SEPTEMBER 2011 ISSUE 5
AN INfoRMATIoN SERVICE foR PARENTS of ChILdREN & YoUNG PEoPLE WITh dISABILITIES
IN NoTTINGhAM ANd NoTTINGhAMShIRE
Stress Free Fair…
- see page 4
A Parent’s Comment…
- see page 3
DCATCH Short Breaks…
Great praise from
- see page 18
Win Family Pass to see a BSL
interpreted performance of
Jack & the Beanstalk!
- see page 14
pull out of
P8 - 11
Telephone: 0115 8533291 Email: email@example.com Website: www.askiris.org.uk
Give Government The
Lowdown On Mobility
PAGE NO: Contents…
Needs IRIS Website Poll Results
An independent review
of the Government’s Notts Down’s Syndrome Support Group Celebrate
plans to change Disability
Living Allowance (DLA) A Parent’s Comment by Joolz, a volunteer at family
is calling for your Action Ladybrook Centre, West Mansfield
Lord Colin Low (pictured) is leading the review
to scrutinize plans to remove the mobility
Stress Free Fair - a great success
component of dLA from people in state-funded
he’s calling for people to share their insights Hotels Accessibility Ratings
on the matter and is asking for submissions by Sledge Hockey
To submit evidence and read more about the A Second Home for Indigo Kids
review visit http://lowreview.org.uk Disability Alliance & Skill
Poll Results Calling all Cerebral Palsy Footballers
We have now closed the poll on the IRIS 7 Can you be a Short Breaks Foster Carer?
Do You Know A Sporting Hero?
website where we asked whether you
A 4 Page pull out section covering the events in
thought we should have a Facebook or Nottingham & Nottinghamshire
facebook was the clear favourite, with a
A Fresh Start For Rutland House
whopping 77 per cent of you saying we should opt
October Half Term Clubs
for this site, and a further 15 per cent saying you
would like us to use it alongside Twitter
Focus on… Nottingham Disabled Children’s Team
15% 13 Finding Your Way In The Future
Competition - Mansfield Palace Theatre give away a
family ticket to a BSL interpreted performance of
Jack and the Beanstalk
Disabilty Groups Launch e-petition against Welfare
facebook Twitter (0%) Both Neither NORSACA Charity Jaunt to Italy
There were no votes for us to use just Twitter, IRIS EXCLUSIVE - Dr Wendy Lawson’s Story Part 2
while 7 per cent said we shouldn’t bother with
either. 16 Youth Service Disability Support - new location
Thank you, as always, for taking the time to vote Technology Focus - Proloquo2go - A great app for
Apple iphone for people who have difficulty speaking
and tell us what you thought.
You Training Update
our next poll is regarding ideas you have
suggested for the magazine – namely whether you
Praise for DCATCH & Short Breaks
think we should include listings, celebrity features,
classified ads or more technology articles. 18 Bedtime Reading
The poll is available on the front page of the Direct Payments - a Parent’s Perspective
website – we can’t wait to hear what you think!
19 DIPSU helps it’s 1000th person
Tesco grant for Voluntary Groups
Christmas Comes Early After
Coupon Cutting Campaign
This will be my last edition as editor for a little while, as I’m off on
maternity leave until the middle of next year.
I would like to take this opportunity to thank you for all the support
you’ve shown the project in the time since we started.
My colleague Tim Simpson will now be working full time on the
website and magazine during this period and I am delighted to say Matt Coppins and his friend Jessica – just two of the
children attending the group who will benefit from the
that Lyn Nixon from the Information Service based at the Child
Development Centre at the City Hospital Campus will be covering my
role while I am away. A cash boost from the local press means that
Long term readers might even remember Lyn from our first Focus the Nottinghamshire Down’s Syndrome
On… article way back in October of last year! I wish them both all the Support Group will have plenty to celebrate
best for the next few months. this Christmas.
In some respects I am sad to leave IRIS at such an exciting time. We Nearly £200 was given to the group by the
continue to receive registration forms for the Children’s Disability Nottingham Evening Post after readers sent in
Register on a regular basis, but in order for us to accurately well over 1000 coupons as part of their Cash
represent disability within Nottingham and Nottinghamshire and make For Your Community giveaway.
the case for improved services and better representation we could
always use more. Under the promotion the amount of cash the charity
ends up with depends on the number of coupons
Our website and magazines also continue to evolve over time with collected for them by readers - with the Nottingham
your help. In the last few editions we’ve strived to implement all the Building Society putting up the money.
changes that you said you wanted.
It’s great news for the group, who had to cancel their
Therefore you may have noticed the inclusion of a contents page in Summer fun day in July this year after a lack of funds
and now intend to put the money towards a Xmas party
the magazine and an increase in real life stories. The events section
is now a four page pull out and we have also tried to feature more
stories on technology. Group member Andy Coppins applied for the promotion
as soon as it was announced earlier this year.
We are aware that you would like more information regarding
education, and this is something we are currently working on with key he said: “It was great that the Notts down’s Syndrome
partners to make sure you know accurate, up to date information as Support Group was chosen to be one of the 300
soon as it is available. organisations that would receive a share of the Cash for
Please keep in touch and let us know what you think – we are only
“The group really pulled together and we managed to
as good as the feedback you give us.
collect well over 1000 tokens, so thanks to everybody
Catherine Slater, IRIS Project Manager that collected them for the group - you did a great job.
It was an exciting event to be involved in and we were
PS. Please contact IRIS for a plain large text version of really chuffed to receive our cheque from the Evening
this magazine or if you require it in another format. Post and Nottingham Building Society”
The group meets on the third Saturday of each month
at the Trent Vineyard Church, off Lenton Lane,
Nottingham, and offers the opportunity for parents and
Check out the carers to give mutual support and establish a peer
group for children with down’s Syndrome and for their
on page 14 For more information visit their website at
Joolz is a mother and a volunteer at
Family Action Ladybrook Children’s
Centre in West Mansfield. She has
been attending with her son Heath
for over 3 years and wanted to share
her journey and support at the
Children’s Centre so far with other Left - right: Joolz (mum) Heath
parents with disabled children. (child) and Tracey (Play and learning
worker/inclusion lead) shoot the
breeze at the allotment session.
“I first took my son to the Children’s Centre when he was I truly feel that taking him to the centre and having all the
around 7 months old. I wanted to get him used to other help and support that they gave me has helped me and my
children as soon as possible because I was sort of an only child son to be where we are today. he is currently attending a
as my youngest brother was 15 years older than me. mainstream school and is doing very well. As a result of all my
experiences I am now a volunteer at the centre and am more
“I never had many friends as my mum had post natal than happy to help any other parents and children going
depression, which in those days was not heard of and as a through what we have because the help and support that was
result I was slightly alienated by other children. At the time there for me and my son really helped.
he was like any other child of that age and I had no reason to
suspect otherwise. over time, the children got to know each I also feel that we should not be frightened to take our
other and grow up together. It was then I noticed something children out to such places because it helps the children
was not quite right as he didn’t appear to be at the same become a part of society, it stops them being bored and gives
developmental level as them or play like the others did. them new experiences, it gives the parents/carers a break
Thanks to the help and support of the centre’s Speech and and someone else to talk to and most importantly it makes
Language Worker they helped me get a referral to other people more aware of different
Inclusion Support and eventually this all led to a “… I often felt like childrens’ needs and how to understand them
diagnosis of Autism. The centre and other agencies a “bad mum” and their conditions and therefore be more
all put me on courses to learn more about the tolerant and less frightened.
in front of other
condition and how to help my child’s development,
something I was struggling with at the time. parents” “Put it this way - since having my son I have
totally changed the way I view disability.”
