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Minutes Specialist Services Clinical Advisory Group Friday 14th September 2007 2pm, Conference Room, Templeton House Attendees: Dr Frank Casey (Chair) Belfast Trust Roisin O’Hare Belfast Trust Dr Carol Wilson Belfast Trust Alison Kearney Belfast Trust David Fulton Patient Rep Dr Diane Corrigan SHSSB Gillian Wells Service Delivery Unit Marshall Riley Belfast Trust Andrew Sands Belfast Trust In attendance: Zoe Smith Service Delivery Unit 1. Welcome and Apologies Dr Frank Casey welcomed new members to the group; David Fulton a patient representative and Alison Kearney from the Belfast Trust. Apologies were received from Norma Smith, Dr Stephen McMechan, Anita Smyth. 2. Previous Minutes The minutes from the previous meeting, held on Friday 1st June 2007 were agreed. 3. Matters Arising Nil. 4. Update on Questionnaire Distribution The questionnaires will be sent by email from the Service Delivery unit on behalf of Dr Frank Casey. They will be circulated to Cardiologists, Rheumatologists and Respiratory Physicians. 5. Adult Congenital Heart Disease The current services were discussed and the following issues were raised (a) Available support and advice for patients and carers. It was agreed that a sub group would be convened to look at the needs of both the patients and their carers. It is hoped that some focus groups / discovery interviews will be set up to assess the needs. Action: Gillian Wells to convene a group. (b) The transition process from childhood to adulthood and the need to trigger a services support a year before the transition of services is due to commence. Joy Youart informed the group about the work that she had been involved in Manchester. She agreed to contact their liaison nurse to see what there current service encompasses and what documentation they use. It was felt it would also be useful to benchmark our services against theirs in relation to population services and staffing requirements. Action: Joy Youart to contact Manchester unit for information. (c) The provision of a possible hub and spoke service with physicians with a special interest. This would involve patients being categorised into complex care that required specialist treatment and care, intermediate care, which may involve shared care between the tertiary centre and local secondary care services and simple care, for mild VSD’s that could be looked after in Local secondary care. It was agreed a survey of current patients in the system would be undertaken to assess the numbers in each category. Action: Anne Graham and Christina McMaster to undertake a survey on current information to break it down into the suggested categories to assess numbers. 6. Pulmonary Hypertension (a) Various algorithms for the diagnosis and treatment of care of patients with the differing causes of pulmonary hypertension were tabled and discussed (enclosed). It was felt that they were very similar and could be presented in one algorithm Action: Dr Marshall Reilly agreed to undertake this work. (b) The role and relationship that Northern Ireland has with NSCAG was discussed and it was agreed that it was important that we linked to their service. Dr Corrigan felt that for governance reasons that this was important as due to the low numbers of patients presenting on an annual basis it would be hard to maintain a level of speciality in this field. Dr Wilson informed the group that the current services links closely with both Newcastle and Papworth, both NSCAG centres. Dr Sands raised a concern re a delay in commencement of appropriate treatment if all cases has to formally go through NSCAG and it was felt that it may be more appropriate to link to Dr Sean Gaine in Dublin. It was agreed that the services should be viewed in line with the document Service Specifications for the National Pulmonary Hypertension Service, Jan 03 (enc) 7. AOB Dr Casey raised the issue of including inherited cardiac disease within the remit of this group. It was recognised that there was a high degree of cross over with the EPS and Pacing clinical advisory group. Action: Dr Pascal McKeown and Dr Fiona Stewart to be invited onto the group 8. Date of Next Meeting Friday 9th November 2007 at 2pm in the Conference Room, Templeton House, Service Delivery Unit, 411 Holywood Road.
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