breast cancer resource center
providing education, information and support
bcrc the financial burden of
happenings breast cancer: where
BCRC is a non-profit program of the YWCA to look for help
Princeton dedicated to to providing information and
support to women and families affected by breast A diagnosis of cancer is never easy, but it can be even
cancer and to increasing awareness of the disease in more stressful when you’re struggling to pay for costly
the community. Programs and services include sup- treatments and medications. For some patients, the finan-
port groups, a wig & prosthesis bank, a wellness cial burden is apparent at diagnosis, while for others, it
program, a peer support network, a telephone builds up over the course of years of treatment. If you’re
helpline, a resource library, and community outreach not sure where to turn for financial help, read on. There
activities. Watch this section to keep “abreast” of are government, non-profit and private resources available
BCRC happenings. - and people who can help you sort through the options.
The major expenses of a cancer diagnosis and treatment
2nd Annual Yoga Inspires Raises include the charges for hospitalizations, clinic visits, med-
ications, tests and procedures, home health services, serv-
Breast Cancer Awareness and Funds
ices of doctors and other professionals, and treatment (sur-
for BCRC gery, chemotherapy, radiation therapy, hormonal therapy).
The 2nd annual Yoga Inspires open-air mass yoga Insurance, managed care, or public programs pay the
session was held Sunday May 20 in celebration of major part of these costs, but families also face many indi-
National Women’s Health Week. Over 50 partici- rect costs or "out-of-pocket" expenses. These expenses can
pants of all ages came together to focus on their be for travel (gas and parking), places to stay, meals dur-
health and well-being and to enjoy a morning of ing admissions or clinic visits, extra child care costs, long-
total relaxation. Local officials including Princeton distance calls to doctors, friends and relatives, special
Borough Mayor Mildred T. foods and nutritional supplements, and special equipment
Trotman and Exercise or clothing. Also, cancer treatment can mean the patient
Specialist, Dr. Rita Musanti, has to quit a job or take an extended leave of absence.
supported the event by Of course, costs increase as treatment is extended, if
encouraging women and men there is recurrence of the cancer, or if there are treat-
to take control of their health ment complications.
by staying active and taking
advantage of Most families find it hard to turn to others or to agencies
the programs and services and funds for financial help. Families generally take pride
organizations like BCRC in standing on their two feet and providing for their own
have to offer. A 1-hour session of gentle yoga, lead needs. The extra expenses of cancer may be the first time
by Debra Leong (who has taught BCRC’s Gentle a family has had problems with money. Families should
Yoga for Women Living with Breast Cancer class for remember that their problems in such a situation are short-
the past two years and was the catalyst for the 1st lived and not unique. In the future, they may be the ones
annual Yoga Inspires in 2006) was the highlight of in a position to offer help to others. There are many pos-
Yoga Inspires. Participants were also treated to the sible sources of help for families who need some extra
musical stylings of the Princeton University financial support at this time:
Continued on page 2 Continued on page 8
BCRC Happenings continued from page 1
from the director’s desk
Wildcats, an all-female a cappella group, as well
as singer/songwriter Robin Renée, featuring I am continuously inspired by
Karttikeya on drums. Healthy refreshments, a well- women who offer to share their per-
ness expo, mini-massages, gift bags and prizes round- sonal experiences with breast cancer.
ed off the relaxing and rejuvenating event. $400 in Whether it is one-on-one in a peer
proceeds was raised to benefit the Breast Cancer supporter role, or to a large group as
Resource Center’s support and information programs. a peer educator, it takes courage to
We thank all who participated in Yoga Inspires and share memories of what can be a dif-
acknowledge the generosity of our supporters: ficult and challenging time. But in
Arbonne International, Brown Dog Marketing, Debra recent months here at BCRC, many
Leong, FastSigns, Herbstone Graphics, KartStar women have done just that - stepped forward and offered to
Productions, Life Photography by Katherine, speak to others about their physical and emotional journey
McVicker & Hersh, LLC, Nancy Fabius of YWCA through breast cancer. BCRC’s woman-to-woman network,
Princeton Massage Therapy, The Princeton University community outreach program, and support groups have all
Wildcats, Princeton Borough, Robin Renée, Small presented survivors and supporters with the opportunity to
World Coffee, Triangle Copy of East Windsor, share their stories. They have helped women who are coping
Wegmans, and Whole Foods. with hair loss, facing metastases, making treatment decisions,
and recovering from mastectomies. They have talked about
New “Lunch and Learn” Program screening mammograms, the importance of family support,
Connects Survivors and being proactive about seeking out quality healthcare.