“In the meantime I still took him to sessions as I felt it was
important for him to mix with other children and I also felt it Tracey is a play and learning worker with an Inclusion lead
was important for other people to see a child with a disability role at Ladybrook Children’s Centre.
even though a lot of the time it came across as “bad
She said “here at Ladybrook we have regular inclusion audits
behaviour”. I often felt like a “bad mum” in front of other
to ensure that we offer all our children and families equal
parents and in the beginning I would often break down in
opportunities to have fun while they explore, learn and play.
tears when I could not engage him in their activities or deal
We recognise that every child is an individual and all families
with his obsessive behaviour.
are unique. We support our families by planning our sessions
“The Staff were wonderful and did all they could to help and to follow individual learning journeys and the interests of
reassure me as well as trying to find ways to engage him (this each child and their family”
sometimes led them to having the cars and trains out every
Karen is the Children’s Centre Co-ordinator and says “Both of
week!). This also made other parents aware that it wasn’t
our Children’s Centres in the West Mansfield area - Ladybrook
my fault and they then accepted me and my son.
and Pleasley hill - have inclusion high on their agenda.
“I also had hometalk which was a new project at the time.
She said: “we understand the needs of families with disabled
This was where a member of the play team came to my house
children by asking them about their child’s needs and we are
and helped me learn to play with my child and find ways to
learning from our families all the time. If any parents are
engage him, and I also had help from a family Support Worker
thinking about coming to groups but are unsure they can give
and a Councillor. This was particularly important because I
us a ring for an informal chat or we can meet parents and
ended up splitting from the child’s father (on a positive note
attend groups together”
he still is very much involved with his son and was nothing
to do with the split). I was also diagnosed as having a To find out more about Ladybrook or Pleasley Hill
benign brain tumour and lost my job. They were always there Children’s Centre activities, events and groups please
and still are whenever I needed to talk and help me through phone 01623 410090.
the tough times.
Sarah, Sam, 10, and Auntie Jane.
“We’re here because of the article in the last IRIS Magazine!
The fact that all around you are parents with a child with
additional needs helps as everyone is here for the same
reason. Everyone on the rides has a really lovely manner with
the children too - which has made our day.
“It’s lovely for siblings too. Sam’s brother Jack has met a
person from his school who he never knew had an autistic
brother, so it helps them to feel included.”
Sarah Finney and Andrew Dawkins with kids
Louie and Freddie, both 5
Sarah said: “We came last year and it’s really good. If you
feel that your child isn’t enjoying the ride then they’ll stop
it. You don’t feel awkward and it’s nice that you can meet
other people that you haven’t seen for a long time.”
STRESS FREE FAIR
Parents were filled with praise for a
free (and stress free!) funfair which
took place recently.
The event at Bramcote hills Park on the 24th
August was blessed with blazing sun and clear
skies but parents said that it was the courteous
behaviour of staff and the chance to let their
hair down which put the shine on their day and
a smile on their faces.
hundreds turned up on the event which was
hosted by the freemasons and Showman’s guild
and took place between 10am and 1pm.
This was the second year the event had taken
Graham, with Dominic, 6
“It’s great just for the fact that you’re
stress free. Sometimes you spend a lot
of your time thinking “what will be the
effects of his behaviour on other children”
but at this fair it’s clear that the other
children are the same and aren’t bothered.
No-one’s being shown up.
Help Improve Accessibility Ratings System
James in the Maldives with close friend
Camillia “There were no hotels with
specific wheelchair access but I went
down there to see if I could get on
alright anyway, which I did! “
A Nottinghamshire based entrepreneur
who was paralysed at the age of 21 is
trying to launch a website to grade
hotels on accessibility and wants your help.
James Price, who lives in Beeston, says that after he broke however, he says in the meantime he would love any
his neck in a diving accident in 1999 he permanently comments from IRIS readers regarding the look and feel of
required a wheelchair for mobility and was paralysed in two the site, the information provided, the grading scheme itself
thirds of his body. and what they think of the site generally.
however the fiercely independent wheelchair rugby player To have a look at the site visit
says didn’t think of himself as disabled and it was only when www.Globalaccessholidays.com and email
he tried to book a holiday in 2001 that he realised how contact@Globalaccessholidays.com with any comments.
difficult the process could be for people who had additional
he said: “it came to taking my first holiday in 2001 - I was
On Ice Or On Land –
disgusted and shocked that a well known high street travel
agent had no information on access in hotels, especially as Would Your Kids Like To
I was enquiring about New York which is in one of the most
accessible countries in the world!” Try Sledge
As a consequence he set about trying to set up a website for
people who might not require a specialist booking company,
but merely want to organise a hotel room or a holiday and
have all the facts to hand.
he added: “for people with limiting daily impairments who
just require a hotel room for a night or want to organise a
holiday but do not require specialist holiday tailoring it
disgusts me that the worlds travel distribution networks do
not facilitate us”
The website is intended to be free for use by holidaymakers,
with the cost met by hotels paying to be graded (much like
AA star ratings). Support for the Ice
Sessions comes from
At present the website is being tested but James hopes to
the Great Britain Sledge
have it up and running by next year.
Disability Alliance Steps
A Second Home for Indigo Kids Up To Ensure Skill’s Work
Just six months after they acquired their first
property Indigo Kids are ready to open a second.
Specialist support for students with disabilities
The autism charity is going from strength to strength and says that the will continue after disability Alliance has picked
new premises at 186 Beardall Street, Hucknall will provide children’s up the work of Skill.
activity clubs and a supportive environment for children with autism.
Skill provided advice and information to disabled
Initial activities at the EARTh (Education, Activity, Resource and Therapy people who wanted to go into further and higher
hub) will include a drama group, a Lego therapy club and a children’s youth club. education or access training but closed in April
of this year after funding difficulty.
Speaking to IRIS Indigo Kids explained that the existing premises – the ARC
on Annesley Road – is primarily a parent’s drop in centre offering help, however thankfully the charity disability Alliance
advice, training and coffee mornings and stressed that the new building is has been supported by the department for Business,
focused more on the children themselves. Innovation and Skills to fill part of the gap.
The EARTh will be open to all children with Autistic Spectrum disorder during disability Alliance director of Policy Neil Coyle
opening hours and will feature facilities such as an inflatable ball pool, said: “The education sector is changing fast and
sensory tent, occupational Therapy equipment and table & console games. disabled learners need representation. There is a
There are also plans to create a sensory area in the garden. natural fit between disability Alliance’s aim of
tackling disability poverty and Skill’s former role
Support for the move comes from flexible Support options, a provider of care supporting disabled people to gain skills.”
in the community who offer a befriending service and activities for children
under the 100 hours scheme currently being offered by Short Breaks. The New support available under the agreement
charity also says that it would like to thank The freemasons, Short Breaks and includes:
Nottingham Self help who have provided funding for some of the activities.
• online information at
For more information contact Indigo Kids on 0115 9525141 or via www.disabilityalliance.org/skill/htm
email at firstname.lastname@example.org
• factsheets for disabled students and
advisors on topics such as funding for
education, applying for allowances and
An exciting new sport is available for trial at a Nottinghamshire Leisure
making Reasonable Adjustments to ensure
Centre. The Lammas Leisure Centre in Sutton in Ashfield will be
students are not discriminated against and
hosting regular Inline Sledge Hockey sessions, beginning this month.
can access opportunities.
Inline Sledge hockey is based on Ice Sledge hockey – one of the most
popular sports at the Paralympic Games - and features custom made sleds
• A helpline for people thinking of moving
into further or higher education, an
with wheels – allowing it to be played in a standard sports hall.
apprenticeship or a job which is available
The game is as fast and as furious as Ice Sledge hockey but with the on 0800 328 5050, on Tuesdays between
advantage that it can be played anywhere and interestingly is one of the 11.30am-1.30pm and Thursdays between
few sports which allow anyone – people with a disability or not - to 1.30pm-3.30pm
complete up to world championship level, making it truly inclusive.
• or by emailing
however, those of you whose kids prefer to chill will also find your tastes email@example.com
catered to as the centre is also planning to host Ice Sledge hockey in its more
traditional form, with support from the Great Britain Sledge hockey team.
