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Why Aren't YOU a Bone Marrow Donor An Interview With Susan

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Why Aren't YOU a Bone Marrow Donor  An Interview With Susan
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Why Aren't YOU a Bone Marrow Donor? An Interview With Susan

Brecker, Producer of More To Live For

By CNCA on Apr 29 2011 | 0 Comments



For most healthy people, awareness about leukemia, a cancer of the

body's blood-generating tissues (including the lymphatic system and Search

bone marrow), usually begins after someone they know has been

Enter search term Search

diagnosed with it.

Include comments in search

And, if the flavor of leukemia that friend or family member has is

particularly acute and aggressive, it will likely require chemotherapy

treatments and a bone marrow/stem cell transplantation.

CNCA Monthly Special

The trick is finding the right bone marrow match, a needle-in-a-mile-

wide-haystack process made even harder largely by one huge fallacy: Save $7 on Joint Complex PRO -

An assumption among the healthy that testing and donating bone professional strength synergistic

marrow is too complicated and very painful. support for healthy joints! Shop now.



Testing is as simple -- even for needlephobes -- as rubbing the inside

of one's cheek briefly with a long cotton swab. Donating is a bit more

invasive, but it's similar to donating blood.



Unfortunately, the need for bone marrow donors far, far outstrips the participation which is what attracted Susan

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Brecker to a 2008 New York Times piece about entertainment entrepreneur and leukemia survivor James Contaminated, Subpotent

Chippendale meeting Klaus Keiser, his bone marrow donor who repairs bikes more than 5,000 miles away in a

small German town west of Berlin. Recent independent quality testing of

1600 supplements revealed that 25%

In James, Susan found a kindred soul. Despite organized bone marrow drives all over the world and constant were subpotent, contaminated, or both.

searches through the International Bone Marrow Registry, her husband, 15-time Grammy winning jazz legend See the list here.

and tenor saxophonist Michael Brecker, lost his battle with leukemia little more than two years after being

diagnosed with myelodysplastic syndrome at the too young age of 57.



No surprise, Susan and James bonded, and soon did a "Vulcan mind-meld" on how to build awareness about

how easy it is for people to be tested for and become a bone marrow donor. The result eventually became More subscribe to this

To Live For, an 83-minute documentary directed by Noah Hutton and co-produced by Susan and James that's BLOG

winding its way across America via special screenings and festival showings.

sign up for our

What follows is a short interview with Susan about her life with leukemia and a video trailer of their documentary.

NEWSLETTER

Find future showings of this enlightening, entertaining and very hopeful film by visiting the MoreToLiveForFilm.com

website.

follow us on

Learn more about the various forms of leukemia, by reading Understanding Leukemia, available as a free PDF FACEBOOK

download from the Leukemia & Lymphoma Society.

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About This Blog

Welcome to CNCA’s health

blog. Since 2002, CNCA has been

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Q: Considering the fight that both of you had been through with leukemia what made you both want to

revisit it by making a documentary?

CNCA is on Twitter

I think that after one has faced a terminal illness, you live with that your whole life. So in a sense, we have not

May 30. 12:13

revisited our struggle, but have continued to expand and integrate the experience. Knowing how easy it is to save

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lives, and how largely unknown this fact is to most people, we felt that there was no choice in making this

order this Memorial Day weekend

information available to everyone who would hear it.

only. Enter TWEET at checkout to

Q: More To Live For is indeed a rich, multi-layered story about winning and losing the battle with save. http://dld.bz/JR8F #discount

leukemia. What really made this story click for us: The addition of Seun Adebiyi, the Yale Law School

grad training to become Nigeria's first Winter Olympian when he was diagnosed with lymphoblastic May 30. 09:13

lymphoma and stem cell leukemia. How did you two learn more about him? Cut your cancer risks while grilling:

http://dld.bz/gN3q #cancer #health

Noah (Hutton, director) and I were introduced to Seun by Katarina Harf, the vice-president of DKMS Americas,

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Seun had come to Katarina for help in finding a match, so he might have a life-saving transplant. We were

looking for a person who was at this same stage of their journey. When we met Seun, we instantly knew he would

be the right person through which we could tell this part of the story. May 29. 14:13

Twitter Exclusive: Save 15% on your

Q: Unlike other documentaries and feature films we've seen about cancer, we were struck by the very order. Memorial Day weekend only.

hopeful tone of More To Live For, and the lack of "heroes," save for Klaus Keiser who merely did what we Enter TWEET at checkout to save.

should be all doing: Becoming bone marrow donors. Was this an intentional decision? http://dld.bz/JR8F #vitamins #save

Again, hand-in-hand with having an illness like leukemia exists the

hope that a cure will be found. While one struggles with doctors, intense Follow me on Twitter

physical symptoms, health insurance, etc., one is always cognizant of

the hope one needs to continue onward every day. Hope is a natural

part of any cancer story.

Blogroll

Q: We got the bone marrow donorship message loudly and clearly.

Cancer and Careers

Are audiences responding as you two and Noah hoped they

would? The Cancer Warrior

Empowher.com

We are completely thrilled. It is our mission to raise the awareness

about the need for new donors, and we are enormously gratified to see Julie's Health Club

people registering to become donors after each screening. So far, 100 percent of the eligible audience members Kairol Rosenthal's Ever...

have been tested, which is huge. We know that many more matches will be made and lives saved as a result of

Mesothelioma

our efforts.

SelfGrowth.com

Q: Your director, Noah Hutton, did a little bit of everything for this project. Tell us more about Noah's

journey to find creative, entertaining ways to weave these three very different stories into one very

realistic, but hopeful, film.



Noah is a thoughtful filmmaker. He has a natural ability to tell stories about people, where they are respected and

Helping to Find a Cure

valued on film. When we presented him with our ideas for the film, we spoke about ways to best convey our CNCA is committed to making life

message. better for cancer patients around the

world. We donate a portion of every

Noah conceived of the idea of the three perspectives, and found a way to capture the essence of the three men. I

sale to The Gateway for Cancer

believe it is his skill as a filmmaker and editor that empowers the viewer to experience these stories as separate

Research, an organization dedicated

but connected.

to offering new treatment options for

Q: Part of your foundation's mission to raise money for this cause is to combine screenings with patients -- TODAY!

performances by some of the greatest pop and jazz performers around, something Michael would be

profoundly proud of. How close is this to becoming a reality? Or, what about a benefit CD?



We are beginning to travel the globe with this film, which include jazz and music festivals. Michael was not only a

great artist, but a much beloved man in the music industry. We are so blessed with being able to carry his

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message to his fans and colleagues around the globe who loved him and his music. Allergies (8)

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Thanks for the idea about a benefit CD… We’ll think about it!

Cancer Research and Prevention

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Tags: more to live for, bone marrow, michael brecker, leukemia

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