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End of Life

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									End of Life
Related Websites
May 8, 2002

Glossary

http://www.partnershipforcaring.org/Resources/glossary_set.html

http://www.finalexit.org/more-glossary.html

Death and Dying

Aging With Dignity
http://www.agingwithdignity.org/

Americans For Better Care of the Dying:
http://www.abcd-caring.org

Approaching Death: Improving Care at the End of Life
Institute of Medicine
http://www.nap.edu/readingroom/books/approaching/

Before I Die – PBS Online
http://www.thirteen.org/bid/

Center to Improve Care of the Dying
http://www.gwu.edu/~cicd

Center for Loss and Renewal
http://www.lossandrenewal.com/

Death and Dying Home Page
http://dying.about.com/health/dying/

DeathNet
http://www.rights.org/deathnet/

Dying Well
http://www.dyingwell.org

End-of-Life Care: A Guide for Seniors and Caregivers
Steven Lipson, MD, American Geriatrics Society
http://www.americangeriatrics.org/education/forum/endoflife.shtml

The End of Life: Exploring Death in America
National Public Radio
http://www.npr.org/programs/death/
The End of Life Physician Education Resource Center (EPERC)
http://www.eperc.mcw.edu/start.cfm

Ethical Issues in Terminal Health Care
http://www.cp.duluth.mn.us/~ennyman/ethics.html

Ethical Exits
http://www.ethicalexits.com

Growth House: Guide To Death, Dying, Grief, Bereavement, and End Of Life
Resources
http://www.growthhouse.org

Innovations in End of Life Care
http://www2.edc.org/lastacts/

Jewish Law: End of Life Choices in Halacha
http://www.jlaw.com/Articles/EndofLife.html

Last Acts
http://www.lastacts.org

The Natural Death Handbook (1993)
http://www.globalideasbank.org/natdeath/ndh0.html

Of Life and Death
Canadian Special Senate Committee on Euthanasia and Assisted Suicide
http://www.parl.gc.ca/english/senate/com-e/euth-e/rep-e/lad-tc-e.htm

PBS – On Our Own Terms: Moyers on Dying
http://www.pbs.org/onourownterms

Principles for Care of Patients at the End of Life: An Emerging Consensus among
the Specialties of Medicine (December 1999)
http://www.milbank.org/endoflife/

Project on Death in America: Transforming the Culture of Dying
http://www.soros.org/death/index.htm

Quality of End-of-Life Care: The Right of Every Canadian (June 2000)
Canadian Senate Subcommittee Report
http://www.parl.gc.ca/36/2/parlbus/commbus/senate/com-e/upda-e/rep-
e/repfinjun00-e.htm

Sociology of Death and Dying
http://www.trinity.edu/~mkearl/death.html
Spiritual Care at the End of Life
http://members.tripod.com/geanc/spiritualcare/index.html

Advance Directives and Living Wills

10 Legal Myths About Advance Medical Directives
by Charles P. Sabatino, J.D
Commission on Legal Problems of the Elderly, American Bar Association
http://www.abanet.org/elderly/myths.html

Advance Directives
Dept. of Health and Human Services
http://www.hcfa.gov/pubforms/advdir.htm

Advance Directives and Do Not Resuscitate Orders
American Academy of Family Physicians
http://www.familydoctor.org/handouts/003.html

Consumer’s Tool Kit for Health Care Advance Planning
Commission on Legal Problems of the Elderly, American Bar Association
http://www.abanet.org/elderly/toolkit/home.html

Health Care Advance Directives Form Sources
http://www.abanet.org/elderly/sources.html

Keln.Org: Living Wills Bibliography
http://www.keln.org/bibs/ubel.html

Legal Concerns: Advance Directives/Living Wills
http://www.med.umich.edu/1libr/topics/legal06.htm

The Living Will and Values History Project
http://www.euthanasia.org/lwvh.html

The Living Will Center
http://www.rights.org/deathnet/LWC.html

Partnership for Caring: America's Voices for the Dying
http://www.partnershipforcaring.org/HomePage/

Shape Your Health Care Future with Health Care Advance Directives (1995)
American Association of Retired Persons, ABA Commission on Legal Problems of
the Elderly, and American Medical Association
http://www.ama-assn.org/public/booklets/livgwill.htm

U.S. Living Will Registry
http://www.uslivingwillregistry.com/

Will to Live Project
http://www.nrlc.org/euthanasia/willtolive/index.html

Hospice

American Academy of Hospice and Palliative Medicine
http://www.aahpm.org/

American Hospice Foundation
http://www.americanhospice.org/

Canadian Hospice Palliative Care Association
http://www.cpca.net/home.htm

Center to Advance Palliative Care:
http://www.capcmssm.org

The GRACE Project (Guiding Responsive Action in Corrections at End-of-Life)
http://www.volunteersofamerica.org/xq/CFM/folder_id.122/qx/tier2_ka.cfm

