Advance Care Planning and End-of-Life Decision Making

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        Advance Care Planning and
        End-of-Life Decision Making

        Jung Kwak, Jessica Y. Allen, and William E. Haley




                                ABSTRACT
Making critical treatment decisions when faced with life-threatening illness
is often a very difficult, emotionally charged experience for individuals, fam-
ilies, and health care providers across various settings of care. Clinicians,
researchers, and policy makers have made numerous efforts to promote indi-
vidual self-determination and to improve communication and quality of care
at the end-of-life (EOL), especially in the aftermath of the enactment of the
Patient Self-Determination Act of 1990. Past research has provided importa
				
DOCUMENT INFO
Description: Making critical treatment decisions when faced with life-threatening illness is often a very difficult, emotionally charged experience for individuals, families, and health care providers across various settings of care. Clinicians, researchers, and policy makers have made numerous efforts to promote individual self-determination and to improve communication and quality of care at the end-of-life (EOL), especially in the aftermath of the enactment of the Patient Self-Determination Act of 1990. Past research has provided important information documenting the complex interplay of various patient, family, and health care provider and system factors affecting how EOL decisions are made. This chapter reviews the current literature on advance care planning and decision making at the EOL. Specifically, this chapter describes the context in which older adults experience their illnesses and make important treatment decisions, and reviews what is known about health-related decision-making processes among older adults, the role of family members in the decision-making process, and how health care providers and care settings exert influence on these decisions. This chapter also reviews promising decision-support interventions developed to assist EOL decision making, gaps in current knowledge about EOL decision making, and implications for practice and future research. [PUBLICATION ABSTRACT]
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