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News Issue 6 Autumn 07 – Sponsored by Guy Salmon Ascot his issu I n t sho p pin g e.. y... p a g e r H a ll o w e e ew ca m pa as s to r 5 ou n n ig ur . m ’s n O W e t n. i r is Jo ci alk .. p Ch in s i d e M ar . .. p a g e 1 age 4 gue –s lo 3 rt ta ta yo a u r s h e r e ... c Welcome to our autumn update New Target We have been so pleased with the positive response to our new look; it is very reassuring to know that we have your support and our thanks go especially to everyone at Langland £850,000 for their time, patience and energy in creating a vibrant new identity for our twice-yearly reader. We love to hear from you, our readers, so do keep your comments coming in. The last six months have been a We continue to give vast coverage to testing time for the Trust in respect the events that you have organised of our planning application. The as fundraisers for the Trust. Sadly, we update on page 3 details the latest cannot feature every story and our on this particular rollercoaster, intention is to give a flavour of the £700,000 which hopefully shows that we will many innovative ways in which our always turn what could have been a supporters have extracted pennies disaster into a positive outcome. We and pounds in aid of our cause. know that life invariably doesn’t go With Christmas just around the corner according to plan and we are keen we are pleased to unveil our seasonal £600,000 to show our resilience in the face of adversity – something we have learnt collection of cards and themed merchandise. We have stayed true to from watching others cope with some of the old faithfuls, in particular their individual battles with illness the beautiful cards created by sick and disability. youngsters which give a timely £500,000 This edition’s gorgeous cover girl, Marcie Loader, is a prime example of message of what we are trying to support, but we have also introduced courage and positive thinking. In spite a few new designs that will hopefully of being diagnosed with not one but appeal to all. two different forms of cancer, Marcie This newsletter is being sponsored £400,000 continues to embrace life to the full. Her story on page 5 will no doubt by Guy Salmon Ascot, which has recently chosen to make us one of its inspire you too. official charities. We are delighted to Although building the holiday home be associated with such a prestigious remains the Trust’s primary focus we company and look forward to £300,000 have stepped up our commitment to finding other practical avenues working with their team to promote the Trust in the future. for supporting the families of children Wishing you all good health, with life-threatening illness. happiness and a sense of peace for Our interview with psychologist Karen the months ahead… £200,000 Steinhardt highlights one way in which your donations are helping to make a real difference to the lives of very sick children and their families. It gives us a true sense of satisfaction £100,000 to know that by funding this vital post for the past two years we have Jane Gates pioneered the way for future funding through the Hospital Trust, ensuring Director that psychosocial support will continue to assist families affected by their child’s diagnosis. Ja ne nd a Se 03 ba 20 stia n, M a rch 2 Sebastian’s House Overcoming hurdles… In the last edition of the newsletter we explained how we were preparing to submit our planning application for the proposed site in North Waltham. Having consulted the local community we were aware that some residents had reservations about our proposals but we opted to submit our plans in the knowledge that we would do our utmost to accommodate the concerns that had been expressed. On 8th May, in a tense and emotionally The previous application floundered There is not room to thank by name charged evening, our application principally because of its proximity all the individuals and companies was heard by the full Development to an area designated as one of that have given their services so Control Committee of the Basingstoke outstanding natural beauty, but also generously to enable us to get this far, and Deane Borough Council. In because the council required greater but we truly appreciate your efforts. spite of our passionate appeal we proof that this facility would meet Sebastian’s illness was something of were defeated by the narrowest of a “local need.” Our new site is in a a rollercoaster and it would seem the margins, seven votes to five. One of different sector of the village, which fulfilment of his last wish is staying true the councillors stated that it was the enjoys glorious views but does not to form. In the end, we know it will all hardest decision he had faced in his impact on the important scenic vista. be so worth the wait! term of office and the committee We have overwhelming support from unanimously voiced their approval key personnel within the local and for the Trust and its ambitions. regional hospitals and hospices, who In rejecting our application, the have all testified to the dire need Committee did, however, affirm that for the kind of crisis breaks we aim they upheld the principle of what we to provide. This will help enormously are trying to achieve and expressed with our efforts to convince the their commitment to working with council that the holiday home will us to find a site that would meet go some way towards meeting with the Council’s strict criteria for a “local need” for families building outside village settlement living with a child’s very boundaries. serious illness. To this end we have held several We plan to submit a new meetings with the Council’s planning application in October officials, who have assessed a and very much hope that number of alternative sites offered by on this occasion it will have our very generous land benefactor, the Council’s full approval. Pat Sweeney. In just over three months A great deal has been our self-styled Project Manager, Hugo achieved in a remarkably Haig of Lochailort Investments, in short space of time and we are conjunction with Mark Fitzpatrick of keeping our fingers crossed that Bewley Homes and architect Richard 2008 will witness the completion of Gandy of Philip Design Associates, this amazing project. P ic tur m esq th a has performed near miracles to u e N o r th Wal create a feasible alternative on a new plot, again in the tranquil Hampshire village of North Waltham. With a larger plot we have been able to incorporate additional features, which although highly desirable come at a cost. The fundraising target for building the holiday home has been revised to take this into consideration, together with the inevitable rise in costs over the last three years since the initial building Th es target was set. We are now seeking e in Pi ne to raise £850,000 in total which w tu el t Si c should cover building and furnishing si t re e be by sq ue am the house. in g su r ve yed N o r t h W a lt h 3 Our New Campaign Snowflake Appeal – remember a loved one, support Sebastian’s Action Trust Christmas is traditionally a time for getting together with friends and spending time with loved ones. But, everyone has someone they will miss this Christmas – whether it be a family member posted abroad in the armed forces, a relative or friend who has died, or just a special person who lives a distance away and who you will be thinking of as the festivities