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Northern Ireland
Chest Heart & Stroke
> Annual Report 2001-2002
At t f c ar e
h e h eart o
Northern Ireland
Chest Heart & Stroke
21 Dublin Road,
Belfast BT2 7HB
Tel: 028 9032 0184
www.nichsa.com
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Chairman’s Letter Improving the lives of stroke sufferers
This has been a year of extensive change Stroke services provided by the Association have continued
and achievement for the Association. to expand and improve.
For stroke clients and their carers, the biggest possible – Ruth Glenn, Gordon Greenfield and The year under review saw the launch of Stroke In our 3 year Strategic Plan there is an objective
development has been the expansion of Alvin McKinley. Members of Council continue Family Support Schemes in Causeway to establish a Rehabilitation Centre where a
services across the province. We owe a great to have a central role in determining the Healthcare Trust and in Craigavon and broad range of services could be provided to
debt of gratitude to the volunteers who work so direction, mission and values of the Association. Banbridge Healthcare Trust area.It is anticipated clients. It is hoped that the headquarters of the
hard to ensure the high quality of these services. that there will be a review of the operation of Association could be located on the same site.
I want to convey my thanks to all members of
our stroke services during the year 2002-2003, Such a development will be dependent upon
I would also like to convey my special thanks to Council and Governance Board for their
the aim being to ensure that they remain the securing funding for the development and for
another group of volunteers – those who make contribution to the many achievements of the
most comprehensive available, within the funds the funding of the services on an ongoing basis.
up our fundraising support groups. past year.
that we have to hand.
Income from the groups has increased
We extend a warm welcome to the following
during the year. Their efforts allow the Don Allen, OBE, formerly Chairman of the
new Council members: Don Allen OBE, Glyn
Association to continue its valuable Sports Council and leading businessman,
Roberts, Hugh O’Kane, Alan Cecil, Professor
work. gave a powerful presentation on his
Deirdre Walsh and Dr Nicola Armstrong.
experience of stroke at the launch of Stroke
It is worth noting also that income in
Last, but certainly not least, I would like to pay Awareness Week. His vivid experience was
general has been on target, despite an
tribute to the Chief Executive, Senior extremely moving and greatly appreciated
increasingly competitive fundraising
Management Team and staff of the Association by the audience at the Sports Council
environment. A substantial increase
for the effective delivery of its work in Headquarters – an audience that included
has been achieved in payments from
alleviating and preventing chest, heart and Belfast’s Lord Mayor, Councillor Jim
the Healthcare Trusts for services
Dr Roger Lowry OBE stroke illnesses and for shouldering an Rodgers.
supplied by the NICHSA. The Mr Don Allen OBE & Belfast’s Lord Mayor - Councillor Jim Rodgers
expanding workload.
Association will continue to press for a
greater percentage of funding from this source. With renewed thanks and hoping for continued After the great success in the provision of Visits have been made by the Governance
success in the years ahead. Home Care Services in the Omagh area, the Board and senior management team to the Joss
Half of all fundraising income came from
Cardwell Rehabilitation Centre and to the MS
legacies (more than £500,000) and donations in Association has decided to seek to develop Society, which has a therapy centre on the
lieu of flowers (£200,000) – an indication of the
Yours sincerely, these services in other parts of Northern same site as its headquarters.
importance of these methods of donation.
There were important changes this year in the Ireland. Those receiving Home Care Services
way the Association is governed. A revised would include stroke sufferers, but would
Memorandum and Articles were endorsed by
an extraordinary general meeting. This means incorporate sufferers from chest and heart
that the Directors of the Company are now illnesses as well. An action plan to target a
members of the Governance Board (previously
the Executive Committee). This emphasises the succession of Healthcare Trusts has been
Board’s role in governance and not with drawn up. This is in line with NICHSA policy
operational or management issues. I want to put
on record my thanks to those on the Council of of seeking more funding from statutory
the Association whose expertise made this Dr Roger Lowry OBE. sources to provide services in the community.
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Making life better for heart patients Easing the lives of people with chest illnesses
The work of our Cardiac Surgical Liaison Sister, Joyce Spence, who acts as With the assistance of the Lloyds TSB Foundation for Northern Ireland, we have been
advocate and supporter for people on the waiting list, continues to flourish. able to establish an asthma project in the Down and Lisburn areas.
