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AFTER-ATOS-May-2011

VIEWS: 6 PAGES: 51

									AFTER ATOS
On Line Website & Feedback Survey for
       All Those Taking the Atos
      ESA “Medical” Assessments
    RESULTS 15TH MAY 2011


          afteratos.org
AFTER ATOS was set up by a user / disabled person and Facebook friend who set up
the website. After seeing personal testimonies and horror stories were coming out in the
news and media about Atos assessments and yet there was no attempt to get the
feedback from the disabled by any official survey or enquiry. There seemed to be a gross
basic omission in the intervention of disabled and chronically sick people. The final affect
and outcome on the patient/customer. The final note on any medical or nursing note is
the “Discharge.” Where they discharged well and healthy to go home and have a happy
life, where they discharged with further complications and deterioration or were they
discharged in a box, deceased? No one was trying to get these answers and nobody
seemed to be bothered. Therefore, I thought I might as well.

We have no political or group affiliations, the only affiliations we have are with other
disabled people who are suffering and being abused through the actions of Atos, with this
suffering and abuse seemingly being backed up by our survey.

The survey was set up mid March 2011 and has only been shared via a Facebook
account. AFTER ATOS has now a website afteratos.org

After just a few days our site has attracted response, not just from UK and Northern
Ireland, but worldwide. In just one week from MayDay Bank Holiday it attracted over 7000
visitors in just 7 days. That is 1000 visitors per day.

From an initial pilot study run of 2 surveys and responses the first results were put up in
15th March – 15th April on line via Facebook, YouTube and website. And now ,here are
our second batch of monthly results and overall statistics.
        WHERE HAVE OUR RESPONDENTS COME FROM?

               ALL OVER GREAT BRITAIN AND UK.
           (IN JUST ONE MONTH BY WORD OF MOUTH AND FACEBOOK NETWORKING)




         Uppingham                                                 Telford
                                     Manchester
         glasgow                                                   Bath
                                     Exeter
         Newcastle upon                                            Doncaster
         Tyne                        Stratford on Avon
                                                                   Liverpool
         sunderland                  leigh                         EDINBURGH
         stoke on trent              Glasgow.
         Milton Keynes
                                     Poole
         Dumbarton
         LANCASTER
                                     Caerphilly
         Billinge                    cheltenham
                                     Clacton on sea
         Wigan


ATOS COUNTS THE DISABLED OUT. AFTER ATOS COUNTS THEM BACK IN
These are our respondents for the 15th April – 15th May Survey

    London            Stockton-on-Tees      Dundee
    LONDON            leeds                 Edinburgh
    Brentwood         York                  Dumbarton
    Epsom             Blackpool             dudley
    ebbwvale          Liverpool             Leamington
    Amlwch            Leeds                 Spa
    peterborough      bradford              Derby
    Peterborough      preston               Coventry
    Grimsby           St Helens             Buxton
    grimsby           Sheffield             Shrewsbury
    Swindon           Skelmorlie            Shrewsbury
    brighton          Sunderland
    Crowborough       BURNLEY
    Eastligh          Blandford
    Reading           Shepton Mallet
    Didcot            truro
    Southampton       glasgow
    Bournemouth       arbroath
    Margate           Edinburgh
    Littlehampton     Edinburgh
    Salisbury         Lochore
    Rainworth         Edinburgh
Original Types of Disability on First Survey Results


         Heart failure           bowl disorder

         Complex issues/trauma   hypo thyroidism
                                 Labrynthitus
         chronic fatigue
                                 FRACTURED LEG NOT MENDED
         poly cystic ovarian
         syndrome                ms
         PTSD                    CFS/ME
         Arthritis               swine flu
         M.E.                    depression

         Fibromyalgia            Back injury

         bipolar                 No named diagnosis

         Anxiety Depression      PTSD

         degenerative disc       multiple sclerosis
         disease
         Bipolar disorder
         STROKE
         Bi-polar
         Degenerative disc
         disease
                      Types of Disability that have replied since
                              15th April – 15th May 2011
                        There are many with complex and multiple diagnosis