Hospice Cares
http://hospice-cares.com/

Hospice Foundation of America
http://www.hospicefoundation.org/

Hospice Net - Death and Dying, Caregiving and Grief
http://www.hospicenet.org/

International Association for Hospice and Palliative Care
http://www.hospicecare.com/

National Hospice and Palliative Care Organization
http://www.nhpco.org/

National Hospice Foundation
http://www.hospiceinfo.org/

National Prison Hospice Association
http://www.npha.org/

Pain

American Academy of Pain Management
http://www.aapainmanage.org/
American Alliance of Cancer Pain Initiatives
http://www.aacpi.org/

American Chronic Pain Association
http://www.theacpa.org/

American Pain Foundation
www.painfoundation.org/

American Pain Society
www.ampainsoc.org/

American Society for Action on Pain
http://www.druglibrary.org/schaffer/asap/

Chronic Pain and Fatigue Research Center
http://www.georgetown.edu/research/fmscfs/

Chronic Pain Clearinghouse
http://painmanagementtheory.homestead.com/

Chronic Pain Foundation
http://www.chronicpainfoundation.org/

International Association for the Study of Pain
http://www.iasp-pain.org/

Mayday Pain Project
http://www.painandhealth.org

National Foundation for the Treatment of Pain
www.paincare.org/

The National Pain Foundation
http://www.painconnection.org/

Pain.com
http://www.pain.com/ -

Pain Management Resources - Bedside Pain Manager
http://www.bedsidepainmanager.com/

Pain Medicine and Palliative Care
http://www.stoppain.org/palliative_care/index.html

Caregivers

Because We Care: A Guide for People Who Care
http://www.aoa.gov/wecare/default.htm

Caregiver Survival Resources
http://www.caregiver911.com/

Caregiving.com: Helping You Help Aging Relatives
www.caregiving.com/

Empowering Caregivers
http://www.care-givers.com/pages/main.html

Family Caregiver Alliance
http://www.caregiver.org/

Interfaith Caregivers Alliance
www.interfaithcaregivers.org/

MedLine Plus: Caregivers
http://www.nlm.nih.gov/medlineplus/caregivers.html

NFCA: National Family Caregivers Association
www.nfcacares.org/

Rub My Neck: A Caregivers and Seniors Site
http://www.rubmyneck.com/

Web of Care
http://www.webofcare.com/

Well Spouse Foundation
http://www.wellspouse.org/

Bereavement

The AIDS Memorial Quilt
http://www.aidsquilt.org/

Bereaved Parents of the U.S.A.
http://www.bereavedparentsusa.org/

Bereavement: A Magazine of Hope and Healing
http://www.bereavementmag.com/

The Compassionate Friends
http://www.compassionatefriends.org/

The Compassionate Friends of the UK
http://www.compassionatefriends.org.uk/

GriefNet.org
http://griefnet.org/

Pen Parents, Inc.
http://www.penparents.com/

Widowed Persons Services
http://www.aarp.org/griefandloss/home.html


Euthanasia/Physician Assisted Suicide

Compassion in Dying
http://www.compassionindying.org/

Citizens United Resisting Euthanasia (CURE)
http://pw2.netcom.com/~cureltd/index.html

Death with Dignity National Center
http://www.deathwithdignity.org

Declaration on Euthanasia (1980)
Sacred Congregation for the Doctrine of Faith, Vatican
http://www.vatican.va/roman_curia/congregations/cfaith/documents/rc_con_c
faith_doc_19800505_euthanasia_en.html

Dutch Euthanasia Policy
Radio Netherlands.
http://www.rnw.nl/society/html/euthanasiaindex.html

Dutch Voluntary Euthanasia Society
http://www.nvve.nl/english/

Euthanasia and End of Life Decisions
http://ethics.acusd.edu/Applied/Euthanasia/

Euthanasia and Research Guidance Organization (ERGO)
http://www.finalexit.org/

Euthanasia and Physician Assisted Suicide: All Sides
Ontario Consultants on Religious Tolerance.
http://www.religioustolerance.org/euthanas.htm

Euthanasia Prevention Coalition
http://www.epcc.ca/
Euthanasia Prevention Coalition (British Columbia, Canada)
http://www.epc.bc.ca/index.html

Exit: Enabling Choice and Dignified Death (Scotland)
http://www.euthanasia.org/

First Do No Harm (UK)
http://www.donoharm.org.uk/

Guide to Doctor-Assisted Suicide Sites
http://web.lwc.edu/administrative/library/suic.htm