unfold. With this in mind the Trust will be running a Snowflake Appeal in Bracknell town centre in the run-up to Christmas. The appeal allows you to dedicate a decoration to that special someone by writing your message on a Snowflake Appeal card and placing it on the Christmas tree in Princess Square, in return for a donation to the Trust. To make a dedication you can visit us in Princess Square from Thursday 22nd November to Friday 21st December, Glass snowflake 2007, and fill out a snowflake in person, or you can download the Snowflake Appeal form from our website at www.sebastiansactiontrust.org and send it to the Trust, together with your donation. Your snowflake will then be placed on the tree The Trust currently needs to raise funds both to fulfil the for you. practical projects we offer to families with seriously ill Everyone who makes a dedication children, but also to reach our new target of a further will receive a glass snowflake to £200,000 to build and furnish the holiday home. hang on their tree at home for the Every penny and pound donated to the Trust is truly person they will miss. appreciated. This is the first time for many years that there has been a Christmas tree in Princess Square and the Trust has teamed up with Bracknell Regeneration Partnership, who Get yours now own the shopping centre, to make The Trust’s stylish key-rings have been on sale through the Snowflake Appeal happen. We our website for some time, but we now have smart hope the appeal will help residents new dispenser boxes so that the key-rings can go on and shoppers feel a real part of sale in shops and businesses. Christmas in the town. The boxes were designed by the creative team at Windsor-based advertising agency Langland who have adopted the Trust as their charity. The key-rings can be purchased for a suggested donation of just £1 and the money raised from each sale goes directly towards funding Sebastian’s House. We will be working hard to get the boxes into as many businesses as possible, but if you can’t wait long-enough to spot one of our boxes while you are out and about, you can always buy your key-ring directly from our online shop at www.sebastiansactiontrust.org or contact us by phone at the Trust on 01344 622500. 4 Marcie’s Story Just months after she was diagnosed effect from one of the drugs used with Ewings sarcoma (bone cancer) in chemotherapy. 12-year-old Marcie Loader was Marcie was referred to Bristol for told she had a second cancer a bone marrow transplant, which – leukaemia. Here Marcie and her was followed by three weeks in mum Justine tell their story. isolation, during which she was not Marcie said: “After a weekend down even allowed to see her younger at Uncle Stevie’s house near Bath, I sister Amelia, for fear of getting started to get really bad pains in my an infection. right foot and shin. After a couple of Marcie said: “You weren’t really trips to the doctors, I went to see my allowed to wander around; you had Marcie in 2007 friend Doug Penn, a wonderful ‘back to stay in one room for ages. I missed man’, who told my mummy there was my friends because they didn’t really something ‘seriously wrong’ with my come to see me in hospital, but they Marcie’s favourites back. He spoke to our doctors who rang me a lot.” agreed, and referred me to the Royal Colour: pink (and purple) Berkshire Hospital, in Reading. Details of Marcie’s website and the Actor: Daniel Radcliffe hospital address were sent out to “I stayed in Reading for a few days, Food: cheese friends and Marcie said: “It was nice while they did loads of tests on me. I Pets: a westie called Toto to receive things, especially after the met some excellent people including Pastimes: shopping, going to the bone marrow transplant, because we the big rugby-playing consultant cinema, spending time with friends were stuck in that room.” Mr Sean O’Leary. I saw him on 7th and riding on her uncle’s speed boat Februray, and he told mummy and Justine and Marcie’s Dad, James, Hobbies: playing the hand bells and daddy the MRI scan had showed that took it in turns to stay with her, piano, keeping in touch with friends I had a growth, the size of a snooker on MSN and Bebo swapping every 24 or 48 hours so ball, in my spine, at the very bottom, there was always someone to take School subjects: art, swimming and games. in the sacrum (just above the coccyx). Amelia to school. He said the tumour was malignant For Marcie among the hardest things which means it was a dangerous one, about her illness was losing her hair. a cancer which will carry on growing two years, so when it was removed until I go pop basically, so it needed Justine said: “She was walking down she celebrated by throwing a party to be stopped.” the hallway one day – a bag of bones at the school pool. with no hair and ears sticking out Marcie began chemotherapy and – and we said, ‘Marcie you really look Another hardship was the restricted the family became used to frequent like Dobby’ (the elf from Harry Potter); diet during treatment, when she hospital stays. But after just a few – she was broken hearted.” missed Chinese takeaway most. months of treatment they were told Marcie had developed Marcie’s hair has now grown back Marcie is now looking forward to leukaemia – a known but rare side – but brown, not blonde as it was getting to know her baby brother, before – and she has developed finding a new school for next year freckles, which her family joke must and catching up on the holidays have come from her bone marrow and activities missed over the past donor. three years. Another difficult thing Marcie said The family have found support from is that she finds it harder to run around friends and family invaluable and now. Marcie would like to thank everyone, especially her friends Henny, Poppy, “As much as she’d love to go off and Jessie and Weezy. do netball matches with everyone else it is hard work. She added: “I am staying very well with no symptoms at all for a I think she finds school very stable; while – all thanks to the wonderful they are lovely people, they are Dr Kate and her team, and a new supportive all the time – no one drugs regime. I do still need regular questions her,” Justine said. blood tests at Oxford – Denise is Marcie hated having a Hickman there and she ALWAYS gets a vein, line (a tube inserted under the which is great! What with my cute skin through which she received new brother and a new school year, treatment), which meant she could I’m really looking forward to the not have a bath, shower or swim for next year!” Marcie in 2003 5 Practical support The Trust is committed to providing whatever practical support it can to families with a seriously ill child, sometimes this means helping families with their individual needs to make life that little bit easier. Staff from Angel But sometimes we are also able to offer support in ways Beauty and Mark Cooke Hair who which help indirectly by alleviating stress or making donated their time someone feel special, if only for a few hours. We will free of charge. continue to strive to find new initiatives. These are just a few Picture courtesy of of the projects we have fulfilled since our last newsletter. Bracknell News The mobile library The first of the Trust’s mobile libraries was recently presented to the oncology ward at the Oxford Children’s Hospital in memory of a very special little girl. Pampering day The library was sponsored by staff at the