• Involvement of disabled students to
influence campaigning policy work to
The sessions have been made possible by funding from Aiming high Short improve education and training for students
Breaks. In line sledge hockey costs £3.50 and takes place on Sundays. At with a disability.
the time of going to press the details regarding Ice Sledge hockey were
If you have questions about the new services
or would like to join Disability Alliance or get
for more information on both sessions please contact Lammas Leisure Centre involved please contact:
on 01623 511177 or via email on firstname.lastname@example.org. email@example.com
CALLING ALL CEREBRAL PALSY FOOTBALLERS!
The charity Cerebral Palsy (CP) Sport will be holding a new Football Development Day at Gresham Sports
Pitch in West Bridgford, Nottingham on Saturday 19th November 2011.
The day is aimed at getting children and young people together
and attracting new individuals to play the game of ambulant
cerebral palsy football in a safe environment, where they can
have fun, develop their football skills and make new friends
along the way.
It is open to boys and girls aged 7 upwards and will be followed
by a regional festival in January 2012 to give players a chance
to experience playing a game of cerebral palsy football against
The organisers say it doesn’t matter how good you are at the
game of football and that if you have cerebral palsy, are
ambulant (able to walk) and want to play cerebral palsy
football, you are welcome to come along to one of the
development days and/or regional festivals.
They also invite parents, players, teachers and coaches looking
to start their own ambulant cerebral palsy football team
to register for one of their football events at
for more information please contact dermot dolan on
07974 655 539 or email firstname.lastname@example.org.
Those who would like to support the charity’s fundraising and
hear more about events in Nottinghamshire can contact the
fundraising team on 0115 9252620 or email@example.com
Could you provide safe, secure and Do You Know A Sporting
stimulating Short Breaks as a foster
carer for disabled children & young
people? Nominations are now open for Nottingham’s
Junior Disabled Sportsperson of the year.
Nottingham City Council says it is looking for patient,
understanding people to support, care for and enable disabled The accolade is just one of the categories in the second
young people. It says a number of disabled children and young year of the Nottingham Sports Awards which aims to
people who use their Short Breaks service would greatly celebrate the contribution to community sport by
benefit from day to day physical, emotional and social care. athletes, participants, coaches and volunteers.
The short breaks service is looking for people who are in a The Junior disabled Sportsperson of the Year is awarded to
position to offer 240 nights care per year and regular a person with a disability (physical, learning or sensory)
weekends. under the age of 18 years who has demonstrated success
or achievement in sport or physical activity.
foster carers will predominantly undertake the role in their
home. however, in some instances care may need to be This can include winning or achieving success or developing
provided in the child/young person’s own home. Allowances will themselves as a performer/person.
be available for necessary adaptations to the home as required.
There is a £315 weekly allowance plus an additional payment All information about who can nominate, details of all the
for each child that comes to stay. categories and the criteria are included on the form and
the deadline for nominations is 30th September.
Some of the children and young people may be on the autistic
spectrum, present some difficult behaviour and may have a The awards event will be held on: 24th November 2011 at
physical disability. the Council house in the old Market Square, Nottingham.
If you are interested in this and have any questions please call the For more information, and to find out where you
Short Breaks service on 0115 8838280 and ask to speak to Sarah can get a copy of the nomination form visit
Boulton or John Imms. www.sportnottinghamshire.co.uk
for your Diary
6-7pm Want 2 Play (Nottinghamshire dis-
Calverton MWfC Colts, hollinwood Lane,
Calverton. Contact Kevin Sanders on 0115
2-2.30pm Group for Families with Babies
under 18 Months. free, fully inclusive session
for families in Broxtowe - babies with
9837406 additional needs & babies born prematurely
EVERY MONDAY including early play intervention and family
1 - 3pm Mosaic Group EVERY WEDNESDAY support if needed. SureStart Children’s
Centre, Beeston – tel: 01159 935740
A group for families who have a child under 4 - 5.30pm Inclusion Club
the age of 5 with a disability. APTCoo, Unit ,
The Pearson Centre for YP Beeston. Multi-
15 Botany Park, Botany Avenue, Mansfield, 4 - 4.30pm Inclusive Water Games
sports. Come and try out lots of different
NG18 5Nf Tel: 01623 629902
. games and sports from floor lacrosse to fun, exciting water games from mini polo to
tennis to Boccia! for school years 1-11. Cost synchronised swimming with new interac-
6.30 - 8pm Sherwood Seals £3 per session. Contact the sports worker tive equipment. £4.20 per session. Ages 11-
0115 9254112 to book your child’s place. 19. Bramcote Leisure Centre. Tel the
disability swimming club. Rebecca Adlington
Swimming development officer on 0115
Swimming Centre, Westdale Road,
9173000 to book your child’s place.
Mansfield, Notts, NG19 7BZ. Call Shirley 6 - 8pm Indigo Kids - Youth Group & Par-
freeman on 01623 406241. ents Support Group
Baby Group - City Hospital
Term time only. high Leys Children’s Centre,
for babies up to 18 months born prema-
4.30 - 5.30pm Inclusive Football high Leys Road, hucknall, Notts, NG15 6EZ.
turely or with disabilities/additional needs.
Kimberley Leisure Centre. fun and football Please contact firstname.lastname@example.org for
Referral needed via your health visitor or
games for girls and boys aged 10-16. details and booking, places limited.
doctor to the Therapeutic Support Team
Contact Broxtowe Sport 0115 9173572 to (Baby Group) at the Children’s development
book your child’s place. 5 – 6pm Oak Field Special Badminton Club Centre, City hospital Campus, hucknall Rd,
Badminton club welcome anyone with special Nottingham NG5 1PB. Tel: 0115 8831101.
9.15 – 10.15am Soft Play Sessions (half needs. Qualified coaches on hand to help &
price for children with a disability) teach any standard. oak field Specialist 6:30-7:30pm Want2 Play (Nottinghamshire
Cotgrave Leisure Centre, Woodview, Cotgrave, Sports College. Bilborough NG8 3hW. £2 per disability football). farnborough Road, Clifton
Nottingham NG12 3PJ Suitable for children session Contact Elaine 01332 799442 NG11 8LU.Tel Kevin Sanders on 0115 9837406
aged 6 months - 5 years. full price £3.70,
half Price £1.85 for children with a disability. 6.30-7:30 Want 2 Play (Nottinghamshire 7 – 9pm Nottingham Wheelchair
Tel: 0115 989 2916 or e-mail cotgrave disability football). Bingham Town, Butt field, Badminton Club
@parkwood-communityleisure.co.uk Bingham. Tel Kevin Sanders 0115 9837406 for anyone who wants to play or learn to
play badminton. specialist wheelchairs
EVERY THURSDAY available. Cost - £3 per session . Ellis Guil-
4.30-5.30pm Want 2 Play (Nottinghamshire
disability football) 4 - 5.30pm Inclusive Shokk Youth Gym ford Leisure Centre Nottingham NG6 0hT.
Priory Celtic, Kimberley Leisure Centre, Tel Elaine 01332799442
Interactive gym that’s fun for kids, from the
Contact Kevin Sanders on 0115 9837406 Xbox Kinnect, to spinning & the treadmill.
Kimberley Leisure Centre. Cost £2.40 per EVERY SATURDAY
EVERY OTHER TUESDAY session. for ages 11-19. Contact Broxtowe
Sport 0115 9173572 to book. 10 - 12 noon Saturday Circles
10 - 12 noon ASD Coffee Morning
Morning group for disabled children. APTCoo.
APTCOO, Unit 15 Botany Park, Botany 10 - 3pm Welfare Rights Sessions Unit 15 Botany Park, Botany Avenue,
Avenue, Mansfield, NG18 5Nf. .
Mansfield, NG18 5Nf Tel: 01623 629902
Children’s development Centre, City
Tel: 01623 629902.
hospital Campus. Tel. 0115 8831157 or 58
for an appointment. 1.30 - 2.30pm Inclusion Trampolining
Adapted trampolining, exhilarating and fun!