Since January, BCRC has been hosting lunchtime I hear many of you say that you share your experiences to
gatherings to offer breast cancer patients, survivors help others, “so they get their mammograms”, “so they don’t
and caregivers the opportunity to listen to Telephone go through it alone”, or “so they know what to expect.” But
Education Workshops presented by CancerCare and as I reflect, I wonder if you realize the true gift you are giv-
Living Beyond Breast Cancer. The teleconferences ing? The healing power of a story should not be underesti-
feature expert panelists from the nation’s premier can- mated – it is comforting, inspiring and empowering, and it
cer centers discussing a wide range of issues related can change a life! I know those women who have listened to
to breast cancer including treatment options, survivor- and benefited from hearing about your experiences would
ship issues, clinical trials, nutrition, and much more. join me to say thank you for your courage and your compas-
Over 40 breast cancer survivors and caregivers have sion. We all look forward to continuing to be inspired.
enjoyed their lunch while listening in on these month-
ly teleconferences. A lively discussion follows each
workshop as survivors share their thoughts, opinions,
and experiences with the issues presented. Visit the
BCRC website www.bcrcnj.org to see details of Kara Stephenson, BCRC Director
Creative Healing Workshop Series
so many ways to give
Offered by Artist Nanci Hersh As a program of the non-profit YWCA, BCRC relies a great deal on the
Breast cancer survivor and local New Jersey artist, generosity of individuals, groups and businesses in the community to
Nanci Hersh, taught a Creative Healing Workshop support our programs and services. But just as every woman or man
Series for BCRC members on March 26 and April with breast cancer is different, every BCRC supporter is different and
20. Ms. Hersh is an accomplished artist, book contributions come in all shapes and sizes! In this section, we highlight
illustrator, and teacher, and her work has been dis- just a few of the many contributions we’ve received recently, and say
played in galleries across the country and the thank you to all of those whose kindness has touched our hearts.
world. In each workshop, participants used differ-
ent mediums to explore and express emotions In another effort to support BCRC, Norma Jean DeVico (who you may
regarding their breast cancer experiences. In the remember as hiking the Appalachian Trail last summer) has established
collage/mixed media workshop, participants used the Breast Cancer Card Project. She has gathered together 10 very talent-
tree “cookies,” or cut-offs, to create shrines ed women affected by breast cancer to produce a set of stunning note
addressing their own physical “landscape” which cards adorned with original paintings, sculpture, prints, a poem, a mosaic,
has been altered, excavated, shifted, and recon- a drawing and photography. Each woman also contributed a moving
structed. The mono-prints workshop used collage statement about breast cancer and creativity, which is printed on the back.
50% of profits from card sales will be donated to BCRC. To date, over
Continued on page 4 $150 has been raised. To view or purchase cards, visit
www.pinktrail.org/Export8.htm or drop into BCRC.
02 Continued on page 5
spotlight NSABP B 42: A Femara® Clinical Trial
Patients are currently being enrolled in a clinical trial at University
Medical Center at Princeton, to determine the efficacy of five
Volunteers are the heart and soul of BCRC.
years of letrozole (Femara®), compared to a placebo, in patients
They bring energy, enthusiasm, knowledge,
completing five years of hormonal therapy consisting of an
experience, passion and compassion to the
Aromatase Inhibitor (AI), or tamoxifen followed by an AI, in pro-
organization. They are survivors and support-
longing disease-free survival in postmenopausal women with hor-
ers, women and men, young and old, from all
mone receptor positive breast cancer.
walks of life and we could not do what we do
without them. In this
Women may qualify for the study if they are postmenopausal with
section we recognize,
ER and/or PR-Positive stage I, II, or IIIA invasive carcinoma of
thank and celebrate our
the breast and have completed 5 years of hormonal therapy consist-
ing of either 5 years of an AI or up to 3 years of tamoxifen fol-
lowed by an AI (for a total of 5 years). Entry into the study must
Mary Palacio is a
be within six months of completing the initial adjuvant therapy.
