News Issue 6 Autumn 07 – Sponsored by Guy Salmon Ascot
I n t sho p pin g e.. y... p a g e r H a ll o w e e ew ca m pa
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to our autumn update
We have been so pleased with the positive response to our
new look; it is very reassuring to know that we have your
support and our thanks go especially to everyone at Langland
£850,000 for their time, patience and energy in creating a vibrant
new identity for our twice-yearly reader. We love to hear from
you, our readers, so do keep your comments coming in.
The last six months have been a We continue to give vast coverage to
testing time for the Trust in respect the events that you have organised
of our planning application. The as fundraisers for the Trust. Sadly, we
update on page 3 details the latest cannot feature every story and our
on this particular rollercoaster, intention is to give a flavour of the
£700,000 which hopefully shows that we will many innovative ways in which our
always turn what could have been a supporters have extracted pennies
disaster into a positive outcome. We and pounds in aid of our cause.
know that life invariably doesn’t go
With Christmas just around the corner
according to plan and we are keen
we are pleased to unveil our seasonal
£600,000 to show our resilience in the face of
adversity – something we have learnt
collection of cards and themed
merchandise. We have stayed true to
from watching others cope with
some of the old faithfuls, in particular
their individual battles with illness
the beautiful cards created by sick
youngsters which give a timely
£500,000 This edition’s gorgeous cover girl,
Marcie Loader, is a prime example of
message of what we are trying to
support, but we have also introduced
courage and positive thinking. In spite a few new designs that will hopefully
of being diagnosed with not one but appeal to all.
two different forms of cancer, Marcie
This newsletter is being sponsored
£400,000 continues to embrace life to the full.
Her story on page 5 will no doubt
by Guy Salmon Ascot, which has
recently chosen to make us one of its
inspire you too.
official charities. We are delighted to
Although building the holiday home be associated with such a prestigious
remains the Trust’s primary focus we company and look forward to
£300,000 have stepped up our commitment
to finding other practical avenues
working with their team to promote
the Trust in the future.
for supporting the families of children
Wishing you all good health,
with life-threatening illness.
happiness and a sense of peace for
Our interview with psychologist Karen the months ahead…
£200,000 Steinhardt highlights one way in
which your donations are helping to
make a real difference to the lives
of very sick children and their families.
It gives us a true sense of satisfaction
£100,000 to know that by funding this vital
post for the past two years we have
pioneered the way for future funding
through the Hospital Trust, ensuring Director
that psychosocial support will
continue to assist families affected by
their child’s diagnosis.
stia n, M a rch
House Overcoming hurdles…
In the last edition of the newsletter we explained how we were
preparing to submit our planning application for the proposed site
in North Waltham. Having consulted the local community we were
aware that some residents had reservations about our proposals but
we opted to submit our plans in the knowledge that we would do our
utmost to accommodate the concerns that had been expressed.
On 8th May, in a tense and emotionally The previous application floundered There is not room to thank by name
charged evening, our application principally because of its proximity all the individuals and companies
was heard by the full Development to an area designated as one of that have given their services so
Control Committee of the Basingstoke outstanding natural beauty, but also generously to enable us to get this far,
and Deane Borough Council. In because the council required greater but we truly appreciate your efforts.
spite of our passionate appeal we proof that this facility would meet
Sebastian’s illness was something of
were defeated by the narrowest of a “local need.” Our new site is in a
a rollercoaster and it would seem the
margins, seven votes to five. One of different sector of the village, which
fulfilment of his last wish is staying true
the councillors stated that it was the enjoys glorious views but does not
to form. In the end, we know it will all
hardest decision he had faced in his impact on the important scenic vista.
be so worth the wait!
term of office and the committee We have overwhelming support from
unanimously voiced their approval key personnel within the local and
for the Trust and its ambitions. regional hospitals and hospices, who
In rejecting our application, the have all testified to the dire need
Committee did, however, affirm that for the kind of crisis breaks we aim
they upheld the principle of what we to provide. This will help enormously
are trying to achieve and expressed with our efforts to convince the
their commitment to working with council that the holiday home will
us to find a site that would meet go some way towards meeting
with the Council’s strict criteria for a “local need” for families
building outside village settlement living with a child’s very
boundaries. serious illness.
To this end we have held several We plan to submit a new
meetings with the Council’s planning application in October
officials, who have assessed a and very much hope that
number of alternative sites offered by on this occasion it will have
our very generous land benefactor, the Council’s full approval.
Pat Sweeney. In just over three months A great deal has been
our self-styled Project Manager, Hugo achieved in a remarkably
Haig of Lochailort Investments, in short space of time and we are
conjunction with Mark Fitzpatrick of keeping our fingers crossed that
Bewley Homes and architect Richard 2008 will witness the completion of
Gandy of Philip Design Associates, this amazing project. P ic
esq th a
has performed near miracles to u e N o r th Wal
create a feasible alternative on
a new plot, again in the tranquil
Hampshire village of North Waltham.
With a larger plot we have been able
to incorporate additional features,
which although highly desirable
come at a cost. The fundraising
target for building the holiday home
has been revised to take this into
consideration, together with the
inevitable rise in costs over the last
three years since the initial building
target was set. We are now seeking
to raise £850,000 in total which w tu
should cover building and furnishing si t re
be by sq
the house. in g su r ve yed N o r t h W a lt h 3
Snowflake Appeal –
remember a loved one,
support Sebastian’s Action Trust
Christmas is traditionally a time for getting together with
friends and spending time with loved ones. But, everyone
has someone they will miss this Christmas – whether it be
a family member posted abroad in the armed forces, a
relative or friend who has died, or just a special person
who lives a distance away and who you will be thinking of
as the festivities unfold.
With this in mind the Trust will be running a Snowflake
Appeal in Bracknell town centre in the run-up to Christmas.
The appeal allows you to dedicate a decoration to that
special someone by writing your message on a Snowflake
Appeal card and placing it on the Christmas tree in Princess
Square, in return for a donation to the Trust.
To make a dedication you can visit us in Princess Square
from Thursday 22nd November to Friday 21st December,
2007, and fill out a snowflake in person, or you can
download the Snowflake Appeal form from our website
and send it to the Trust, together
with your donation. Your snowflake
will then be placed on the tree
The Trust currently needs to raise funds both to fulfil the
practical projects we offer to families with seriously ill
Everyone who makes a dedication children, but also to reach our new target of a further
will receive a glass snowflake to £200,000 to build and furnish the holiday home.
hang on their tree at home for the
Every penny and pound donated to the Trust is truly
person they will miss.