5.30 - 6.30pm Disability Multisports Radcliffe Stay and Play 1pm- 3pm Eastwood Community Sports Centre. Cost
Activity Club free Stay and Play session for families with £3.50 per session. for ages 7-16. Contact
River Maun Recreation Centre, Barringer children with additional needs (no Broxtowe Sport 0115 9173572 to book your
Road, Mansfield, Notts, NG18 2df Ages 8 -
. specific need) run by Sure Start for children 5 child’s place.
19. for more information and to book a years or under. St Mary’s Church hall, Radcliffe
place call River Maun on 01623 463551 -on-Trent. Tel. Claire Gore 01949 863840 EVERY SUNDAY
6.30 - 8pm Wheelchair Basketball Club 6.30-7.30pm Want 2 Play (Nottinghamshire 11 - 12am Inclusive Kayaking
The Brunts School, The Park, Mansfield, disability football). Gedling Southbank, for ages 7-16. Bramcote Leisure Centre.
Nottinghamshire NG18 2AT. for ages 8-19, Lambley Lane, Gedling . Contact Kevin Contact Broxtowe Sport 0115 9173572 to
£3 per week. for more information call Sanders on 0115 9837406 book your child’s place.
Andrew Tyler on 07831 267973
EVERY OTHER THURSDAY 11 - 11.45am Inclusive Swimming Lessons
6-7pm Want 2 Play (Nottinghamshire Smaller classes & trained instructors for a
disability football) 9.15 - 11.15am Portage Early Education more supported swimming class. Bramcote
Blidworth fC, Joseph Whitaker School, Team Support Group. Activities & Workshops. Leisure Centre. £4.20 per session. Ages 4-10
Rainworth NG21 0AG. Contact Kevin Sanders Radford Children’s Centre, Kennington years. Contact the Swimming development
on 0115 9837406 Road. Contact Jo Shaw at the Portage Team officer on 0115 9173000 or email
on 0115 9157777 or Radford Children’s email@example.com to book a
Centre on 0115 9151526. place.
EVERY SUNDAY continued Wednesday 5th 9am until 12 noon Wednesday 12th
12.30 – 1.30pm Disability Trampolining Down’s Syndrome Drop in Clinic for CP Sport Multi Sports Day at harvey hadden
Club. for children & young people with a children of all ages based at the Children’s Stadium, Nottingham . for children with
disability aged 6 – 14. Please wear appropriate development Centre, Nottingham City cerebral palsy or a physical disability aged 5
footwear and comfortable clothing and hospital, Nottingham. Paediatricians and to 19. The day will include Boccia, big ball
bring a drink. £2 per person Grove Leisure other health professionals will be available. football, polybat and table cricket. Contact
Centre, Balderton Tel. helen Purdy on 01636 for more information please call Joyce firstname.lastname@example.org or tel: 0115 925 6442
655797 or email email@example.com or Lyn on 0115 8831157/8
Monday 10th 9.30-11.30
OCTOBER Thursday 6th 9.30am-11.30am Newark & Sherwood Autism Support Group
Friends Together Pathways Parent/Carer Coffee and Chat at Young People’s Centre,
Saturday 1st 10 - 3pm Support ‘Stay and Play’ session Prospect Windsor Road, Newark. Parent Partnership
Mencap M8’s Youth Club for 12-19 year olds Kilton Children’s Centre. Service will be available for private
with a learning disability. harpenden house, consultations. Call Rachel on 07960121027
203 Edwards Lane, Sherwood, Nottingham, Friday 7th 9.30-11.30 or email firstname.lastname@example.org
NG5 3JA Tel. 0115 9209524 for details.
Newark & Sherwood Autism Support Group
Thursday 13th 10 – 11.30am
Support for parents and carers of
Saturday 1st 11am - 3pm Friends Together Parent/Carer Craft Ses-
diagnosed or undiagnosed children on
Young Pioneers Disabled People’s Youth the autistic spectrum. hawtonville Junior sion Play forum Unit 12, old Brewery Yard,
Forum. Email email@example.com School, holden Cresent, Newark contact Kilton Road, Worksop
MyPlace @ Westfield Folkhouse Mansfield. firstname.lastname@example.org or call
Rachel on 07960121027 Saturday 15th 10 - 3pm
Saturday 1st 2.30pm Mencap M8’s Youth Club for 12-19 year olds
Audio Described Performance of Cleopatra Friday 7th 7-11pm with a learning disability. harpenden house,
(Northern Ballet) Theatre Royal Nottingham Indigo Kids Family Fun Charity Night 203 Edwards Lane, Sherwood, Nottingham,
Tel: 0115 9895555. NG5 3JA Tel. 0115 9209524 for details.
British Legion, Beardall Street, hucknall.
disco, Karaoke etc.
Sunday 2nd Contact email@example.com Saturday 15th
The Joseph Whitaker Family of Schools Downs Syndrome Support Group
Parents Autism Support Group. Swimming Saturday 8th 2 – 4pm Trent Vineyard Warehouse, Unit 1 Easter
session at Rebecca Adlington Swimming Park Lenton Lane Nottingham NG7 2PX for
The Rainbow Group
Centre – 3.00 – 4.00 pm. Contact parents and carers, children with down’s
Sueharpham@josephwhitaker.notts.sch.uk A group for parents is run alongside a play
Syndrome and their siblings. Contact Andy
or Tel: 01623 795610 session. Jigsaw room, Glenbrook Primary
on 07751 480377
school Site. Parents from Nottinghamshire
Monday 3rd 7-9pm or Nottingham are welcome but if you re-
quire your children to be booked into the Tuesday 18th 1.15pm-3.15pm
Rushcliffe Autism Support Group play session please contact Eileen Stringer Friends Together Pathways Support Group
Student Support Room, South Notts College, on 0115 9691177 or via email on Retford Central Children’s Centre
Greythorne drive, West Bridgford, firstname.lastname@example.org
Nottingham. You do not have to live in the Tuesday 18th 10am – 2.30pm Help!
Rushcliffe area to attend meetings. for Saturday 8th 7.30-9pm Seminar on Common Toileting difficulties
more information contact Paula Webb on (for children with Autism). Concord Sports
Access Tennis Coaching Sessions (for
Tel: 0115 9149757 Centre, Sheffield, £30 per two family members
people with a disability)
for info and to book a place contact 07425
Tuesday 4th 10am-12noon West Bridgford Tennis Club. for more
624592 or email email@example.com
information contact Lesley Whitehead on
Friends Together ASD Parent/Carer 0115 9811699
Support Group. Worksop Library Wednesday 19th 10am-12noon
Saturday 8th 2.30pm Autistic Spectrum Drop In Clinic
Tuesday 4th 1-2.30pm Audio Described Performance Madness of Children’s development Centre, Nottingham
Friends Together Parent/Carer Craft Ses- King George III by Alan Bennett. Theatre City hospital Campus. for parents of children
sion Play forum Unit 12, old Brewery Yard, Royal Nottingham Tel: 0115 9895555 & young people with ASd up to 19 years.
Kilton Road, Worksop Speaker on autism and sensory difficulties.
Tel Lyn or Joyce on 0115 8831157/8
Sunday 9th 10 – 10.45am
Tuesday 4th 1.15pm-3.15pm Inclusion Skating at the National Ice Centre
Saturday 22nd 2.30pm
Friends Together Downs Syndrome The price of the session is £6.50 for the
Parent/Carer Support Group. Retford Cen- Captioned Performance Dreamboats and
skater (this includes skate hire) and one
tral Children’s Centre Petticoats (musical)
parent or carer can skate for free. Book and
pay in advance by calling 0843 373 3000 Theatre Royal Nottingham Tel: 0115
Tuesday 4th 7-9pm 9895555
An evening with Fiona Spiers: Autism Monday 10th 10am-3pm
Spectrum, Puberty, Relationships and Saturday 22nd 5pm - 7pm
Nottingham Salaried Dental Service - Open
Sexuality. Emmanuel Church, forest Road, Day. At Mary Potter Centre, hyson Green, Friends Together Family Fun Swimming.