 1ST DIAGNOSIS                      2ND DIAGNOSIS               3RD DIAGNOSIS
autism
Asperger's syndrome                  ADHD                       Dyspraxia
                                     Cervical foraminal
Bursitis                             stenosis                   Diabetic Cheiroarthropathy
Fibromyalgia                         Hypermobility              Chronic Pain
Depression                           Depression and Anxiety     Anxiety State
PTSD
CFS/ME                               Depression                 Hypothyroidism
Fibromyalgia                         Clinical Depression
1976                                 1998                       2007
breast cancer                        hcv                        anxiety/depression
kabuki syndrome                      reflex anoxic seizures     autistic spectrum
narcolepsy                           cataplexy                  central apnea
M.E. (Myalgic Encepholopathy)        Bipolar disorder           Overactive bladder
Chronic Fatigue Syndrome             Depression/Anxiety
Stroke
Post-Traumatic Stress
Charcot Marie Tooth Disease 2        Dyslexia
head injury
bi polar
fibromyalgia                         chronic fatigue syndrome   left hand deformity
Agoraphobia                          Anxiety                    Depression
ankylosis spondylitis                scoliosis
CFS                                  Chronic Anxiety            Social Phobia
Depression                           Anxiety                    Low Back Pain
autism
Asperger's syndrome                  ADHD                       Dyspraxia
                                      Cervical foraminal
Bursitis                             stenosis                   Diabetic Cheiroarthropathy
Questions
   &
Answers
HAVE YOU TAKEN THE ATOS MEDICAL ASSESSMENT?
WHAT WAS THE RESULT OF THE ASSESSMENT?
WHO IS FILLING IN THIS FORM?
Did you provide additional supporting evidence from other people?
WHAT TYPE OF DISABILITY DO YOU HAVE?
IS YOUR CONDITION TEMPORARY, INTERMITTENT, PERMANENT
DETERIORATING, (MS, MN, MD, PARKINSONS etc) OR TERMINAL?
How was the Building
        and
   the Assessor?
HOW ACCESSIBLE WAS THE BUILDING
     FOR DISABLED PARKING?
HOW ACCESSIBLE WAS THE BUILDING FOR GETTING IN?
HOW SUITABLE WAS THE INTERVIEW ROOM?
HOW ACCESSIBLE WAS THE BUILDING INSIDE?
HOW WAS THE ASSESSOR’S ATTITUDE AND
BEHAVIOUR TOWARDS YOU?
HOW DID THE ASSESSOR COMMUNICATE AND ENGAGE WITH YOU?
How was the assessor's knowledge and
understanding of your condition?
HOW DID THE ASSESSMENT ADEQUATELY INVESTIGATE
AND REFLECT YOUR CONDITION?
  How has the
Atos Assessment
  its Decision
  affected you?
HOW HAS THE ATOS ASSESSMENT AND DECISION AFFECTED YOU?
                    FINANCES
HOW HAS THE ATOS ASSESSMENT AND DECISION AFFECTED YOU?
               PHYSICAL HEALTH
HOW HAS THE ATOS ASSESSMENT AND DECISION AFFECTED YOU?
                MENTAL HEALTH
HOW HAS THE ATOS ASSESSMENT AND DECISION AFFECTED YOU?
              CARE AND SUPPORT
HOW HAS THE ATOS ASSESSMENT AND DECISION AFFECTED YOU?
           FAMILY AND SOCIAL LIFE
HOW HAS THE ATOS ASSESSMENT AND DECISION AFFECTED YOU?
                       WORK
What has happened
and what have you
   done since?
Have you informed anyone else?
Have you made an Appeal?
Have you won your appeal?
Would you be interested in sharing your testimony
used if press, media or other interested and influential
bodies were interested?
What the respondents
       told us
                       ATOS ESA “MEDICAL” ASSESSORS
                                              LIE
What our disabled respondents said: (Spelling mistakes are kept in as written to prove veracity)


“She did not write what I said but the opposite. She knew I had complained about a
previous examination despite me being assured she would not.”


“He kept pressing me about walking - "Well you walk to the shop, right?" "No, actually I don't, it's too
painful. I told him it took 3 days for me to recover from the exertion and obviously
he put in that I could walk 500 yards without problems! "


“The asseror would let my sister speak up for me when i was distressed crying she
 showed no empathy , and when i recieved forms she staited i was alone at the interview ,
 i presented myself well ,I could barely stand up due to dizziness and verytigo

“Did write down what I said but changed it a bit, said I did things I did not do said I came by
train but I came by bus which 2 mins away. said I prefer someone to come places with me,
I need. said eat and drink fine yet I can not. and said got on couch fine when I couldt and
 my daughter helped me. This is not the first one I have been to the other lady I saw before
lied alot so when to tribunle and won that one.”
ATOS ESA “MEDICAL” ASSESSORS LIE               (cont..)




“He just wasn't interested in my conditions and told lies on the ESA 85 report he supplied to
the DWP decison maker. For instance I was asked to bend my back to touch my knees, he
saw I couldn't do it, realising I have passed the test on this alone. He decided to substitute
bending my back for squatting (which he didn't ask me to do) instead.”