Feedback from clients and carers is extremely of our Heart Start Appeal NICHSA has raised The Foundation will donate £30,000 over two Helping people to better health
positive. This post was deemed necessary 3 £60,000 and purchased 30 defibrillators, years to establish COMBAT – an asthma
Our Highway to Health scheme, which
years ago after research funded by NICHSA was which have been distributed to towns and outreach programme for children and their
provides walking routes in District Council
families in north and west Belfast. In these
undertaken by Dr Donna Fitzsimons into the cities throughout Northern Ireland. The areas around Northern Ireland, has expanded
areas, an astonishing one in three children
needs of those waiting for cardiac surgery. charity already has one of the machines at further. At year-end, we had routes in the vast
suffers from the condition – the highest rate of
Many of the tasks undertaken by Joyce will be its headquarters in Belfast. It is encouraging majority of areas, with some Councils providing
incidence in Northern Ireland. A community-
more than one. See the NICHSA website for
included in the duties of the newly appointed airports, golf clubs, shopping centres and leisure based specialist will help families understand
details.
Patient Care Advisers in England.
Once again, it seems, NICHSA leads We have continued to
offer fitness assessments
the way. "This is one of the most important life- and health promotion
The Association, together with the saving initiatives ever launched in advice in all parts of
Health Promotion Agency, is also Northern Ireland.
Northern Ireland. It doesn’t provide us
Hundreds of Cardiac
working to persuade the Health and with miracle cure, but it will save lives Risk Factor Assessments
Education Committees at Stormont and Health & Fitness
that would otherwise be lost"
and the Departments of Education assessments are carried
and Health to implement the
Andrew Dougal, NICHSA Chief Executive
Maureen McCourt steps out on Belfast David Magill of Lloyds TSB Foundation and pupils of St Kieran’s and
out each month.
Sister Joyce Spence
recommendations of the Young at City Council’s Highway to Health route Forthriver Primary Schools present a cheque to NICHSA Companies and
Heart report – an initiative in which organisations whose
centres, four of the most common places to asthma and its treatment, enabling them to staff have taken part include Translink, several
the Chief Executive participated and which is
suffer a heart attack, to install these life saving manage symptoms and medication more District Councils, the Northern Ireland Court
designed to help the next generation of children effectively. The aim is to reduce the risk of Service and the Irish News.
machines.
to avoid heart disease until at least the age of severe attacks and ultimately reduce hospital
NICHSA has also trained almost 1000 people in Our health promotion staff also gave talks to
65. A copy of the report can be obtained by admissions. This would have the added
(CPR) life saving skills during the year. many community groups and schools, and
emailing dbrown@nichsa.com advantage of preventing interruptions in the
provided public information at various events.
Our campaign to place lifesaving defibrillators education and development of the children
There were an increasing number of training
affected.
in public buildings around Northern Ireland sessions instructing members of the public in
continues to be a major success. As a result Our nebuliser loan system and welfare grants CPR (Cardio Pulmonary Resuscitation).
scheme have both been updated and fully
In the current year, NICHSA has benefited computerised. This means that all relevant
from the support of the following: The information is available at any time. We are
very grateful for the donation of 66 nebulisers
Childwick Trust, The Hedley Foundation, The by the Belfast Bus Drivers Appeals Committee
Hospital Savings Association Charitable Trust and of a further 26 by Harry Corry Ltd.
NICHSA launches its Heart Start Campaign
and the Sir Jules Thorn Charitable Trust.
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Campaigning and Research
The NICHSA was heavily involved in a working group which drew
up a strategy for transforming stroke care in Northern Ireland.
The group included representatives of the NICHSA took an exhibition stand at two of the Northern Ireland has lost out in terms of Health The Association welcomes the installation of a
Health Boards, the Department of Health, and annual conferences of political parties during Service funding compared with other regions of PET (Positron Emission Tomography) scanner at
NIMAST (Northern Ireland Multidisciplinary the year. At the Alliance Party there was a the UK. We have a 21% higher death rate from the Royal Victoria Hospital in Belfast, and has
Association of Stroke Teams). It was chaired by special debate sponsored by the BMA on health coronary heart disease than England. awarded £9,000 to allow a number of trials
Dr Michael Power, who is Chairman of issues. Representations were also made aimed at establishing its most effective use in
The Cardiac Groups also drew to the Minister’s
NIMAST and is on the Governance Board of informally at the Ulster Unionist Party the assessment of cerebrovascular disease.
attention the need for cardiac rehabilitation
NICHSA. The Association was also represented conference on the need for more resources for programmes in each of the general hospitals in
by Dr Ken Fullerton and Andrew Dougal. the Health Service. Increasingly medical Northern Ireland. Such cardiac rehabilitation
charities are represented at the conferences of should continue after patients have left
If implemented, the strategy would be
political parties. hospital.
by far the largest stride in
improvements in the treatment of We would like to record our thanks to all those
stroke, both in hospital and in the members of the Northern Ireland Assembly and
Research
community. especially members of the Health Committee
who helped and supported us during the year. In the year under review the Association
A working group on stroke has been specified the research it wished to fund,
Particular thanks are due to those who asked
established in the Southern Health & rather than waiting for proposals.
questions in the Assembly on health issues.