This is the first time for many years
that there has been a Christmas
tree in Princess Square and the
Trust has teamed up with Bracknell
Regeneration Partnership, who
Get yours now
own the shopping centre, to make The Trust’s stylish key-rings have been on sale through
the Snowflake Appeal happen. We our website for some time, but we now have smart
hope the appeal will help residents new dispenser boxes so that the key-rings can go on
and shoppers feel a real part of sale in shops and businesses.
Christmas in the town.
The boxes were designed by the creative team at
Windsor-based advertising agency Langland who
have adopted the Trust as their charity.
The key-rings can be purchased for a suggested
donation of just £1 and the money raised from
each sale goes directly towards funding Sebastian’s
We will be working hard to get the boxes into
as many businesses as possible, but if you can’t
wait long-enough to spot one of our boxes while
you are out and about, you can always buy
your key-ring directly from our online shop at
www.sebastiansactiontrust.org or contact us by
phone at the Trust on 01344 622500.
Just months after she was diagnosed effect from one of the drugs used
with Ewings sarcoma (bone cancer) in chemotherapy.
12-year-old Marcie Loader was
Marcie was referred to Bristol for
told she had a second cancer
a bone marrow transplant, which
– leukaemia. Here Marcie and her
was followed by three weeks in
mum Justine tell their story.
isolation, during which she was not
Marcie said: “After a weekend down even allowed to see her younger
at Uncle Stevie’s house near Bath, I sister Amelia, for fear of getting
started to get really bad pains in my an infection.
right foot and shin. After a couple of
Marcie said: “You weren’t really
trips to the doctors, I went to see my
allowed to wander around; you had Marcie in 2007
friend Doug Penn, a wonderful ‘back
to stay in one room for ages. I missed
man’, who told my mummy there was
my friends because they didn’t really
something ‘seriously wrong’ with my
come to see me in hospital, but they Marcie’s favourites
back. He spoke to our doctors who
rang me a lot.”
agreed, and referred me to the Royal
Colour: pink (and purple)
Berkshire Hospital, in Reading. Details of Marcie’s website and the
Actor: Daniel Radcliffe
hospital address were sent out to
“I stayed in Reading for a few days, Food: cheese
friends and Marcie said: “It was nice
while they did loads of tests on me. I Pets: a westie called Toto
to receive things, especially after the
met some excellent people including Pastimes: shopping, going to the
bone marrow transplant, because we
the big rugby-playing consultant cinema, spending time with friends
were stuck in that room.”
Mr Sean O’Leary. I saw him on 7th and riding on her uncle’s speed boat
Februray, and he told mummy and Justine and Marcie’s Dad, James, Hobbies: playing the hand bells and
daddy the MRI scan had showed that took it in turns to stay with her, piano, keeping in touch with friends
I had a growth, the size of a snooker on MSN and Bebo
swapping every 24 or 48 hours so
ball, in my spine, at the very bottom, there was always someone to take School subjects: art, swimming
in the sacrum (just above the coccyx). Amelia to school.
He said the tumour was malignant
For Marcie among the hardest things
which means it was a dangerous one,
about her illness was losing her hair.
a cancer which will carry on growing
two years, so when it was removed
until I go pop basically, so it needed Justine said: “She was walking down
she celebrated by throwing a party
to be stopped.” the hallway one day – a bag of bones
at the school pool.
with no hair and ears sticking out
Marcie began chemotherapy and
– and we said, ‘Marcie you really look Another hardship was the restricted
the family became used to frequent
like Dobby’ (the elf from Harry Potter); diet during treatment, when she
hospital stays. But after just a few
– she was broken hearted.” missed Chinese takeaway most.
months of treatment they were
told Marcie had developed Marcie’s hair has now grown back Marcie is now looking forward to
leukaemia – a known but rare side – but brown, not blonde as it was getting to know her baby brother,
before – and she has developed finding a new school for next year
freckles, which her family joke must and catching up on the holidays
have come from her bone marrow and activities missed over the past
donor. three years.
Another difficult thing Marcie said The family have found support from
is that she finds it harder to run around friends and family invaluable and
now. Marcie would like to thank everyone,
especially her friends Henny, Poppy,
“As much as she’d love to go off and
Jessie and Weezy.
do netball matches with everyone
else it is hard work. She added: “I am staying very
well with no symptoms at all for a
I think she finds school very stable;
while – all thanks to the wonderful
they are lovely people, they are
Dr Kate and her team, and a new
supportive all the time – no one
drugs regime. I do still need regular
questions her,” Justine said.
blood tests at Oxford – Denise is
Marcie hated having a Hickman there and she ALWAYS gets a vein,
line (a tube inserted under the which is great! What with my cute
skin through which she received new brother and a new school year,
treatment), which meant she could I’m really looking forward to the
not have a bath, shower or swim for next year!”
Marcie in 2003 5
The Trust is committed to providing whatever practical
support it can to families with a seriously ill child, sometimes
this means helping families with their individual needs to
make life that little bit easier. Staff from Angel
But sometimes we are also able to offer support in ways Beauty and Mark
Cooke Hair who
which help indirectly by alleviating stress or making donated their time
someone feel special, if only for a few hours. We will free of charge.
continue to strive to find new initiatives. These are just a few Picture courtesy of
of the projects we have fulfilled since our last newsletter. Bracknell News
The mobile library
The first of the Trust’s mobile libraries was recently presented
to the oncology ward at the Oxford Children’s Hospital in
memory of a very special little girl. Pampering day
The library was sponsored by staff at the Hilton Hotel, Following on from the success of our first Mums’
Bracknell, and was dedicated to the memory of their Pampering Afternoon at Wexham Park Hospital last year,
colleague’s six-year-old daughter Tayla Jacobs, who the Trust repeated the event in August with a further
underwent much of her treatment at the Oxford hospital. resounding success.