“On my initial assessment I was told they could not continue and I had to see a doctor
who was trained in Neurology, so a further appointment was amde for 3 weeks time.
When I eventually saw the doctor at my second appointment, he kept me waiting 35 minutes
beofre I was called in. He just shouted my name and then disappeared back into his room,
 leaving me looking for the correct room to go in. Once in the room with him, he asked me
what seemed random questions, but didn't seem to be listening to my replies. I told him that
 I couldn't manage on a daily basis, the problems I had showering, prepairing food, sleeping
and he scored me 0 points on all accounts even though I could not do any of them.”
              ATOS ESA “MEDICAL” ASSESSORS
     CAUSE UNNECESSARY PHYSICAL PAIN & DISCOMFORT


Some of what our disabled respondents said:


“When i was being assesed i was asked to do a range of movements which i could ,
i have difficulty with muscle pain and fatuige . I cried most of the interview as i really
 didnt know what was wrong with me only that i had Fibromyalgia ( march i found out
 private toxicoligy i had been poisined with pesticides )”



“The nurse herself was nice but stabbed me in the back on paper. She took my reflexes
as part of the exam and could not find any - evidence of neurological disease. I could not
move my legs properely and she appeared to think that by forcing them to move, this was
acceptable no matter how much pain I was in. On my report she noted I did not appear in
any pain, despite me telling her I was in agony and had been sick in the car on the journey up.”
ATOS ESA “MEDICAL” ASSESSORS
CAUSE UNNECESSARY PHYSICAL PAIN & DISCOMFORT (cont...)




“she was agressive and domineering, telling me off. I left in far more pain than i got there in.
she had not interest in the pain level and made me do things that seriously hurt me. I cried out
 in pain so she knew when she hurt me but she did it more) she forced my legs up where they
didn't want to go while i was still adjusting to the change in position i had to be in when i laid
on the couch. she made no effort to help me off the floor when i fell (had to crawl to table and
use that) or made any mention in the report of the fall. said in report she tested my back for
spasms but she didn't touch it. lied a lot in report.”


“she was very friendly, but i realised she was trying to trip me up all the time, she said
"so when you're running up and down the stairs, do you get any back pain?" well, i've
never complained of back pain, so the answer would have been "no" but of course i
cannot walk up stairs, never mind run.....i did point that out to her, she just smiled.
the worst thing she did was to get me to lie on a couch and asked me to lift my legs
and then to rotate them at the hip, i can do this with my right leg but not the left, she got
hold of my ankle and twisted my left leg, i had to limp out of the place, my gp said the
popliteal something or other had ruptured......so i'm still recovering from that. basically,
she inflicted an injury on me!”
                         ATOS ESA “MEDICAL” ASSESSORS
         CAUSE MENTAL & EMOTIONAL DISTRESS
Some of what our disabled respondents said:

“He wrote the exact opposite to every question he asked me. He laughed at me because
I was unable to do things he was asking of me. And when I opened my eyes he was
rolling his eyes at the "nurse" and I felt ridiculed. In fact afterwards I felt violated.”

“The assessor just sat behind a desk and barked questions at me, which caused me to have a panic attack,
 to which she told me to "stop messing about“

“The NURSE looked at me like I was a criminal, and treated me like one. and
 Contradicted everything that was told to her.”

Disabled are Responsible for family and are carers too. No money means no money for children too.
ESA Assessments Splits up families and separates children from parents

“I am actually having to press the local LEA to have my son placed in a residential special school because
 I'm unable to cope with trying to work, my health and be a carer to my child.”
 ATOS ESA “MEDICAL” ASSESSORS
 CAUSE MENTAL & EMOTIONAL DISTRESS (cont..)

Causes distress in PTSD Victims by making them re-tell, re-visit and re-live trauma
Increases Suicide and Self-harm Incidents in Abuse Survivors. Up to 10%
Atos Undoes all the Good Work and Therapy that has been done.


“After I received the decision, I was unable to sleep 1 night out of every 2, I lost 1 stone in weight,
I punched and cut myself in an attempt to relieve my rage, frustration and sense of powerlessness,
but even so, I came to within 2 days of suicide (I had planned to take pills and slash my wrists).
 If my favourably reconsidered decision had not come through in those few days I would be dead.”


“As a result of this experience; I can no longer talk about what was done to me and its effects upon my life;
because the treatment I received at the hands of ATOS caused me to associate talking with further
 traumatisation, deprivation and abuse. In other words, talking equals punishment- as was also the
case when I was a little girl. So because of ATOS I am now too afraid to talk and am therefore
permanently barred from any hope of recovery.”