Hilton Hotel, Following on from the success of our first Mums’ Bracknell, and was dedicated to the memory of their Pampering Afternoon at Wexham Park Hospital last year, colleague’s six-year-old daughter Tayla Jacobs, who the Trust repeated the event in August with a further underwent much of her treatment at the Oxford hospital. resounding success. Sadly Tayla, the cover-girl for our last newsletter, died The afternoon was again held to coincide with the on December 23rd 2006, following a courageous battle children’s oncology clinic and mums were able to against neuroblastoma. She and her family had become indulge in relaxing massages, revitalising haircuts and good friends of Sebastian’s Action Trust. soothing beauty treatments, in recognition of the fact that parents caring for very sick children rarely have the The library includes books on everything from specific opportunity, let alone the inclination, to consider their own illnesses and coping techniques to the experiences of personal needs. families who have lived through childhood cancer. The hairdressers and therapists even managed to provide It also features books for teenagers and story books for a special 16th birthday treat for the sister of one little boy young children dealing with relevant topics such as who was in hospital in Oxford following surgery. staying in hospital. The pampering sessions have been widely recognised as The mobile library is the first of several being collated by an important aspect of the support we are committed to the Trust and our second trolley is soon to be donated to providing for the wider family network of those affected the children’s oncology clinic at Wexham Park Hospital, by life-limiting illness. We are delighted to have the in Slough. dedicated services of the staff at Mark Cooke Hair and The idea for the libraries came from Jane Gates’ own Angel Beauty in South Ascot, who give their time and experiences during Sebastian’s illness; her desire to read expertise freely to make life just a little easier for others all the information she could and to learn about how coping with an undoubtedly stressful situation. Our thanks other families had coped. go to both salons for their continued support and we look forward to working with them in the near future on a new Team members at the Hilton Hotel initiative for the parents of children who have recently in Bagshot Road, Bracknell, where passed away. Tayla’s father works as the Food Services Manager, presented Sebastian’s Action Trust with a cheque for £1,182 to sponsor the first Practical support mobile library In the coming months the Trust has committed to fulfilling the following practical projects to help families with a seriously ill child: • Craft workshops for young cancer patients in hospital • A siblings’ day – giving the brothers and sisters of seriously ill children the chance to get together for a day and enjoy different activities • An annual service of remembrance and thanksgiving at Dorchester Abbey for families and friends of children who have died Practical support around the door and say, ‘this is who I am and this is my role’ so they know what a psychologist is and I’m not this scary person who gets wheeled in if there’s a problem.’ Among her initiatives is a weekly Parents’ Group where parents can discuss concerns and share their experiences. Karen spends time with individuals to work out what is worrying them and why, so that together they come up with a strategy to help them cope. She said: “I’ve just been to see a child who is vomiting with anxiety every time they have to take medication. I might be asked to see a child who has developed acute anxiety around the changes in their appearance, like losing their hair, or is worrying because they feel less able to join in social activities than they used to. I spend time with parents who are worried about how their kids are coping, how to support them and how far to push them.” Common concerns for families with young children involve managing distress and maintaining security. Clinical Psychologist Karen Steinhardt She said: “One of the key tasks when you have small children is to make them feel safe and secure and it’s What a difference a day makes hard to do that when you are moving them from pillar to post [for treatment].” In 2005 Sebastian’s Action Trust began paying for a clinical psychologist to dedicate one day a week to families For children in middle childhood the issues are typically attending the children’s oncology clinic at Oxford’s John around school, family and siblings; while teenagers Radcliffe Hospital (now the Oxford Children’s Hospital) can experience worries about school or developing – the main children’s cancer centre for the Thames Valley. independence when their treatment makes them more dependent than ever on their parents. Problems such as The aim was to ensure families have the ongoing anxiety, needle phobias and trouble sleeping can affect psychosocial support they need and not just in times all age groups. of crisis. Two years on, the hospital authority has agreed to take over the funding. Karen Steinhardt, the clinical Part of Karen’s role is also to see families with children psychologist in post, spoke to the Trust about her role and who are no longer on treatment and are adapting to life how Sebastian’s Action Trust has helped. in remission. A familiar friendly face with whom to discuss psychological The funding from Sebastian’s Action Trust, she said, has and developmental issues arising from their child’s battle been a “huge help” and without it the need for the post with cancer is something that was not generally available would simply never have been recognised. “I don’t think to families at Oxford until 2005. this would have happened if Sebastian’s Action Trust hadn’t approached us,” she said. In the past families were referred to a paediatric psychologist at times of crisis, but for the past two years The post allows her to offer families a more accessible Karen has been able to get to know families; responding service which takes into consideration their journey to the needs of the sick children, but also helping families through cancer, rather than responding to isolated issues. manage the wider effects a child’s illness can have on Ideally, Karen believes the hospital needs a psychologist siblings, parental relationships and family life. dedicated to children’s oncology two-and-a-half days a The families of around 100 young cancer patients currently week. This would still leave them far short of what is offered treated through the Oxford Children’s Hospital can access at some hospitals. her services, but with just one day a week to meet their She said: “I think we are fairly good at responding to crisis; needs Karen has a challenge on her hands. Her answer is extra time would allow us to be more proactive. I have a to dedicate her time to a few effective initiatives, and to huge list of things I would like to do. I would love to do a meeting as many families as she can each week. Grandparents’ Day once a year, groups for siblings and Karen, who has been a psychologist at the hospital for groups for children just finishing their treatment or groups nearly eight years, spreads her one “oncology day” across for parents of newly diagnosed children.” her four days at the hospital each week to make herself as But for now, Karen is focusing on maintaining the services accessible as possible. she has established for families over the past 24 months She said: “I try to meet as many of the families as I can, – proof, if any were needed, that a day can make a while they are inpatients at Oxford. I try to stick my head huge difference. 