Sadly Tayla, the cover-girl for our last newsletter, died The afternoon was again held to coincide with the
on December 23rd 2006, following a courageous battle children’s oncology clinic and mums were able to
against neuroblastoma. She and her family had become indulge in relaxing massages, revitalising haircuts and
good friends of Sebastian’s Action Trust. soothing beauty treatments, in recognition of the fact
that parents caring for very sick children rarely have the
The library includes books on everything from specific opportunity, let alone the inclination, to consider their own
illnesses and coping techniques to the experiences of personal needs.
families who have lived through childhood cancer.
The hairdressers and therapists even managed to provide
It also features books for teenagers and story books for a special 16th birthday treat for the sister of one little boy
young children dealing with relevant topics such as who was in hospital in Oxford following surgery.
staying in hospital.
The pampering sessions have been widely recognised as
The mobile library is the first of several being collated by an important aspect of the support we are committed to
the Trust and our second trolley is soon to be donated to providing for the wider family network of those affected
the children’s oncology clinic at Wexham Park Hospital, by life-limiting illness. We are delighted to have the
in Slough. dedicated services of the staff at Mark Cooke Hair and
The idea for the libraries came from Jane Gates’ own Angel Beauty in South Ascot, who give their time and
experiences during Sebastian’s illness; her desire to read expertise freely to make life just a little easier for others
all the information she could and to learn about how coping with an undoubtedly stressful situation. Our thanks
other families had coped. go to both salons for their continued support and we look
forward to working with them in the near future on a new
Team members at the Hilton Hotel initiative for the parents of children who have recently
in Bagshot Road, Bracknell, where passed away.
Tayla’s father works as the Food
Services Manager, presented
Sebastian’s Action Trust
with a cheque for £1,182
to sponsor the first
mobile library In the coming months the Trust has committed to
fulfilling the following practical projects to help
families with a seriously ill child:
• Craft workshops for young cancer patients
• A siblings’ day – giving the brothers and sisters of
seriously ill children the chance to get together for
a day and enjoy different activities
• An annual service of remembrance and
thanksgiving at Dorchester Abbey for families and
friends of children who have died
around the door and say, ‘this is who I am and this is my
role’ so they know what a psychologist is and I’m not this
scary person who gets wheeled in if there’s a problem.’
Among her initiatives is a weekly Parents’ Group
where parents can discuss concerns and share their
Karen spends time with individuals to work out what is
worrying them and why, so that together they come up
with a strategy to help them cope.
She said: “I’ve just been to see a child who is vomiting
with anxiety every time they have to take medication.
I might be asked to see a child who has developed
acute anxiety around the changes in their appearance,
like losing their hair, or is worrying because they feel
less able to join in social activities than they used to. I
spend time with parents who are worried about how
their kids are coping, how to support them and how
far to push them.”
Common concerns for families with young children
involve managing distress and maintaining security.
Clinical Psychologist Karen Steinhardt
She said: “One of the key tasks when you have small
children is to make them feel safe and secure and it’s
What a difference a day makes hard to do that when you are moving them from pillar
to post [for treatment].”
In 2005 Sebastian’s Action Trust began paying for a clinical
psychologist to dedicate one day a week to families For children in middle childhood the issues are typically
attending the children’s oncology clinic at Oxford’s John around school, family and siblings; while teenagers
Radcliffe Hospital (now the Oxford Children’s Hospital) can experience worries about school or developing
– the main children’s cancer centre for the Thames Valley. independence when their treatment makes them more
dependent than ever on their parents. Problems such as
The aim was to ensure families have the ongoing
anxiety, needle phobias and trouble sleeping can affect
psychosocial support they need and not just in times
all age groups.
of crisis. Two years on, the hospital authority has agreed
to take over the funding. Karen Steinhardt, the clinical Part of Karen’s role is also to see families with children
psychologist in post, spoke to the Trust about her role and who are no longer on treatment and are adapting to life
how Sebastian’s Action Trust has helped. in remission.
A familiar friendly face with whom to discuss psychological The funding from Sebastian’s Action Trust, she said, has
and developmental issues arising from their child’s battle been a “huge help” and without it the need for the post
with cancer is something that was not generally available would simply never have been recognised. “I don’t think
to families at Oxford until 2005. this would have happened if Sebastian’s Action Trust
hadn’t approached us,” she said.
In the past families were referred to a paediatric
psychologist at times of crisis, but for the past two years The post allows her to offer families a more accessible
Karen has been able to get to know families; responding service which takes into consideration their journey
to the needs of the sick children, but also helping families through cancer, rather than responding to isolated issues.
manage the wider effects a child’s illness can have on
Ideally, Karen believes the hospital needs a psychologist
siblings, parental relationships and family life.
dedicated to children’s oncology two-and-a-half days a
The families of around 100 young cancer patients currently week. This would still leave them far short of what is offered
treated through the Oxford Children’s Hospital can access at some hospitals.
her services, but with just one day a week to meet their
She said: “I think we are fairly good at responding to crisis;
needs Karen has a challenge on her hands. Her answer is
extra time would allow us to be more proactive. I have a
to dedicate her time to a few effective initiatives, and to
huge list of things I would like to do. I would love to do a
meeting as many families as she can each week.
Grandparents’ Day once a year, groups for siblings and
Karen, who has been a psychologist at the hospital for groups for children just finishing their treatment or groups
nearly eight years, spreads her one “oncology day” across for parents of newly diagnosed children.”
her four days at the hospital each week to make herself as
But for now, Karen is focusing on maintaining the services
accessible as possible.
she has established for families over the past 24 months
She said: “I try to meet as many of the families as I can, – proof, if any were needed, that a day can make a
while they are inpatients at Oxford. I try to stick my head huge difference.
Trust launches new
The Trust quite literally launched its new logo in June by
Tr u st
releasing a large bunch of balloons bearing the new
design into the sky above Bracknell.
On Friday 8th June Sebastian’s mum Jane Gates, his sister
Rebecca and grandparents Pam and Vic Walters released
balloons bearing personal messages for Sebastian.
And on the Saturday shoppers and passers-by were invited a
to help release 100 balloons in the heart of the town which ba
has shown the charity so much support over the past two- on rG
it h B r a yo
and-half years. a c k n e ll F o re s t M
The official launch was held to coincide with the Thames
Valley Police Rowathon in Princess Square, at which the
gardening to business and more philosophical thoughts
new branding was used for the first time.
