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					                 Emory University School of Medicine
                         Curriculum Vitae


Rebecca D. Pentz, PhD
Winship Cancer Institute
1365-C Clifton Road NE
C3008
Atlanta, Georgia 30322
Phone: 404 778 5694
Fax:   404 778 4389

Email: Rebecca_Pentz@emoryhealthcare.org

Birthdate and Place: 12/2/47, Seattle, Washington

Citizenship: United States

Title and Affiliations
      Academic
           Professor of Hematology and Oncology in Research Ethics,
           Winship Cancer Institute 9/1/04

      Administrative


             Faculty Advisor, Department of Patient and Family Services,
             Winship Cancer Institute 9/2003

             Ethicist, Clinical and Translational Research Committee, Winship
             Cancer Institute 5/2003

             Ethicist, Monitoring Committee, Winship Cancer Institute 5/2003

             Ethicist, Research Executive Council, Winship Cancer Institute
             5/2003

             Ethicist, Conflict of Interest Committee, Emory School of Medicine,
             1/2003

Previous Academic Appointments
2003-2004          Associate Professor of Hematology and Oncology in
                   Research Ethics, Winship Cancer Institute 9/1/03


                                                                                   1
2002-2003        Assistant Professor of Hematology and Oncology in
                 Research Ethics, Winship Cancer Institute, Emory
                 University.

1994-2001        Associate Professor of Clinical Ethics and Clinical Ethicist,
                 The University of Texas M. D Anderson Cancer Center;
                 Houston, Texas.

1997-2001        Associate Professor, Management and Policy Sciences, The
                 University of Texas School of Public Health, Houston, Texas.

1999-2001        Associate Member of the Graduate Faculty, Graduate School
                 of Biomedical Sciences, University of Texas Health Science
                 Center, Houston, Texas.

1984-1990        Adjunct Professor, Fuller Theological Seminary Extension in
                 Seattle; Seattle, Washington.

1981-1983        Assistant Professor, Scripps College; Claremont, California.

1980-1981        Lecturer, Pomona College; Claremont, California.

1979-1980        Adjunct Professor, Fuller Theological Seminary; Pasadena,
                 California.

Previous Administrative Appointments
2004             Ad Interim Director of Clinical Trials, Winship Cancer Institute
                 8-11/2004
2002-2003        Ethicist, Clinical Research Review Committee, Winship
                 Cancer Institute

2002-2003        Interim Co-Director of Clinical Trials, Winship Cancer
                 Institute, 8/15/02 – 3/1/03

1993-1994        Clinical Ethicist, The University of Texas M. D. Anderson
                 Cancer Center; Houston, Texas.

1991-1992        Clinical Ethics Consultant, The University of Texas M. D.
                 Anderson Cancer Center; Houston, Texas.

1988-1991        Clinical Ethicist, Yakima Memorial Hospital, Yakima,
                 Washington

Previous Hospital Committee Memberships



                                                                                 2
1993-2001          Clinical Ethics Committee, The University of Texas M. D.
                   Anderson Cancer Center; Houston, Texas, Ethicist

1997-2000          Conflict of Interest Committee, The University of Texas M. D.
                   Anderson Cancer Center, Ethicist

1995-2000          Data Monitoring Committee, The University of Texas M. D.
                   Anderson Cancer, Ethicist

1995-2000          Advisory Committee for Psychosocial Aspects of Genetic
                   Testing for Hereditary Colon Cancer, The University of Texas
                   M. D. Anderson Cancer Center, Ethicist

1994-2000          Surveillance (IRB) Committee, The University of Texas M. D.
                   Anderson Cancer Center; Houston, Texas, Ethicist

1995-1996          Brown Foundation/Ethel Fleming-Arceneaux Outstanding
                   Nurse Oncology Award Selection Committee, The University
                   of Texas M. D. Anderson Cancer Center, Member

1992-1993          Ethics Master Plan Committee, The University of Texas M. D.
                   Anderson Cancer Center; Chair

1989-1991          Medical Morals Committee, St. Elizabeth's Hospital; Yakima,
                   Washington, Ethicist

1989-1991          Clinical Ethics Committee, Yakima Valley Memorial Hospital;
                   Yakima, Washington, Ethicist

1987-1991          Infant Care Review Committee, Yakima Valley Memorial
                   Hospital; Yakima, Washington, Ethicist

Education
1979               Doctorate of Philosophy in Philosophy, The University of
                   California at Irvine, Nelson Pike, PhD

1974               Master of Arts in Philosophy, Bryn Mawr College, Bryn Mawr,
                   Pennsylvania, George Kline, PhD

1970               Bachelor of Arts in Philosophy, Pomona College, Claremont,
                   California, Morton Beckner, PhD

Committee Memberships

National and International


                                                                                   3
2004-Present   American Society for Clinical Oncology (ASCO) Conflict of
               Interest Task Force

2002-2005      American Society for Clinical Oncology (ASCO) Ethics
               Committee

2002-Present   Centers for Disease Control (CDC) Institutional Review
               Board for Bioterrorism

2001-Present   Centers for Disease Control (CDC) Institutional Review
               Board A

2001-Present   Summit Series on Cancer Clinical Trials V, VI, VII: Impact on
               Trial Design and Regulatory Process workgroup member

2001-Present   Children‟s Oncology Group Data Monitoring and Safety
               Board

2000-2004      Central Institutional Review Board (CIRB) sponsored by the
               National Cancer Institute.