7 News Trust launches new logo skyward The Trust quite literally launched its new logo in June by Tr u st releasing a large bunch of balloons bearing the new re p design into the sky above Bracknell. re s On Friday 8th June Sebastian’s mum Jane Gates, his sister rs en pe Rebecca and grandparents Pam and Vic Walters released ta op ti v balloons bearing personal messages for Sebastian. sh es el d ea n r And on the Saturday shoppers and passers-by were invited a se h rc to help release 100 balloons in the heart of the town which ba ll Bi llo i has shown the charity so much support over the past two- on rG sw it h B r a yo and-half years. a c k n e ll F o re s t M The official launch was held to coincide with the Thames Valley Police Rowathon in Princess Square, at which the gardening to business and more philosophical thoughts new branding was used for the first time. on life. The Trust’s previous red logo was designed by the Bracknell Among the entries in the book will be a quote Sebastian News to launch Sebastian’s fundraising campaign at liked from The Lord of the Rings – “All we have to decide is Christmas 2003. It served the charity well, but the need for what to do with the time given to us.” a logo which could be used in different ways has increased as the charity has developed. If there is a piece of advice you would like to share visit Rus’s website at www.coach-and-courses.com and click The advertising agency team from Langland adapted the on Sebastian’s Action Trust e-book. old design into a new format which could be used in full or single colour, giving the Trust a more durable symbol that allows it to be more consistent. Solicitors’ teams take on triathlon Jane said: “The new logo encapsulates what we are Eight teams from Owen White Solicitors in Slough took trying to achieve. First and foremost we are about trying part in the BananaMan Team Triathlon at Dorney Lake to achieve this holiday home – they say a picture paints to raise funds for the Trust. a thousand words and this does. We love the fact that it is interchangeable, that we can use Sebastian’s photograph The event on Sunday 22nd July started with the eight where appropriate – he being central to it is the charity’s Owen White swimmers diving into the rowing lake to complete an 800 metre swim split into two 400-metre roots, its origin. We believe the new logo is as strong and swims with a 100 metre run in between. enduring as those of any of the big national charities.” The second leg was a 30-kilometre bike ride. The Balloon leads to lessons in life majority of the firm’s teams completed six laps around the lake in just more than an hour. Runners rounded A balloon released to launch the Trust’s logo sparked a new off the race with a 7.5 kilometre dash, made more fundraising initiative after it was found not far from where strenuous by the mid-day heat. the charity hopes to build Sebastian’s holiday home. Managing Partner, Richard Keen who completed the The balloon, released in Bracknell town centre, found its run to bring the first of the Owen White teams home way to Dogmersfield, a few miles from North Waltham. said: “It was a great day. It was hugely impressive to see over half of the firm’s staff take part in the event Life coach Rus Slater discovered the balloon, which bore a and particularly satisfying to have been raising money message to Sebastian from his family and one of the Trust for the Sebastian’s Action Trust.” key-rings, while he was walking his dog. The Bath Road firm selected the Trust as its charity for He said: “I was walking across fields near my home when I 2007 and has so far raised more than £4,000 with a found a helium balloon caught in the hedge; attached to it series of events including a barn dance. was a dedication to a child and a key-fob from Sebastian’s Action Trust. I looked at the Trust website and thought, ‘Here is a small charity, doing a great job for folk who really need it, without the clout of the big national charities; they can use all the help they can get’. So rather than doing a sponsored walk, I thought I’d sell people something they can use.” Mr Slater is creating an e-book of life-tips which will be sold through the web in aid of the Trust later this year. It will feature entries on topics from household hints and 8 News Thames Valley alongside providing great encouragement to other Police rise to rowing families who are going through challenge similar difficult times.” Trust Director Jane Gates said: Four teams of Thames Valley Police “Sebastian would have been staff put themselves through a thrilled to see someone who had gruelling 24-hour row in support of successfully battled with Wilms’ the children the Trust aims to serve. T h a m e s Va l Tumour doing so much to help 27 police officers and civilian staff, set others who continue to live with out to raise £5,000 by rowing 435,500 life-threatening illnesses.” metres – the distance from Bracknell to She said: “The event gave everyone l Lands End – on static rowing machines. ey involved a huge buzz. The energy, And they proved they were more than Po commitment and determination of li c up to the challenge – rowing in excess the teams was incredibly heartening. e of 1,306,500 metres and raising more a in We are extremely grateful for their ct io than £5,000 for the Trust. n efforts.” The Rowathon, in Bracknell’s Princess Supt. Rob Povey, who instigated the MacKay and Bracknell Forest Borough Square Shopping Centre, was made Councillor Bob Wade. June Rowathon said: “It is always more poignant as rower PC Joy rewarding to run an event like this The event was sponsored by Bracknell Andrews had suffered from Wilm’s in the community and we are very Regeneration Partnership, and was Tumour – the same form of cancer proud to have been able to do it for officially opened by Bracknell Town which nine-year-old Sebastian Gates, Sebastian’s Action Trust.” Mayor Cllr Adrienne Jones. who started the charity, battled with for two-and-a-half years. PC Andrews Chief Constable of Thames Valley Thanks go to Living Well at the Bracknell said: “It was a fantastic opportunity Police Sara Thornton supported Hilton, Bracknell Leisure Centre and The to take part in this challenge and the event, participating in a 2,000- Royal County of Berkshire Racquets raise money for a charity close to metre challenge with members and Health Club who loaned rowing my heart. It meant a lot to me and of the public. Other guest rowers machines, and The Grange Hotel who my family for what we went through, included Bracknell MP Andrew provided accommodation. Doctors to be! Sarah’s sister Laura lost her battle with bone cancer in October 2003 became a way of life she decided medicine was the only route for her. It is always encouraging when at the age of 13, just eight weeks We are all so very proud.” something positive can be achieved before Rebecca’s brother Sebastian Rebecca’s parents feel Sebastian in spite of great personal tragedy. passed away on Christmas Eve. Both would be equally thrilled to know Rebecca Gates and Sarah Dillon children, who became friends whilst that Rebecca had fulfilled a long- are shining examples of on treatment, showed