The Trust’s previous red logo was designed by the Bracknell
Among the entries in the book will be a quote Sebastian
News to launch Sebastian’s fundraising campaign at
liked from The Lord of the Rings – “All we have to decide is
Christmas 2003. It served the charity well, but the need for
what to do with the time given to us.”
a logo which could be used in different ways has increased
as the charity has developed. If there is a piece of advice you would like to share visit
Rus’s website at www.coach-and-courses.com and click
The advertising agency team from Langland adapted the
on Sebastian’s Action Trust e-book.
old design into a new format which could be used in full or
single colour, giving the Trust a more durable symbol that
allows it to be more consistent. Solicitors’ teams take on triathlon
Jane said: “The new logo encapsulates what we are Eight teams from Owen White Solicitors in Slough took
trying to achieve. First and foremost we are about trying part in the BananaMan Team Triathlon at Dorney Lake
to achieve this holiday home – they say a picture paints to raise funds for the Trust.
a thousand words and this does. We love the fact that it is
interchangeable, that we can use Sebastian’s photograph The event on Sunday 22nd July started with the eight
where appropriate – he being central to it is the charity’s Owen White swimmers diving into the rowing lake to
complete an 800 metre swim split into two 400-metre
roots, its origin. We believe the new logo is as strong and
swims with a 100 metre run in between.
enduring as those of any of the big national charities.”
The second leg was a 30-kilometre bike ride. The
Balloon leads to lessons in life majority of the firm’s teams completed six laps around
the lake in just more than an hour. Runners rounded
A balloon released to launch the Trust’s logo sparked a new off the race with a 7.5 kilometre dash, made more
fundraising initiative after it was found not far from where strenuous by the mid-day heat.
the charity hopes to build Sebastian’s holiday home. Managing Partner, Richard Keen who completed the
The balloon, released in Bracknell town centre, found its run to bring the first of the Owen White teams home
way to Dogmersfield, a few miles from North Waltham. said: “It was a great day. It was hugely impressive to
see over half of the firm’s staff take part in the event
Life coach Rus Slater discovered the balloon, which bore a and particularly satisfying to have been raising money
message to Sebastian from his family and one of the Trust for the Sebastian’s Action Trust.”
key-rings, while he was walking his dog.
The Bath Road firm selected the Trust as its charity for
He said: “I was walking across fields near my home when I 2007 and has so far raised more than £4,000 with a
found a helium balloon caught in the hedge; attached to it series of events including a barn dance.
was a dedication to a child and a key-fob from Sebastian’s
Action Trust. I looked at the Trust website and thought,
‘Here is a small charity, doing a great job for folk who really
need it, without the clout of the big national charities; they
can use all the help they can get’. So rather than doing a
sponsored walk, I thought I’d sell people something they
Mr Slater is creating an e-book of life-tips which will be
sold through the web in aid of the Trust later this year. It
will feature entries on topics from household hints and
Thames Valley alongside providing great
encouragement to other
Police rise to rowing families who are going through
challenge similar difficult times.”
Trust Director Jane Gates said:
Four teams of Thames Valley Police
“Sebastian would have been
staff put themselves through a
thrilled to see someone who had
gruelling 24-hour row in support of
successfully battled with Wilms’
the children the Trust aims to serve.
T h a m e s Va l
Tumour doing so much to help
27 police officers and civilian staff, set others who continue to live with
out to raise £5,000 by rowing 435,500 life-threatening illnesses.”
metres – the distance from Bracknell to
She said: “The event gave everyone
Lands End – on static rowing machines.
involved a huge buzz. The energy,
And they proved they were more than
commitment and determination of
up to the challenge – rowing in excess
the teams was incredibly heartening.
of 1,306,500 metres and raising more a
We are extremely grateful for their ct
than £5,000 for the Trust. n
The Rowathon, in Bracknell’s Princess
Supt. Rob Povey, who instigated the MacKay and Bracknell Forest Borough
Square Shopping Centre, was made Councillor Bob Wade.
June Rowathon said: “It is always
more poignant as rower PC Joy
rewarding to run an event like this The event was sponsored by Bracknell
Andrews had suffered from Wilm’s
in the community and we are very Regeneration Partnership, and was
Tumour – the same form of cancer
proud to have been able to do it for officially opened by Bracknell Town
which nine-year-old Sebastian Gates,
Sebastian’s Action Trust.” Mayor Cllr Adrienne Jones.
who started the charity, battled with
for two-and-a-half years. PC Andrews Chief Constable of Thames Valley Thanks go to Living Well at the Bracknell
said: “It was a fantastic opportunity Police Sara Thornton supported Hilton, Bracknell Leisure Centre and The
to take part in this challenge and the event, participating in a 2,000- Royal County of Berkshire Racquets
raise money for a charity close to metre challenge with members and Health Club who loaned rowing
my heart. It meant a lot to me and of the public. Other guest rowers machines, and The Grange Hotel who
my family for what we went through, included Bracknell MP Andrew provided accommodation.
Doctors to be! Sarah’s sister Laura lost her battle
with bone cancer in October 2003
became a way of life she decided
medicine was the only route for her.
It is always encouraging when at the age of 13, just eight weeks We are all so very proud.”
something positive can be achieved before Rebecca’s brother Sebastian
Rebecca’s parents feel Sebastian
in spite of great personal tragedy. passed away on Christmas Eve. Both
would be equally thrilled to know
Rebecca Gates and Sarah Dillon children, who became friends whilst
that Rebecca had fulfilled a long-
are shining examples of on treatment, showed tremendous
held dream to enter medical school;
remarkable courage; strength of character and judging
they think he would be tickled pink
despite the grief they by the devotion to study evident in
by her keenness to live in her “scrubs”,
have experienced Sarah and Rebecca it would seem
with stethoscope and bleeper always
at the loss of their that such strong qualities are family
only siblings, both traits. Sarah’s mum, Jayne said:
girls are about to “Sarah has always been interested We wish the girls the very best of luck
embark on the in Chemistry and initially when Laura in their studies - we know they will
long training to was diagnosed thought she would both be a credit to their
become doctors and dedicate her studies to cancer chosen profession.
both have expressed research; she has already obtained a
the desire to specialise in Biochemistry degree. However after
the treatment of children’s cancer. hospitals and the people within them
Cracking time had by all and donated it to Sebastian’s Action children all had
Trust because of the hotel’s close teaspoons to try
Young cancer patients at the Oxford association with the charity. and crack it – at
Children’s Hospital received a special
the other side of lE
Trust staff delivered the giant egg
Easter surprise thanks to the generosity the playroom staff, as
of a Bracknell Living Well gym member. for the children on Kamran’s ward su r p rise
parents and other
Jennifer Furnell, who attends the gym shyer children cheered
at Bracknell’s Hilton Hotel in Bagshot Gemma Downes, CLIC Sargent social and looked on. Thank
Road, won a giant Easter Egg in a raffle worker for the ward, said: “The you for all the fun the egg provided.”