Loughborough LE11 3NW £10 for parents, Gregory Boulevard. find out more about Retford Leisure Centre
contact firstname.lastname@example.org specialist dental care.
Sunday 23rd 10 – 10.45am
Inclusion Skating at the National Ice Centre
The price of the session is £6.50 for the
Wednesday 2nd 9am -12noon
Down’s Syndrome Drop in Clinic. Children’s
development Centre, City hospital Campus
for children of all ages based Paediatricians
for your Diary
skater (this includes skate hire) and one
parent or carer can skate for free. Book and & other health professionals will be available.
pay in advance by calling 0843 373 3000 Call Joyce or Lyn on 0115 8831157/8
Monday 7th 9.30-11.30am
Newark and Sherwood Autism Support
Monday 24th 4pm-6pm Wednesday 2nd 5-7pm
Group Coffee and Chat at Young People’s
Friends Together Captain Jacks Play Active – Ate your Health free, fun nutrition Centre, Windsor Road, Newark. Parent
Session. Chancery Lane Retford sessions (6 week course beginning today) Partnership Service will be available for
for more information and to book your private consultations. Call Rachel on 07960
place contact dianne on 01623 457233 or 121027 or email@example.com
Tuesday 25th 1.45pm
Friends Together 2nd Chance Cinema. The
Well Community Church Retford, doors. Monday 7th 7-9pm
film to start 2pm. film TBC Rushcliffe Autism Support Group
Athletics Development Day (for children
Student Support Room, South Notts College,
aged 10 up with cerebral palsy). for more
Wednesday 26th 2-3pm Greythorne drive, West Bridgford, Nottm. You
information please contact 0115 925 6442
Spectrum WASP Group Horse Riding at do not have to live in the Rushcliffe area to
or email firstname.lastname@example.org
fairview Stables. Contact SueHarpham attend. Tel: Paula Webb on 0115 9149757
@josephwhitaker.notts.sch.uk or tel:
Wednesday 2nd 7.30pm
01623 795610 Tuesday 8th 1 – 2.30pm
Sign Language Interpreted Performance of
Friends Together Parent/Carer Craft Ses-
Madame Butterfly by Opera North. Theatre
Thursday 27th 1.30pm - 3pm sion Play forum Unit 12, old Brewery Yard,
Royal Nottingham Tel: 0115 9895555
Friends Together Family Fun Swimming. Kilton Road, Worksop
Retford Leisure Centre
Thursday 3rd 9.30am-11.30am
Thursday 10th 10 – 11.30am
Friends Together Pathways Parent/Carer
Friday 28th 10 – 12 Noon Friends Together Parent/Carer Craft
Support Caterpillar Music session Prospect
Friends Together Sports Taster Session. Session Play forum Unit 12, old Brewery
Kilton Children’s Centre.
North Notts Community Arena, Worksop Yard, Kilton Road, Worksop
Thursday 3rd 9.30-11.30am
Friday 28th 10am – 12.30pm Saturday 12th 2 – 4pm
Newark and Sherwood Autism Support
Retford Drop in Tall Trees, Rectory Road, Group. Support for parents & carers of diagnosed The Rainbow Group A group for parents run
Retford. for parents and carers of young or undiagnosed children on the autistic alongside a play session. Jigsaw room, Glen-
people and adults 11+ with ASd/Aspergers spectrum. hawtonville Junior School, holden brook Primary School Site. Parents from
Syndrome. Chat/drinks. Tel Linsey Atkins, Cresent, Newark Call Rachel on 07960 Notts or Nottm are welcome but if you require
NoRSACA family Services on 0115 976 1805 121027 or email@example.com your children to be booked into the play
or email firstname.lastname@example.org session contact Eileen Stringer on 0115
9691177 or email@example.com
Saturday 5th and Sunday 6th
Friday 28th 7.30-10pm
WheelPower – British Wheelchair Sport
Halloween Disco open to any young person First Stoke Mandeville Youth Sports Camp. Tuesday 15th 1.15pm-3.15pm
aged 12 plus with a learning disability. for young people 18 to 25 with a physical Friends Together Pathways Support Group
harpenden house, 203 Edwards Lane, impairment. overnight accommodation Retford Central Children’s Centre
Sherwood, Nottingham, NG5 3JA. available. Contact WheelPower – British
Tel. 0115 9209524 for tickets (£3). Wheelchair Sport on 01296 395995 or e- Wednesday 16th 10am - 12noon
mail firstname.lastname@example.org to
Saturday 29th 5pm - 7pm apply. Completed forms should be returned Friends Together Worksop Parent/Carer
by friday 23rd September. Support Group. Worksop Library. ‘Card mak-
Friends Together Family Fun Swimming. ing with Leslie’
Retford Leisure Centre
Saturday 5th 10 - 3pm
Saturday 29th 7.30-9pm Mencap M8’s Youth Club for 12-19 year olds Wednesday 16th 10am -12noon
Access Tennis Coaching Sessions (for peo- with a learning disability. harpenden house, Autistic Spectrum Drop In Clinic Children’s
ple with a disability). West Bridgford Tennis 203 Edwards Lane, Sherwood, Nottingham, development Centre, Nottingham City hos-
Club. for more information contact Lesley NG5 3JA Tel. 0115 9209524 for details. pital Campus. for parents of children and
Whitehead on 0115 9811699 young people with ASd up to 19 years.
Saturday 5th 11am to 3pm Speaker on Signs, Symbols & Visual Supports.
November Young Pioneers Disabled People’s Youth Contact Lyn or Joyce on 0115 8831157/8
Forum. Email email@example.com
Tuesday 1st 10am-12noon MyPlace @ Westfield Folkhouse Saturday 19th 10 - 3pm
Friends Together ASD Parent/Carer Support Mencap M8’s Youth Club for 12-19 year olds
Group. Worksop Library Saturday 5th - 7.30-9pm with a learning disability. harpenden house,
Access Tennis Coaching Sessions (for peo- 203 Edwards Lane, Sherwood, Nottingham,
Tuesday 1st 1.15pm-3.15pm ple with a disability). West Bridgford Tennis NG5 3JA Tel. 0115 9209524
Friends Together Downs Syndrome Par- Club. for more information contact Lesley
ent/Carer Support Group. Retford Central Whitehead on 0115 9811699
for your Diary
Saturday 26th 7.30 - 9pm
Access Tennis Coaching Sessions (for
Wednesday 7th 9am – 12noon
Down’s syndrome Drop in Clinic. Children’s
people with a disability). West Bridgford development Centre, City hospital Campus.
Tennis Club. Contact Lesley Whitehead on for children of all ages. Paediatricians and
Saturday 19th 0115 9811699 other health professionals will be available.
CP Sport Football Development Day Call Joyce or Lyn on 0115 8831157/8
(Nottm). Venue TBC – Tel 07954 655 534 Tuesday 29th 1 – 2.30pm
or email firstname.lastname@example.org Friends Together Parent/Carer Craft Ses- Thursday 8th 10am-11.30am
sion Play forum Unit 12, old Brewery Yard, Friends Together Parent/Carer Support
Saturday 19th Kilton Road, Worksop Craft Session Play forum Unit 12, old
CP Sport Table Cricket Taster Day Brewery Yard, Kilton Road, Worksop
(Nottingham). Contact 07766 131232 or DECEMBER
Thursday 1st 9.30am-11.30am Saturday 10th 2 – 4pm
Saturday 19th Friends Together Pathways Parent/Carer The Rainbow Group
Support Christmas Crafts Session Prospect A group for parents is run alongside a play
Downs Syndrome Support Group. Trent
Kilton Children’s Centre session. Jigsaw room, Glenbrook Primary
Vineyard Warehouse, Unit 1 Easter Park
Lenton Lane, Nottm NG7 2PX for parents & school Site. Parents from Notts or Nottm
carers, children with down’s syndrome & Thursday 1st 9.30-11.30 are welcome but if you require your
their siblings. Tel Andy on 07751480377 Newark & Sherwood Autism Support Group. children to be booked into the play session
Support for parents & carers of diagnosed contact Eileen Stringer on 0115 9691177
or undiagnosed children on the autistic or email email@example.com
Saturday 19th 2.30pm
spectrum. hawtonville Junior School, holden
Audio Described / Captioned Performance
Cresent, Newark. Call Rachel on 07960121027 Saturday 10th 7.30-9pm
of Journey’s End (play by R Sherriff) Theatre
or firstname.lastname@example.org Access Tennis Coaching Sessions (for people
Royal Nottingham Tel: 0115 9895555
with a disability) West Bridgford Tennis Club.
