Tool Kit of Pre-service Curricular Materials
Target
Audience/
Curriculum Curriculum Description Evidence-Based Link to Website Contact Name
Adaptable
Audience
1 Preservice This training tool is both web-based and Medical Students Unpublished http://medicalstudents.h Harold L. Kleinert, Ed.D.
Health Training available on CD-ROM. It is based on "virtual (First or Second effectiveness diuk.org Executive Director,
Modules patient" case studies. The first medical Year) data for adult Human Development
virtual patient case study revolves around a module showing Institute,
UK HDI 35 year-old man with severe cerebral palsy Adaptable for both changes in University of Kentucky
who visits an urgent treatment center more advanced knowledge and 127 Mineral Industries
complaining of adominal pain. An individual medical students attitudes. Bldg.
with a significant disability participated in and practicing Lexington, KY 40506
development of all aspects of the case. The physicians (859) 257-3045
script was modeled after his real-life hklein@uky.edu
experiences. The second medical virtual
patient case study involves a nine year-old
child with autism with flu-like symptoms who
visits his pediatrician with his mother.
Again, the mother participated in all aspects
of the script development. For additional
information, see Additional Resources
2 Serving Persons Volume 1: A self-running presentation, Medical students ? Matheny Inst. For
Who Have suitable for individual or group viewing, Research in
Developmental exploring attitudes with a focus on including Developmental
Disabilities in the patient as a partner in the healthcare Disabilities
the Healthcare process. The presentation also provides an Matheny School and
Setting overview of alternative modes of Hospital
Produced by communication and strategies for conducting P.O. Box 339 Peapack,
Matheny effective clinical interviews; Volume 2: A NJ 07977
Institute for user-paced narrated presentation of research@matheny.org
Research in information about muscular dystrophy, CP,
Developmental spina bifida, Down syndrome, and autism.
Disability with The presentation provides information about
funding from concomitant medical conditions and contains
the U.S. Dept. printable handouts to supplement
of Education training.
3 Developmental This is a web-based (Blackboard) training Medical Students No Available through Sara E. Boyd, M.S.
Disabilities tool currently in use through the University (First or Second University of Kentucky Department of Behavioral
Module for of Kentucky. It provides an overview of Year) (UK) Blackboard; Sciences, University of
Medical developmental disabilities, common medical trainees must enroll for Kentucky
Students office accommodations, concomitant Adaptable for an active directory sarabethboyd@gmail.com
psychiatric and medical concerns, and more advanced account through UK to
UK HDI/UK etiquette. For additional information, see medical students receive access.
Behavioral Additional Resources and practicing
Sciences physicians
4 Rehabilitation This training tool includes 24 web-based Resident No Available through Kathy Sheppard-Jones
Technology training modules on physical and physicians in the University of Kentucky (859) 257-
Training rehabilitation medicine. The modules cover specialty areas (UK) Blackboard; 8104
Modules an array of assistive technology principles of Physical and trainees must enroll for kjone@email.uky.edu
such as, the rehabilitation technology team, Rehabilitation an active directory
UK HDI universal design, and job accommodations. Medicine account through UK to
For additional information, see Additional receive access.
Resources Adaptable for
medical schools
students
5 Brighter Brighter Tomorrows is a web-based tool that Resident Published www.brighter- Harold L. Kleinert,
Tomorrows addresses the needs of families for balanced, Physicians, effectiveness tomorrows.org Ed.D. Executive Director
accurate information when receiving a Members of study (Ferguson Human Development
UK HDI diagnosis of Down syndrome. Brighter American et al., Obstetrics Institute, University of
Tomorrows provides interactive "virtual College of and Gynecology, Kentucky
patient" training that closely simulates the Obstretics and 2006)** 127 Mineral Industries
demands of physicians in informing actual Gynecology, Bldg.
patients and families about such a diagnosis. American Lexington, KY 40506
Originally, a collaborative team of Academy of (859) 257-
physicians, parents, and education Pediatrics 3045
specialists worked together to produce an hklein@uky.edu
interactive CD that included a module on in Adaptable for
utero diagnosis and one on a newborn medical students
diagnosis . The tool can be used by both and families
physicians-in-training and current receiving a
practitioners to assist them in supporting diagnosis of
families at this critical juncture of their lives. Down
The Physicians Version contains the full 60 Syndrome,
minute tutorial as well as a Refresher Tool
for a quick review of the content. For
additional information, see Additional
Resources
5b Brighter The Family Version of Brighter Tomorrows Families who www.brightertomorrows. Harold L. Kleinert, Ed.D.
