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WORCESTERSHIRE

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posted:
11/4/2011
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hypoaesthesiae/numbness, headaches,

Worcestershire sensitivity to noise and bright lights,

alcohol and medication intolerance, non-

M.E. Support Group refreshing sleep, problems with

for people affected by temperature control, irritable bowel and

M.E. (Myalgic Encephalomyelitis) bladder symptoms.

CFS (Chronic Fatigue Syndrome)

PVFS (Post Viral Fatigue Syndrome)

The Worcestershire M.E. Support

FMS (Fibromyalgia Syndrome)

Group gatherings are held so you can

-

Monthly Informal Gatherings

(all months, except August and January)  Share information gained from

What is ME/CFS personal experience

DROITWICH

Myalgic Encephalomyelitis (M.E.) is a  Give and receive practical help

Methodist Church, Amphlett House, Worcester

chronic and often disabling illness which  Obtain social contact

Rd

causes profound post-exertional exhaustion,

1st Saturday of each month  Receive understanding and

muscle or nerve pain and cognitive

2.00 - 4.00 pm acceptance from other sufferers

problems such as memory loss and

 Relieve the isolation

PERSHORE concentration.

Pershore Town Hall, High Street M.E. is classified by the World Health

Who else is likely to understand the

2nd Tuesday of each month Organisation as a neurological disease

restrictions made on your social life,

2.00 - 3.30pm (WHO ICD-10 93.3). M.E. is sometimes

the need to cancel at the last minute

referred to as Chronic Fatigue Syndrome

WORCESTER five times before you actually make it

(CFS), or Post Viral Fatigue Syndrome

City Centre Community Centre, Midland Road out?

(PVFS).

2nd Wednesday of each month A fellow M.E. sufferer, that's who.



2.00 - 4.00 pm Meetings only form a part of what



ME/CFS/FMS (Similarities) a group has to offer so don't be put

MALVERN

off joining if you're too ill to get to

Evangelical Church, Pickersleigh Road Clinical features in common:

them, or you'd rather not take part.

2nd Thursday of each month

These include post-exertional fatigue/

2.00 - 4.00 pm

malaise, cognitive dysfunction, Chairman

KIDDERMINSTER paraesthesiae or Ian Logan - 01886 888419



Kidderminster Library, Market Street

Vice Chairman Wyre Forest

Warwick Davis - 01384 892442 Audrey Hammond - 01562 822834



Treasurer Email: worcsmegroup@yahoo.co.uk

Bernard Speakman - 01527 540650 Website - http://worcsmegroup.weebly.com



Membership Secretary Links from this website take you to -



Elaine Witt - 01684 891442 National ME/CFS/FMS Charities

Support Groups across the Country

Co-ordinator

Disability Information

Jill Pigott - 01905 455187

Relevant Government Sites

Patient/Carer Representatives

Audrey Hammond - 01562 822834 100707



Jill Pigott - 01905 455187



Hon. President

Betty Hughes, MBE



Patron

Peter Luff, MP for Mid-Worcestershire





Worcestershire Area Contacts -

Bromsgrove

Edwina Evans - 01527 832245

Droitwich

Anne Smith - 01905 776162

Hagley

Warwick Davis - 01384 892442

Pershore & Evesham

Phil Moss - 01386 423463

Malvern and Worcester

Ian Logan - 01886 888419

Useful Contacts Invest in ME Herefordshire and Worcestershire CFS/ME

02380 251719 Local Multi-Disciplinary Team’s Lead

www.investinme.org Clinician -

25% ME Group

for those with severe ME Dr Mirella Ling

ME Association

01292 318611 (Consultant Physician & Specialist in Infectious

0844 576 5326

www.25megroup.org Diseases, Worcestershire Acute Hospitals NHS

www.meassociation.org.uk

Trust)

Action for ME ME Research UK

0845 123 2380 01738 451234

Dr Mirella Ling and Dr Mark Roberts

www.afme.org.uk www.meresearch.org.uk

(Consultant Physician & Specialist in Infectious

Association of Young People TYMES Trust Diseases, Worcestershire Acute Hospitals NHS

with ME (AYME) (The Young ME Sufferer) Trust)

0845 123 2389 0845 003 9002 hold CFS/ME Clinics at Kidderminster Hospital

www.ayme.org.uk www.tymestrust.org These clinics are for a new diagnosis,



Benefits Advice or when further support is required

Worcestershire Association of Carers

DIAL (Disability Information & Advice 01905 26500

Dr Mark Roberts also holds Hereford CFS/ME

Line) www.carersworcs.org.uk

Clinics

DIAL South Worcestershire

Worcestershire Carers Unit

01905 27790 /

0800 389 2896 Dr Mark Robert’s Secretary

www.dialsworcs.org.uk

http://worcestershire.whub.org.uk/home 01562 823424, ext 53436

DIAL North Worcestershire

/wcc-social-carers.html

0800 970 7202 / http://nwdial.org.uk Dr Mirella Ling's Secretary

Worcestershire Social Services 01905 733393

Family Information Service

0845 6072000

01905 790560 The Worcestershire CFS/ME Team

http://worcestershire.whub.org.uk/

www.worcestershire.gov.uk/familyinfo 01527 488316

home/socialcare.htm

Fibromyalgia Association UK

Worcestershire Paediatric OT Team

01384 895002

NHS CFS/ME LMDT 01905 681891 (South Worcestershire)

www.fibromyalgia-associationuk.org

01527 488041 (Bromsgrove & Redditch)

01562 757640 (Wyre Forest)

The CFS/ME Information Packs also

include leaflets on:



 Energy Conservation & Pacing

CFS/ME Patient and Carer  Organisations and Contacts for



Information Packs people with CFS/ME/FMS.

 NHS Patient Advice Liaison Service

funded by the NHS & Expert Patient Programme

Herefordshire & Worcestershire

 Disability Information and Advice

CFS/ME Local Multi-Disciplinary

Line (DIAL)

Team (LMDT)

 Recommended Reading

(initially developed by Herefordshire PCT and

Community Health Council in conjunction with These leaflets are also available at:

Herefordshire CFS/ME/FMS Support Group) http://worcsmegroup.weebly.com/about-me.html







CFS/ME Patient and Carer

100707

Information Packs are available

from the LMDT co-ordinators.

Worcestershire: 01527 488316

Herefordshire: 01568 614211, ext 218



The purpose of the pack is to act as a

steppingstone for sufferers to access

services within Herefordshire and

Worcestershire.



These packs are intended to provide as

wide a range of information for all

sufferers

to cover all age groups and severity of

illness.



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