STROKE MANAGED CLINICAL NETWORK (MCN)
STROKE PUBLIC INVOLVEMENT SUB GROUP
Minutes of meeting held on Wednesday 8 March 06
Meeting Room 1, Westholme, Woodend Hospital
Chairperson: Margaret Somerville, Chest, Heart and Stroke Scotland
Alan Emslie, Member of Public
Barbara Dalgetty, CHSS
Douglas Conochie, Member of Public
Elizabeth McDade, Healthcare Worker
Therese Jackson, Consultant OT - Stroke
Mrs Christine Gray – Secretary CHD/Stroke Office
In attendance: Mr Alistair Bain, Scottish Health Council (Observing)
Ms Elaine Cardno, Local Officer, Scottish Health Council
By Invitation: Ms Laura Dodds, Public Involvement Officer, ARI (Presentation)
Elizabeth Durward, Manager, One-to-One, Care Company
Beckie Palmer, Carer, One-to-One
Linda Ferguson, Carer
1. Welcome and Apologies
Welcome to Laura Dodds, Elizabeth Durward, Beckie Palmer, Elizabeth
McDade and Linda Ferguson
Apologies from Mr Gordon Edgar and Mr Sandy Reid
2. Presentation from Public Participation Forum
Laura Dodds gave a presentation – see attached Appendix 1.
Action following presentation:
Elizabeth McDade agreed to be the group’s link with Grampian PFPI
It was noted that as per Appendix 1 the planned initiatives for patient
focus and public involvement included the production of Patient/Public
Rep information packs and training and a public involvement toolkit and
training for staff. Laura agreed that the group would receive further
information on these matters in due course.
3. Notes of Previous Meeting on 29 November 2005
4 Matters Arising
Moray Young Stroke Group
To note that the meeting which had been scheduled for 7th March had had
to be cancelled. Barbara to ascertain further availability dates from Sandy
and re-schedule. Douglas and Therese also to attend.
5. Remit and Membership of Group
A draft Remit and Make up of Public Involvement Sub Group was tabled
This was discussed, amended and agreed – see Appendix 2. To be tabled
at the next Project Board meeting for their approval.
A draft template– Stroke MCN – Patient & Carer Involvement was tabled.
– see Appendix 3.
Basically this was suggested to be used as a record of all activities being
carried out within the Stroke MCN. Members of the group were happy to
adopt this template for use. It was noted that contact names would be
included on the completed template; however telephone contact for further
details if required could be via Christine on Aberdeen 556713.
Frequency of Stroke Public Involvement Sub Group Meetings
It was agreed that meetings would be held on a 3 monthly basis (plus if
any specific piece of work was needed to be done a small core team could
meet in the interim). After some discussion, it was decided that the
meetings should last 2 hours maximum with a five minute break in the
middle. The time would change for an earlier start i.e. 1.30pm.
Westholme was a helpful venue for disabled parking etc. but it was also
suggested to Christine that the Staff Home on the Woodend Hospital site
could be an alternative in the event of securing a venue being a problem.
To avoid Wednesdays and Mondays for meetings if possible.
For the benefit of those present for the first time at the meeting some
background information regarding the protocols was discussed.
Secondary Prevention Protocol – It was noted that Douglas had adapted
this protocol to make it more patient friendly. Margaret had taken
Douglas’ draft to Dr Mary Joan MacLeod, Chairperson of the Acute
Stroke Sub Group for her comments etc. To await further word from Dr
Stroke Discharge Protocol – Therese reported on this item.
A copy of the Stroke Discharge Process Protocol that Therese had
produced along with members of the Stroke Discharge Sub Group was
now on the Stroke Website for public information. Any member/potential
member to contact Christine Gray, Aberdeen 556713 who could direct
them on how to access this website.
This protocol would be a dynamic document which would be looked and
amended /updated as required in 18 months time – it was by no means
“written in stone”. Any comments were most welcome. It had been
produced for use by health professionals and the Stroke Public
Involvement Sub Group members had agreed that it should be looked at
with the aim of producing a simplified version which would be more
easily understood by members of the public, carers and stroke patients.
To note that Barbara Dalgetty was working on an aphasia friendly version
in collaboration with CHSS Speech & Language Therapists and would be
organising a focus group with members of the Volunteer Stroke Service
in Aberdeen and in consultation with Therese. Alan and Douglas were
planning to attend the focus group. Invitations would also be extended to
stroke patients identified by the Grampian Stroke Nurses.