Abbey recital raises funds Sebastian’s second
Music lovers helped fundraise for
two worthy causes by attending a
cousin Steve Gates
‘Concert for Spring’ at Dorchester describes his cycle
Abbey in April.
The piano and violin recital
was performed by pianist (and My neighbour and I had been training
Abbey organist) Jeremy Boughton for a series of club 10-mile time trials St e v e G a t e s
and violinist Sharon Warnes, when news of the British Cyclosportive
and featured sonatas by Corelli, came through. A chance to ride Stage
We had trained on the first of the
Mozart and Beethoven. One of this year’s Tour de France a
categorised climbs, Quarry Hill,
week before the pros seemed too
The concert raised funds for the but were astounded by the crowds
good to miss.
Trust and the Dorchester Abbey out to support us. At Matfield
Organ Fund. We were accepted and then the we encountered a nasty climb,
realisation dawned, 120 miles – this unmentioned in the route blurb, but
Our thanks go to Jeremy,
was going to be a challenge. I this was just a warm up.
Sharon and the Friends of
decided to focus on raising cash for
Dorchester Abbey. The second categorised climb
Bassie’s charity – announce it to the
at Goudhurst was an adventure;
world, obtain sponsorship and you
a very steep hill made tougher by
can’t back out!
two Dutch caravanners who had
Service with a smile My wife Di became a bike widow. We taken this busy Sunday morning to
on charity night trained on parts of the course – living
in Canterbury the final sections were
conduct motorised ballet dancing in
the high street, effectively blocking
Stylists at an award–winning Ascot well-known, including the daunting the entire road.
hair salon generously did away with Farthing Common climb.
Farthing Common was negotiated
their normal pricelists for a night and 1st July dawned, wet and windy relatively comfortably. Then came
instead asked customers to make with a 5am start. We were dropped the best part – the Roman road,
donations to the Trust. on Blackheath and could start Stone Street, 10 miles mainly downhill,
Smile Hair in Ascot High Street was straightaway. with the wind strongly behind us was
fully booked for the charity night, on heaven – 25 mph plus all the way into
It rained throughout the early stages:
Wednesday 29th August. Canterbury – this was what it was
Woolwich, Plumstead, a nasty little
about. We finished together in 7 hours
The event was a huge success and 1:10 climb at Bostall Heath, Erith,
raised more than £600 for the Trust. Dartford, Gravesend were all passed
Customers were able to relax with a in the drizzle amongst an endless Many thanks to our generous sponsors
glass of wine and listen to talented stream of riders. The only hold ups and supporters who helped make
saxophonist Barney Gilbert while one were the seemingly constant red it memorable and enjoyable. With
of the salon’s experienced stylists did lights – the pros have it easy with the my company’s (Abbey) “matched
their hair. roads closed! donations” scheme we raised
Salon Director Penny Etheridge, At Aylesford the tiny High Street is a
said: “I chose the Trust because traffic light-controlled one-way affair.
it is a local charity and Sebastian Cyclists were backed-up for half-a-
was a local boy so I think it’s very
relevant and I think it’s a very touching
mile and we were delayed at least 10
minutes getting cold and irritated.
Donations in brief
charity. • Crowthorne Village Singers
We have young people here and a entertained audiences with
certain percentage of our clients are songs from the shows for their
young so it’s nice to give something Summer Concert, raising £400.
back.” • Lynne Sollitt helped to raise
Jane Gates, Director of Sebastian’s more than £400 by inviting the
Action Trust, said: “There was a great Trust to hold the raffle at her
atmosphere on the night and lots stylish Spirit of Summer fashion
of happy customers. By donating sale at the Royal Berkshire Hotel
their services the staff from Smile in May.
Hair raised funds that will be directly • Bracknell Methodist Church
channelled into helping families.” s rugby sta
r donated £2,173 to the Trust as
s and Wasp
Jane Gate salon staff their nominated charity for 2006.
ell w ith
We thought you After a busy summer of family
holidays in Devon and Cornwall,
would like to know during which she did a lot of walking,
Sophie has just started senior school.
In the last edition of our newsletter She was nervous but the school have
you met 11 – year-old Sophie Hartley made allowances for her making
who is in remission from Ewings her form room on the ground floor
sarcoma – bone cancer in her leg. and allowing her to use the “Grand
Staircase,” which is normally only used
by staff. We wish her every success.
On the piste – Like father, like daughter
La Tania Fourteen year-old Zoe Heggie cycled 55 miles from
charity week London to Brighton to raise £203 in sponsorship.
Harley Davidson rides up Zoe’s Dad Craig, a spinning-class instructor, cycled from
the mountain, a boiled-egg Lands End to John O’Groats for the Trust last summer and
eating competition, sponsored at Christmas Zoe asked if she could complete the London
mountain treks and an epic float race to Brighton for the Trust.
down the slopes were just some of the ingenious ways Zoe completed the journey in 5 hours, 1 minute only
staff and residents of French ski resort La Tania raised stopping twice; once for a toilet break and
funds for Sebastian’s Action Trust this April. once for a well-deserved ice cream
The resort has supported the Trust for the past three years at the top of Ditchling Beacon
with their end of season fundraising. And this year they – the third-highest point in South
pulled out all the stops once again with a week of fun- East England.
filled events including; a ball, a barbecue and bands day, Craig said: “Zoe started to attend
sponsored hikes from the resort to Col de la Loze (which my spinning classes and in no time
some completed four times), and a “Charity day” outside she was cycling five miles, spinning for
Pub Le Ski Lodge where fancy dress was a must and where two hours and then cycling another
live music, games and vodka jelly were in plentiful supply. five miles home. She started joining me r
on a Sunday ride and it was then I knew joy in m
The resort raised around 20,000 euros which will be split Zo e e n e c re a
she was serious.” ic
between the Trust and a French cancer charity.