Health Representative Additionally, there is an optional letrozole program for patients
for the New Jersey
Cancer Education & Continued on page 9
Early Detection Program in Trenton. She
works diligently in the area of cancer pre-
vention and education to uninsured and Pastry Chef and owner of Angel Food Deserts,
underinsured populations, especially target- Mickey Graham donates her time and talent to bake
ing the Spanish-speaking community delicious cakes, muffins and cookies for BCRC’s
through outreach in their churches, clinics, meetings and gatherings. Here she shares her
and at health fairs. secret for an easy and healthy date bread perfect
for breakfast or an afternoon snack!
Mary’s support for BCRC has been signifi-
cant. She has provided translation for the
Women of Wisdom program, and has acted
Angel Food Desserts Easy Date Bread
as a panelist herself several times. She • 2 cups chopped dates • 3/4 cup sugar
takes every opportunity to recruit Latina • 1 cup orange juice • 1 tablespoon butter, melted
panelists and to refer Latina breast cancer • 1 cup light cranberry juice • 1 large egg, lightly beaten
patients and survivors to BCRC programs • 1 teaspoon baking soda • 1 1/4 cups all purpose flour
and services. Debra Raines, BCRC’s • cooking spray • 1/2 teaspoon salt
Community Outreach Coordinator, spent • 4 teaspoons all-purpose flour
some time with Mary to learn more about 1. In 4 cup glass measuring cup heat orange & cranberry juice to boiling in
her role as a BCRC volunteer. microwave (around 2-3 minutes) Add baking soda & stir.
2. Place dates in large bowl, cover with juice mixture. Cover with plastic
D: You are not a breast cancer survivor, wrap & let stand several hours or overnight
however your dedication to volunteerism 3. Preheat oven to 325F
with BCRC and other breast cancer groups 4. Coat 2 (8 x 4") loaf pans with cooking spray & dust each with 2 teaspoons
is quite impressive. Why do you volunteer of flour. Add sugar, butter & egg to date mixture. Over a mesh sieve, add
your time and services to BCRC? flour & salt to date mixture, stirring just until blended. Divide batter
M: Because my work allows me to meet evenly between loaf pans.
many women through programs of the 5. Bake for 45 minutes or until loaf is just pulling away from sides of pan.
state, I’m able to refer them to the services You will see a very thin space between the loaf & the pan. Remove
that they need. That’s what interests me in immediately from oven & let cool at least 10 minutes in pan. Remove
becoming a volunteer – working with loaves gently & let finish cooling on a wire rack that has been covered
women from different backgrounds. When with wax or parchment paper.
you volunteer, you want to feel proud of 6. Enjoy! This loaf can be stored in the fridge or frozen. It is delicious
what you’re doing and you want to help. toasted & buttered.
Angel Food Desserts Mickey Graham, Pastry Chef 609-240-7667 or
Continued on page 6 AFDesserts@aol.com
BCRC Happenings continued from page 2
elements to create unique prints with plexi-glass, ink, found objects, in the news
and an assortment of papers on a small tabletop press. Participants New Drug Combats Chemo Brain in
then used the images to create accordion-style handmade books to use
as journals. One participant noted that the workshops were “very
Breast Cancer Survivors.
At the annual meeting for the American Society of
empowering” and she was “happy to be able to express herself cre-
Clinical Oncology (ASCO), held in Chicago June 1-
atively in a warm, supportive environment.” BCRC would like to thank
5, 2007, a novel strategy to combat chemo brain was
Nanci Hersh for delivering such superb and inspiring workshops!
reported. The study conducted by Dr. Sadhna Kohli,
assistant professor at the University of Rochester's
BCRC Receives Susan G. Komen for the Cure James P. Wilmot Cancer Center, was the subject of
Central and South Jersey Affiliate Grant ASCO merit award and selected for oral presenta-
When trying to educate women about tion— an honor reserved for only the best research at
breast cancer, hearing from a woman the national meeting. Her study enrolled 82 women
who has survived the disease can be undergoing treatment for breast cancer and measured
extremely powerful. Understanding the fatigue, speed of memory and attention.
