Feedback on the utilization of your donation as received from the NAZ Foundation
(India) Trust, Delhi.
A. Name of NGO: The NAZ Foundation (India) Trust
B. Funds Disbursed: Rs. 114,570
C. Utilization of Funds:
The Foundation has added these funds to its corpus for the purpose of investment. The
Foundation runs a Care Home for HIV positive orphan children. Efforts are on towards
building a corpus so that in the long run, the Care Home is self-sustained and not
dependent on institutional funding. This is especially in light of the fact that there is very
little funding available for care.
D. Beneficiaries:
Ashwini
Ashwini is a 3-year-old child who came into the Naz Care Home in July 2006. She was
referred by an NGO called Sangram, working in Maharashtra. Naz has a long-term
relationship with this NGO and they have referred 2 more children earlier.
Ashwini is originally from a small village in Maharashtra where she was staying with her
grandfather and elder brother. She lost her mother a year ago due to AIDS related
illnesses. Her father is currently in jail on charges of killing his own mother. Since the last
three months the child was being looked after by Sangram.
Sangram tried convincing the grandfather to take care of Ashwini. However, he was
unwilling to look after her, as she is HIV positive.
Ashwini is slightly malnourished and has delayed milestones. Although she is around 3
years, she is unable to speak and cannot walk without support. Interventions with the
child have been initiated at Naz.
Ashwini is otherwise a very happy child. She seems to be settling into the loving
environment at the Care Home.
Babli
Babli is a 6-year old girl from Gujarat. She comes from a very challenging family
background. Her father abandoned the family in the early years and her mother is
dependent on alcohol and has been in and out of rehab. The mother did not have any
support and was incapable of looking after her daughter.
She came to Naz Care Home and left Babli in our care. Since then we have not heard
from Babli’s mother and her whereabouts are not known.
Babli has adjusted well to life at the Care Home. She has also taken well to her studies at
Deepalaya, she is now in UKG and her teachers are happy with her progress.
Babli enjoys engaging in quiet play, especially having books read to her, and joining the
other girls in playing with Barbie dolls. She does still miss her family, but overall is
adjusted to the Naz Care Home environment.
Babli stays quite healthy, and has not been started on antiretroviral treatment yet. She
engages with careworks and volunteers positively.
The recent celebration of her birthday was a great experience for Babli, and between
cake and snacks and gifts, Babli really enjoyed her special day.
Gudiya
Gudiya, a 3 year old girl, was found by the Delhi Police on one of the streets of
Paharganj. She was placed in an NGO called Udayan. Except her name she did not
remember anything about her family. At Udayan, she was taken for various medical
tests. She was found HIV positive during her HIV test. The authorities at Udayan felt
they were not well equipped to meet the need of an HIV positive child. That is when
they contacted the Naz Care Home. She has been at the Care Home since June 2005.
Gudiya came to us in a very weak and malnourished state. She is under medical
supervision of the Doctor at the Naz Care Home and has been put on Anti Retro Viral
Therapy. Naz is taking care of her special nutritional needs.
Gudiya is a reserved and a shy child. Counselors at the Care Home have been working
intensively with her so that she is able to come out of her shell. She had never been to
any educational institution. She got her preliminary lessons from the volunteers at Care
Home. She is now attending regular school. Initially she had a hard time adjusting but is
now very eager to be known as a good student and spends extra time on her homework
with the Care Home tutors.
Manithoi
Young Manithoi, affectionately called Mani, came to the Naz Care Home from Manipur in
December 2004. His parents both died of AIDS-related illnesses His five maternal uncles
not only refused to care for him by keeping him outside of the house in a small room, but
also never gave him adequate food. This exacerbated his already weak health and he
arrived at Naz in a poor condition.
He was brought to the Care Home by a Manipur based organisation called SASO.
Mani spent many of his first months in and out of the hospital with serious health
problems. He is extremely prone to chest and skin infections. Many times he
experiences breathing difficulties and allergies. These past few months we are happy to
say he is keeping much better health. He was recently put on Anti Retro Viral Therapy.
His skin infections have been taken care of and he is less susceptible to chest infections
lately.
Although it was a huge adjustment to shift to Naz Care Home, Mani is starting to settle
into his schedule here. Earlier he would very often resort to temper tantrums and was
overly possessive of toys. He has a very volatile temper. A concerted effort made by
staff and care workers has largely helped to address these problems.
Mani has lately been conducting himself well at playschool and we get positive reports of
his behavior.
Tushar
Tushar is a nine-year-old child who joined the Care Home in June 05. His father expired
a few years ago. His mother is also positive and she and her older son are being looked
after by her brother.
The child has a physical handicap and also mental retardation because of Tubercular
meningitis in his early childhood. He was extremely aggressive initially and had difficulty in
adjusting with the other children at the Care Home since he had never been to school and
had never interacted with other children.
He recently underwent a corrective surgery, which has been a success, and seeing
Tushar move around the Care Home with relative ease is heartening. Care workers and
volunteers are assisting with his rehabilitation as instructed by the physical therapist.
Tushar is eager to do the exercises, and is proud of his achievements thus far.
Tushar will also be making a major shift in his education. AADI (Action for Ability
Development and Inclusion) has a dynamic program for children like Tushar that would
have him at their facility three days a week to continue his education with teachers who
have a good understanding of the challenges that he faces and how to maximize his
successes. Another three days of the week Tushar will be in the Care Home working
with a dedicated volunteer on educational activities, skill building and physical therapy.
E. Annual Report on Care Home:
NAZ Care Home Annual Report 2004-2005
CARE HOME
The number of children in the Care Home has been steadily increasing.
The children are referred to the Naz Care Home from various NGOs, organizations working
with street children, Government Voluntary Counseling and Testing Centers (VCTCs), the
Child Welfare Committee and through the Home Based Care program of the Foundation.
