Research Leads MARF (Mesothelioma Applied
www.libbyasbestos.org Research Foundation) and focused on
to Understanding of the specific biomarker SMRP. SMRP
Mesothelioma Biomarkers is a protein made by mesothelial cells
Libby, Montana, along with com- and demonstrates significantly higher
munities in France, Australia, and levels in individuals with meso and
Inside this issue: Turkey all came together through the ovarian cancers. Our involvement
work of Dr. Harvey Pass at New helped to better understand the
Mesothelioma Biomarkers York University. This collaborative normal range of SMRP levels in the
effort was to work towards develop- blood and urine of people exposed to
Symbicort/Influenza 2 ing an early detection screening tool, Libby amphibole asbestos and also
SMRP, for mesothelioma (meso). for people with no significant asbes-
Meso is a specific cancer involving tos exposure. Our “normals” were
What Is Resiliency? 3 the lining around the lungs (pleural compared to different populations to
lining), abdominal cavity, or heart. Its understand what the normal range
CARD Research Plays 4 should be for this screening tool.
Important Role only known cause is asbestos expo-
sure. SMPR could be used as an On October 5, 2007, Dr Pass pre-
annual screening tool for at risk sented his preliminary finding at the
populations, provide earlier identifi- MARF annual conference. It appears
Smoke-Free cation and intervention for meso, that 3 biomarkers might be used in
and also serve as a monitoring tool combination for the desired meso-
For Life! for recurrence in patients who have thelioma screening tool. These are:
undergone treatment for meso. SMRP, Osteopontin, and MMP9.
The next six week quit Biomarkers are highly sensitive tools There is still more preliminary
that can identify disease long before research that must be done before this
smoking series begins there is any x-ray evidence. screening tool is available for routine
in mid-January. Contact From September of 2005 through use in medical clinics. However, the
CARD to sign up! September of 2007, over 550 Libby work done with the Libby community
community members participated in has brought us one step closer to
the biomarker project, with nearly making this happen. This is of great
Smoke-Free For Life 300 of these volunteers giving a benefit to our community members
second sample during year two of and to all people across the nation
Monthly Gatherings and world who have been exposed to
the project. The Libby community
are also available the wowed the research community with asbestos and are at high risk of devel-
their willingness to participate to oping mesothelioma. Finding an early
1st Monday of every
make this research project a huge suc- detection marker is a high priority
month. Call CARD for cess! THANK YOU EVERYONE! because with most cancers, early
detection and treatment interventions
more information. The project done at CARD in coop- usually result in much improved
eration with Dr. Pass was funded by outcomes.
Page 2 C A R D N E W S – F a l l 2 0 0 7
Symbicort The Influenza Virus
Symbicort is a new respiratory The leaves are turning, the tem- For those who have a lung
medication that involves budesonide and perature is dropping, and the problem, such as asbestosis, the
formoterol. Budesonide is an inhaled cor- days are shorter. It is, in fact, “flu” can be very serious. If any
ticosteroid which decreases inflammation fall, and however a beautiful of the symptoms mentioned
in the lungs which can decrease chest time of year, it can often be the above become apparent in your
tightness and wheezing. Formoterol is a most unhealthy due to the influ- life you must contact a physician
long-acting bronchodilator which helps enza virus. The influenza virus, immediately. If the “flu” is left
relax the muscles around the bronchial or the “flu”, generally affects untreated for too long it may
tubes thus further decreasing wheezing people from November to April. lead to more serious complica-
and shortness of breath. Symbicort does Preventing yourself from getting tions, such as pneumonia,
not relieve sudden symptoms; it must be the “flu” is always essential, and Treatment for the “flu” consists
taken as directed over a period of time for being educated about what the of plenty of rest, fluids, and
people to experience the full benefits. influenza virus is can help aspirin to ease aches and fever.
Therefore, you may need to continue determine proper treatment.
using your fast acting bronchodilators Many precautions, including
like Albuterol for sudden symptoms. Influenza (flu) is a viral upper vaccines, can be taken to help
respiratory illness that comes on decrease your chance of con-
The medical team will determine the suddenly, causing symptoms tracting the “flu”. Vaccines
right strength for you and show you the such as fever, body aches, head- available today contain a dead
proper technique in using this medication ache, fatigue, loss of appetite, a virus, and do not cause you to
and caring for your inhaler. It should be dry cough and a sore or dry get sick when given one. The
taken as 2 puffs morning and 2 puffs throat. The “Flu” almost never injection site may become red
evening. Rinse your mouth after each use causes stomach symptoms; the and irritated. Some people
as the corticosteroid component can illness that people often call experience a fever with in the
interfere with the normal flora in your "stomach flu" is not influenza. first 24-48 hours after receiving
mouth causing thrush-like symptoms. Be the vaccine but this just means
aware of any side effects, the most com- Influenza is not the same as a your immune system is working.
mon being throat irritation, and report all common cold; “flu” symptoms Basic hand washing and staying
side effects to your medical provider. are more severe, and usually away from those affected are
lasts 7-10 days with the worst good ways to protect yourself
symptoms lasting 3-4 days. from getting the “flu”!
Understanding CARD Funding www.goodsearch.com
There seems to be some confusion around the topic of CARD Support CARD by searching the web!
funding. CARD is NOT associated with WR Grace in any way.