impact of such sharing, the Breast
Cancer Resource Center (BCRC) of the In the first phase of the study, patients received
YWCA Princeton developed the Women modafinil over four weeks with 88% showing
of Wisdom Breast Cancer Education improvement in fatigue and cognitive function. Five
Program in 2006 and has been awarded patients dropped out because of adverse events relat-
a $25,000 grant from the Susan G. ed modafinil, and one patient had to be excluded
Komen for the Cure Central and South because she had become pregnant. A second phase
Jersey Affiliate to support its continued implementation in 2007/08. of the study took patients who had shown improve-
Women of Wisdom presentations are held at local meeting places such ment during the four week test and randomized
as community centers or churches and are targeted to underserved patients to modafinil or placebo.
women 40 and older, living and/or working in Mercer County. A panel
of real women who have who have fought and conquered breast can- In all groups that took the study agent there was an
cer, or who have helped a loved one or patient through the disease, improvement in fatigue, speed of memory and power
share their inspiring stories, and BCRC’s Outreach Coordinator offers of attention. “This is a landmark study that rigorously
important information about risk factors, symptoms, and screening. studies the benefits of the treatment of cognitive toxi-
Each participant receives linguistically and culturally sensitive infor- city related to chemotherapy,” said Luis A. Diaz,
mation in a Breast Health Toolkit, and a voucher entitling them to a MD, Assistant Professor of Oncology and Director of
$25 Wal-Mart Gift Card when proof of screening is returned to BCRC. Translational Medicine, Ludwig Center for Cancer
With the generous support of the Susan G. Komen for the Cure Central Genetics & Therapeutics, Johns Hopkins Kimmel
and South Jersey Affiliate, the Women of Wisdom Program aims to Comprehensive Cancer Center. “Larger studies are
educate 300-400 women about the importance of early detection, and needed to confirm the results, and the ability to gen-
encourage at least 25% of those to receive screening. eralize this data to all patients receiving cytotoxic
chemotherapy must be tested including patients of
Wellness Program Targets Stress and Nutrition varying socioecomic, racial and ethnic backgrounds.
BCRC’s Wellness Program strives to provide women affected by Nonetheless, it is an exciting first step in treating an
breast cancer with ways to maintain and/or improve quality of life under recognized and likely common side effect of
during and after treatment. Several new activities have been added chemotherapy and will be the focus of significant
to the program recently, with very positive results. In February research in the upcoming years.” The full study is
2007, BCRC began to offer Tai Chi classes taught by Donna M. Liu, published in the Journal of Clinical Oncology, 2007
a student of Master Won Park of the WuWei Tai Chi School in ASCO Annual Meeting Proceedings Part I. Vol 25,
Princeton. Practicing Tai Chi helps participants reduce stress, No. 18S (June 20 Supplement), 2007: 9004.
increase stamina, and improve posture. In April 2007, BCRC
offered Food for Life, an 8-week series designed to empower breast Source: www.healthcentral.com/breast-cancer
cancer survivors and their caregivers to make healthy, satisfying
meals using foods that are high in fiber, low in fat, and loaded with
antioxidants and phytochemicals. Instructed by Christine
Waltermeyer of the Cancer Project, Food for Life covered a variety Breathe. Let go. And remind
of cancer-related nutrition topics, such as finding dairy alternatives, yourself that this very moment
is the only one you know you
Continued on page 7 have for sure. - Oprah Winfrey
3rd annual “in the pink” fashion show
& silent auction
Friday, September 28, 2007, 6-9 pm
The Westin Princeton at Forrestal Village
Join BCRC to launch Breast Cancer Awareness Month in style! The
3rd Annual “In the Pink” Fashion Show & Silent Auction is an inspira-
tional event which celebrates the strength, beauty and spirit of breast
cancer survivors, and the courage and compassion of their support
network. Stunning fall fashions will be modeled by breast cancer sur-
vivors, their husbands and children, doctors, nurses and social work-
ers—a moving reminder of the unified team that supports each
woman as she battles this disease. In addition to the fashion show,
guests will enjoy a reception, a ribbon-cutting ceremony to launch
Breast Cancer Awareness Month, and both silent and live auctions. Proceeds from this event support
BCRC’s free education, information and support services.
Tickets: Adult $75, Friend $200, Patron $300, Benefactor $500, Table $750.
