards: This issue was raised with the Trust and Caroline Stradling
there now appears to be an improvement in the situation. We will Roy Birch /
continue to monitor. All members
Reducing Stigma: Members are keen to reduce the stigma so often Joyce Culling /
attached to people with mental health problems / learning disabilities All members
and are presently considering ways in which to progress this piece of
work, especially improving the understanding of young people.
Senior Nurses Administrative Workload: Members were aware Roy Birch /
that the heavy administrative workload was taking time that could be All members
spent with patients. This matter has yet to be taken forward.
Patient Environmental Action Team (PEAT): The forum was Ann Brooker
invited to participate in a series of PEAT assessments of SEPT. The
assessment covers issues such as cleanliness & tidiness, infection
control, environment, access, food and food service, privacy &
dignity. A member participated in six assessments.
Proposed Neurological Study: Put forward a proposal for an Bernard Tyler
Essex Health Overview and Scrutiny Study to ‘Determine the All members
incidence in broadest sense of frequency, range and impact, of
neurological conditions in south Essex, to include social and
economic consequences for families, carers and the wider
community, as well as for patients. We await news as to whether or
not this proposal has been accepted.
MACA Homes, Southend and Westcliff: A forum member alerted All members
the forum to concerns about long-term consideration about closure of
two local homes. Our concern was for the uncertainty for the future
of residents. Southend PCT has advised us that they are awaiting
further information from their Surveyors and Architects and will keep
us advised. We will continue to monitor.
Benton’s Farm, South Ockendon: Following a visit to Benton’s All members
Farm staff raised concerns about the future of this service. The
Trust has advised that following the government’s paper ‘Valuing
People’ sought the modernisation of learning disability services and
encourage Joint health and Social Commissioners to look at who is
best able to provide services with a more social, rather than a mental
health, focus. They were in the early stages of a review and any
changes that are recommended will be subject to full staff and public
consultations, including Overview & Scrutiny. The PPI will be kept
informed of developments as they occur. We will continue to monitor.
Cherrydown, (long term care) Basildon Hospital: From a All members
‘demonstration’ by relatives/carers we understood that there were
plans to close this long stay ward at Basildon Hospital. We have
raised the matter with the Trust and the situation has been clarified. Continued/…
It has been confirmed that they are currently carrying out a review on
the best position for this ward. Apparently plans were agreed with
South Essex Health Authority in 1998 that it should be placed in the
community. The contract at that time was with Southend Community
Care NHS Trust, but nothing had been done. SEPT is currently
carrying out a space utilisation exercise of all their services on the
Basildon Hospital site. One option under consideration was whether
or not to focus all continuing care services at Thurrock Hospital.
Relatives/carers believed that a decision had been taken and were
unhappy, hence the demonstration. The Chief Executive has met
with relatives and assured them that the Thurrock Option has been
removed. Consideration will be given to where Cherrydown might be
best placed in the future and the Trust will go through the normal
consultation process of involving service users, carers, Overview &
Scrutiny, PPI and other appropriate forums before any decision is
made. We will continue to monitor.
Serious Untoward Incidents: Members have been invited to join a Bernard Tyler
SEPT panel, which reviews Serious Untoward Incidents. Joyce Culling
Learning & Development
Members have participated in a wide range of learning and development opportunities
including the following:
CPPIH: Members Welcome Days
Members Induction Days
Monitoring a Service
CPPIH Regional Forum Conference - Basildon
Working as a Forum Member
Patient Involvement Empowerment Conference
Equality & Diversity
SAVS: Best Practice Day – Effective participation in Statutory Agency Forums
Disability Discrimination Act
SEPT: Various Workshops and Conferences, etc.
Essex Strategic Health Authority: Various Workshops and Conferences, etc.
The Forum has also learned more about services through presentations and question/
answer opportunities at forum meetings:
Mayor, Cllr Roger Weaver spoke about his experience and interest in mental
health and his two chosen mental health charities for the year (The Peaceful
Place and the Growing Together Project).
Services provided by SEPT – Faye Halton, SEPT
Patient Advice & Liaison Services (PALS) - Steve Rabbitts, SEPT
Independent Complaints Advocacy Service (ICAS) PowHer – Nick Chaundy
Patient and Public Involvement, SEPT – Mike Waddington, PPI Manager, SEPT.
Services offered by Basildon MIND – Amanda McArdle and
Patricia Holdsworth, Basildon MIND.
Application for Mental Health Foundation Trust status – Dr Patrick Geoghegan,
Chief Executive, SEPT.
Update on application for Mental Health Foundation Trust status – Jai Tout, Chair
and Dr Patrick Geoghegan, Chief Executive, SEPT.