A huge thank you goes to all involved in this amazing “I allowed her to take part on the understanding that if she
fundraising effort – which had to be seen to be believed found it too tough she could pull out, but she plodded on
– for all your hard work and for choosing to support the and when she crossed that line to cheers and claps we
Trust once again. We are extremely grateful. all had a tear – I was the proudest dad ever.”
Donations in brief Life in a Day
• Hall Grove School parent Bill Rogers found a unique way Celebrity photographer and Special Friend of the Trust,
of fundraising when he organised an internet raffle. £1125 Alistair Morrison donated £1,300 from the sale of portraits
was donated by forum members of Detailing World; taken during his “Life in a Day” project – a collaboration
our thanks go to Bill for his enterprising ingenuity and his with Royal Holloway University in February.
supporters for their generosity!
The project combined photographic portraits, video
• Woodside resident Jonathan Greenyer raised £200 with a and audio clips to reflect the many faces that constitute
plant sale at his home in June. the college.
Ranelagh pupils dedicate Lent money Ben’s sponsored toddle
In May the Trust received cheques totalling £416 At 13-months-old Ben Bradford is the youngest
from pupils in Year 8 at Ranelagh School. The highly fundraiser ever to hold an event for the Trust. Ben
motivated pupils collected the sum through various and his mum Gemma held a sponsored toddle at
Lent projects including an X-box challenge and a their Bracknell home in March and invited friends
cocktail bar! One of the organisers was Angus Haynes, and family to join them for coffee and cakes.
a former school friend of Sebastian who had proposed Ben took a total of 18 steps to the finish line without
the Trust in memory of his pal. stopping and raised £120. A huge thank you goes to Ben
and his mum.
Guy Salmon Ascot practical projects. Stephen Cook, Store staff
Franchise Manager for Guy Salmon
supports the Trust Jaguar Ascot, said: pull out
Staff at Guy Salmon Ascot will be
working closely with the Trust in
“Choosing a charity to support can be all the
a difficult process; we wanted to put
the coming months as part of their more into our local area by supporting stops for
commitment to give something back and providing help for a local charity.
to their local community. Situated just on our doorstep in Ascot Sebastian
The prestigious Jaguar and Land High Street, Sebastian’s Action Trust Staff at Waitrose in Sunningdale
Rover dealership, which is just doors was the obvious choice.” played darts around the clock to
away from the Trust in Ascot High Staff from Guy Salmon Ascot fundraise during the week which
Street, has selected Sebastian’s should have marked Sebastian’s
Action Trust as one of its chosen 13th birthday.
charities, and has already shown
The 24-hour darts challenge was
support by kindly sponsoring this
one of many fundraising initiatives
edition of the newsletter.
staff at the London Road branch
The dealership will be giving away came up with during their charity
one of the Trust’s limited edition Bassie week in February, which raised more
Bears to each customer who buys a than £1,773.
Jaguar or Land Rover in 2007, as a
Sebastian’s mum Jane said: “We are
mark of support.
really grateful to the staff at Waitrose.
Employees are also looking to Sunday, 18th February would have
get involved in some of the Trust’s been Sebastian’s 13th birthday and
therefore it was incredibly fitting
Swinging Glasses charged for for our local store to support us in
success charity tasting Sunningdale Branch Manager, Gary
Wentworth golfers Collyer, said: “Waitrose is committed
The World Wine Tasting Company
got into the swing to working with the communities it
staged their second successful tasting
of fundraising serves. We know Sebastian’s Action
evening for Trust supporters in March.
generating almost Trust makes a big difference to the
£23,000 for the Trust under 2006 Ladies’ The event, held at Club 1 in Ascot lives of young people in our area and
Golf Captain, Hilde Holdsworth. High Street was a chance for guests we were proud to support them.”
to learn about wines from different
Hilde selected the Trust for her year regions, how to “taste” wine and
as Captain after attending several
Trust balls, she said: “I like what the
which wines go best with different
foods. The evening included wine
Katie loses her locks
Trust stands for.” and cheese, an informal quiz A brave 18-year-old swapped
The impressive sum was raised through and jazz. her long locks for a shiny bald
a series of events which included a head to raise funds for three
Our sincere thanks go to organisers
Spanish-themed Ladies Captain’s cancer charities.
Lucy Roe and Sally Barlow for another
Day hosted by Hilde, during which great evening. Katie Halstead took the drastic
80 ladies played 18-holes before
decision to have her hair, shaved
enjoying lunch and a raffle. For more information on The
off to fundraise for the Trust along
World Wine Tasting Company
Other fundraising events included with CLIC Sargent and Marie Curie
call 07855 437432 .
invitational days, members making Cancer Care.
donations to play with Hilde and
the club pro and the Wentworth
Of her year as Ladies’ Captain Hilde
said: “I loved it. I would like to thank
everyone for helping me to raise so
Our sincere thanks go to Hilde and
all who supported her and the Trust
during her captaincy.
Pictures courtesy of the
– Lu cy
12 Chee rs Ba rlow
The big event
Teeing off for Seb! Our next Our last big event:
Donnington Grove Ladies’ Golf big events: A Night at the
Captain Brenda Agutter heard of
the Trust when she was Clay-pigeon Moulin Rouge Ball
driving along listening
to a radio interview that shoot Cancan girls, a fire dancer and a
featured Sebastian’s contortionist were just some of the
Whether you are an expert or have
sister, Rebecca. colourful acts which brought the
never picked up a gun in your life, our
spirit and the spectacle of the world-
Brenda was so taken shooting day on Thursday 15th May,
famous Moulin Rouge to Wentworth
with Rebecca’s positive 2008, is a chance to experience a
for our May ball.
outlook and determination great British sporting tradition in the
to find some good from beautiful surroundings of Bisley. A Night at the Moulin Rouge, held on
Agutte r Saturday 12th May, raised £25,000 for
her brother’s death that The relaxed day would be an ideal
she chose our charity for her year the Trust.
opportunity to entertain clients or
as captain. catch-up with a group of friends The 216 guests were also entertained
Brenda had plenty of ideas for raising and will start with breakfast followed by magicians, an accordionist, a
funds including a very professional by an 80-bird shoot, pool and flush. stilt walker and caricaturist during
clothes and fashion show, featuring Individuals are also welcome. The the evening, before enjoying a four-
many of her fellow golfers, which shooting will be followed by lunch course meal and joining in the charity
proved extremely popular with all in and an auction – a chance for auction and dancing to The Soul
attendance. Our thanks go especially you to revel in your achievements Intention Band.
to Brenda, who was ably supported and perhaps pick up an award
Our sincere thanks go to our
by fellow captain Paul Sherriff, during the prize-giving. Tickets
dedicated ball committee.
fundraising champion Tony Coleman cost £225 per person and can
and the members of Donnington be purchased from the Trust on
Grove Country Club who have raised 01344 622500.
an impressive £7,680.