7. Information Provision for Patients and Carers
Therese stated that the Stroke Discharge Sub Group which had now
completed the Stroke Discharge Process would now be focusing there
attention on getting some order and equity to the mis-match of patient
information which was given out on patient discharge. The Discharge Sub
Group which thus far had been meeting in Aberdeen would be in future
meeting in Moray with colleagues to take this next part of the work further
and strive for equity of service.
Points raised regarding patient information:
There were differing views – some patients felt they were overloaded with
information whilst others felt the information was just sufficient or they
did not get enough. People’s experiences were different. Douglas also
raised the matter that he felt excluded from the weekly multi-disciplinary
meetings whilst he was in the Stroke Rehabilitation Unit and felt that
patients and relative should be in attendance.
The matter was raised that Carers might not know where to turn to for
help. Elizabeth had access to some information, which was not stroke
specific but could be useful for the group to know.
To note that this item regarding patient information to be placed as an
agenda item next time for further discussion.
8. Training involving patients and carers
Margaret reported on some of the work being piloted in Highland, which
could be considered for Grampian region in the future, if deemed
Lochaber Education Programme – a 7 week programme involving one
afternoon per week was held inviting patients (and carers) who has been
discharged home from hospital. This programme gave education to
carers and stroke patients. To note that it had been taken to the Stroke
MCN Project Board and Mr Sandy Reid, Network Manager, would place
an article about this in the next Stroke newsletter and give the Stroke
Training Co-ordinator’s name as a contact if anyone was interested in
organising such a programme in Grampian.
Relatives Clinic – Piloted by Highland, which was run by the hospital
Consultant where relatives of stroke patients had the opportunity of a one-
to-one consultation with the Consultant. Margaret would feed back to the
group about how the pilot was proceeding and if it was successful to then
decide whether it was a worthwhile option to consider in Grampian.
Training Patients and Carers
Margaret stated that Highland were evaluating whether it was useful for
patients and carers to attend training sessions, to describe their experience.
To note that in Grampian patients now attend and it was hoped to include
carers soon. Health professionals evaluate these sessions very positively.
Action: Margaret to bring this matter back to group on next agenda for
further discussion etc.
NHS Grampian MCN – Training Co-ordinator
To note that Lynsey Richmond the Stroke Training Co-ordinator for
Grampian held training courses (no fee) which were open across
Grampian for anyone who worked with or was involved with stroke
patients and carers. The courses had been running since September last
and were proving very successful. Bookings were now into 2007!!
Any member of the group willing to support these courses would be very
Douglas felt that training and communication with patients left a lot to be
desired. Therese noted Douglas’ comments in order to address this issue.
9. Scottish Health Council
PFPI – Stroke MCN Submission
It was noted that Elaine Cardno and Alistair Bain were present at the
meeting in order to observe. They were collecting information in order to
produce a report for the Scottish Health Council and the stroke public
involvement focus group and members were invited to feed back to the
Scottish Health Council with information for this report.
10. Feedback from NACS
To note that Douglas had attended a meeting of the NACS on Monday 6
March 06 in Edinburgh. It was agreed that Douglas would email Christine
a copy of his report from the meeting and Christine would circulate. This
report will follow and be circulated along with the agenda for the next
meeting. A date for the next meeting had not as yet been decided.
CHSS – Glossary of Terms
Margaret distributed a booklet produced by CHSS giving Glossary of
Terms to help people to understand common terms used when talking
about the health service and chest, heart or stroke illness. Margaret
requested the group to look at this booklet and feed back thoughts etc.
QIS Document – NHS Grampian – local report Nov 2005 “Stroke
Services: Care of the Patient in the Acute Setting”
To note that Douglas had a photocopy of this document, which was not
clear to read. The document was in short supply but Christine would try
and obtain an original copy via Pamela Harrison in the Clinical
Governance Department at Aberdeen Royal Infirmary.
Scottish National Stroke Workspace – paper
Douglas passed a copy of this paper to Christine and requested it be given
Christine would see Mr Sandy Reid and ascertain how wide a circulation
Stroke Psychology Service
Douglas raised the matter of whether there was a service in Grampian.
Margaret confirmed that there was a Neuro-Psychologist who was based
in the Acute Stroke Unit at ARI.
12. Date of Next Meeting
It was agreed that the next meeting would be held in Meeting Room 1,
Westholme, Woodend Hospital on Tuesday 20 June 2006 at 1.30pm until
3.30pm. Tea and coffee to be provided. Christine had booked venue.
Public Involvement in NHS Grampian – An Overview
The National Health Service Reform (Scotland) Act 2004 places a duty on NHS Boards to
involve and consult the public when planning and developing services and when there are
decisions to be made that significantly affect the operation of these services.