Social Services Board, chaired by Dr
Brid Farrell. NICHSA is represented by Thanks to Professor Monica McWilliams who As a result, Jacqueline Crosbie and her team
Monica McWilliams MLA Mrs Myrtle Neill, Director of Health. sponsored a meeting of Council outlining the at the University of Ulster will undertake a Members of the Cardiac Support Groups Forum and Andrew Dougal take their petitions to Stormont
Strategic Plan of the Association in the Long study into improving the functioning of the
Dr Roger Boyle, who was appointed as arm and hand after stroke. The aim is to
Gallery at Stormont in May 2002.
Director of the National Heart Office for reduce the loss of independence, improve
England in March 2000, visited Northern Members of the Cardiac Support Groups’ Forum the mental well-being of clients, and make
Ireland at the request of NICHSA and gave a had a face-to-face meeting with the Health it possible for some to return to work.
lecture at the W5 complex. He outlined the Minister to press for extra funds for the
The Association has changed its criteria for
Dr Sheila Lennon, also at the University of
additional resources which had been allocated treatment of heart disease. The meeting took Ulster, has been awarded a grant to investigate awarding research grants. In future, apart
for cardiology in England. Funds were being place on Have a Heart Day, February 14, 2002. different therapies to improve walking
from inviting researchers to submit ideas,
allocated to regions for the establishment of The delegates were accompanied by the after a stroke.
Chest Pain Clinics and for fast-tracking to Association’s Chief Executive. The Minister said the charity will also commission specific
cardiac surgery. If patients have been on the her Department simply did not have the money projects in the medical field of its choice
waiting list for more than six months, they will to fund a national framework for coronary heart
be given the option of travelling to another area disease, as had been established in England. (chest, heart or stroke). Up to £100,000
for surgery. NICHSA is pressing for such patient The Association’s Governance Board therefore will be available annually for this
choice in Northern Ireland. Further information made a direct approach to the First and Deputy
on patient choice can be found on the internet First Ministers – an initiative that had yet to bear commissioned research. Further
at www.doh.gov.uk/extendingchoice/index.htm fruit as the year under review came to a close. information can be obtained at
www.nichsa.com.
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Fundraising Incoming Resources
The relationship with our partners from the world of business has continued
to flourish, helping to increase income to the Association while raising
awareness of our key health messages. Incoming Resources
Our two-year partnership with Low Low has promoted NICHSA events on her show. Health & Fitness
worked extremely well and will raise in excess
Phoenix Natural Gas adopted NICHSA as its Other Income Risk Factor ACTUAL £ %
of £40,000 for our work.
charity of the year, and already its staff have Assessment Receipts Legacies 505,364 26.5
We also owe a debt of gratitude to Weight raised more than £7,000. Another £2,000 came Enterprises Donations 304,424 16.0
Investment
Watchers Northern Ireland, whose committed from Belfast Harlequins, who held a corporate Income Partners in Care 266,579 14.0
slimmers have managed to raise an astonishing fundraising dinner at the North of Ireland Rugby Donations in lieu Grants & Contracts 248,094 13.0
£23,000 in the year under review. Football and Cricket Club. During the of flowers Legacies Support Groups 218,684 11.5
forthcoming year we hope to raise £10,000 Support Groups Donations in lieu of flowers 189,363 9.9
through Iceland Ltd.
