Oncology Nursing Society:

							ONCOLOGY NURSING SOCIETY
SURVIVORSHIP, QUALITY OF LIFE & REHABILITATION (SVP)
SPECIAL INTEREST GROUP MEETING
APPROVED MINUTES


DATE:                Thursday, May 4, 2006
PLACE:               Boston, Massachusetts, Boston Convention & Exhibition Center, Room 206A, Tables 7 & 8
TIME:                5:15 PM (ET)-6:30 PM (ET)
COORDINATOR:         Dottie Gutaj, RN, BSN, OCN®, Ex-Officio (as of 5/7/06)
RECORDER:            Nadine Wampler, RN, MSN, OCN®, SIG Coordinator as of 5/7/06

ATTENDEES:           23 members/guests present (List of attendees attached)

I. Welcome
  Dottie Gutaj, RN, BSN, OCN®, Coordinator conducted the Survivorship, Quality of Life and
  Rehabilitation SIG meeting at the ONS 31st Conference in Boston, MA. She welcomed all members
  and guests to the meeting. She introduced herself and Nadine Wampler RN, MSN, OCN® as the
  Coordinator-Elect. Each member and/or guest introduced themselves and discussed where they
  worked and/or lived.

II. Approval of 2005 Congress Minutes
  The minutes from the ONS 30th Conference in Orlando, Florida were reviewed and approved.

III. Discussion Related to How to Achieve More Knowledge About Our SIG
   Dottie discussed the SIG’s “Strategic Plan” giving emphasizing on past goals. She talked about
   weaknesses in the past years related to the small commitment of our SIG members. A questionnaire
   was done for the past two years to address these issues. She requested suggestions from the group
   of ways our SIG members could become more involved and how our SIG could become more
   recognized:
   A. Information distributed at the meeting included:
       A copy of the Survivorship, Quality of Life & Rehabilitation SIG newsletter.
       Survivorship, Quality of Life & Rehabilitation SIG Fact Sheet.
       AJN March 2006 Supplement magazine with emphasis on the article “Cancer Survivorship A
          First-Person Perspective”.
  B. Discussion:
         How and when the SIG became three parts: Survivorship, Quality of Life and Rehabilitation
          SIG membership as of March 2006 was at 202. This year Dottie has been e-mailing new
          members and welcoming them into the SIG.
         The SIG Strategic Plan; the purpose of the SIG was discussed.
         Institute of Medicine booth initiated by Betty Ferrell is good publicity for SVP SIG. Members
          were encouraged to volunteer and inform others to visit the booth. A copy of the AJN March
          2006 Supplement Magazine and the SIG Fact Sheet will be handed out at the booth.
  C. Volunteers essential:
         Dottie talked about the newsletter and the need for volunteers to write for the newspaper. We
          try to do three newspapers per year with a specific topic related to “survivorship, quality of life
          or rehabilitation. Anyone may submit an article for the newspaper and they do not need to be
          a member of our SIG.
         We need an editor for the newspaper.
            We need members to consider submitting an application to run for the Coordinator-Elect for
             2007. One member of the SIG group discussed the benefits of being a SIG leader such as:
                50% off new publication
                Travel, 2 nights per diem/hotel at Congress (must attend SIG Leadership Orientation
                 Workshop)
                Registration discount for Congress or Institutes of Learning
                Flight reimbursement
                Leadership Opportunities where there is “no greater reward”

IV. SIG Strategic Planning
  Ideas for the direction of the SIG were discussed by numerous members of the SIG
  group. Some of the suggestions are as follows:
           Awareness about research grants for breast cancer and survivorship.
           Doing an interdisciplinary project related to survivorship with other SIGs or with other health
            care professionals and presenting the project to ANA, Oncologists, ASCO and other meetings.
           Doing a presentation for 2007 Congress. Suggested Topics included “Nuts and Bolts of
            Starting a Survivor Clinic Paradigm” or “What Cancer Survivorship Really Is” or “Rehabilitation
            and It’s Role in Cancer Survivorship”
           It was suggested to have Survivorship topics be the Clinical Hot Topics at the 2007 Congress or
            at 2006 IOL. Breast Cancer Survivorship with shared stories was one suggestion. Having
            cancer survivors share stories about different phases such as what was helpful, not helpful,
            sexuality issues, physical issues and rehabilitation issues.
           Having a Steering Council to talk about “Late Effects of Treatment & Survivorship” and take this
            program to other Chapters and even consider doing a CD like the Radiation SIG.
           Working with the Radiation SIG on “Survivorship after Radiation Treatment”.
           If anyone is going to submit a topic to be presented at 2007 Congress it must be submitted by
            May 21, 2006.
           Laura Fennimore (as a member of the Liaison Panel for ONS) gave suggestions of topics for
            Congress 2007 such as “Nurse Survivors” “Helpful Ways With Peers”, “Oncology Issues” and
            “Survivorship Clinics-How to be Included”.
           Updating the poster and displaying the SIG Survivorship, Quality of Life and Rehabilitation
            poster of the fall IOL and at 2007 Congress was a suggestion.
           Many issues that were discussed and we will continue to follow-up and see who is willing to
            work on certain projects and presentations this year and in the coming years. Nadine and Dottie
            will be contacting members to see where there interest is and what we can do out of this long
            list of worthwhile suggestions.

V. Instructional Sessions about Survivorship
           2006 Congress Instructional Session “Your Patient Completed Treatment: What Comes Next”
            presented by Susan Leigh, RN, BSN, Nancy Houlihan, RN, MA, AOCN® and Richard Boyajian,
            RN, MSN, ANP. The presenters at the meeting were complemented for their presentation and
            there was discussion about the presentation and how it made others more aware of cancer
            survivorship.
           2006 Institute of Learning session “Transition from Cancer Patient to Cancer Survivor: What
            Oncology Nurses Need to Know”
VI. Recognition of Volunteers
   Dottie mentioned that she had sent a Certificates of Appreciation this year to:
          Jean Madden-past Editor. Jean had resigned this year due to school and other
            commitments.

VII. Adjournment
    Dottie made a motion that the meeting be adjourned due to the allotted time for the
    meeting was over. The meeting was seconded by Nadine Wampler, motion carried.


Attendees List for SVP SIG Meeting

SIG Members
Kelly Bugos kbugos@stanfordmed.org
Denice Economou deconomou@coh.org
Dottie Gutaj dottiegutaj@juno.com
Nancy Houlihan houlihan@mskcc.org
Jayna Sosland jnasosl@aol.com
Debra Thaler-DeMers debraocn@sbcglobal.net
Nadine Wampler nwampler@wmhs.com

Not SIG Members
Susan Brown
Amy Coyne
Barbara Hart
Laura Fennimore
Deborah Hamolsky debby.hamolsky@ucsfmedctr.org
Jeanice Janes janes58@sbcglobal.net
Susan Leigh sleigh@mindspring.com
Christine Liebertz liebertc@mskcc.org
Elaine Macneilly elainemacneilly@yahoo.com
Carole Martz cmartz@enh.org
Marnie McHale mcmarnie@aol.com
Marlene Runyon runyon.marlene@mayo.edu
Mary Schoen schoenm@mskcc.org
Mary Vachon maryvachon@sympatico.ca

Not ONS Member
Maureen Allen
Dennis Puritz

* Interested in being in a work group