Tomorrows for includes many of the key elements of the have just org Executive Director,
Families Physicians version, but is specifically created received a Human Development
for families who have just received a diagnosis of Institute, University of
UK HDI diagnosis of Down syndrome, either in utero Down syndrome, Kentucky 127 Mineral
or after birth. It is available in both English either in utero or Industries Bldg.
and Spanish. Please note that the web after birth Lexington, KY 40506
address is slightly different from the (859) 257-3045
Physician version. hklein@uky.edu
6 University of This training tool includes six CD-ROM Pediatric Yes Mary Beth Bruder, Ph.D.
Connecticut instructional modules which are distributed residents (three 860-679-1500
A.J. Pappanikou within the pediatric rotation of residents. year training bruder@nso1.uchc.edu
Center for Modules cover family-centered care, early curriculum)
Excellence in intervention, special education, team-based
Developmental service models, interagency collaboration,
Disabilities service integration, resource allocation, and
Education, advocacy and the legislative process. Each
Research, and module contains some or all of the following
Service components: introduction to the topic,
description of the organization of the
components within the module, objectives,
background information, history, guiding
principles, and theory, a family study with
discussion questions, answers, and
resolution, practicum experiences, evaluative
materials, and references and further
readings. For additional information, see
Additional Resources
7 The Continuum The Continuum of Quality Care series is a Physicians Not able to Matt Holder, MD, MBA,
of Quality Care: DVD series that has the goal of improving ascertain at this Global Medical Advisor,
Medicine health outcomes and employment Adaptable for point. International Special
opportunities for individuals with medical school Olympics PO Box 5035,
American neurodevelopmental disorders and students Louisville KY 40255
Academy of intellectual disabilities. The medical version tele: 602-625-3805
Developmental consists of three main components: an email:
Medicine and introduction that covers basic concepts and mattholder@aadmd.org
Dentistry and two cases. The first case involves an
Special adolescent and addresses sports physicals,
Olympics along with risk assessment. The second case
International involves a nonverbal adult and address
working within a more complex medical
appointment. The cases walk the participant
step by step through care and treatment for
individuals with intellectual disabilities. This
series also contains tests at the end which
allow the physician to log on to the AADMD
website and enter a code to receive credit for
completion of the training. For additional
information, see Additional Resources
8 Preservice This training tool is both web-based and Student Published Available to members on Harold L. Kleinert, Ed.D
Health Training available on CD-ROM. It is based on "virtual Dentists, effectiveness the American Dental Executive Director,
: Student patient" case studies. The first dental module Dentists data (Kleinert et Association website Human Development
Dentists involves a 10 year old child with Down al., 2007, Journal Institute, University of
syndrome accompanied to his dental check- of Dental Kentucky
UK HDI up by his father and the second module Education; 127 Mineral Industries
portrays a young adult with deaf-blindness Sanders et al., Bldg. Lexington, KY
who visits the dentist complaining of a tooth Special Care in 40506
ache. He is accompanied by his personal Dentistry, in (859) 257-3045
care assistant. Families and individuals with press) ** hklein@uky.edu
developmental disabilities both participated
in the development of the scripts for the
virtual patient cases and acted the roles of
patients/family member in each of the
scripts. For additional information, see
Additional Resources
9 Practical Oral The series of publications presents an Dental No http://www.nidcr.nih.go
Care for People overview of the physical, mental, and professionals v/OralHealth/Topics/Dev
with behavioral challenges common in patients elopmentalDisabilities
Developmental with autism, Down syndrome, cerebral palsy,
Disabilities and intellectual disabilities and offers
strategies for providing oral care. A two-
National credit-hour continuing education test for
Institute on dentists and dental hygienists completes the
Dental and series. For additional information, see
Craniofacial Additional Resources
Research
10 University of The didactic part of the DECOD training is Dental students No http://www.dental.washi
Washington composed of a home-based, self-study and ngton.edu/departments/
College of Distance Learning Unit consisting of professionals in omed/decod.php
Dentistry workbook modules, accompanying practice
DECOD videotapes and pre/post tests. Participants
program can select from topics such as: medically
compromised conditions, developmental
disabilities, sensory impairments, special
needs of geriatric patients and patients with
chronic mental illness, drug therapy, psycho-
social issues and sedation and anesthesia for
patients with disabilities. For additional
information, see Additional Resources
11 The Continuum The Continuum of Quality Care series is a Dentists ? Matt Holder, MD, MBA,
of Quality Care: DVD series that has the goal of improving Global Medical Advisor
Dentistry health outcomes and employment Adaptable for International Special
opportunities for individuals with dental students Olympics
American neurodevelopmental disorders and PO Box 5035
Academy of intellectual disabilities. The dental version Louisville KY 40255
Developmental consists of three main components: an tele: 602-625-3805
Medicine and introduction that covers basic concepts and email:
Dentistry and two cases, one involving an adolescent and mattholder@aadmd.org
Special the other a more complex case of a
Olympics nonverbal adult. The cases walk the
International participant step by step through treatment of
individuals with intellectual disabilities. This
series also contains tests at the end which
allow the dentist to log on to the AADMD
website and enter a code to receive credit for
completion of the training. For additional
information, see Additional Resources
12 University of This resource consists of approximately 120 Dental and Student Paul Glassman, DDS, MA,
the Pacific, hours of curriculum materials related to the dental hygiene performance and MBA Professor of Dental
Arthur A. oral health of people with various disabilities. students, as well evaluation data Practice University of the
Dugoni School The materials are designed to be complete as dentists and Pacific
of Dentistry on-line replacements for in-class lectures, dental hygienists Arthur A. Dugoni School
Oral Health for and feature instructor presentations with in practice of Dentistry
Patients with audio narration and transcribed text of the tele: 415-929-6490
Disabilities audio narration. Viewers can control the pace email:
Curriculum of the presentation. Materials include pglassman@pacific.edu
handouts, on-line quizzes, and case studies
as well.