For tickets contact BCRC at 609-497-2100 ext. 349.
Opportunities for event sponsorship and program book ads are still available. For details contact BCRC
at 609-497-2100 ext. 346.
So Many Ways to Give continued from page 2 Find out how to purchase a Pam Cutler Designs original
by visiting www.pamcutlerdesigns.com.
BCRC was honored to be named a beneficiary of several
different events in recent months. The first ever Head to
Toe Women’s Expo hosted by On June 13, 2007, pastry chef Mickey Graham, owner of
Mercer County Woman Angel Food Desserts, held the 5th Annual Lunch for
Newspaper donated $180 BCRC in her home. Over 20 women attended the event
from the proceeds of their which raised $1825 to support BCRC’s programs and
silent auction to BCRC; services! The delicious main dishes included roasted
Women & Wine At One With salmon with lime/hoisin sauce, grilled chicken with
the Vine presented BCRC mango sauce, fiddlehead salad with prosciutto and pine
with a check for $50 raised nuts, and couscous with raisins and pumpkin seeds.
during their event at Topping off the gourmet menu were lemon tarts with
Unionville Vineyards; and the berries, chocolate flourless torte, and apricot clafouti. The
Machestic Dragons Breast hostess also provided goodie bags to her guests which
Cancer Survivor Team gener- included breast self-examination cards. BCRC extends a
ously donated $2,500 from “sweet” thank-you to Mickey and her guests for their gen-
their inaugural Paddle for Pink Dragon Boat Festival held erous support.
on Sunday June 10, 2007 at the Mercer County Park Guests at a 60th birthday celebration for Mrs. Carol Shum
Marina in West Windsor (for more details on Paddle for honored her request to give donations to BCRC in lieu of
Pink, see the BCRC Happenings section of this issue). gifts and made contributions totaling $1350.
BCRC received a generous donation of $360 from jewelry If you would like to make a donation, organize a fundrais-
designer and breast cancer survivor Pam Cutler, represent- er, or support BCRC in some way, please contact us at
ing 5% of her sales between April –June. Pam continues 609-497-2100 ext. 346/349 or email@example.com.
to offer her stunning line of jewelry at regional craft Your generous contribution would mean a great deal to the
shows and has pledged to continue supporting BCRC women and families affected by breast cancer that BCRC
through donating a percentage of her proceeds. serves each and every day.
body, mind Volunteer Spotlight continued from page 3
and soul Volunteering allows me to continue to help other women. I’m a
referral system for organizations like the BCRC which I feel
For some cancer survivors, proud to be able to volunteer for.
treatment has an upside.
D: I know that you do a great deal of volunteer work outside of
Acting like an exfoliant,
BCRC. To what other organizations do you give your time and
radiation sometimes leaves
skin smooth and blemish-
free. But for others, chemo’s battle MP: In addition to my work with the BCRC, I volunteer with
wounds land squarely on their faces (and Living Beyond Breast Cancer and the American Cancer Society
often necks and chests, too). Wrinkles; (ACS) doing training, referring breast cancer patients and
red spots; and dry, itchy patches are recruiting volunteers. I am also a translator for The Latin Team
among common complaints. Here are of South Jersey, a support group of African American and Latina
tips to help combat these problems. breast cancer survivors who meet at Cooper Hospital in South
Jersey. I bring in and introduce new survivors to the group, and
Facial Cleansers when we have guest speakers I translate for the newcomers - it
Cleanse skin with a mild soap or gel (not helps them to feel welcomed and valued as new support group
a harsh antibacterial soap) that is per- members.
fume-free. Liquid soaps and body wash- D: Mary, you’ve been working in the public health arena for
es, in general, are less drying. Use warm over 35 years. What is it that you enjoy most about your work
water when washing your face, and make –what motivates you to remain an active volunteer?
light, circular motions. Periodically, try
a hydrating mask and a cool compress MP: It’s simple. I enjoy promoting the early detection message
(by placing a washcloth in ice water then and educating the community - the Latinas, African Americans,
applying the cloth to your face for 15 the uninsured and underinsured. My participation with the
minutes). BCRC has helped to increase diversity in the programs. My
support of the Women of Wisdom program has enabled Latina
Moisturizers breast cancer survivors to share their experience with others.