The Care Home has also been receiving referrals from other states across the
country. Some of these children are from Manipur and Maharashtra. Despite being
high prevalence states there is a lack of care facilities for People Living with
HIV/AIDS (PLHA) especially for orphan positive children.
At present there are 26 children living in the Care Home.
Prateek came to the Naz Care Home in March 2006. He was found abandoned in front
of Palna, a government orphanage in North Delhi. Palna has a cradle in front of their
institution for people to anonymously drop off a child, instead of abandoning the child in
the street. It was there that Prateek was found. During the preliminary routine testing,
Prateek tested HIV-positive; at this point Palna contacted Naz Care Home, as they do
not have the capacities to care for an HIV-positive child.At the time of admission,
Prateek’s condition was poor; he was severely malnourished and had not been bathed
for weeks. He did not have the strength to move his limbs, cry, or even chew properly.
He weighed only 6 kilograms, and the doctors clinically assessed his age to be at 3
years old. He was diagnosed to be suffering from Tuberculosis and Pneumonia. He
seemed frightened and suspicious and barely spoke.Prateek has been put on a special
nutrition program. He has recovered from pneumonia and has been started on Anti
tubercular Treatment. In just over a month Prateek has gained 3 kilograms.. He has also
begun speaking, and can walk on his own over short distances. We have learned that
Prateek has a sense of humor, and loves to play with dogs. He enjoys walking through
the Care Home shaking hands and saying hello to everyone he comes across, he is also
joining the other children during playtime and snack time.
Reintegration into the family
• One of the children who had gone home for the summer vacations over stayed. When
he did not return the counselor called up to inquire after the child since he had
taken ARVs only for a month. Interactions with his grandmother revealed that the
family had been able to purchase the ARVs from the market. Further explorations
indicated that the family was now better equipped to look after the child at home.
The family was counseled and encouraged to care for the child at home
• Another child aged 4 years old who came to the Care Home in June 2004 went back
home to her mother in October this year. The child had been placed in the care of
Naz as the mother was unwell and lacked the resources to look after her daughter.
Presently she has a job, is doing better physically and wishes to look after her child.
The situation of the family was assessed and it was decided to send the child back
to the parent.
• One of the only two negative children had been reintegrated into her family. The child
was placed in the Care Home when her mother expired and her father who is also
positive was in a poor physical and financial condition. The program staff has been
working towards building the capacities of the family members to provide the child
quality care. The child has adjusted well and her father is exploring options for her
admission in a school.
Challenging Interventions
• Some of the Care Home children used to go to a public school and some to a
government school. It was noticed that the children going to the government school
were not receiving sufficient inputs from school. They were also studying in classes
as per their ages as against their abilities. Thus they were finding it difficult to
cope with the curriculum. There was also a conflict among the children over going to
a public school versus a government school.
NI also had concerns about the what would happen if the school authorities got to know
the status of the children since we had not shared that the children were living with the
infection.In this light NI approached Deepalaya, a NGO working for children. This
organization runs schools in Delhi, which are accessed by children from marginalized
families.
The management was informed about the status of the children and they had no issues
and were willing to accept the children. 15 of the Naz Care Home children have been
admitted into the Deepalaya School at Kalkaji and are placed in classes as per their
abilities. A private vehicle has been hired to take all the children to school and back.
• In June 2005, a child with a physical handicap and mental retardation due to
Tubercular meningitis in his early childhood was admitted to the Care Home. He was
extremely aggressive initially and had difficulty in adjusting with the other children
at the Care Home since he had never been to school and had never interacted with
other children.
The program was able to arrange for the child to undergo corrective surgery, which has
been a success, and seeing him move around the Care Home with relative ease is
heartening. Careworkers and volunteers are assisting with his rehabilitation as
instructed by the physical therapist. The child is eager to do the exercises, and is proud
of his achievements thus far.
This child who is 9 years old, has never been to school before and now he will also be
given special inputs at AADI –(Spastics Society) Action for Ability Development and
Inclusion that has a dynamic program for children with disabilities. The same would be
reinforced by a dedicated volunteer at the Care Home.
Volunteers
The Care Home has been receiving volunteers throughout the year both locally as well s
from overseas. Students from the School of Social work have also completed their
internship at the Care Home
“It has been a wonderful experience working at Naz. I learnt a lot about life – there were a lot of
touching moments. I have had lot of fun teaching the children here, playing with them and
spending time with them. The staff has been extremely kind, helpful and cooperative. They have
me in guiding the children Children and Care Workers
helped Sessions with the towards the right path. Whenever I get chance in future, I
Regular sessions have been conducted with the children as well as the care workers on various issues.
The objective of these sessions is to build the capacities of the care workers to provide quality care.
The focus of the sessions with the children is to provide life skills, which will equip them to deal with
the challenges of growing up effectively. A process has also been initiated with a group of older
children to disclose their positive status to them and to prepare them to deal with issues of stigma and
discrimination.
Out Patient Facility
The Naz OPD has been providing medical care and counseling since 2001. The clients
were also provided with free medications. However, with the end of funding the program
was unable to provide medicines. This led to a decrease in the number OPD services.
However, with the funding from Johnson & Johnson Asia Pacific Contributions Fund the
program was able to renew the provision. This resulted in a significant increase in the
number of clients accessing the OPD.
Several people living with the infection accessed the OPD for treatment of
opportunistic infection like pneumonia, oral thrush, skin infections etc. Many clients
accessed by the MSM outreach program were also given treatment for Sexually
Transmissible Infections.
Several challenging counseling issues ranging from disclosure to dealing with grief and
death were also addressed.
Doctor examining a child at the Naz OPD