13 Developmental HealthSoft Inc. provides on-line CE trainings, Nurses who are Can purchase access at
Disabilities including courses with overviews of the members of the http://healthsoftonline.c
Nursing history of developmental disabilities nursing, Developmental om/hsi/
Association case studies with specific disabilities (e.g., Disabilities
online CE spina bifida, Down syndrome), and specific Nursing
trainings topic areas that span infancy through late- Association,
life. For additional information, see though the
Additional Resources HealthSoft
website provides
CE trainings for
healthcare
educators and
healthcare
faculty
14 Preservice This training tool is both web-based and Student Nurses, Effectiveness http://Pastudent.hdiuk.o Harold L. Kleinert, Ed.D.
Health Training available on CD-ROM. It is based on "virtual Nurse studies: Kleinert rg Executive Director,
Modules: patient" case studies. Case studies include a Practitioners, et al., 2007 J Human Development
well-adolescent visit for a young girl with Physician Physician http://Npstudent.hdiuk.o Institute, University of
UK HDI Down syndrome and a follow-up visit for a Assistants Assistant rg Kentucky
child born with extreme prematurity. Education; 127 Mineral Industries
Families and individuals with developmental Sanders et al., Bldg.
disabilities both participated in the 2008, J Nursing Lexington, KY 40506
development of the scripts for the virtual Education; (859) 257-3045
patient cases and acted the roles of Sanders et al., hklein@uky.edu
patients/family member in each of the 2007, J Pediatric
scripts. For additional information, see Nursing **
Additional Resources
15 Preservice This training tool is both web-based and Student Nurses, Published http://womenshealth.hdi Harold L. Kleinert, Ed.D.
Health available on CD-ROM. It is based on "virtual Nurse effectiveness uk.org Executive Director,
Training: patient" case studies. The Women's Health Practitioners, study (Boyd et Human Development
Primary Care Module is an interdisciplinary module, Physician al., in press, Institute, University of
Providers designed to present student practitioners Assistant Journal of Kentucky
Women's with the concerns of a young woman with an Students, & Midwifery and 127 Mineral Industries
Healthcare intellectual disability who visits her primary medical students Women's Bldg.
care provider for gynecological care. This Health)** Lexington, KY 40506
UK HDI module touches upon such issues as (859) 257-3045
strategies to reduce anxiety about the hklein@uky.edu
physical exam, breast self-examinations,
awareness of potential sexual activity and
contraception, and the issues of sexual
abuse. Families and individuals with
developmental disabilities participated in the
development of the script, and acted in the
accompanying Social Story of a
gynecological visit. For additional
information, see Additional Resources
16 Gillette This website features online articles with Senior Pediatric No http://www.gillettechildr Raymond Tervo
Children's post-tests and evaluations that can serve as Residents ens.org/default.cfm?PID 651-229-3818
Specialty CME credit. Topics include Mood Disorders in Senior Internal =1.7.19 rtervo@gillettechildrens.c
Healthcare Children and Teens, Managing Spasticity in Medicine/Pediatr om
Online Children with Cerebral Palsy, Concerns about ic Residents
Continuing Childhood Intoeing and Outtoeing, Pediatric Dentist
Medical Craniosynostosis and Deformational Graduate
Education Plagiocephaly, Developmental Dysplasia of Students
the Hip, Obstructive Sleep Apnea in Children Medical Students
with Abnormal Muscle Tone, First Seizures in Other Health
Children and Adolescents, Neurocutaneous Professionals
Syndromes, Managing Neurotrauma Injuries
in Children and Teens, Practical Aspects of
New Therapies for Children with Juvenile
Rheumatoid Arthritis, and a Nonsurgical
Approach to Treating Clubfoot. For additional
information, see Additional Resources
17 American Topics include: children in rural areas, dental Medical and No http://www.aadmd.org/
Academy of evaluation and treatment, the role of Dental education.shtml
Developmental environmental toxins, differential diagnosis professionals
Medicine and of GI disorder, role of the gynecological and students
Dentistry exam, causes, complications, and
reports/training consequences of neurodevelopmental
s for CE credit disorders, and the role of research. While not
interactive as teaching tools, this site does
provide instructional resources for CE credit.