Saturday 3rd 10 - 3pm Tel Lesley Whitehead on 0115 9811699
Saturday 19th 10-12 Noon
Mencap M8’s Youth Club for 12-19 year
Friends Together Worksop Parent/Carer
olds with a learning disability. harpenden Wednesday 14th 10am – 12noon
Support Group. Worksop Library. ‘A Speaker
house, 203 Edwards Lane, Sherwood,
from the family fund’ Friends Together Worksop Parent/Carer
Nottingham, NG5 3JA. Tel. 0115 9209524
Support Group. Worksop Library
Saturday 3rd 2.30pm
Swimming Development Day for children Thursday 15th 1.30pm
Audio described / Captioned Performance
and young people with cerebral palsy from Sign Language Interpreted Performance
of Legally Blond (musical). Theatre Royal
aged 9 who want to have a first or nearly of Sleeping Beauty (Pantomime) Inter-
Nottingham Tel: 0115 9895555
first go at a swimming. Nottingham preter: Sarah Gatford-Ball. Theatre Royal
University Pool. Contact 0115 925 6442 or Nottingham Tel: 0115 9895555
email email@example.com Saturday 3rd 11am to 3pm
Young Pioneers Disabled People’s Youth
Forum. Email firstname.lastname@example.org Friday 16th 7.30 - 10pm
Monday 21st 9.30-11.30am
MyPlace @ Westfield Folkhouse Christmas Disco open to any young person
Newark and Sherwood Autism Support aged 12 plus with a learning disability.
Group Coffee & Chat at Young People’s Centre, harpenden house, 203 Edwards Lane, Sher-
Windsor Road, Newark. Parent Partnership Monday 5th 9.30-11.30
wood, Nottingham, NG5 3JA Tel. 0115
Service will be available for private consul- Newark & Sherwood Autism Support Group
9209524 for tickets (£3).
tations. Call Rachel on 07960121027 or Coffee & Chat at Young People’s Centre,
email@example.com Windsor Road, Newark. Parent Partnership
Service will be available for private consul- Saturday 17th 10am - 3pm
Thursday 24th 7.30pm tations. Contact newarkautismgroup@hot- Mencap M8’s Youth Club for 12-19 year
mail.co.uk or call Rachel on 07960121027 olds with a learning disability. harpenden
Sign Language Interpreted Performance
of Legally Blond (musical) interpreter: house, 203 Edwards Lane, Sherwood,
donna Ruane Theatre Royal Nottingham Monday 5th 7-9pm Nottingham, NG5 3JA Tel. 0115 9209524
Tel: 0115 9895555 Rushcliffe Autism Support Group. Student
Support Room, South Notts College, Saturday 17th
Thursday 24th 10am – 2.30pm Greythorne drive, West Bridgford, Nottm. Downs Syndrome Support Group. Trent
Willow Weaving for parents/carers Idle You do not have to live in the Rushcliffe area to Vineyard Warehouse, Unit 1 Easter Park
Valley Rural Learning Centre, Great North attend. Tel Paula Webb on 0115 9149757 Lenton Lane Nottingham NG7 2PX for parents
Road, Retford £5 per person. Contact dianne & carers, children with down’s syndrome &
Edwards at friends Together 01777 274422 Tuesday 6th 10am-12noon their siblings. Tel Andy on 07751480377
Friends Together ASD Parent/Carer
Friday 25th 10am – 12.30pm Support Group. Worksop Library Sunday 18th 1.30pm
Retford Drop in. Tall Trees, Rectory Road, Sign Language Interpreted Performance
Tuesday 6th 1.15 - 3.15pm of Sleeping Beauty (Pantomime)
Retford. for parents and carers of young
people and adults 11+ with ASd/Aspergers Friends Together Downs Syndrome Interpreter: Sarah Gatford-Ball. Theatre
Syndrome. Chat/drinks. Tel. Linsey Atkins, Parent/Carer Support Group Christmas Royal Nottingham Tel: 0115 9895555
NoRSACA family Services on 0115 976 Party with Caterpillar Music. Retford
1805 or email firstname.lastname@example.org Central Children’s Centre
11 Look on our website as there may be more dates added later: www.askiris.org.uk
A Fresh Start For Rutland House… and Fresh Paint.
Rutland House school for parents will move School for Parents began as a service run by Scope. Although
remaining on the site, they registered as an independent
premises next month after more than 20 years charity 10 years ago. during this time, School for Parents has
in Mapperley. supported more than 1,400 children and families.
In october the school will move from Elm Bank to new If you think you would like to help with decorating the new
premises at the Iona School in Sneinton dale. premises please contact email@example.com
More than 20 volunteers, with staff teams from the driving The latest swimming awards were presented to the children
Standards Agency and Nottingham Trent Uni, have so far
on Weds 31 August when they took an educational day out to
signed up to help decorate the rooms once building work is
completed but say they would welcome more help from Twycross Zoo.
anyone who can help out.
Erika Juhasz, Conductor Teacher and Manager said: “Leaving
Elm Bank will be emotional as it holds many memories, but
we are looking forward to a new era at Iona, with more space October Half Term Clubs
to develop new projects, offering support to more families.” IRIS has asked around regarding october half term activities,
short breaks and clubs and sadly at the moment there’s not
School for Parents hopes to begin a fundraising appeal to
too much information out there on what’s confirmed.
purchase their own premises in the future, as they ideally
need a hydrotherapy pool on site. We can tell you that the Bassetlaw holiday Activity Clubs do
not run during the october half term and run at Easter and
Regular pool sessions form part of every child’s programme,
during the summer holidays only.
helping their confidence and leading to swimming awards for
the children. however, the good news is that the Youth Service disability
Support Team in the county is running activities throughout
Erika said: “Leaving the pool behind will be tough and we
the week – they can be contacted on 01623 626972 or
are searching Nottingham for alternative pools that we can
by emailing firstname.lastname@example.org
use. Learning to swim can be challenging when you have
problems coordinating your movements and we believe that friends Together are also running a host of activities over
the early swimming experience complements motor this period – these can be found in our event listings.
development, helping sensory integration. our sessions help
children and their parents to bond - for a child with severe for more information on october half term activities we
physical challenges, who may be uncomfortable out of the suggest you contact the families Information Services, which
water due to spasms or restricted mobility, it’s not often in the city can be reached on 0800 458 4114 and in the
possible for the parent to experience that close relationship.” county can be reached on 0800 781 2168.
Focus on… Nottingham Disabled Children’s Team
A visit from the Disabled Children’s Team is for some families the first step on the road to accessing
the right help and support.
The team’s occupational Therapists and Social Workers She added: “It’s great when we are able to help parents
carry out initial assessments for families based in the city. get the help and support they require.”
In these assessments children are visited at home to assess Through the team you can also access:
how they and their families are managing every day
activities such as seating, mobility, toileting, dressing, • direct Payments
food preparation etc.
• Short breaks at Crocus fields which provides short
from this assessment the team can then go on to make term accommodation tailored to individuals with
recommendations for re-housing, help families access experienced staff on hand.
equipment, assist with adaptations to homes, provide
advice and information and refer to other services where
• The Link Work Team Scheme which provides 1:1
support for children aged 5-19 to access community
The team has around 40 staff and includes Social Workers,
occupational Therapists and family Support Workers.