Enterprises 54,742 2.9
We have been adopted as charity partner of FG Donations
Other Income 42,134 2.2
Wilson Ltd, and the Grand Master of the Royal
Partners in Care Health & Fitness 33,577 1.8
Black Preceptory has nominated the Association
Risk Factor Assessment Receipts 28,143 1.5
to benefit from fundraising among members. Grants & Contracts
Investment Income 15,910 0.8
We look forward to working with the Northern
Ireland Civil Service Sports Association on the Total £1,906,744 100%
Waymarked Way Challenge – and one of the
highlights of the coming year will be a walk in Resources Expended
Vietnam organised by the Irish Heart
Foundation with participation by supporters of
Weight Watchers NI and Downtown Radio present a defibrillator to NICHSA’s Chief Executive Depreciation
NICHSA. Western
Sperrins Project Counselling ACTUAL £ %
We had our best ever response to a Christmas & Welfare Stroke Services 530,236 27.9
Downtown Radio was also on our wavelength, Appeal, with donations of £37,400. This figure Cardiac Services Respiratory Services Fundraising & Appeals 366,866 19.3
adopting NICHSA as its charity of the year was further improved with the addition of
Enterprises Befriending Project Partners in Care 243,452 12.8
during its 25th anniversary. It played a £2,200 reclaimed from the Inland Revenue
under the Gift Aid scheme. Our sincere thanks Advocacy Research 196,098 10.3
Congratulations to our fundraising support to everyone who contributed. Primary Care 165,352 8.7
Corporate Services Corporate Services 122,825 6.5
groups for their sterling efforts. Once We would appeal to all our supporters to take Stroke Services
advantage of Gift Aid and other tax efficient Advocacy 63,381 3.3
again they exceeded their previous year’s forms of giving. The Give As You Earn scheme Primary Care Enterprises 51,227 2.7
is another example. In the year under review, Fundraising & Appeals Cardiac Services 50,187 2.6
total, bringing in a magnificent £214,000. this source of income increased by 27%, Western Sperrins Project 36,083 1.9
resulting in an income of £59,000. For every Partners in Care Depreciation 32,719 1.7
significant role in encouraging weight watching pound raised, the donor had to contribute less
Research Councilling & Welfare 25,158 1.3
and helped to spread the Association’s message. than 80 pence.
Respiratory Services 12,369 0.6
We are very grateful to Managing Director Befriending Project 7,511 0.4
David Sloan and his staff. Particular thanks must
go to presenter Candy Devine, who took part in Total £1,903,464 100%
the weight-watching programme and regularly
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Our members... Income and expenditure
Patron President This Annual Review contains an abbreviated set
Dorinda, Lady Dunleath Dr WG Hastings OBE of accounts for the year 2001-2002.
If you require the full version, please write to: The Northern Ireland Chest, Heart and Stroke
Senior Management Team Association can be contacted on:
Jonathan Davis,
Chief Executive Director of Health Deputy Chief Executive, Phone: 028 9032 0184
Andrew P Dougal OBE Mrs Myrtle Neill NICHSA, Fax: 028 9033 3487
21 Dublin Road, Web: www.nichsa.com
Deputy Chief Executive Director of Fundraising Belfast BT2 7HB Email: mail@nichsa.com
Mr Jonathan Davis Mr Denny Elliott
Email: jdavis@nichsa.com. Advice Line (local rate) 08457 697299
Cardiac Liaison Sister help line (local rate) 0845
6011658
Governance Board
Chairman Ms A Aubrey Mr A McKinley Registered Charity No: XN 47338
Dr R Lowry OBE Dr K Fullerton Dr M Varma
Vice Chairman Miss R Glenn
Dr G Dalzell Dr M Power
Mr J MacMahon
Honorary Treasurer Mrs J McCusker
Mr G Mullen
Members of Council
Mr D Allen OBE Mr W Gibson B McLaughlin CBE
Prof J Allen Miss R Glenn Miss E McNair
Dr N Armstrong Mr H Goodman OBE Mr G Mullen
Sir Pat Armstrong Mrs M Graham Dr P Nicholls
Ms A Aubrey Mr G Greenfield Mr H O’Kane
Mr J Bell Prof B Hannigan Dr M Power
Mr V Blease Dr I Hassan Dr J Purvis
Mr J Caldwell Dr W Hastings OBE Mr G Roberts
Mr T Carney Mrs A Hayes Dr M Shields
Mrs C Cassidy Dr E Hodkinson Mrs J Simpson MBE
Mr A Cecil Mr H Hughes Mrs E Sowney
Mr J Collins Mr E Kavanagh Mrs D Stevenson
Mrs M Craig Dr R Lowry OBE Prof JJ Strain
Dr G Dalzell Mr D Magill Mrs M Taggart MBE
Mr E Davis Mr E McCartan Dr F Tracey
Mr G Duffy Mrs W McClean Dr M Varma
Dorinda, Lady Dunleath Mrs J McCusker Prof D Walsh
Prof A Evans Mr L McIvor Mrs C Wright
Dr K Fullerton Mr A McKinley
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