tremendous held dream to enter medical school; remarkable courage; strength of character and judging they think he would be tickled pink despite the grief they by the devotion to study evident in by her keenness to live in her “scrubs”, have experienced Sarah and Rebecca it would seem with stethoscope and bleeper always at the loss of their that such strong qualities are family to hand! only siblings, both traits. Sarah’s mum, Jayne said: girls are about to “Sarah has always been interested We wish the girls the very best of luck embark on the in Chemistry and initially when Laura in their studies - we know they will long training to was diagnosed thought she would both be a credit to their become doctors and dedicate her studies to cancer chosen profession. both have expressed research; she has already obtained a the desire to specialise in Biochemistry degree. However after the treatment of children’s cancer. hospitals and the people within them Cracking time had by all and donated it to Sebastian’s Action children all had Trust because of the hotel’s close teaspoons to try Spe Young cancer patients at the Oxford association with the charity. and crack it – at Children’s Hospital received a special ci the other side of lE Trust staff delivered the giant egg a Easter surprise thanks to the generosity the playroom staff, as ter of a Bracknell Living Well gym member. for the children on Kamran’s ward su r p rise parents and other to enjoy. Jennifer Furnell, who attends the gym shyer children cheered at Bracknell’s Hilton Hotel in Bagshot Gemma Downes, CLIC Sargent social and looked on. Thank Road, won a giant Easter Egg in a raffle worker for the ward, said: “The you for all the fun the egg provided.” 9 News Abbey recital raises funds Sebastian’s second Music lovers helped fundraise for two worthy causes by attending a cousin Steve Gates ‘Concert for Spring’ at Dorchester describes his cycle Abbey in April. The piano and violin recital challenge was performed by pianist (and My neighbour and I had been training Abbey organist) Jeremy Boughton for a series of club 10-mile time trials St e v e G a t e s and violinist Sharon Warnes, when news of the British Cyclosportive and featured sonatas by Corelli, came through. A chance to ride Stage We had trained on the first of the Mozart and Beethoven. One of this year’s Tour de France a categorised climbs, Quarry Hill, week before the pros seemed too The concert raised funds for the but were astounded by the crowds good to miss. Trust and the Dorchester Abbey out to support us. At Matfield Organ Fund. We were accepted and then the we encountered a nasty climb, realisation dawned, 120 miles – this unmentioned in the route blurb, but Our thanks go to Jeremy, was going to be a challenge. I this was just a warm up. Sharon and the Friends of decided to focus on raising cash for Dorchester Abbey. The second categorised climb Bassie’s charity – announce it to the at Goudhurst was an adventure; world, obtain sponsorship and you a very steep hill made tougher by can’t back out! two Dutch caravanners who had Service with a smile My wife Di became a bike widow. We taken this busy Sunday morning to on charity night trained on parts of the course – living in Canterbury the final sections were conduct motorised ballet dancing in the high street, effectively blocking Stylists at an award–winning Ascot well-known, including the daunting the entire road. hair salon generously did away with Farthing Common climb. Farthing Common was negotiated their normal pricelists for a night and 1st July dawned, wet and windy relatively comfortably. Then came instead asked customers to make with a 5am start. We were dropped the best part – the Roman road, donations to the Trust. on Blackheath and could start Stone Street, 10 miles mainly downhill, Smile Hair in Ascot High Street was straightaway. with the wind strongly behind us was fully booked for the charity night, on heaven – 25 mph plus all the way into It rained throughout the early stages: Wednesday 29th August. Canterbury – this was what it was Woolwich, Plumstead, a nasty little about. We finished together in 7 hours The event was a huge success and 1:10 climb at Bostall Heath, Erith, 12 minutes. raised more than £600 for the Trust. Dartford, Gravesend were all passed Customers were able to relax with a in the drizzle amongst an endless Many thanks to our generous sponsors glass of wine and listen to talented stream of riders. The only hold ups and supporters who helped make saxophonist Barney Gilbert while one were the seemingly constant red it memorable and enjoyable. With of the salon’s experienced stylists did lights – the pros have it easy with the my company’s (Abbey) “matched their hair. roads closed! donations” scheme we raised about £2,000. Salon Director Penny Etheridge, At Aylesford the tiny High Street is a said: “I chose the Trust because traffic light-controlled one-way affair. it is a local charity and Sebastian Cyclists were backed-up for half-a- was a local boy so I think it’s very relevant and I think it’s a very touching mile and we were delayed at least 10 minutes getting cold and irritated. Donations in brief charity. • Crowthorne Village Singers We have young people here and a entertained audiences with certain percentage of our clients are songs from the shows for their young so it’s nice to give something Summer Concert, raising £400. back.” • Lynne Sollitt helped to raise Jane Gates, Director of Sebastian’s more than £400 by inviting the Action Trust, said: “There was a great Trust to hold the raffle at her atmosphere on the night and lots stylish Spirit of Summer fashion of happy customers. By donating sale at the Royal Berkshire Hotel their services the staff from Smile in May. Hair raised funds that will be directly • Bracknell Methodist Church channelled into helping families.” s rugby sta r donated £2,173 to the Trust as s and Wasp Jane Gate salon staff their nominated charity for 2006. ell w ith James Hask 10 News We thought you After a busy summer of family holidays in Devon and Cornwall, would like to know during which she did a lot of walking, Sophie has just started senior school. In the last edition of our newsletter She was nervous but the school have you met 11 – year-old Sophie Hartley made allowances for her making who is in remission from Ewings her form room on the ground floor sarcoma – bone cancer in her leg. and allowing her to use the “Grand Staircase,” which is normally only used by staff. We wish her every success. On the piste – Like father, like daughter La Tania Fourteen year-old Zoe Heggie cycled 55 miles from charity week London to Brighton to raise £203 in sponsorship. Harley Davidson rides up Zoe’s Dad Craig, a spinning-class instructor, cycled from the mountain, a boiled-egg Lands End to John O’Groats for the Trust last summer and eating competition, sponsored at Christmas Zoe asked if she could complete the London mountain treks and an epic float race to Brighton for the Trust. down the slopes were just some of the ingenious ways Zoe completed the journey in 5 hours, 1 minute only staff and residents of French ski resort La Tania raised stopping twice; once for a toilet break and funds for Sebastian’s Action Trust this April. once for a well-deserved ice cream The resort has supported the Trust for the past three years at the top of Ditchling Beacon with their end of season fundraising. And this year they – the