Use alcohol-free lotions and face creams
fortified with anioxidants, such as vita- D: What have you gained from your volunteer experience with
mins C, D, and E, which help rejuvenate the BCRC?
damaged skin. Moisturizing creams that MP: I receive more than I could ever give. I think that the
contain a higher percentage of oil than opportunity to be able to serve others as a volunteer is priceless.
water preserve moisture. To see the courage, the strength and the desire to live is an inspi-
ration to me. I am inspired beyond belief whenever I have an
Sunscreen opportunity to serve others. I think that anyone who has free
Wearing sunscreen (with a sun protection time or wants to volunteer goes into the field knowing, and if
factor – SPF – of 15 or higher) every day not knowing then quickly learning, that volunteerism is a small
and reducing the amount of skin exposed sacrifice of your time compared to the time, compassion, and
to the sun will help combat further wrin- caring that you receive in return. When I use half an hour or
kling and discoloration. part of my day to volunteer my services, it’s a small sacrifice
compared to the large reward that I receive as a result of my
Source: Beyond, Fall/Winter 2006 issue
contribution – a card, a hug, quickly reminds me of the many
reasons why I volunteer. The love and compassion is priceless
think pink and timeless. It is a gift to be able to serve other people – espe-
cially breast cancer survivors. Although I’m not a survivor, I am
Starting your Christmas shopping early? Why not make honored when they share so much of themselves; their sorrows
your purchase through www.iGive.com? Join and their concerns – that’s a gift, their gift to me. I value every
iGive.com (it’s free!), designate BCRC as minute of service to these women.
your cause, and a portion of your pur-
chases will be donated to BCRC. For a
limited time, each new supporter who joins
in loving memory
iGive.com and makes a single purchase We remember and honor the lives
within 45 days of joining receives an extra $5 of the friends we have lost.
donation for her selected cause!
Theresa Dellaquila, Sharon Bonitz, Rhonda Berry.
BCRC Happenings continued from page 4 q&a
immune-boosting foods, and maintaining a healthy Q. I am two years past cancer treatment. My husband was
weight. BCRC would like to thank the Cancer very supportive during the diagnosis, the lumpectomy, radia-
Project for hosting the series, as well as Whole Foods tion therapy, and the chemotherapy, but once I stopped regu-
Princeton for donating the use of their kitchen. lar treatment (evidently tamoxifen doesn't count!) he seemed
BCRC Welcomes New Community to think everything was going to go back to the way it was.
I'm not sure what to do, and I'm not sure if he wants to talk
Outreach Assistant about what he feels. - Anonymous
BCRC is happy to welcome Gloria Soto-Eisenberg to
the team, as the new Community A. This is an extremely common phenomenon. When women
Outreach Assistant. Gloria holds are newly diagnosed and going through "active" treatment,
a Master’s Degree in Public everyone, including the woman herself, rallies to get through
Health and a Bachelor’s Degree the ordeal. However, once the transition to survivorship has
in Health Education from the begun, well-intentioned friends and loved ones may think and
University of Puerto Rico, and is want to believe that a woman is feeling better, and may desire
a member of the American things to get back to normal. During this time and beyond, a
Public Health Association. She woman continues to experience the medical and psychological
has extensive community health repercussions of her breast cancer diagnosis and treatment.
experience, as a health educator Some women may feel even worse than they did (initially and
in the Puerto Rican public school during active treatment), from a psychological standpoint.
system for ten years, and as a Having breast cancer is a life-altering experience for most
hospital education program coordinator for seven women. It is difficult to move forward with the new uncertain-
years. She also hosted a radio call-in show featuring ty that breast cancer survivors must face, not to mention the
various health topics. Gloria says of her new position, new body, etc. I recommend to my patients and those who care
“I’m very happy to be part of BCRC’s innovative about them that they recognize this, and try to move forward,
health education programs and look forward to spread- perhaps more slowly than before in their "new normal" lives
ing breast cancer awareness to the Hispanic communi- and bodies. Sometimes, personal counseling or couples coun-
ty.” Gloria lives in Robbinsville with her husband and seling can be of benefit. There is also an excellent videotape
two children. that discusses this very issue available through the American
Cancer Society about Moving Beyond Breast Cancer (1-800-
Breast Cancer Survivors Discuss 4-CANCER). - Ann Partridge, MD, MPH. Ask the ASCO
Expert Series “Cancer Survivorship: Living Beyond Cancer.”