For additional information, see [link to
Additional Resources doc.]
18 Pacific West This web-based curriculum offers two self Health No http://www.pacificwest Beth Ogata
Maternal and studies and one group study examining the Professionals, mch.org pwdlearn@u.washington.
Child Health topics of nutrition and oral health for Dietitians, edu
Distance children, nutrition for children with special Nurses,
Learning healthcare needs, and nutrition for children Dentists, Dental
Curricula with special healthcare needs. The Hygienists, Early
interactive curriculum allows the users to Intervention
USC UCEDD navigate through different areas of interest Providers,
LEND/U within the topics and to futher examine any Physicians,
Washington unfamilar areas or terminology. For Public Health
UCEDD LEND additional information, see Additional Educators,
Resources Health
professional
training
programs
19 California Dept The Medical Condition section of this site has Nurse, No http://www.ddhealthinfo
of been developed to assist primary care Physicians, .org
Developmental physicians and other healthcare providers in Mental Health
Services, in caring for persons with developmental Professionals
collaboration disabilities. Specific learning objectives for
with the each topic are listed at the beginning of each
University of activity. For additional information, see
CA, San Diego Additional Resources
School of
Medicine
CE/CME
trainings online
20 University of Description of physical and cognitive Physicians, No http://www.meddigest.c
Pennsylvania impairments that appear after birth. For registered om
School of additional information, see Additional nurses, nurse
Medicine Resources practitioners
21 Rehabilitation Beth Marks and Jasmina Sisirak have ? No Brookes is publishing the Alan Factor, Ph.D.,
Research and developed a health promotion training CD- product in the fall so the afactor@uic.edu
Training Center ROM entitled, "Exercise and Nutrition Health website information is
on Aging with Education Curriculum for Adults with not yet available.
Developmental Developmental Disabilities," also available in
Disabilities print.
(University of
Illinois at
Chicago
UCEDD) Health
Promotion
22 Rehabilitation Also developed by Marks and Sisirak, this is Pediatric No Alan Factor, Ph.D.
Research and a two hour workshop with corresponding residents and afactor@uic.edu
Training Center self-study articles and resources. Plans are other healthcare
on Aging with for this project to be converted to an professionals
Developmental electronic format, but no timeline has been
Disabilities set for this. It includes the following four
(University of modules: 1) Health Care Interactions:
Illinois at Charity to Advocacy; 2) Health Promotion:
Chicago Beyond Illness Care; 3) Universal Design:
UCEDD) Health More Than Ramps; and 4) Health Advocacy:
Advocacy Culturally Relevant Care.
Curriculum
23 Shriver Center Over ten courses have been created for a Diverse Products http://www.meddigest.c
Distance variety of professionals as well as families. professionals, developed om
Learning These distance learning modules address paraprofessional through needs
topics such as Positive Behavioral Support in s and parents analyses,
Autism, newborn hearing and screening, consultation with
genetics, and disability law. The courses are experts, and
regularly revised to ensure current content. evaluations of
consumer
satisfaction
24 University of Description of efficacy of antipsychotic drugs Physicians, No http://www.meddigest.c
Pennsylvania for ameliorating aggression in individuals nurses, and om
School of with intellectual disability. For additional nurse
Medicine information, see Additional Resources practitioners
25 Mountain AHEC 1) Primary health tool kit: emphasizes the Medical No Irene Jurczyk
mini-fellowship importance of access to primary care; e- students, case irene.jurczyk@mahec.net
materials available 2) Access Dental video-- managers,
brief DVD providing instruction on assisting dental Kathyrn Moss
people with developmental disabilities in professionals, moss@schsr.unc.edu
dental hygiene. direct service
professionals Bill Milner
(AccessDental)
bmilner@accessdentalcar
e.org
26 Interdisciplinar Interdisciplinary Leadership Training LEND trainees Yes Elizabeth Bishop
y Leadership Seminars containing taped training seminars Community 901-448-3127
Training with attached powerpoint slides covering health providers ebishop@utmem.edu
Seminars topics such as: planning for healthy living,
ethics of care for health care professionals,
UT Boiling children and psychotropic medications,
Center for neural tube defects, mental health
Developmental interventions for people with dual diagnosis,
Disabilities and diabetes, juvenile rheumatoid arthritis,
and intellectual disabilities as chronic health
care conditions: research and related ethical
issues. For additional information, see
Additional Resources
27 Fundamentals Three training modules incorporating Graduate and Yes Michelle Schladant
of interactive family scenarios with decision post-graduate 305-243-4466
Interdisciplinar points. Topics include interdisciplinary across 16 mschladant@med.miami.
