User Stories
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Brief Description of Purpose and Scope of Query Health
Network
Data Types Expected in Response
-Protected Health Information (Individual Patient Level)
-Protected or Identifiable Health Information (Lists)
-Limited Data Sets
-De-Identified Data
-Aggregated Data
Organization, Management and Coordination
•Organizational Form
• Participant Roles/ Responsibilities
Management
•Coordination
•Financial commitment
Trust and P&S Requirements
•Legal Requirements
•Permitted Uses
•Data Use Agreements
•Other
Sustainability Requirements
Value Proposition
•Start-up costs
•Ongoing costs
•Expected return or value
–Lower transaction costs and added value to all
–Financial requirements and incentives for
Business Models
•Loosely aligned peer healthcare organizations
•Sponsored research or quality reporting
•Public health
•Payor directed
•Others
Scalability Requirements
Shared Infrastructure and Virtual Query Networks
Alternate Forms of Query Health Networks
–Hierarchical
–Peer to peer
–Ad hoc query
–Heterogeneous subscriptions
–Shared infrastructure
–Pluggable information models
–Others
General Use Case Comments Initial Pilot
Any authorized Requestor sends Query to
Responder and Responder returns results
All Domains
All including PHI, LDS, De-identified, Aggregate
Aggregate
Agreements for timely access to data and
query response
Policies and procedures to operationalize
agreements
Establishment, maintenance and upgrade
of technical specifications, models, and
infrastructure
Policy
Sandbox
Security and privacy agreements including
consents, authorizations, audit trails, access Disclosing
logs, permitted use and other protections Entity
for any individually identifiable health controls
information disclosures and other provisions data
of HIPAA Privacy, Security and Enforcement Data
rules including HITECH modifications Exchange
limited to
test, de-
Need for obtaining and managing patient
consent, authorization to conduct some
query requests
Effective Data Use, Data Sharing and Service
Use and disclosure of proprietary or licensed
technology and data by network participants
System must be voluntary and also provide
feedback of statistical information to
providers. This will reinforce the value
added and accelerate adoption
Flexible and Universal Query Network that
will support collaboration among disparate
healthcare entities.
Query structure is versed in standard code
set vocabulary in order to produce reliable
results across diverse vocabulary topologies.
There must be a heterogeneous subscription
model based on query type and disease
treatment so targeted syndromic reporting
will be effective.
Comparative
Quality Report Population Research with Syndromic Adverse Event
Public Health Effectiveness
ing Health IRB Surveillance Report ing
Research
Monitoring the Quantifying Determining
health of the prognosis and the
population survival effectiveness
of treatment
Aggregate PHI LDS
De-identified PHI
Health Query
Support local,
supports
Reporting regional and
ongoing
across national levels
expansion of
communities of aggregated
NQS/NQF
and time. syndromic
library of
data.
measures.
Consumer Best Practice Others
Empower Compliance
ment
Monitoring
the adequacy
of care
User Stories
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Brief Description of Purpose and Scope of Query Health
Network
Data Types Expected in Response
-Protected Health Information (Individual Patient Level)
-Protected or Identifiable Health Information (Lists)
-Limited Data Sets
-De-Identified Data
-Aggregated Data
Organization, Management and Coordination
•Organizational Form
• Participant Roles/ Responsibilities
Management
•Coordination
•Financial commitment
Trust and P&S Requirements
•Legal Requirements
•Permitted Uses
•Data Use Agreements
•Other
Sustainability Requirements
Value Proposition
•Start-up costs
•Ongoing costs
•Expected return or value
–Lower transaction costs and added value to all
stakeholders
–Financial requirements and incentives for
sustainability
Business Models
•Loosely aligned peer healthcare organizations
•Sponsored research or quality reporting
•Public health
•Payor directed
•Others
Scalability Requirements
Shared Infrastructure and Virtual Query Networks
Alternate Forms of Query Health Networks
–Hierarchical
–Peer to peer
–Ad hoc query
–Heterogeneous subscriptions
–Shared infrastructure
–Pluggable information models
–Others
General Use Case Comments
Any authorized Requestor sends Query to
Responder and Responder returns results
All Domains
All including PHI, LDS, De-identified,
Aggregate
Agreements for timely access to data and
query response
Policies and procedures to operationalize
agreements
Security and privacy agreements including
consents, authorizations, audit trails, access
Need for obtaining and managing patient
consent, authorization to conduct some
Effective Data Use, Data Sharing and Service
Agreements among principles and business
Use and disclosure of proprietary or licensed
technology and data by network participants
System must be voluntary and also provide
feedback of statistical information to
Flexible and Universal Query Network that
will support collaboration among disparate
Query structure is versed in standard code
set vocabulary in order to produce reliable
There must be a heterogeneous subscription
model based on query type and disease