Generous gift A fun activity-packed walk for all the
from glamorous family will take place on Sunday 28th
October at 11am. Leaving from the
school ball overflow car park of the Look Out,
the 5km or 10km sponsored walk will
Parents from Eton End School in take families through the picturesque
Datchet generously donated more woodland of Swinley Forest and
than half the money raised at their there will be plenty of activities along
2007 ball to the Trust. the way to break up the journey,
The event held at Wentworth in March including a spooky quiz and ghoulish
raised an impressive £11,000: £4,500 games such as apple bobbing and
for school whiteboards and £6,500 pumpkin bowling.
donated to the Trust. The event will be the Trust’s
The pupils designed posters of third Halloween Walk and is Moulin Rouge Ball
what they thought a ball would be once again sponsored by the
like which were used for the event Bracknell News.
publicity and stationary. Fancy dress is optional but adds to
Thanks go to Alison Parsons and her the sense of fun. Children under 14
committee for selecting the Trust to should be accompanied
benefit from all by a responsible adult.
their hard work Entry costs £7 for adults,
and generosity. £3 for children and £18
for a family. To book your
place contact the Trust on
Children enjoy 2005 Halloween Walk
Pupils’ poster design
Our son willed us home with pride
In 2005 I enjoyed one of my proudest moments when I watched my husband complete the London Marathon as part
of the Sebastian’s Action Trust team. Having witnessed his dedication to the gruelling training programme I knew that
Mike had truly earned his medal and I never imagined that I would ever emulate this feat.
Last year Mike persuaded me to The first 10 miles went like a dream; of an infinite number of worthwhile
join him in entering the Windsor Half we were keeping to our 4 hours causes. I felt so humbled to be a part
Marathon – running was something and 30 minutes time plan and in of the occasion and I would have
that had never previously appealed spite of the heat (if only this summer no hesitation in recommending the
and I had always been happy being could have been like that day experience to anyone – if I can do it,
part of the backup crew. We didn’t in April!) all was going well when anyone can!
achieve an exciting time but it was, disaster struck! I managed to lose my Jane & Michael
nevertheless, something that we footing at the 10 mile water station, Gates after the
could do together in Sebastian’s damaging my ankle and effectively London Marathon
memory and it spurred us on to aim for curtailing my running for the rest of
the ultimate – the London Marathon! the day. Being a loyal sort of chap,
Mike refused to leave me and we
We followed the Hal Higden training
completed the marathon in a less
programme for novices and on many
than spectacular 5 hours 50 minutes,
occasions we were joined by our
secure in the belief that our son had
daughter, Rebecca. Gradually daily
willed us home with pride.
life began to revolve around “the
plan” and I found genuine pleasure Running the marathon was a truly
in the time we dedicated to our new wonderful experience for many
found hobby. On the big day we different reasons; it is a personal
were as prepared as we could be achievement that cannot be
and it was an emotional moment as undertaken lightly, but it was so
we crossed the starting line, hand amazing to be a small part of a
in hand. huge fundraising initiative in support
in two-and-a-half hours but shocked Reading Half Marathon – on Sunday
Newspaper myself by finishing in under two hours. 25th March. I had to get up and train
continues My clocked time was 1 hour, 58
minutes and 16 seconds. Each week
before I went to lectures – this was so
hard sometimes, especially on cold
long-running was a struggle but I kept to a fitness and rainy days. Soon it became habit
support. programme of five days of exercise though and I started to enjoy training.
Shortly before my run I strained a
and my hard work paid off. I was
Ascot News reporter amazed by my achievement and hamstring, so I had to take a few
Louise Gaw furthered felt fantastic that I was doing it for a weeks off intense training and I was
the newspaper’s long-running great cause.” worried I wasn’t gong to make it.
support of the Trust when she took up
Louise was the second News reporter However I arrived fit and well on the
a personal challenge of running the
to complete Bracknell Half Marathon day. There was such an incredible
Bracknell Half Marathon in April.
for the Trust – former News reporter atmosphere and the buzz before the
Weeks of training paid off with an James Osborne also completed the race was brilliant. It was an amazing
impressive time and £310 for the Trust. course in 2004. experience and I can not wait until
my next one – a couple more half
Louise said: “I wanted to take up
marathons for experience then on to
a challenge in the New Year and
the full marathon!
thought I should get fit by doing
something I could be proud of Charlotte I wanted to raise money for a local
achieving. I thought about running Brady charity and after researching,
the Bracknell Half Marathon the
previous year but did not think about
describes Sebastian’s Action Trust seemed
a very good cause – in the end I
training until it was too late. Writing her first raised £160.
for the Bracknell and Ascot News I
was able to promote my fundraising
half marathon Thank you to all who came and
supported me from home and
campaign while at the same time “It was my first year at university and
university – it made the day a
showing people how anyone can I was determined to join a gym. After
take up the challenge, if they are going for a couple of months I wanted
willing to put in the work. I was initially to make my training worthwhile, so
on target to complete the 13.1 miles after Christmas I started to train for the
The London Marathon
On an unseasonably hot day in April
be very proud of. Taking part is an
six runners Mick Maguire, Nigel Dixon,
emotional experience. The highly-
Brian Warner, John Breslin and Jane The extraordinary efforts of
charged atmosphere keeps you
and Michael Gates donned the Trust’s runners – whether they be
going when your body is screaming
colours and completed the London first-time challengers or
at you to stop.
Marathon. Here’s what they have to
seasoned competitors – make
say about the experience:
Name: Brian Warner a huge difference to the Trust
Age: 32 each year.