“I am an adult survivor of child abuse; and after retraumatisation too ill to work. All of which were
completely ignored by ATOS @ who very nearly pushed me into taking my own life through the
 additional pressure and absolute despair that they exposed me to. I am now back with the
 Intensive Mental Health Support Team. They has pushed me to become more ill.”
                      ATOS ESA “MEDICAL” ASSESSORS
             Act Contrary to Good Professional Ethics,
                     Knowledge and Practice


Some of what our disabled respondents said
“She went as far as telling me to put my parents into care, and that caring and voluntary jobs are
not work. At the time I was a disabled carer and and under a lot of stress and suffering from sleep
deprivation and living on dyhydracodeine phosphate for pain”


“Asked a couple of closed question, stopped me whan I tried to explain further the nature and affect
of my condition. Typed while I talked. Did not give eye contact. Did NOT give a physical examination
 & so did not see me without jeans, where a structual engineer would not be required to see my legs
are deformed and unstable. Had absolutely no knowledge of my condition (Ehlers Danlos)”

Refuse to look at or consider evidence provided

“He had poor spoken English very difficult to understand Did not take into account my conditions very
 poor medical examination, he either misunderstood or deliberately ignored my conditions, would NOT
 read copies of letters from several Consultants, doctors, surgeons, and would not let me leave copies
 with him.”
ATOS ESA “MEDICAL” ASSESSORS
Act Contrary to Good Professional Ethics, Knowledge and Practice
 (cont..)



No knowledge or understanding of Autism or Aspergers

“Actually told me I had Asperger's rather than autism so he diagnosed me with a different condition!
Made my mum shut up so she could not tell him about my disability. I told him I was not good with
numbers and maths” It affected my mum and me and I had little money to help mum with the bills.
I went to appeal. the Doctor wrote in my report that that I needed some counselling for my numeracy
problems! I am obsessed with Star Wars and that is all I think and talk about. I can't get a job in that!!


Other professionals already know about Atos Assessor’s Unprofessionalism
but can do nothing to protect their patient or their profession

the answers he put on the report was totally different to what i said, and this happened on the previous
occasion when i had assessment with this assesor he did exactly the same with questions and did not
write I the answers given by myself. Spoke to dr and clinic they advised me that they hear this frequently.
having this illness is bad enough without all the stress etc with having to deal with this also.
           Overall Results Who Passed, Who Failed, &Types of Disability
                             15th March – 15th May 2011
                         There are many with complex and multiple diagnosis

What was the result   1st Diagnosis              2nd Diagnosis                3rd Diagnosis
Fit for work          Bipolar                    Depression
Fit for work          mental health

Fit for work          Complex issues/trauma
Fit for work          chronic fatigue            depression
                      poly cyclstic ovarian
Fit for work          syndrome                   endometriosis                bowl disorder
Fit for work          PTSD                       Chronic Pain
Not fit for work      Arthritis                  Diabetes                     hypo thyroidism
Not fit for work      M.E.
Not answered          Fibromyalgia               ME/CFS                       Labrynthitus
Not answered          bipolar
                                                 Chronic Fatigue
Not answered          Anxiety Depression         Syndrome
                      degenerative disc
Not answered          disease                    bi-polar
Not answered          Bipolar disorder
                      Chronic Fatigue
Not answered          Syndrome
                                                                              FRACTURED LEG NOT
Not answered          STROKE                     PV                           MENDED
Not fit for work      ms
Not fit for work      CFS/ME
Fit for work          swine flu                  pnuemonia
Fit for work          depression                 alcohol dependent
          Who Passed, Who Failed, &Types of Disability (cont...page 2)
                        15th April – 15th May 2011
                           There are many with complex and multiple diagnosis

What was the result       1st Diagnosis             2nd Diagnosis               3rd Diagnosis

Fit for work              Depression                Anxiety
                          BORDERLINE
                          PERSONALITY               SEVERE                      CHRONIC ANXIETY
Not fit for work          DISORDE                   DEPRESSION                  DISORDER
Fit for work              Diabetes                  Deafness                    Arthritis
Not fit for work          Chronic Glaucoma

Fit for work              polyarthralgia            fibromyalgia                mental health
                          Post Viral Fatigue
Fit for work              Syndrome                  Stress & Anxiety            Chronic Prostatitis

Pass (Not fit for work)   M.E                       fIBROMYALGIA                DYSLEXIA
                          Ehlers Danlos 3
Fail (Fit for work)       Hypermobility             PTSD                        CFS
Fail (Fit for work)       Arthritis                 Depression                  Vertigo
Fit for work              severe anaemia            intestinal bleeding         heart failure

Fit for work              Ankylosing Spondylitis

Fit for work              Arthritis                 Hashimotos thyroiditis      ME/FM
                          Bipolar Affective
Fit for work              Disorder                  Self Harm
Fit for work              Dislexia                  SAD
                          Chronic Fatigue
Fit for work              Syndrome
Who Passed, Who Failed, &Types of Disability (cont..page 3.)