Public Health, Dr Andrea Atherton, Director of Public Health – spoke to our joint
Southend Hospital’s proposed Diagnostic & Treatment Centre: David
Brackenbury spoke to our first joint Forum meeting.
In addition members have obtained a comprehensive range of reports, e.g. Commission for
Health Improvement, Annual Reports, CPPIH Members Handbook,
Working with, but independent of, SEPT
The forum has developed a good relationship working with, but independent of, SEPT.
Whether as PPIF members, through their own positions in the community or, in some
cases, as services users they have regular networking opportunities with service
providers, services users/carers and members of the public. The following list is
given as an example of some of the areas in which members have been involved in
working with the Trust and in helping patients and the public to influence services:
Service User Involvement and Empowerment Group
Service Planning Days – Older People, Adult Mental Health
Annual Planning Day
Freedom of Information Act - Workshop
Early Intervention and Home Treatment - Workshop
Rochford 21 Scheme: To help select contractors who will do the work on the
Rochford Hospital reprovision.
Meeting with PPI Lead on PPI/Trust working together
Quarterly meetings with SEPT Chair
Informative Visits to Services (inpatient and community)
Review of Disability Discrimination Act - workshop
Copying Medical Letters to Patients - workshop.
Advance Directives - workshop
SEPT Application for Mental Health Foundation Status - conference / workshop
Update on Application for Mental Health Foundation Status - conference / workshop
Working with Others
Members have also participated in meetings, conferences and workshops with health
partners and in the community, for example:
Anglia Polytechnic University: Consultative Conference on pre-registration Inter-
professional learning in health and social care.
Democratic Health Network Consultation
Standards for the Performance and Ethics of Mental Health Nursing – United
Kingdom Reference Group Meeting - Nursing and Midwifery Council
Essex Strategic Health Authority
Carers’ Conference – Grays
Southend Carers’ Forum – Mental Health Day
Inequalities in Mental Health ALPHA/ / UK Public Health Association
Health Overview and Scrutiny Committee – workshop and put forward proposal for
scrutiny of neurological services.
Individual members have many opportunities to network within the community both as PPI
representatives and within their personal lives, e.g. SEENA (local patient advocacy group),
Citizens Advice Bureaux, working with RISE on the Recovery Model, working with RETHINK
Employment Services on their Service Advisory Group and networking regularly with South
Essex User Involvement Network, etc.
Working with other Forums
‘Shaping Health’: In September 2004 members of SAVS four PPI Forums (Castle
Point & Rochford, Southend Hospital, Southend Primary Care and South Essex
Partnership) held a Joint Forum Conference / Workshop. Guest Speakers included,
Chief Officers from SAVS and CAVS, Dr Andrea Atherton, Director of Public Health
and Mike Waddington, PPI Manager, South Essex Partnership Trust. There was
ample time to ask questions, for group-work and feedback. It was a very successful
and informative day, highlighting the benefits of joint forum working.
SAVS Joint Forum Conference 2005: A further, high profile, Joint Forum
Conference will be arranged for later this year.
SAVS Joint Forum Meetings: Members of the four forums have also begun
working together on areas of common concern / interest. In March we held our first
joint forum meeting with a presentation by the Chief Executive of Southend Hospital
giving an update on their position regarding their application for Foundation Trust
Status. Meetings will be held on a regular basis (probably quarterly) during the
SAVS Joint Forum Publicity Group: Representatives from each of the Forums are
working with Forum Co-ordinators and SAVS publicity assistant on PPI promotion
and recruitment. The Group has been meeting since November 2004 and has
arranged a joint publicity event, designed draft pop-up display boards and worked
together with a CPPIH representative on the design of a full-page newspaper
promotion for a bid for development funds from the CPPIH. Unfortunately the bid
was unsuccessful, but hopefully our efforts can be utilised in some other way.
Essex PPI Forum Members’ Representatives’ Group: This group has been up
and running for almost a year now. Meetings are quarterly and give members an
opportunity to network Essex wide and to meet with representatives of the CPPIH
and Essex Strategic Health Authority.
Eastern Region PPI Forum Chairs / Representatives’ Group: The Regional
Group held its first meeting in January and the next meeting is in May 2005.