The Scottish Health Council, a new body set up by the Scottish Executive, independent from
NHS Boards, has a role to assess how well the NHS is doing on involving the public.
What is involvement?
A simple definition - people can be involved in their or a relative’s individual care, in services
or at a service planning level.
How much influence patients, public and carers have when they are involved can vary from
just being informed right through to being equal partners.
NHS Grampian provides NHS services for about 500 000 people living in Grampian, and
these services are overseen by an NHS Board. The Grampian NHS Board is responsible for
improving the health of the Grampian population, and for delivering the health care required.
NHS Grampian consists of acute services, corporate services and three Community Health
Partnerships. It also works closely with the local authorities, voluntary sector organisations
and the universities.
There are 3 Community Health Partnerships in Grampian– Aberdeen, Aberdeenshire, Moray
– planning and providing primary and community health services.
Public Involvement in NHS Grampian
NHS Grampian has a Board Committee for Patient Focus Public Involvement (PFPI) –
chaired by Margaret Burns, Non Executive Board Member. The Committee has recently
approved its revised Public Involvement Framework and Action Plan.
NHS Grampian Community Forum is a group of members of the public who work in
partnership with clinical staff and managers of NHS Grampian. The Forum meets 4 times a
year and has discussed and debated issues such as out of hours services, infection control and
Each Community Health Partnership has to set up a Public Partnership Forum which should
be the main way it engages, communicates and consults with the local population.
The Acute Sector does not need to set up a public forum but is looking at ways to make sure
people are involved. The sector has a PPFI Group for staff which meets to share good practice
and discuss issues.
The Corporate Communications Team for NHS Grampian has a small number of staff which
support the PFPI agenda – public involvement, patient information, equality and diversity,
disability discrimination, volunteering and advocacy.
How is NHS Grampian doing?
NHS Grampian has recently submitted its Performance Assessment Framework document to
the Scottish Health Council. The assessment includes how the organisation involves patients
and the public, involves staff, handles complaints and addresses equality and diversity issues.
The Scottish Health Council is currently looking at the submission.
Planned Initiatives for Patient Focus and Public Involvement
Information Pack for Patient/ Public Representatives
Training for Patient/ Public Representatives
Public Involvement Toolkit for Staff
Public Involvement Training for Staff
“Major” Public Consultation Activities
Public Involvement Officer
Corporate Communications Team
Draft Remit & Make Up of Public Involvement SubGroup
Facilitator: Margaret Somerville
Phone No. 01463 712273
Proposed Time-Table Agreed on 8th March 2006 – to be put to Project Board
Remit of Group and Issues being considered
Act as Advisory Group to Stroke MCN on any relevant issues, contributing to steering the agenda
and strategy for Grampian
Each member to act as a link to their organisation or committee which they attend, as appropriate
Monitor how patients and carers would like to be involved and informed
Provide guidance and support to SubGroups to enable patients & carers to be involved
Act as central point of contact to log and disseminate involvement and issues as they pertain to
patients and carers
Report back to and feed in from, if appropriate, member organisations and other committees
Disseminate best practice
Contribute to Protocol development
Identify training needs of patients/carers
Comment on relevant sections of the Quality Assurance Framework
Make up of Sub Group:
Name Designation Location
Margaret Somerville CHSS Deputy Director of Advice & Support CHSS, Inverness
Barbara Dalgetty CHSS CSN Regional Manager CHSS, Elgin
Sandy Reid CHD/Stroke Network Manager Westholme
Alan Emslie Member of Public (ex patient)
Douglas Conochie Member of Public (ex patient)
Linda Ferguson Member of Public (carer) (considering
Liz Durward Manager, One-to-One, Care Company
Therese Jackson Consultant OT Westholme
Elizabeth McDade Carers Information Worker for Health Care
Steve Brockman Charge Nurse wd 6, Woodend Sent minutes/agenda for
Gordon Elgar Development Officer (Service user and Carer Sent minutes/agenda for
National Advisory Committee for Stroke (NACS)
Stroke MCN Subgroup
Patient & Carer Involvement: 2005/06
Activity Geographical Area Purpose Further details Contact Name
Patient Focus Groups To inform how April 2005 May 2005 Barbara Dalgetty
Aberdeen area patients would like
to be involved
Patient/Carer feedback by questionnaire To inform May 2005 Feb 2006 Includes aphasia Margaret Somerville
regarding Stroke Nurse Service (SNS) Grampian wide development of friendly
service evaluation form
Patients/Carers speaking at Training ?As part of
events introductory and
Aberdeen Latest event Ongoing Lynsey Richmond
Visits to Different Strokes Update groups on March Sandy Reid/
Elgin MCN activities 2006 Therese Jackson