IAN Exchange

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					  IAN Exchange
Linking people and ideas to advance autism
                 research
The IAN Exchange is an online Community of
Practice for Autism Researchers that will:

  •Enable the exchange/convergence of community knowledge and ideas

  •Promote collaboration in the autism research community




                                                       IAN Exchange
But what’s a Community of Practice (CoP)?
A network made up of individuals who share:

• Set of concerns
• Common mandate
• Sense of purpose




                                              IAN Exchange
But more than just a community, CoPs, like Guilds:


• Span borders of organizational
  and geographic boundaries
  intentionally
• Complement existing structures
• Promote collaboration,
  information exchange, and the
  development of best practices
• Self-governed and managed




                                            IAN Exchange
A Very Brief History of CoPs
• The first known ‘CoPs’ (Guilds) were developed in India 2000 – 500
  B.C.

• Term coined in 1991

• The first known (by me) ONLINE CoP was developed in Baltimore
  in 1990




                                                        IAN Exchange
Known as the Genome Database Project…
• It organized and amassed
  information about the subject
  at hand
• It was maintained by the
  researchers themselves – they
  were the ‘curators’ of the
  information




                                        IAN Exchange
And…it organized the people
   and brought them together in new
   collaborations in a brand new way




                                       IAN Exchange
In the 21st Century, Online CoPs exist in most professions



           The Best:

Organize people, organizations, and
groups.




                                              IAN Exchange
The Best:


Provide tools that help professionals
     get their work done better




                                        IAN Exchange
The Best:


Allow the professionals do it by
themselves (with a little help from
the staff)!




                                      IAN Exchange
The Best:


Provide mechanisms for groups and
    individuals to manage their
         knowledge assets




                                    IAN Exchange
The Best:


Create unprecedented
    partnerships




                       IAN Exchange
The Best:


Foster informal learning
   and exchange of
     experiences.




                           IAN Exchange
Most importantly:


 Become an essential
part of the participants’
          lives.




                            IAN Exchange
Most importantly:


 Become an essential
part of the participants’
          lives.




                            IAN Exchange
But why do autism researchers need this?




                                    IAN Exchange
Because autism researchers come from….




                                  IAN Exchange
A variety of disciplines…
          Psychiatry
           Genetics
         Neurobiology
          Education
         Anthropology
       Physical Therapy
          Psychology
           Pediatrics
     Occupational Therapy
        Epidemiology
         Public Health
     Psychopharmacology
           Sociology
     Speech and Language

             Etc.           IAN Exchange
    A variety of institutions…

               Universities
                 Clinics
                Schools
                Hospitals
           Non-profits/NGOs
Governmental agencies from local to national

                    Etc.




                                               IAN Exchange
All over the world…




                      IAN Exchange
We publish in scores of journals…
    American Journal of Medical Genetics
         Current Opinion in Psychiatry
      Journal of Neuroscience Research
    Journal of Abnormal Child Psychology
Journal of Autism and Developmental Disorders
        Archives of General Psychiatry
             Clinical Endocrinology
                CNS Spectrums
                    Pediatrics
      Pediatric Clinics of North America
              Biological Psychiatry
   American Journal of Mental Retardation
                Pediatric Nursing
           Journal of Child Language
                    Epilepsia

                    Etc.                        IAN Exchange
But much of what we learn comes from peers and
                  mentors…




                                       IAN Exchange
Do you want to expand your horizons, explore new
territory, learn from the experiences of others, and
  become part of an international collaboration?




                                           IAN Exchange
How will the IAN Exchange help?




                                  IAN Exchange
 The IAN Exchange will provide secure online meeting rooms
where existing groups can discuss their projects and share and
      organize their documents and other digital assets



           Centers
          Networks
        Committees
  Professional Associations
     Boards of Directors
     Research Projects
     Multi-center studies
        Departments




                                                    IAN Exchange
 The IAN Exchange will provide Special Interest Areas (Cafes)
where ad hoc groups can discuss and share assets on topics of
                          interest.

             Immunology
         Maternal depression
        Cross-cultural attitudes
            Special diets
           FMRP deficiency
      Educational interventions
            Grant writers
  Research on adults with Asperger’s
         Autism and females
              Phenotypes
            Journal Clubs
      IAN Research Data Users
  IAN Research Subject Recruitment
            Assistance Users
       IAN Community Authors
    IAN Exchange Leaders Group

                 Etc.


                                                   IAN Exchange
The IAN Exchange will foster a self-organizing, community-rated,
      searchable library containing all manner of ‘assets.’

             Projects
             Findings
              Images
               Films
           Discussions
             Podcasts
            Documents
        PowerPoint Slides
               Ideas
              People
              Groups
             Lectures
     Online Learning Modules


              Etc.

                                                     IAN Exchange
  The IAN Exchange will build trust with the broader autism
community by allowing them to be observers of selected groups
                         and assets.




                                                   IAN Exchange
How will the IAN Exchange help?
• Enable life-long learning
• Broaden the circle for informal learning (learning from experiences)
• Facilitate important day-to-day collaborative activities
• Allow you to participate in a variety of collaborative activities (from
  your lab to international consortia) with one USER NAME and
  PASSWORD
• Foster interaction between new/more junior and senior/more
  experienced
• Move knowledge assets fluidly from group to group
• Tie your work to the other internet assets.




                                                            IAN Exchange
But better than that, the IAN Exchange will help you:
• Adapt to pace of change in creation and dissemination of
  knowledge
• Create a stronger synchrony of efforts
• Create a culture of shared responsibility
• Engage the public in the research agenda
• Address the ethical, legal, and social issues involved in autism
  research
• Foster the notion that data derived from the people should serve the
  public good


(Source: Derived from IOM Roundtable on Evidence-Based Medicine)



                                                         IAN Exchange
How can you help?
• Start your own or facilitate a special interest group
• Open your own meeting rooms
• Engage other researchers in the project!




                                                          IAN Exchange
Coming soon to a browser near you…


                                 IAN Exchange

				
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posted:10/21/2011
language:English
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