An easy way to help CARD is through a new
CARD is not associated with any health plan or organization at
all. CARD is an independent, non-profit organization that is search engine powered by Yahoo! at a site
funded by billing for patient services, research dollars, and do- called GoodSearch. They will make a $.01
nations from individuals and foundations. CARD is governed donation to CARD with every search and/or
by a local community-based volunteer Board of Directors. every online purchase at one of their partner
As reimbursement for healthcare services continue to decline, merchants. It doesn't cost you a thing! The
contributions to CARD are more important than ever. We rely more people who use this site, the more money
on the generosity of donors to help continue our services. will go to CARD. So please spread the word to
Donations assist in the purchase of equipment, expansion of friends & family. Visit www.goodsearch.com.
services and facility enhancement to meet the needs of families
and individuals impacted by asbestos exposure. All donations Once you’re there enter in Center for Asbestos
are tax-deductible. For more information on ways to give, Related Disease as the organization you
contact Betty Jo Wood, Program Developer 293-9274 ext. 32. goodsearch for. Thanks for your donation!
Page 3 C A R D N E W S – F a l l 2 0 0 7
What Is Resiliency? doubt that this can be a hard mindset appropriate way to express it, and
to keep during difficult times. But working towards a resolution if pos-
-by Tanis Hernandez, having the right outlook can help a sible. This means Being Flexible
CARD Social Worker lot when times are tough. About Change. People who are re-
silient are good at adapting. Not that
Some people seem to have an they necessarily like the change, but
amazing ability to deal with stress- they realize it is inevitable so there
ful and challenging life situations, is no reason to stiffen up and resist it
such as those who live with a as that only makes things harder.
chronic disease. They are able to Know Your Explanatory Style This allows them to stay calm and
adapt without becoming over- figure out how to make the best of
Trust Yourself, Trust Your Body
whelmed and overall keep their life the new way things will need to be.
on course. They don’t deny that Take Action
Developing Relationships and
there are difficult things to deal with Deal with Your Emotions Wisely being willing to ask for help when
sometimes, but they are able to
Be Flexible About Change you need it most, is an important
confront whatever challenges come
part of being resilient. A strong
their way. This is called Resiliency. Develop Relationships relationship with family, friends,
For many of us this involves learn-
Take Care of Yourself coworkers, or healthcare
ing new skills. This is a completely
professionals is an important way to
normal thing to do when we strive to
get needed assistance, information,
successfully deal with the unex-
Trust Yourself, Trust Your Body and support. A Close Relationship
pected challenges that life presents.
means learning to listen to your with a spouse, or an important
Here are some tips that can help all
body’s symptoms when it begins to friend, also gives you a safe place to
of us become more resilient.
tell you that things may get difficult get the friendship and comfort
It is important to Know Yourself in the near future. Trusting yourself needed to regain your strength and
and to be able to objectively look at to Take Action to deal with things confidence to continue facing your
yourself and say, “isn’t it interesting when they first start will help you difficulties.
how I reacted to that.” If you didn’t trust your body messages even
Taking Care Of Yourself doesn’t
react in the most beneficial way, try more. In hand, this will help you
just mean taking care of your illness.
out other ways of handling that trust yourself to anticipate and
It also means taking time to relax,
situation when it presents again and compensate for these challenges in
play, to get energized and enjoy
evaluate the results. This is a the future. In summary, being
pleasurable things. When your
difficult task as changing our resilient is not just about bouncing
illness is presenting you with
reactions and behaviors takes time back after a fall, it’s also about
difficult challenges remember that
and a focused effort. It is also acting in advance to prevent the fall.
it is only one aspect of who you are.
important to Know Your Explana-
It is completely normal that there And while it is important, it is not
tory Style. This means knowing
will be times when emotions seem your whole life. Make sure to
how you are likely to respond to
to take over and run your life. appreciate the other parts of life.
difficult times. Do you generally
Maybe you experience anger about
believe that things will work out
having your illness or despair about
okay or do you always think the It’s not about how hard
dealing with it day after day. This
worst will result? People who are
being said, it is also important to
resilient have learned to view their
Deal With Your Emotions
you fall, it’s about how
illness as an inconvenience and they
remember that it’s only one compo-
Wisely. This means identifying high you bounce back...
what you are feeling, finding an
nent of who they are. There’s no
If you have questions or comments about this newsletter, or would like to receive it by mail:
Contact Tanis Hernandez at the CARD: firstname.lastname@example.org or 406-293-9274 x29.
214 East 3rd Street
THE BIG CARD NEWS
CARD RESEARCH PLAYS IMPORTANT ROLE!
Many of you have probably heard about the required science that must be done to drive the
clean up process in Libby. This is because Libby Amphibole Asbestos (LAA) is a different
type of asbestos fiber compared to the more common “commercial” asbestos called chrysotile.
Toxicological studies (that seek to understand how toxic the fiber is) and epidemiological
studies (that seek to understand the health effects) must be done so the baseline risk assessment
used to drive the clean up is based on LAA, not some other type of asbestos. Although EPA is
facilitating all of this science, they are working with many expert researchers from around the
country who are focusing on LAA.
CARD and all willing CARD patients play a very important role in the epidemiological studies
that will help everyone understand the health effects of LAA. Many of you (over 300 people)
have given permission for your de-identified (no names) health data to be included in CARD’s
database. This is one of the questions that will be asked of every patient as part of the All-
Inclusive Consent which was discussed in the last CARD NEWS. It is every patient’s individ-
ual choice. We hope everyone will participate because by organizing and combining all of this
health data we will be able to truly understand the health effects of LAA. Understanding the
health effects will not only guide clean up activities, but it will also guide research activities
that are focused on discovering new treatments and cures for asbestos related diseases.