third-highest point in South pulled out all the stops once again with a week of fun- East England. filled events including; a ball, a barbecue and bands day, Craig said: “Zoe started to attend sponsored hikes from the resort to Col de la Loze (which my spinning classes and in no time some completed four times), and a “Charity day” outside she was cycling five miles, spinning for Pub Le Ski Lodge where fancy dress was a must and where two hours and then cycling another live music, games and vodka jelly were in plentiful supply. five miles home. She started joining me r g he on a Sunday ride and it was then I knew joy in m The resort raised around 20,000 euros which will be split Zo e e n e c re a she was serious.” ic between the Trust and a French cancer charity. A huge thank you goes to all involved in this amazing “I allowed her to take part on the understanding that if she fundraising effort – which had to be seen to be believed found it too tough she could pull out, but she plodded on – for all your hard work and for choosing to support the and when she crossed that line to cheers and claps we Trust once again. We are extremely grateful. all had a tear – I was the proudest dad ever.” Donations in brief Life in a Day • Hall Grove School parent Bill Rogers found a unique way Celebrity photographer and Special Friend of the Trust, of fundraising when he organised an internet raffle. £1125 Alistair Morrison donated £1,300 from the sale of portraits was donated by forum members of Detailing World; taken during his “Life in a Day” project – a collaboration our thanks go to Bill for his enterprising ingenuity and his with Royal Holloway University in February. supporters for their generosity! The project combined photographic portraits, video • Woodside resident Jonathan Greenyer raised £200 with a and audio clips to reflect the many faces that constitute plant sale at his home in June. the college. Ranelagh pupils dedicate Lent money Ben’s sponsored toddle In May the Trust received cheques totalling £416 At 13-months-old Ben Bradford is the youngest from pupils in Year 8 at Ranelagh School. The highly fundraiser ever to hold an event for the Trust. Ben motivated pupils collected the sum through various and his mum Gemma held a sponsored toddle at Lent projects including an X-box challenge and a their Bracknell home in March and invited friends cocktail bar! One of the organisers was Angus Haynes, and family to join them for coffee and cakes. a former school friend of Sebastian who had proposed Ben took a total of 18 steps to the finish line without the Trust in memory of his pal. stopping and raised £120. A huge thank you goes to Ben and his mum. 11 News Guy Salmon Ascot practical projects. Stephen Cook, Store staff Franchise Manager for Guy Salmon supports the Trust Jaguar Ascot, said: pull out Staff at Guy Salmon Ascot will be working closely with the Trust in “Choosing a charity to support can be all the a difficult process; we wanted to put the coming months as part of their more into our local area by supporting stops for commitment to give something back and providing help for a local charity. to their local community. Situated just on our doorstep in Ascot Sebastian The prestigious Jaguar and Land High Street, Sebastian’s Action Trust Staff at Waitrose in Sunningdale Rover dealership, which is just doors was the obvious choice.” played darts around the clock to away from the Trust in Ascot High Staff from Guy Salmon Ascot fundraise during the week which Street, has selected Sebastian’s should have marked Sebastian’s Action Trust as one of its chosen 13th birthday. charities, and has already shown The 24-hour darts challenge was support by kindly sponsoring this one of many fundraising initiatives edition of the newsletter. staff at the London Road branch The dealership will be giving away came up with during their charity one of the Trust’s limited edition Bassie week in February, which raised more Bears to each customer who buys a than £1,773. Jaguar or Land Rover in 2007, as a Sebastian’s mum Jane said: “We are mark of support. really grateful to the staff at Waitrose. Employees are also looking to Sunday, 18th February would have get involved in some of the Trust’s been Sebastian’s 13th birthday and therefore it was incredibly fitting Swinging Glasses charged for for our local store to support us in this week.” success charity tasting Sunningdale Branch Manager, Gary Wentworth golfers Collyer, said: “Waitrose is committed The World Wine Tasting Company got into the swing to working with the communities it staged their second successful tasting of fundraising serves. We know Sebastian’s Action evening for Trust supporters in March. generating almost Trust makes a big difference to the £23,000 for the Trust under 2006 Ladies’ The event, held at Club 1 in Ascot lives of young people in our area and Golf Captain, Hilde Holdsworth. High Street was a chance for guests we were proud to support them.” to learn about wines from different Hilde selected the Trust for her year regions, how to “taste” wine and as Captain after attending several Trust balls, she said: “I like what the which wines go best with different foods. The evening included wine Katie loses her locks Trust stands for.” and cheese, an informal quiz A brave 18-year-old swapped The impressive sum was raised through and jazz. her long locks for a shiny bald a series of events which included a head to raise funds for three Our sincere thanks go to organisers Spanish-themed Ladies Captain’s cancer charities. Lucy Roe and Sally Barlow for another Day hosted by Hilde, during which great evening. Katie Halstead took the drastic 80 ladies played 18-holes before decision to have her hair, shaved enjoying lunch and a raffle. For more information on The off to fundraise for the Trust along World Wine Tasting Company Other fundraising events included with CLIC Sargent and Marie Curie call 07855 437432 . invitational days, members making Cancer Care. donations to play with Hilde and the club pro and the Wentworth House Party. Of her year as Ladies’ Captain Hilde said: “I loved it. I would like to thank everyone for helping me to raise so much money.” Our sincere thanks go to Hilde and all who supported her and the Trust during her captaincy. Pictures courtesy of the Leatherhead Advertiser Roe – Lu cy 12 Chee rs Ba rlow & Sally The big event Teeing off for Seb! Our next Our last big event: Donnington Grove Ladies’ Golf big events: A Night at the Captain Brenda Agutter heard of the Trust when she was Clay-pigeon Moulin Rouge Ball driving along listening to a radio interview that shoot Cancan girls, a fire dancer and a featured Sebastian’s contortionist were just some of the Whether you are an expert or have sister, Rebecca. colourful acts which brought the never picked up a gun in your life, our spirit and the spectacle of the world- Brenda was so taken shooting day on Thursday 15th May, famous Moulin Rouge to Wentworth with Rebecca’s positive 2008, is a chance to experience a for our May ball. outlook and determination great British sporting tradition in the to find some good from beautiful surroundings of Bisley. A Night at the Moulin Rouge, held on B renda Agutte r Saturday 12th May, raised £25,000 for her brother’s death that The relaxed day would be an ideal she chose our charity for her year the Trust. opportunity to entertain clients or as captain. catch-up with a group