Summary of Future Activities / Work Plan 2005/6
Please note that many of the activities that we have embarked upon during 2004/5 and
as detailed earlier in this report will be continued into 2005/6
Activity Outline Description Proposed outcome
Conducting During this first full year members have Much of what we have
Business appointed a Chair, Vice Chair, Media done in this area has been
Representatives and nominated by way of establishing the
members to represent the forum at a Forum and its norms. The
broad range of health partners’ groups, group is increasing in
meetings, forums, etc. They have numbers and has formed /
agreed to abide by the CPPIH Code of is forming a strong basis
Conduct and agreed with SEPT to on which to grow.
adopt ‘Principals for Effective Joint
Working Between PPI forums and NHS
Organisations in Essex’. They have
established a pattern of meetings and
agreed an Activities/ Work plan.
(Details of representatives can be found
on P: 3 of this report)
Mapping the Continue to undertake informative / Gain a broader knowledge
District educational visits to familiarise of services and meet with
themselves with the full range of service users
Approximately services provided by the Trust. relatives/carers and staff.
500 square miles (Details of visits to date can be found on These visits will also help
and 700,000 people P: 3 of this report). to inform future monitoring
visits and work plans.
As a secondary advantage, informative Promote PPI Forums,
visits are also an excellent way to raise public awareness
promote the PPI, advise patients/carers and develop relationships.
and staff about our role and
responsibilities and to develop
Continue to invite representatives of Opportunities for the forum
health and health related services to and members of the public
give informative presentations to forum to learn more about
meetings and meetings in public. mental health and learning
(Details of presentations to date can be provision and support and
found on P: 7 of this report) encourage public
Promotion & Members will continue to promote the Raise public awareness
Patient & Public forum and encourage patient and public and participation.
(Details of work to date can be found on
P: 3 /4 of this report)
Activity Outline Description Proposed outcome
Recruitment & Through our concerted efforts Increased membership will
Retention membership is increasing. Members better enable the forum to
will persist in their efforts to recruit, undertake its statutory
support and retain members. duties.
(Details of contacts to date can be
found on P: 4 of this report.)
Monitoring The Forum plans to continue to The forum will be
Services undertake informative visits. responsive to the health
needs and concerns of the
We will also undertake monitoring visits community, encouraging
during the forthcoming year. them to participate in
shaping delivery services
We will continue to pursue areas of to meet their needs.
concern as detailed in our activities / In undertaking our
work plans for 2004/5. (For details statutory responsibilities
please see p: 5/6 of this report). we will endeavour to
ensure that we are truly
We will be responsive to concerns as representative of the
and when we become aware. people of south Essex.
Learning & Members will participate in appropriate Improved knowledge,
Development learning and development opportunities. experience, understanding
We will also utilise and maximise the and confidence.
knowledge, experience and skills of
members’ within the group.
We will seek to identify members’
unmet needs and seek to address.
(For details of learning & development
to date please see P: 6/7 of this report.)
Working with, but Whilst maintaining its independence the Continue to maintain a
independently of, Forum will continue to work with the professional spirit of co-
South Essex Trust. operation between the
Partnership Trust and PPI Forum.
(Details of participation for 2004/5 can
be found on p: 7 of this report.) Representing patients and
the public and ensuring
that their views help to
Working with Members will continue to network with a Ensure that patient and
others wide range of health and health related public involvement views
partners, user groups, support groups, are heard and considered
etc. widely and at all levels.
(Details of working with others to date
can be found on P: 7/8 of this report.)
Working with other Where ‘joint’ work is indicated we will Eliminating duplication.
PPI Forums continue to work with other forums. Maximising available
Details of examples of working together resources. Increasing
during the past year can be found on p: spirit of co-operation
8 of this report. between forums.
CPPIH Activity / Development Fund
Forums were automatically allocated access to £500 each to support their work plans. We
were advised that there was no cut off date for spending this £500. Additionally forums were
invited to submit bids for a share of the CPPIH Development Fund. We were advised that if
successful the Development Fund money had to be spent by the 31 March 2005. Our four
local forums submitted a proposal for Development Funds, but their bid was rejected.
Unfortunately due to misinformation about the cut off date for the £500 the forum was unable
to fully utilise their allocated £500. Members wish to register to the CPPIH and others that
they need to be given clear information and definitive terms of reference. Considerable time
and effort was effectively wasted.
Type of Funding How the funding was spent
Activity Fund (£500) Two Members attended a Democratic Health Network Event,
supported by the Department of Health ‘Consultation on Health:
working together’ and they were able to share their experience
with the forum. The total cost of this conference for two members
Development Fund Acknowledging the need for local public awareness and
recruitment our four local forums submitted a joint bid for full-
page newspaper advertisements across south Essex together
with freepost PPIF contact address for public feedback.
Members were very disappointed that their bid was rejected.
On behalf of the PPI Forum, working with, but independent of South Essex Partnership
Trust, I / we confirm that the above is an accurate record of our recent activity and future
Name: Roy Birch, Chair