• MacIntyre, who provide home care services
You can contact the service Monday to friday between
Any child with a diagnosed disability is entitled to receive
8.30am and 4.50pm by telephone on 0115 8838266 or via
an initial assessment, although this doesn’t guarantee you
email at email@example.com.
will receive a service – it will depend on the outcome of
the assessment. Alternately you can also drop into the Mary Potter Centre
and enquire at the Ask desk to make a referral to the
A request for an assessment may be made by phone or in
writing by the family or carers, the child or young person
themselves, or any professional involved with the family
who has consent to do so.
What about the county?
The team will then contact you to arrange a convenient
date and time to visit – usually after 4pm if your child is In the county a very similar role is fulfilled by the
of school age. Children with Disabilities Team, who are based at
Meadow House in, Littleworth, Mansfield. To contact
Service Advisor Jodie Machin says that the job is non-stop, them please telephone 01623 433433.
but that working closely with parents is rewarding.
Finding Your Way In The Future
The Information Service at the Children’s Development 2012 already looked set to be an
Centre, City Hospital, has just heard that they exciting year, with the
have received further funding to produce a “I have been olympics, Paralympics,
new edition of the directory Finding Your trying to find diamond Jubilee & now
Way. information for ages, we can add “finding
Your Way 2012”!
The directory has always been popular, and then I opened
with demand far outweighing supply and this directory and If you run a group
parents have praised the current 2010 found everything which wasn’t included
version. I needed was in the directory last
“The in here” time or if your details
The service say they are very have changed then please
directory is an grateful to Nottinghamshire County contact the Information
invaluable tool Council Short Breaks Project, which has officers to ensure they
and is greatly awarded this grant for updating and are updated in the new
appreciated” printing the new edition, which should be edition.
available early next year.
Contact the Information
finding Your Way is linked with IRIS, and this work Officers on telephone
will feed into the listings on the IRIS Website and the events number: 0115 8831157 /8, or
section in the magazine and will also help to update the email: firstname.lastname@example.org
Notts Infoscript website www.nottsinfoscript.co.uk.
This month Mansfield Palace Theatre has very
kindly offered up a family ticket to its BSL
interpreted performance of the pantomime
Jack and The Beanstalk on Saturday 17th
December. If you think you can be the one to
climb to glory and claim this magnificent
prize all you have to do is answer the
The pantomime features the
well know actor Colin Baker –
can you tell us which TV role
he is most famous for?
(Hint: He was more famous for travelling by
police box than by beanstalk).
Answers on a postcard with your name,
address and contact number to:
IRIS Competition, Room 18,
Clarendon Chambers, 32 Clarendon Street,
Nottingham, NG1 5LN or via email at
Check out this month’s email@example.com
The closing date for the competition is
Wednesday 17th November.
Mansfield Palace Theatre
This local treasure is steeped in history, yet is Cultural Services Manager Andrew Tucker said: “The good
dedicated to providing inclusive services for the thing was that the disability discrimination Act had been
updated two years earlier, which helped us to ensure that it
future. Last year Mansfield Palace Theatre hosted
was ddA compliant.
its centenary celebrations – having opened as a
cinema in 1910 under the title of the Palace “I met with a number of groups with experience of disability
Electric Theatre. to make the building as accessible as possible for the
audience, staff and performers – indeed, if you’re a disabled
It has undergone many changes of ownership over the years – musician there’s even access to the pit.”
most notably in 1949 when the cinema was closed and the
stage was enlarged to accommodate live shows. It’s a philosophy which continues to this day, with signed
performances, BSL trained staff and greeters for customers
however the old building remained unforgiving & inaccessible who need support upon request.
for people with disabilities.
for more information and all the latest performances visit
In 1997 the theatre managed to secure National Lottery funding their website at http://www.mansfield.gov.uk/palacetheatre
to renovate the premises, which could not have been better timed. or telephone the Box office on 01623 633133
Disability Groups Unite To Charity Jaunt to Italy – In a Car
Launch E-Petition Criticising Worth Just £50
Welfare Reforms Four brave Nottinghamshire men have driven from
Nottingham to Italy in a car purchased for just £50
A Group of 25 Disability and Children’s
to raise funds for local autism charity NORSACA.
charities have launched a petition challenging
welfare reforms through the new DirectGov drivers derek howarth (51) of hucknall, father and son
e-petition website. Richard (57) and Gregg Stanley (30) from Ilkeston and John
Webb from Chaddesden chose to raise funds for NoRSACA as
Petitions uploaded to the website may be debated in derek’s son, dan, attends Sutherland house School for
parliament if 100,000 signatures are gained. children with autism, which is run by the charity.
The petition claims that the new Universal Credit derek said “dan’s been at Sutherland house for the last four
system could result in 100,000 disabled children losing years and in that time he’s gained so much confidence and
£27 per week in welfare support. been able to try so many different activities.
Among the charities backing the petition are The “Raising money like this is our way of saying thank you to the
Children’s Society, Barnardos and the National Autistic staff at Sutherland house School for their fantastic support
Society. and hard work.”
The Children’s Society Chief Executive Bob Reitemeier Sutherland house School is a school for up to 94 pupils with
said: ‘We need the government to understand the autism based on five sites in and around Nottingham
significance of this change for disabled children and
their families. 100,000 disabled children are going to The car has been decorated as the Sherriff of Nottingham’s
face a substantial cut in benefits which could push them car. Sponsors of the car include hucknall Town football Club,
into poverty.” Notts County football Club, Jigsaw, hucknall Van hire,
Paddle Art, Pump and Gas Boiler Services, Creative Care and
To sign the petition visit https://submissions. 24th Nottingham (Cavendish) Scout Group. Specsavers
epetitions.direct.gov.uk/petitions/915 (hucknall), Rotary Club of hucknall and Steve hall of Custom
The Scally Rally Team say they would like to thank
Universal Credit? everyone for their wonderful support. You can read about
their adventure and sponsor them at the online blog at
This is a new system of claiming benefits which is http://nottm-italy.blogspot.com
intended to phase out Income Support, income-based
Jobseeker’s Allowance, income-related Employment and (from left to right) Richard Stanley, his son Gregg,
Support Allowance, housing Benefit, Child Tax Credit Derek Howath and his son Dan.
and Working Tax Credit (although not until 2013 at the
earliest for new claimants, and longer for existing
It will depend on the level of income but will be paid in
and out of work, removing problems claiming benefits
for people starting and leaving jobs and those in very
low paid work.
Essentially the principal is that the payments taper off
as people earn money, with some groups, such as working
parents, earning significantly more before their money
disability is still an area that is under consideration, but
there is an informative factsheet available at
IRIS Exclusive – Dr Wendy Lawson’s story
Dr. Wendy Lawson, MAPS Bss, Bsw(hons), Wendy as a young girl (In
Gdip(Psychstud), Gdip(Psychology) Phd (psych) the dark coat), pictured
is an adult on the autism spectrum. with her sister
Here, in the second of a continuing series of
articles tracing her own life story Wendy
recounts her pre-teenage years…
for my eighth birthday I was given a new red bicycle. I loved in a hospital 14 miles away from home. Especially when she
sitting on the floor of our driveway and spinning the wheels didn’t drive and visiting times were when my younger sisters
of my bike. I loved the way the silver mudguards shone in were coming home from school. The sad thing is that no one
the sunlight as they went round and round. I had learnt how ever talked to me or explained anything, it was just done.
to ride a bike by taking my mother’s bike and standing upon
the pedals to propel the bike forwards. for my tenth birthday the nurses brought in a small cup cake
with a large white candle in the middle. All the children sang
I went for many solitary rides upon my bicycle. one day I “happy birthday” and gathered around my bed. I dived under
was following a big red bus when it turned out onto the main my sheet and pretended to be asleep for probably ten
road. I thought that it was oK to go because the bus went. minutes, until they gave up and went away.
however, I was wrong and I was knocked off my bike by a I couldn’t face them because I didn’t know
what to do. My heart beat fast and I felt Wendy’s next
passing car coming in the other direction. They took me to
really scared so I did what I usually did and bite sized
hospital in the ambulance but I never saw my bike again.
that was play “dead” and hope it would all recollection will
When I was nearly ten years old I had to go to hospital for go away. appear in our
almost a year because of a bone infection in my leg. next edition.