of friends The 216 guests were also entertained Brenda had plenty of ideas for raising and will start with breakfast followed by magicians, an accordionist, a funds including a very professional by an 80-bird shoot, pool and flush. stilt walker and caricaturist during clothes and fashion show, featuring Individuals are also welcome. The the evening, before enjoying a four- many of her fellow golfers, which shooting will be followed by lunch course meal and joining in the charity proved extremely popular with all in and an auction – a chance for auction and dancing to The Soul attendance. Our thanks go especially you to revel in your achievements Intention Band. to Brenda, who was ably supported and perhaps pick up an award Our sincere thanks go to our by fellow captain Paul Sherriff, during the prize-giving. Tickets dedicated ball committee. fundraising champion Tony Coleman cost £225 per person and can and the members of Donnington be purchased from the Trust on Grove Country Club who have raised 01344 622500. an impressive £7,680. Halloween Walk Generous gift A fun activity-packed walk for all the from glamorous family will take place on Sunday 28th October at 11am. Leaving from the school ball overflow car park of the Look Out, the 5km or 10km sponsored walk will Parents from Eton End School in take families through the picturesque Datchet generously donated more woodland of Swinley Forest and than half the money raised at their there will be plenty of activities along 2007 ball to the Trust. the way to break up the journey, The event held at Wentworth in March including a spooky quiz and ghoulish raised an impressive £11,000: £4,500 games such as apple bobbing and for school whiteboards and £6,500 pumpkin bowling. donated to the Trust. The event will be the Trust’s The pupils designed posters of third Halloween Walk and is Moulin Rouge Ball what they thought a ball would be once again sponsored by the like which were used for the event Bracknell News. publicity and stationary. Fancy dress is optional but adds to Thanks go to Alison Parsons and her the sense of fun. Children under 14 committee for selecting the Trust to should be accompanied benefit from all by a responsible adult. their hard work Entry costs £7 for adults, and generosity. £3 for children and £18 for a family. To book your place contact the Trust on 01344 622500. Children enjoy 2005 Halloween Walk Pupils’ poster design 13 Runningspecial Our son willed us home with pride In 2005 I enjoyed one of my proudest moments when I watched my husband complete the London Marathon as part of the Sebastian’s Action Trust team. Having witnessed his dedication to the gruelling training programme I knew that Mike had truly earned his medal and I never imagined that I would ever emulate this feat. Last year Mike persuaded me to The first 10 miles went like a dream; of an infinite number of worthwhile join him in entering the Windsor Half we were keeping to our 4 hours causes. I felt so humbled to be a part Marathon – running was something and 30 minutes time plan and in of the occasion and I would have that had never previously appealed spite of the heat (if only this summer no hesitation in recommending the and I had always been happy being could have been like that day experience to anyone – if I can do it, part of the backup crew. We didn’t in April!) all was going well when anyone can! achieve an exciting time but it was, disaster struck! I managed to lose my Jane & Michael nevertheless, something that we footing at the 10 mile water station, Gates after the could do together in Sebastian’s damaging my ankle and effectively London Marathon memory and it spurred us on to aim for curtailing my running for the rest of the ultimate – the London Marathon! the day. Being a loyal sort of chap, Mike refused to leave me and we We followed the Hal Higden training completed the marathon in a less programme for novices and on many than spectacular 5 hours 50 minutes, occasions we were joined by our secure in the belief that our son had daughter, Rebecca. Gradually daily willed us home with pride. life began to revolve around “the plan” and I found genuine pleasure Running the marathon was a truly in the time we dedicated to our new wonderful experience for many found hobby. On the big day we different reasons; it is a personal were as prepared as we could be achievement that cannot be and it was an emotional moment as undertaken lightly, but it was so we crossed the starting line, hand amazing to be a small part of a in hand. huge fundraising initiative in support in two-and-a-half hours but shocked Reading Half Marathon – on Sunday Newspaper myself by finishing in under two hours. 25th March. I had to get up and train continues My clocked time was 1 hour, 58 minutes and 16 seconds. Each week before I went to lectures – this was so hard sometimes, especially on cold long-running was a struggle but I kept to a fitness and rainy days. Soon it became habit support. programme of five days of exercise though and I started to enjoy training. Shortly before my run I strained a and my hard work paid off. I was Ascot News reporter amazed by my achievement and hamstring, so I had to take a few Louise Gaw furthered felt fantastic that I was doing it for a weeks off intense training and I was the newspaper’s long-running great cause.” worried I wasn’t gong to make it. support of the Trust when she took up Louise was the second News reporter However I arrived fit and well on the a personal challenge of running the to complete Bracknell Half Marathon day. There was such an incredible Bracknell Half Marathon in April. for the Trust – former News reporter atmosphere and the buzz before the Weeks of training paid off with an James Osborne also completed the race was brilliant. It was an amazing impressive time and £310 for the Trust. course in 2004. experience and I can not wait until my next one – a couple more half Louise said: “I wanted to take up marathons for experience then on to a challenge in the New Year and the full marathon! thought I should get fit by doing something I could be proud of Charlotte I wanted to raise money for a local achieving. I thought about running Brady charity and after researching, the Bracknell Half Marathon the previous year but did not think about describes Sebastian’s Action Trust seemed a very good cause – in the end I training until it was too late. Writing her first raised £160. for the Bracknell and Ascot News I was able to promote my fundraising half marathon Thank you to all who came and supported me from home and campaign while at the same time “It was my first year at university and university – it made the day a showing people how anyone can I was determined to join a gym. After lot easier!” take up the challenge, if they are going for a couple of months I wanted willing to put in the work. I was initially to make my training worthwhile, so on target to complete the 13.1 miles after Christmas I started to train for the 14 The London Marathon On an unseasonably hot day in April be very proud of. Taking part is an Running Events six runners Mick Maguire, Nigel Dixon, emotional experience. The highly- Brian Warner, John Breslin and Jane The extraordinary efforts of charged atmosphere keeps you and Michael Gates donned the Trust’s runners – whether they be going when your body is screaming colours and completed the London first-time challengers or at you to stop. Marathon. Here’s what they have to seasoned competitors – make say about the experience: Name: Brian Warner a huge difference to the Trust Age: 32 each year. Name: Mick Maguire Previous running Age: 37 experience: Marathon We are looking for runners of Previous running in 2005 experience: The London all abilities to enter events and Personal goal: Under Marathon 18 years ago, raise sponsorship for the Trust. 