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The Patient Journey (PowerPoint)

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The Patient Journey (PowerPoint) Powered By Docstoc
					Sue Kernaghan
   Diagnosed with breast cancer on 9/11 2002

   Basal cell carcinoma in 2007

   GIST Gastrointestinal stromal tumour in July
    2009

   Different experience each time in my care
   The Friday evening after biopsy under
    mammogram

   Passed from one place to another, nobody
    would accept responsibility

   I ended up in A&E, in a queue which was
    totally inappropriate
   Listen to what the patient is saying. Do not
    assume a diagnosis if symptoms point to a
    diagnosis. It was assumed I was a drunk as
    had an upper GI bleed
   Hair loss is horrific: one patient said it was
    worse than diagnosis

   Chemo brain is alive and well in patients and
    sometimes it does not go away
   Relevant and timely

   Do not overwhelm if lots of information e.g.
    breast cancer

   Do give information even if rarer cancer even
    if it is a written diagnosis

   Important after treatment: transition
   Encourage the patient to help themselves:

   This is not “think positive” or “fighting the
    disease” We are not brave!

   Self help:
    ◦ Exercise
    ◦ Complementary therapy
   They are important too

   They can help manage the patient

   Listen to their concerns
   Nurse in chemo suite ignored the body
    language yelled depression. Could she see it?

   Radiotherapist: sometimes have to refer
    patients for admission even if the patient
    wants to go home

   Should have a fellow professional to talk to
    communication is key
   Not just at diagnosis, and during treatment
    but at the end of treatment and beyond

   The transition from a patient to a survivor is a
    real scary time and some low level
    psychological support at this time would
    alleviate anxiety.

   Many pts are prescribed SSRIs yet at this time
    support and talking therapy will bring long
    term benefits and would be cheaper

				
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posted:10/21/2011
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