Breast cancer survivors now have a unique forum in
which to discuss and learn to cope with the changes
in perspective and priorities that often come with a
breast cancer diagnosis. BCRC’s monthly New
click on it
Perspectives Meditation Group is facilitated by psy- Patient Advocate Foundation
chologist Pat Vroom, and uses meditation and dis- www.patientadvocate.org
cussion to help survivors explore questions like
“Who am I now?” Navigating the managed healthcare system is not
and “What am I learning from this experience?” always easy, especially for cancer patients. The Patient Advocate
Participants also learn how to use meditation to Foundation (PAF), a national non-profit organization, works to advo-
boost immune system function and to positively cate for patients’ rights and provide effective assistance to their access
alter coping styles and information processing. This to care, maintenance of employment, and preservation of their finan-
group is open to all breast cancer patients and sur- cial stability. PAF serves as an active liaison between the patient and
vivors, whether they are new to meditation or use it their insurer, employer and/or creditors to resolve insurance, job dis-
regularly. For those who want something different crimination, and/or debt crisis matters relative to their diagnosis
from a traditional support group, New Perspectives through case managers and attorneys. Through printable brochures on
is an excellent alternative with less talking and more its website, PAF helps patients understand terminology of insurance
“doing”! The New Perspectives Meditation Group plans, and find financial resources.
meets on the 3rd Tuesday of each month, 7:00 –
8:30pm, in the YWCA Princeton Bramwell House The Patient Advocate Foundation's Co-Pay Relief (CPR) Program also
Living Room. provides direct co-payment assistance for pharmaceutical products to
insured patients who financially and medically qualify. The CPR Program
Continued on page 8 offers personal service to all patients through the use of call counselors
who assist patients throughout the entire application process.
Feature continued from page 1
Medicaid: www.cms.hhs.gov/home/medicaid.asp - Medicaid provides health insurance for low-income individuals and
families who meet its requirements. Programs operate differently in various states.
Social Security: www.ssa.gov - Patients with cancer may qualify for Social Security disability benefits. Not all can-
cer patients are considered disabled, but those with advanced cancer are sometimes considered disabled by Social
CancerCare: www.cancercare.org - Offers limited financial assistance for homecare, childcare, transportation, hor-
monal and oral chemotherapy, pain and anti-nausea medication, and lymphedema supplies through the AVONCares and
Linking A.R.M.S.™ programs. In addition CancerCare social workers can help patients find assistance beyond
CancerCare, including resources from state agencies and state-run treatment funds.
Patient Access Network Foundation: www.patientaccessnetwork.org - An independent non-profit dedicated to
assisting insured patients who cannot afford the out-of-pocket costs associated with their treatment needs. A specific
breast cancer fund is established.
Partnership for Prescription Assistance: www.pparx.org - A partnership of pharmaceutical companies,
health care providers and advocacy groups which helps patients without prescription coverage obtain low-cost and
Rx 4 NJ: www.rx4nj.org – A voluntary partnership formed to help people across New Jersey gain access to over 250
free and low-cost prescription medicine programs that include over 1800 different prescription medicines.
Christina S. Walsh Breast Cancer Foundation: www.christinaswalshbcf.org - A New Jersey based non-profit
that provides financial assistance to patients who need help covering costs of medications, tests, purchase of wigs, hos-
pital stay incidentals (meals, phone, parking, transportation) etc.
The organizations listed above are only a few of many possible sources of financial assistance. For help in finding addi-
tional resources, contact BCRC.
BCRC Happenings continued from page 7
Dragon Boat Festival Turns Mercer County Park Marina Pink
The inaugural Paddle for Pink Dragon Boat Festival, hosted by
the Machestic Dragons, was held Sunday June 10, 2007 at the
Mercer County Park Marina in West Windsor in support of
BCRC. The Machestic Dragons, New Jersey’s first breast can-
cer survivor dragon boat team, are in their sixth season of pad-
dling to help raise breast cancer awareness and to demonstrate
that women living with breast cancer can lead full, active lives.