Although this was a very traumatic time it was also very This was a common way of coping. If I didn’t
stabilizing because the ward routine gave me a measure of understand something or was unsure of how to
security. respond I ignored the situation.
The thing that I hated most was waiting for visitors at I stayed in a world of my own that I had the control over and
visiting time and usually no one came. I couldn’t understand when that failed I returned to various obsessive behaviour that
at that time how difficult it was for my mother to visit me gave me back a sense of connection.
The Place To Be
Due to deadlines in the last edition we didn’t get the chance
to tell you about the Youth Service Disability Support Team’s
fantastic new location in the county.
The new purpose built premises are called MyPlace and are based at
Westfield folkhouse in Mansfield.
funding for the 6 million pound youth centre and offices came from
Nottinghamshire County Council and the Big Lottery fund.
It sounds like the place to be for young people, with a youth centre
featuring an arts room, sensory gardens, outside gym, basketball court,
games wall and even a dance studio and dJ booth!
Rebecca Kirk of Worksop is just one of the youngsters who has attended
activities at the centre.
She said: “I learnt to try new things and I really enjoyed meeting new
young people and staff.
There is too much going on to fit in here – so for more information about
the opportunities in the Youth Service disability Support Team please
contact us on 01623 626972 or email firstname.lastname@example.org
Technology Focus – Proloquo2go
Parents have advised us of a hoME
useful app for the Apple PAGE
iPhone which parents may
Proloquo2go is intended for people
who have difficulty speaking and
includes over 8000 symbols and
converts text to speech. Using the
software, people can construct a
variety of phrases and sentences from symbols.
for this reason it may be perfect for the parents
of autism, cerebral palsy, down syndrome,
developmental disabilities, or apraxia.
The manufacturers AssitiveWare also suggest that
Proloquo2Go can serve adults with acquired
disabilities such as ALS, stroke or traumatic brain
injury and can be a useful solution in hospital and
For more information visit the website at
You Training – Update
Last edition we featured a short article on YOU
The group helps parents access qualifications and
Autistic Spectrum Condition – provides support in enabling them to source and attend
other relevant training courses.
however, since the publication of the magazine the
and Sexuality telephone number has now changed.
A seminar dealing with this sensitive subject will be taking If you want to access You Training then the contact
place at 7pm on the 4th october at the Emmanuel Church details are as follows:
in forest Road, Loughborough. The seminar by fiona Speirs
costs £5 for people with a diagnosis of Autistic Spectrum Either, email email@example.com or
Condition and £10 for parents. contact Maria on 07967 456350,
helene on 07856 705491 or
for more information and for tickets contact Sarah Smith Sarah on 0115 952 5141.
on 0115 8473502 or email firstname.lastname@example.org
Praise for DCATCH and Short Breaks
Nottinghamshire County Council says that parents are Alternatively, due to complex needs or age, this can also
praising its DCATCH and Flexible Short Breaks Schemes take place in the child’s own home or in the community
and wants to promote their benefits to our readers. (Individual home based Packages).
It says that DCATCH support has allowed parents to At present 202 children are being supported by dCATCh in
return to work, increase their hours at work and, in some total, with 42 of these receiving home Based Packages,
cases, remain in employment while Short Breaks have while 355 children receive some form of short break,
allowed parents some much needed time for themselves. although referrals are still being processed.
The Short Breaks scheme (formally the 100 hours one parent receiving support from dCATCh said: “Knowing
scheme) is for disabled children and their families who that our boys were happy to be with the workers and that
cannot access a short break through they felt confident to deal with the boys’ complex needs
any other County Council Service provided complete peace of mind.”
and allows families to
access childcare, play
days out and
and young people
to access their
entitlement or Parents have also praised the Short Breaks service,
access childcare saying it took the pressure off and allowed them to spend
while parents are at time with the other children.
work or training.
The Flexible Short Breaks Team are based within the
The DCATCH scheme can provide personal or financial Families Information Service and can be contacted
support in pre-school, day nurseries or at childminders on 0800 7812168 while DCATCH can be found on
or out of school clubs (this is called Inclusion Support for 01623 520873 or 0791 7551381.
IRIS has been informed of some great
guidance out there which should be
incredibly useful for our readers.
from Child to Adult is a simple, comprehensive and
fantastic guide published by the charity Working
families focusing on all the financial support and benefits
you and your child can access to help with daily life and
transitions to adulthood and working life.
It can either be downloaded from their website at
www.workingfamilies.org.uk or via the publications
section on the IRIS website.
Another document that is worth checking out is the 4th
edition of Is it Legal? by the family and Parenting
Institute, which covers the legal side of everything from your
child damaging something by accident to internet Chat
To download the document please visit
MONEY MATTERS …
Direct Payments - A Parent’s Perspective
Flexibility and familiarity are the best things What is a Direct Payment?
about direct payments - according to City
A direct payment is a cash payment made instead of a direct
Residents. social service, and aims to give families the choice,
flexibility, independence and control over the way in which
Nottingham City Council asked IRIS to feed back
needs are met and support is delivered.
to our readers after they consulted with parents,
carers and service users on the direct payments direct payments can be used to buy services from an
process in July. organisation or to employ somebody to provide assistance.
Carers can also use direct payments to purchase services to
over the previous two years the number of families, support them in their caring role, including support that may
children and young people accessing a direct payment to help maintain health and well-being.
meet their support needs has grown rapidly and in the city
over 110 families are now choosing to receive a direct
payment, which can be used to hire personal assistants (PAs)
or access services.
Direct Payments Charity
Supports Its 1000th Person
Respondents said they liked:
This month not for profit organisation Direct Payment
• Flexibility - families can choose exactly when they Service Users (DIPSU) supported its 1000th service user.
need the support, who delivers it and how much that
The 8 year old charity provides advice and support so
person is paid - for example, saving money for extra
people can live independently in their own homes.
support during school holidays.
• Familiarity of PA - families choose who supports them.
for more information about dIPSU contact 01623 435840 or
This means that families can be supported by people
they already know - for example, friends, family and
school teaching assistants that already have a
relationship with the family and young person. Every Little Helps – Could Your
Voluntary Group Grab A Grant From Tesco?
In addition families have also identified that having money The Tesco Charity Trust is currently accepting applications
enables young people to access different activities, allows for projects supporting the elderly and/or people with
the young person to manage money themselves and builds disabilities.
long term relationships with PAs.
Community & Voluntary groups can apply for grants of between
however families also highlighted some downsides to £500 and £4,000 through the Tesco Charity’s Community Awards.
the direct payments. These downsides include a lack of The Tesco Charity Trust has been in existence since 1987 and
accessible training for personal assistants, additional aims to provide approximately £600,000 in grants each year.
pressures of holding and managing money and difficulty in
finding personal assistants. In the past grants have been given towards specialist
equipment and day trips/social trip for people with a
The council are actively working with voluntary disability so if you think your group could do with a helping
organisations in order to resolve these issues and soon hope hand then visit http://www.tescocharitytrustcommu-
to be able to provide training standards for personal nityawards-applications.co.uk/
assistants, increased assistance with managing direct
payments and develop strategies to help with recruitment. The closing date for applications is the 30th September 2011.
This magazine was designed by Initial design - www.initialdesign.co.uk
and printed by Nottinghamshire County Council
IRIS Project is a service delivered by
family Action and funded by
Nottingham City Council
and Nottinghamshire County Council
Please recycle when you have
IRIS Project, Room 18, Clarendon Chambers, 32 Clarendon Street, Nottingham NG1 5LN finished with this publication
Telephone: 0115 8533291 Email: email@example.com Website: www.askiris.org.uk