 What was the result   1st Diagnosis              2nd Diagnosis            3rd Diagnosis
                       Mixed Personality
 Not fit for work      disorder
 Fit for work          Mental Health
 Fit for work          Bipolar Type 2             Fibromyalgia             Chronic Fatigue
 Fit for work          Chronic Depression         Anxiety disorder
                       Immune Deficiency
 Not fit for work      Disease                    ME                       Ehlers Danlos Syndrome
 Fit for work          fibromyalgia               rheumatoid arthritis     depression
 Fit for work          Severe depression
                                                  bi-lateral shoulder
 Fit for work          Generalised osteoarthritis impingemen
                       Post traumatic stress
 Fit for work          disorder                   Anxiety                  Depression
                       Chronic Fatigue
 Fit for work          Syndrome                   Fibromyalgia
 Fit for work          Ehlers Danlos
 Fit for work          Fibromyalgia               Asthma                   Migraines
 Fit for work          fibromyalgia               depression
 Fit for work          fibromyalgia               hypothyroidism           rheumatoid artheritis
                                                                           chronic dysthymic
 Fit for work          chronic pain syndrome      aspergers syndrome       disorder
 Not fit for work      Fibromyalgia               Hypermobility            Chronic Pain

 Fit for work          Depression                 Depression and Anxiety   Anxiety State
 Fit for work          PTSD
 Fit for work          CFS/ME                     Depression               Hypothyroidism
Who Passed, Who Failed, &Types of Disability (cont..page 4.)
What was the result   1st Diagnosis           2nd Diagnosis              3rd Diagnosis

Not fit for work      Fibromyalgia            Clinical Depression
Fit for work          1976                    1998                       2007
Not fit for work      breast cancer           hcv                        anxiety/depression

Not fit for work      kabuki syndrome         reflex anoxic seizures     autistic spectrum
Not fit for work      narcolepsy              cataplexy                  central apnea
                      M.E. (Myalgic
Fit for work          Encepholopathy)         Bipolar disorder           Overactive bladder
                      Chronic Fatigue
Fit for work          Syndrome                Depression/Anxiety
Fit for work          Stroke

Fit for work          Post-Traumatic Stress
                      Charcot Marie Tooth
Fit for work          Disease 2               Dyslexia
Not fit for work      head injury
Fit for work          bi polar

Fit for work          fibromyalgia            chronic fatigue syndrome   left hand deformity
Fit for work          Agoraphobia             Anxiety                    Depression
Fit for work          ankylosis spondylitis   scoliosis
Fit for work          CFS                     Chronic Anxiety            Social Phobia
Fit for work          Depression              Anxiety                    Low Back Pain
Fit for work          autism
Fit for work          Asperger's syndrome     ADHD                       Dyspraxia
                                              Cervical foraminal         Diabetic
Fit for work          Bursitis                stenosis                   Cheiroarthropathy
IT CONTINUES......

       AND SO DO WE.......



  AFTER ATOS : GETTING THE FACTS
HELP GIVE THE LITTLE FISHY A SMACK
                  All this information has been freely given out and published on
                  line, on Facebook and on our website for the past 2 months.
                  After Atos has passed this information to all MPs, all newspapers,
press and TV news programmes. We have sent this information to Unions, CAB and
other interested bodies and disabled support groups. We have asked them work with us
and help support us in helping to get the disabled feedback about Atos.
So far there has been very little interest and no response except for a few.

After Atos made sure all the members of the House of Commons Select Committee on
 Work & Pensions who met to give a grilling to Atos representatives and Prof Harrington
 on 18th May 2011 got a report of After Atos results and figures. So far despite some
 appreciation and acknowledgements no one is stopping Atos from carrying on.
Therefore, After Atos will carry on. Providing those going through the Atos ESA
“Medical” Assessment a chance to record their experience in an on line continually
 rolling survey. As Atos seeks to process 10,000s disabled each week After Atos seeks
to match them with equal numbers. In fact, we think it compulsory to insist all disabled
should give their feedback independently afterwards and should be government policy.

Help support After Atos by passing the information round
and joining and supporting us at   afteratos.org
CUT THE CARP
  AFTER
 ATOS
 ASSESSMENT
CUSTOMER FEEDBACK SURVEY


     afteratos.org

								
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