Family Caregiver Support Program

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Family Caregiver Support Program Powered By Docstoc
Services                     Information about long-term care and caregiver services;
                             Assistance in gaining access to services, problem solving challenges;
                             Evidence-based caregiver assessment and consultative care planning*;
                             Caregiver support groups, training/consultations (skill building/self care);
                             Counseling to deal with caregiver related stress, depression, and burdens;
                             Respite care services (in and out-of-home) to provide a break;
                             Referrals to medical/wellness services for depression and health issues;
                             Supplemental Services (e.g., supplies, interpreter services).
Client Profile             The typical client is an unpaid caregiver, most often a wife, over the age
                           of 60, who has had primary responsibility for a minimum of two years
                           providing care (including help with mobility, dressing, supervision, etc.)
                           for a spouse who has dementia. The caregiver is often assessed to have a
                           high level of depression and burdens. They also report that if their family
                           member’s condition worsens that they would need to move to a long
                           term care facility.
Funding Sources            State General Funds and Older Americans Act Funds
FY 2010 Costs and Cases    Total expenditures: State General Funds = $6,053,556 (69%)
                           Older Americans Act Funds-Title III-E funds = $2,767,449.94 (31%)
                            Information services: 33,564 information contacts;
                            Group presentations: 10,043 attendees;
                            Assistance services: 14,341 assists, 6,187 caregivers served;
                            TCARE screenings and assessments/care plans: 1,864 caregivers
                              received 1576 screenings and 1390 assessments;
                            Trainings/consultations: 3,982 sessions, 1,321 caregivers served;
                            Counseling services: 1,837 sessions, 961 caregivers served;
                            Support groups: 2,650 meetings, 1,981 caregivers served;
                            Respite Care services: 220,838 respite hours, 1,448 caregivers served;
                            Supplemental services: 2,888 hours, 4,199 service units/supplies
                              provided, 1,355 caregivers served (equipment, supplies, etc.)
Oct 2010 Costs and Cases   Data not available for this time period as service reports are submitted on
                           a quarterly basis.
Eligibility                For the Family Caregiver Support Program eligibility, the unpaid caregiver
                           is a spouse, relative, or friend who has primary responsibility for the care
                           of an adult with a functional disability and who does not receive financial
                           compensation for the care they provide

                           For Respite Care Services, a family caregiver must be unpaid, provide a
                           minimum of 40 hours per week of care and supervision, or live with an
                           adult who has one or more functional disabilities.
Providers and Rates               The Area Agencies on Aging (AAAs) contract with a wide array of service
                                  providers, which include Senior Information and Assistance, support
                                  groups, mental health counselors, caregiver trainers, dementia
                                  consultants, as well as in-home and out-of-home respite providers.
                                  Respite providers provide all levels of care (from supervision to nursing
                                  services) and include home care and home health services, adult day
                                  services, and nursing homes. Rates vary depending upon the service
Legal Authorization               Chapter 74.41 RCW
Quality Oversight                 The AAAs monitor their subcontractors and provide quarterly data
                                  reports to ADSA. Program Managers regularly provide technical
                                  assistance to coordinators.
Partnerships                      AAAs and local family and community organizations
Fact Sheet References             Informal/Family Caregivers
Outstanding Issues                None

*Beginning July 2009, the Aging and Disability Services Administration, along with the first five (out of
thirteen) AAAs, began incorporating an online, award winning, evidence-based screening/assessment
and consultative care planning intervention process called Tailored Caregiver Assessment and Referral
(TCARE®), developed by Dr. Rhonda Montgomery (University of Wisconsin) into the FCSP. The remaining
eight AAAs began their TCARE® participation in January 2010.

Case Study

A 74-year old male caregiver who was experiencing a high level of stress was taking care of his 66-year
old wife who has lung cancer (since 2003). The couple arrived in the United States less than a year ago.
When the couple came to the Family Caregiver Support Program (FCSP) office, both were very
depressed and would cry at each visit. They were facing various issues in life: adjustment to a new
culture, medical and related financial concerns, housing, and a very strained relationship with their only
daughter and son-in-law who were also the sponsor for clients’ immigration to the U.S. The son-in-law
withdrew his financial assistance even though the mother-in-law needed medical attention for her
cancer treatment.

The FCSP staff provided services in a timely manner to address client’s individual needs: 1. supportive
counseling and emotional support; 2. information and assistance support: helped caregiver apply for
senior housing so they could move out from daughter’s home; 3. connected caregiver to health
insurance (SHIBA) volunteer staff to address wife’s medical insurance concerns; 4. empowerment: while
not having any friends and relatives (except their daughter) in the U.S., the wife had felt she was a
burden to others. Staff brought wife to Chinese adult day center where she was encouraged to
volunteer and share her talents in teaching other seniors her handicraft work. The outcome of receiving
the FCSP services allowed the caregiver and his wife to move to a senior housing unit. They feel much
happier, are more positive, have more control in their own lives, and made new friendships at the adult
day center. The caregiver and his wife feel that they are back “home” again and they now have smiles
on their faces.

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