Hemlock Society USA
http://www.hemlock.org/
Interactive Map of Physician-Assisted Suicide Laws
http://www.msnbc.com/modules/statebystate/state.asp

International Anti-Euthanasia Task Force
http://www.internationaltaskforce.org/index.htm

Islamicity: Euthanasia
http://islamicity.com/Science/euthanas.shtml

The Kevorkian Controversy Detroit Free Press
http://www.freep.com/index/extra2.htm
http://www.freep.com/suicide/index.htm

Not Dead Yet - disability activists opposed to the legalization of assisted suicide
http://www.notdeadyet.org/

Oregon Death with Dignity Act
http://www.rights.org/deathnet/ergo_orlaw.html

Oregon's Death with Dignity Act Annual Report
State of Oregon Health Division.
http://www.ohd.hr.state.or.us/chs/pas/ar-index.htm

Project Life
http://www.projlife.org/

U.S. Catholic Bishops: Euthanasia
http://www.nccbuscc.org/prolife/issues/euthanas/

Voluntary Euthanasia Society (UK)
http://www.ves.org.uk/
When Death is Sought
Assisted Suicide and Euthanasia in the Medical Context
New York State Department of Health
http://www.health.state.ny.us/nysdoh/provider/death.htm

World Federation of Doctors Who Respect Human Life
http://www.euthanasia.com/belgium.html

Court Decisions & Legal Documents

Cruzan v. Director, Missouri Department of Health (Date Argued:
December 6, 1989; Date Decided: June 25, 1990, 5-4)
http://supct.law.cornell.edu/supct/html/88-1503.ZS.html

US Ninth Circuit Court of Appeals. Compassion in Dying v. State of Washington.
1995. Opinion by Judge John Noonan.
http://www.rights.org/deathnet/ninth_circ.html

Compassion in Dying v. State of Washington, 1996.
US Ninth Circuit Court of Appeals. Compassion in Dying v. State of Washington.
1996. Majority Opinion by Judge Stephen Reinhart. Recent ruling affirming a
person's right to die and the right to physician-assisted euthanasia.
http://www.rights.org/deathnet/us9.html

US Ninth Circuit Court of Appeals. Compassion in Dying v. State of Washington.
1996. Dissenting opinion by Judge Robert R. Beezer
 http://www.rights.org/deathnet/us9B.html

Quill v. Vacco. (New York) Second Circuit Court of Appeals. Argued:
September 1, 1995 Decided: April 2, 1996
    Quill v. Vacco. Opinon by Judge Minor
      http://www.tourolaw.edu/2ndcircuit/april96/95-7028.html
    Concurring opinion by Judge Calabresi
      http://www.tourolaw.edu/2ndcircuit/april96/95-7028.html#conc
    Amicus Brief filed before Second Circuit of Appeals by the American
      Geriatrics Society
      http://www.soros.org/death/agsbrief.html

Appeal of Compassion in Dying v. State of Washington and Quill v.
Vacco to Supreme Court
   Quill v. Vacco. Supreme Court Decision.
     http://supct.law.cornell.edu/supct/html/95-1858.ZS.html
   WASHINGTON et al. v. GLUCKSBERG et al.
         o Washington et al. v. Glucksberg et al. Supreme Court
           Decision
              http://supct.law.cornell.edu/supct/html/96-110.ZS.html
   Michael Uhlmann, "The Legal Logic of Euthanasia"
    http://www.firstthings.com/ftissues/ft9606/uhlmann.html
   Amicus Brief. Assisted Suicide: The Brief by Ronald Dworkin,
    Thomas Nagel, Robert Nozick, John Rawls, Thomas Scanlon,
    and Judith Jarvis Thomson. (March 27, 1997)
    http://www.nybooks.com/articles/1237
   J. Bottum, "Debriefing the Philosophers," First Things,
    June/July 1997, 26-30.
    http://www.firstthings.com/ftissues/ft9706/bottum.html
   Amicus Brief before the Supreme Court filed by the Project on Death in
    America, Open Society Institute. (1996)
    http://www.soros.org/death/amicusb.html
   Amicus Brief by Bioethics Professors George Annas et al (1996)
    http://www.bumc.bu.edu/www/sph/lw/Brief.htm .
   Amicus Brief of Not Dead Yet and American Disabled (1995)
    http://www.notdeadyet.org/brief.html
   Amicus Brief of National Hospice Organization
    http://www.med.upenn.edu/bioethic/PAS/31a.html
   Amicus Brief of ACLU et al. (1996)
    http://www.aclu.org/court/quill.html
   Reactions to the Supreme Court decisions
       o Joan Biskupic, "Unanimous Decision Points to Tradition
           of Valuing Life," Washington Post, June 27, 1997
           http://www.washingtonpost.com/wp-
           srv/national/longterm/supcourt/stories/die.htm

								
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