Name: Mick Maguire
experience: Marathon We are looking for runners of
experience: The London all abilities to enter events and
Personal goal: Under
Marathon 18 years ago, raise sponsorship for the Trust.
3 hours, 30 minutes
and quite a few local runs. If you are thinking of taking on
Reason for running:
Personal goal: To get a challenge here a just a few
I read the
under 4 hours for this dates for you to consider:
information sheet about
Sebastian at Longacres Garden
Reason for running: I want to help
Centre, in Bagshot, and was
in any way I can, to help children or
extremely moved by his courage and London 10k
families going through this kind of
humbled by what had happened to Monday 26th May, 2008
Sebastian and his family. This exciting new race will follow
Achieved: 4 hours, 23 minutes
Thoughts: Blisters, sunstroke and heat Achieved: I waddled over the finish a stunning route through central
exhaustion – glad to have done it line, my time was 3 hours 58 minutes London.
again, but I think I’ll stick to the half SUB 4 hours!!! Visit www.london10k.co.uk
marathons in future. Thoughts: The run started well. I to book your place.
thought the heat was quite nice;
Name: Nigel Dixon it created a nice summer morning
Age: 44 atmosphere, but how things were Reading Half Marathon 2008
Previous running going to change! Things were still Sunday 2nd March, 2008
experience: 50 or 60 going well at the half way point, A great half marathon to try,
half marathons, but when I reached 18 miles the
5 triathlons, taking you past many of the
1 London town’s landmarks.
Marathon – in 2001. As I progressed through the race Entry is now open visit www.
Personal goal: To get round the cramp got worse and worse, my asicsreadinghalfmarathon.co.uk
in under 4 hours. target time of sub 3 hours 30 minutes to book your place.
Reason for running: I was not soon changed to sub 4 hours. The last
intending to do it for charity until I was four miles was some of the worst pain
approached by a friend at work who I have ever felt – it was the crowd that
Flora London Marathon 2008
knew Sebastian. He told me his story. pulled me through.
Sunday 13th April, 2008
Having a young child of my own I
This world famous marathon
can, I suppose, begin to imagine Name: John Breslin has to be on every runner’s
the terrible loss his family have Age: 48
suffered. They have, as Sebastian “To do” list.
had, been very brave and positive The Trust, like many charities, is
and I am delighted to be able to on a waiting list for places, but
support his Trust. Personal goal: To get you could still run for the Trust by
Achieved: 3 hours, 49 minutes round the course. entering yourself into the official
Thoughts: Reflecting later, over a large Hopefully under race ballot for a place. Entry for
glass of Bourbon, on an interesting 4 hours. the ballot closes towards the end
day, inspirational actually. At about Reason for running: I have of October.
four miles I saw a guy with both legs run for Sebastian in Dublin and Visit www.london-marathon.co.uk
amputated from the knee down. His thought it would be really nice to do
lower limbs were replaced by metal it again. The charity has raised a lot
rods and his feet were replaced by since then, but I am sure it will always
flexible pieces of L shaped plastic. Bracknell Half Marathon
He was young and was laughing and Sunday 29th April, 2008
Achieved: 4 hours, 18 minutes
smiling. Other runners were clearly The date has only been booked
Thoughts: Everything about the day
amazed. I saw him again at the finish. was great; I was thrilled to complete provisionally at this stage, more
He had caught me up! the course and to raise money for details will be released around
The London Marathon is the the Trust. Having previously run the Christmas.
most popular in the world. It gets Dublin Marathon for Sebastian, I was Contact Bracknell Forest
bigger year by year. It is superbly delighted to have so much staunch Borough Council on 01344
organised and the support provided support again from people who had 424642 for more information.
by Londoners and others is truly already given so generously to this
overwhelming. It is a national treasure special charity.
and something our country can
Please visit the
events page of our website
for more information
and up to date
diary events listings.
Sunday 28th October, 2007
be held each night. Special events will Hilton Bracknell Autumn Ball
Swinley Forest, Bracknell
take place in the town and the shops Saturday 20th October, 2007
The Trust’s third family walk with a will be open late on Thursday 22nd The Hilton Bracknell Hotel, Bagshot Road,
Halloween theme. The walk will start and November, Thursday 29th November, Bracknell
finish at the Look Out’s overflow car park. and Thursday 13th December. The hotel is organising a ball in aid of
See page 13 for more details. the Hilton in the Community Foundation,
Reflections Annual Candlelight Service of
which supports Sebastian’s Action Trust.
Hall Grove Craft Fair Remembrance and Thanksgiving
Tickets priced £34.95 include a
Saturday 10th November, 2007 – 11am – 3pm Sunday 2nd December, 2007
three-course dinner and are available
Hall Grove School, Bagshot Dorchester Abbey
from Lydia Pugh on 01344 424801.
A chance to stock up on Christmas gifts A service of music and readings for
and decorations away from the crowds parents, relatives and friends who have Sebastian’s Action Trust Clay Pigeon
on the high street. There will also be a lost a child, adolescent or young adult. Shoot
chance for children to make Christmas Thursday 15th May, 2008
gifts at one of the craft workshops. Snowflake Appeal
Bisley Shooting Ground, Surrey
Entry by donation. Thursday 22nd November – Friday 21st
A relaxed day open to novices and
Carols and Shopping experts alike. Enter as an individual or as
Princess Square, Bracknell
a team and enjoy an 80-bird shot, pool
Thursday 22nd November – Friday 21st We all have someone who we will miss and flush in beautiful surroundings.
December, 2007 this Christmas for whatever reason. This is
Princess Square, Bracknell The day will begin with breakfast and
a chance to remember them by placing
the shoot will be followed by lunch and
Come and join us at Princess Square as a snowflake with your personal message
local schools help raise funds for the Trust on a tree in Bracknell town centre and
with carols and festive performances to take away a glass snowflake for your Tickets cost £225 per person from the Trust
each week night. Bucket collections will tree at home. All proceeds will go to on 01344 622500.
Sebastian’s Action Trust.
Sponsoring the newsletter This edition of the This will give you an opportunity to promote your organisation to
newsletter has been sponsored by Guy Salmon Ascot. We would a readership in the region of 6000. If you are interested in helping
very much like to secure a sponsor for each future newsletter. Sebastian’s Action Trust in this way, please contact Jane or Sarah
on 01344 622500 to explore the possibilities further.