UKALL2003 Version 7
Patient < 8 years information sheet August 2009
To be printed on local centre’s headed note paper
MRC UKALL 2003
Information sheet for children less than 8 years old.
This is an invitation to take part in a research study. Research means finding out about
things. We would like to find better ways of giving the medicines that can make your
leukaemia go away.
Although we have to talk to your mum and dad about this research we think that it is
important that you also understand what it is about. You do not have to say yes and you
can say no and no one will get upset. If you want to know more about the research then
you can ask your doctor or nurse.
What will happen if I take part?
We will look at some of your bone marrow with a special machine and when we know how
many leukaemia cells are in it we will give you your chemotherapy. If you have a lot of
leukaemia in your bone marrow then we want to find out if some extra treatment will be
better. If you have only a little bit of leukaemia in your bone marrow then we will give
you less chemotherapy to make your leukaemia go away.
Will I have to have extra tests?
We will just take a little bit of extra bone marrow, about 2 teaspoons when you are
already having a bone marrow sample taken. This will be taken at around one month and
eleven weeks after you have started treatment.
Are there any side effects of the chemotherapy?
When you are having your chemotherapy sometimes you will feel and be sick, but we can
give you medicine to help stop this. Chemotherapy also makes your hair fall out but it
will grow back when all your treatment is finished. When you are having chemotherapy
you are also more likely to get infections like a cough or a cold, and you may need to
come into the hospital so that we can give you medicine to try and help you get better.
Do I have to take part?
No, it is up to you and your mum and dad. If you do not want to take part that is ok and
no one will be upset. If you do not take part then we will give you the chemotherapy
that we are already using to make your leukaemia go away.
for reading this information sheet.