Paddle for Pink was a spectacular success, with over 200 pad-
dlers and 100 spectators participating in the days’ activities.
West Windsor Township Mayor Shing-Fu Hsueh was on hand to
kick off the event with words of welcome and encouragement,
and he joined paddlers and spectators for the traditional Eye-
Dotting Ceremony to wake the dragon boats, and the Pink
Carnation Ceremony to honor those who have been affected by
breast cancer. Teams from Washington DC and Camden, NJ joined the Machestic Dragons for three races in the Breast
Cancer Survivor Division, and teams from Rutgers University, New Jersey Hospital Association, YWCA Princeton,
Merrill Lynch, and Mid-Jersey Chinese School were joined by smaller groups and individual paddlers for four heats in
the Community Division. The Machestic Dragons presented BCRC with a check for $2,500 to help support wellness
programs that will encourage women affected by breast cancer keep surviving and thriving! For more information on
dragon boating and the Machestic Dragons, visit www.paddleforpink.org.
bcrc wants to hear from you!
Please check all appropriate boxes:
q I would like to be a BCRC volunteer! Please send me a volunteer application form.
q I would like to make a donation.*
q I’ve moved! Please change my address.
q Please add me to the mailing list.
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Telephone ( ) _____________________________ Email_____________________________________________
Please return to: Breast Cancer Resource Center, YWCA Princeton, 59 Paul Robeson Place, Princeton, NJ 08540,
609-497-2100 ext 346/349, or email firstname.lastname@example.org.
*To make a donation, kindly write a check payable to YWCA Princeton Breast Cancer Resource Center. If you
would like to make a contribution in memory/celebration of someone else, please include the person’s name as well
as an address to where we may send the donation acknowledgement card.
a good read • The Hope Tree – Kids Talk About Breast Cancer,
by Laura Numeroff and Wendy S. Harpham, M.D.,
The Year My Mother Was Bald illustrated by David McPhail.
Written by Ann Speltz • Our Mom Has Cancer, by Abigail and Adrienne
Reviewed by Lindsey Colanduoni, age 12 Ackermann.
• Will I Get Breast Cancer? Questions & Answers
My name is Lindsey and my mom has breast cancer. for Teenage Girls, by Carole G. Vogel.
When I first found out that my mom had breast cancer, I • Helping Your Children Cope with Your Cancer – A
was very upset and I thought the world was going to col- Guide for Parents and Families, 2nd Edition, by
lapse on me. But when I started to read “The Year My Peter Van Dernoot.
Mother Was Bald,” it answered a lot of my questions, • Can I still Kiss You? Answering Your Children’s
and described the emotions that I was feeling. For exam- Questions About Cancer, by Neil Russell.
ple, the little girl in the book was getting mad and impa- • When a Parent Has Cancer. A Guide to Caring for
tient all the time, and that’s what was happening to me. I Your Children, by Wendy Schlessel Harpham.
didn’t realize that I was feeling that way because my
mom had breast cancer. Another way that the book
helped me was that it told me what is going to happen to Research continued from page 3
my mom while she is in treatment. So, if your child has
all these different emotions and wants to know what who have taken a minimum of 2 years of hormonal ther-
might happen to you during treatment, then I recom- apy with tamoxifen or an AI. These patients may be
mend this book. offered letrozole for the duration of their initial adjuvant
hormonal therapy and then screened for eligibility into
For other books that will help you and your children deal the study.
with your breast cancer diagnosis, why not visit the For more information on this trial, or others being con-
BCRC Resource Library. Look for these titles: ducted at University Medical Center at Princeton, please
• Our Family Has Cancer Too!, by Christine contact Susan Wall, Oncology Research Nurse, Cancer
Clifford, illustrated by Jack Lindstrom. Program, University Medical Center at Princeton, 609-
breast cancer resource center
YWCA Princeton, 59 Paul Robeson Place,
Princeton NJ 08540
Publisher: Kara Stephenson
Editor: Patricia Orr
Production: Barbara Curtis
the many faces of bcrc
The YWCA Princeton is qualified by the IRS to receive contributions which are deductible for federal income tax purposes. This charitable organization is registered with the Attorney
General of the State of New Jersey. Information may be obtained by calling 973-504-6215. Registration does not imply endorsement.