3 hours, 30 minutes and quite a few local runs. If you are thinking of taking on Reason for running: Personal goal: To get a challenge here a just a few I read the under 4 hours for this dates for you to consider: information sheet about marathon. Sebastian at Longacres Garden Reason for running: I want to help Centre, in Bagshot, and was in any way I can, to help children or extremely moved by his courage and London 10k families going through this kind of humbled by what had happened to Monday 26th May, 2008 terrible ordeal. Sebastian and his family. This exciting new race will follow Achieved: 4 hours, 23 minutes Thoughts: Blisters, sunstroke and heat Achieved: I waddled over the finish a stunning route through central exhaustion – glad to have done it line, my time was 3 hours 58 minutes London. again, but I think I’ll stick to the half SUB 4 hours!!! Visit www.london10k.co.uk marathons in future. Thoughts: The run started well. I to book your place. thought the heat was quite nice; Name: Nigel Dixon it created a nice summer morning Age: 44 atmosphere, but how things were Reading Half Marathon 2008 Previous running going to change! Things were still Sunday 2nd March, 2008 experience: 50 or 60 going well at the half way point, A great half marathon to try, half marathons, but when I reached 18 miles the 5 triathlons, taking you past many of the cramp started. 1 London town’s landmarks. Marathon – in 2001. As I progressed through the race Entry is now open visit www. Personal goal: To get round the cramp got worse and worse, my asicsreadinghalfmarathon.co.uk in under 4 hours. target time of sub 3 hours 30 minutes to book your place. Reason for running: I was not soon changed to sub 4 hours. The last intending to do it for charity until I was four miles was some of the worst pain approached by a friend at work who I have ever felt – it was the crowd that Flora London Marathon 2008 knew Sebastian. He told me his story. pulled me through. Sunday 13th April, 2008 Having a young child of my own I This world famous marathon can, I suppose, begin to imagine Name: John Breslin has to be on every runner’s the terrible loss his family have Age: 48 suffered. They have, as Sebastian “To do” list. Previous running had, been very brave and positive The Trust, like many charities, is experience: Two and I am delighted to be able to on a waiting list for places, but marathons. support his Trust. Personal goal: To get you could still run for the Trust by Achieved: 3 hours, 49 minutes round the course. entering yourself into the official Thoughts: Reflecting later, over a large Hopefully under race ballot for a place. Entry for glass of Bourbon, on an interesting 4 hours. the ballot closes towards the end day, inspirational actually. At about Reason for running: I have of October. four miles I saw a guy with both legs run for Sebastian in Dublin and Visit www.london-marathon.co.uk amputated from the knee down. His thought it would be really nice to do lower limbs were replaced by metal it again. The charity has raised a lot rods and his feet were replaced by since then, but I am sure it will always flexible pieces of L shaped plastic. Bracknell Half Marathon need more. He was young and was laughing and Sunday 29th April, 2008 Achieved: 4 hours, 18 minutes smiling. Other runners were clearly The date has only been booked Thoughts: Everything about the day amazed. I saw him again at the finish. was great; I was thrilled to complete provisionally at this stage, more He had caught me up! the course and to raise money for details will be released around The London Marathon is the the Trust. Having previously run the Christmas. most popular in the world. It gets Dublin Marathon for Sebastian, I was Contact Bracknell Forest bigger year by year. It is superbly delighted to have so much staunch Borough Council on 01344 organised and the support provided support again from people who had 424642 for more information. by Londoners and others is truly already given so generously to this overwhelming. It is a national treasure special charity. and something our country can 15 Events Please visit the events page of our website www.sebastiansactiontrust.org for more information and up to date diary events listings. Halloween Walk Sunday 28th October, 2007 be held each night. Special events will Hilton Bracknell Autumn Ball Swinley Forest, Bracknell take place in the town and the shops Saturday 20th October, 2007 The Trust’s third family walk with a will be open late on Thursday 22nd The Hilton Bracknell Hotel, Bagshot Road, Halloween theme. The walk will start and November, Thursday 29th November, Bracknell finish at the Look Out’s overflow car park. and Thursday 13th December. The hotel is organising a ball in aid of See page 13 for more details. the Hilton in the Community Foundation, Reflections Annual Candlelight Service of which supports Sebastian’s Action Trust. Hall Grove Craft Fair Remembrance and Thanksgiving Tickets priced £34.95 include a Saturday 10th November, 2007 – 11am – 3pm Sunday 2nd December, 2007 three-course dinner and are available Hall Grove School, Bagshot Dorchester Abbey from Lydia Pugh on 01344 424801. A chance to stock up on Christmas gifts A service of music and readings for and decorations away from the crowds parents, relatives and friends who have Sebastian’s Action Trust Clay Pigeon on the high street. There will also be a lost a child, adolescent or young adult. Shoot chance for children to make Christmas Thursday 15th May, 2008 gifts at one of the craft workshops. Snowflake Appeal Bisley Shooting Ground, Surrey Entry by donation. Thursday 22nd November – Friday 21st A relaxed day open to novices and December, 2007 Carols and Shopping experts alike. Enter as an individual or as Princess Square, Bracknell a team and enjoy an 80-bird shot, pool Thursday 22nd November – Friday 21st We all have someone who we will miss and flush in beautiful surroundings. December, 2007 this Christmas for whatever reason. This is Princess Square, Bracknell The day will begin with breakfast and a chance to remember them by placing the shoot will be followed by lunch and Come and join us at Princess Square as a snowflake with your personal message an auction. local schools help raise funds for the Trust on a tree in Bracknell town centre and with carols and festive performances to take away a glass snowflake for your Tickets cost £225 per person from the Trust each week night. Bucket collections will tree at home. All proceeds will go to on 01344 622500. Sebastian’s Action Trust. Sponsoring the newsletter This edition of the This will give you an opportunity to promote your organisation to newsletter has been sponsored by Guy Salmon Ascot. We would a readership in the region of 6000. If you are interested in helping very much like to secure a sponsor for each future newsletter. Sebastian’s Action Trust in this way, please contact Jane or Sarah on 01344 622500 to explore the possibilities further.
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