y Teaming: teaming, family-centered care, and self- different edu
Providing Care determination. Participants learn about a disciplines (e.g.,
to Children with family who has a member with a medical,
Special Needs developmental disability. The participant education,
and Their actively engages in making decisions that psychology)
Families address the family's needs. This interactive
case-based approach allows the participant
Univ of Miami to immediately see the relevancy of the
Mailman Center content to families and to their everyday
for Child challenges. For additional information, see
Development Additional Resources
28 The Modular Modular Long Term Care Projectis an Health Yes http://www.ccids.umain Elizabeth DePoy
Long Term Care interactive CD-ROM and web-based professional e.edu/resources/hrsaltc/i 207-581-1469
Project curriculum that chronicles the history of students ndex.htm edepoy@maine.edu
long-term care, categorizes the current
Univ or Maine system, & provides an axiological critique.
Center for For additional information, see Additional
Community Resources
Inclusion &
Disability
Studies
29 Virginia Instructional modules (genetic awareness, Preprofessional Yes Joann Bodurtha
Commonwealth family history, newborn screening). Should students and bodurtha@vcu.edu or
University be available July, 2008. For additional postprofessional
information, see Additional Resources students in Janet Willis
LEND disciplines jwillis@hsc.vcu.edu
30 Parallels in Parallels in Time is a two-part web-based Anyone seeking ? http://www.mncdd.org/ The Minnesota Governor's
Time series that offers an historical view of knowledge on parallels/index.html Council on Developmental
developmental disabilities. The series the historical Disabilities,
Minnesota incorporates self-nagivation through text, perspective of 370 Centennial Office
Governor's still images, and video clips. The first section developmental Building,
Council on examines developmental disabilities from disabilities 658 Cedar Street,
Developmental 1500 B.C. to the present. Examples of St. Paul, Minnesota
Disabilities included topics are: The Rise of Institutions, 55155
Independent Living, and Self-Advocacy. For tele: 651-296-4018
additional information, see Additional
Resources
31 Parallels in Parallels in Time II is the second part of a Anyone seeking ? http://www.mnddc.state The Minnesota Governor's
Time II two-part web-based series that offers a knowledge on .mn.us/parallels2/ Council on Developmental
historical view of developmental disabilities. the historical Disabilities,
Minnesota The series incorporates self-nagivation perspective of 370 Centennial Office
Governor's through text, still images, and video clips. developmental Building,
Council on The second section examines developmental disabilities - 658 Cedar Street,
Developmental disabilities from the 1950's to the present in provide valuable St. Paul, Minnesota
Disabilities depth. Examples of included topics are: The context and 55155
development of free and appropriate public historical tele: 651-296-4018
education for all children, the development perspective for
of real jobs in typical work settings, and the health care
development of supports for having a home providers
in the community. For additional information,
see Additional Resources
32 Planning for Planning for Life is designed for those Staff and No http://www.disabilitytrai Michael Knox, Ph.D.
Life professionals responsible for designing and professionals ning.com/pfld.html 732-235-9301
implementing self-directed supports. It is working in knox@umdnj.edu
Elizabeth M. also for people with disabilities and families support of
Boggs Center to help them visualize what supports can individuals with
on look like when they are the ones in control of disabilities -
Developmental those supports. Planning for life can help provides
Disabilities professionals know how extremely important valuable
they are in the lives of people with "context"
disabilities. For additional information, see information for
Additional Resources health care
providers.
33 Philadelphia This is a web-based training with topics Provider agency No Denise Brown
Coordinated including Communicating with the staff 215-546-0300
Health Care Psychiatrist, Oral Hygiene, Symptom debrown@pmhcc.org
Management Guidelines, Team Review Form,
Wheelchair Durable Medical Equipment. LaTonya Thomas (same
phn #)
lthomas@pmhcc.org