2002-2003      Central Institutional Review Board‟s (CIRB) Adverse Event
               Subcommittee.

2003-2004      Central Institutional Review Board‟s (CIRB) Conflict of
               Interest Subcommittee

1999-Present   Children‟s Oncology Group Ethics Committee.

1999-Present   Children‟s Oncology Group Patient Advocacy Committee.

1998-Present   Cancer Genetics Network – Ethics Working Group

2001-2002      Site Surveyor, VA Human Subjects Protection Accreditation
               Program.

2000-2001      Ethical, Legal and Social Issues (ELSI) Committee for the
               International Genetic Epidemiological Society.

2000-2001      Membership Survey Committee, American Society for
               Bioethics and Humanities

1999-2003      Committee on the Status of the Professions, American
               Society for Bioethics and Humanities




                                                                            4
1999-2001       End of Life Guidelines Committee for the National
                Comprehensive Cancer Centers Network.

1994-2001       Children's Cancer Group Data Monitoring Committee

1997–1998       National Cancer Institute Task Force on Phase II Window
                Trials.

1993 - 1999     Children's Cancer Group Ethics Committee.

1995-1996       Faith, Technology and Science Task Force, Presbyterian
                Church (USA)

Regional

1993-2001       Houston Futility Policy Committee; Houston, Texas

1994-1997       Chair, Education Committee; Houston Bioethics Network;
                Houston, Texas

1995-1996       Texas State Implementation Task Force for Out-of-Hospital
                Do-Not-Resuscitate Orders

1992-1998       Houston Bioethics Network; Houston, Texas

1988-1991       Northwest Bioethics Network; Seattle, Washington

Institutional
2005            Ethics Center Advisory Committee

2004-Present    Emory Search Committee for Bioethics Professor and
                Director of the Ethics Center

2003-Present    Emory Medical School Conflict of Interest Committee

2002-Present    Clinical and Translational Research Committee, Winship
                Cancer Institute, Emory University

2002- Present   Independent Data and Safety Monitoring Committee, “ A
                Pilot Toxicity/Methods Validation Study of Celecoxib in
                Genotype Positive Children with Familial Adenomatous
                Polyposis” The University of Texas MD Anderson Cancer
                Center, Houston, Texas

1999-Present    Independent Data and Safety Monitoring Committee, St.
                Jude Children‟s Research Hospital, Memphis, Tennessee.



                                                                            5
Editorial Boards
2005- Present        The Oncologist. Co-editor of Medical Ethics Section.

2001- Present        International Journal of Gynecological Cancer, Consulting
                     Ethicist

1997- Present        Medical Ethics: Policies, Protocols, Guidelines, & Programs,
                     Editorial Board, Aspen, Publishers, Inc., Gaithersburg MD.

Award

The American Society for Bioethics and Humanities Distinguished Service Award
2001 for participation in the Task Force on the Status of the Field and work on the
report North American Graduate Bioethics and Humanities Training Survey
Report.

Manuscript Reviewer

2004-Present         Journal of Clinical Oncology

2000-Present         Journal of the American Medical Association (JAMA)

2005 –Present        Archives of Internal Medicine



Current Society Memberships and Offices

American Society for Bioethics and Humanities
Board Member (1997-2000)

The Society for Bioethics Consultation
Board Member (1996-1997)

American Society of Clinical Oncology
Ethics Committee Member (2002- Present)

American Public Health Association
Ethics Committee Member (2001)

Organization of National Conferences
2004                 Organizer, Ethics Consensus Panel for Research with the
                     Newly and Nearly Dead


                                                                                      6
1998                 Co-Chair for the First Annual Meeting of the American
                     Society for Bioethics and Medical Humanities

1997                 Co-Chair for the Joint Meeting of the American Association for
                     Bioethics, the Society for Health and Human Values, and the
                     Society for Bioethics Consultation

Research Focus
I am one of the pioneers in working directly with innovative researchers to develop
and design cutting edge ethical research. In order to ensure that such research is
ethical, I design ethics companion studies that examine the ethics of the study
concurrently with its implementation. At Anderson I set ethical guidelines for two
cutting edge phase I research projects that would not have been possible to
execute without ethics support ( Herbst R et al. Phase I Study of Recombinant
Human Endostatin in Patients With Advanced Solid Tumors, J Clin Oncol Jul 29
2002 as 10.1200/JCO.2002.11.061; Arap W et al, Steps toward mapping the
human vasculature by phage display. Nature Medicine. 2002; 8: 2). At Emory I
am working closely with adult and pediatric phase I investigators to determine the
appropriateness of including non-therapeutic biopsies in phase I protocols.
Empirical ethics research is unusual; ethics companion studies are exceedingly
rare, if not unique.

My more traditional empirical ethics research focuses on informed consent for
vulnerable populations, disclosure of research results, duty to warn, and phase I
research. My conceptual ethics research is on the appropriate ethical boundaries
for work in cancer genetics.


Grant Support

Active Support

        Site PI, CIHR, “Returning Research Results to Study Participants” $8,000
       for the Emory Site. 2004.
       The goal of this research is to determine research participants views on
       disclosure of research results.



Submitted

       PI, R01 CA112203-01 Parents‟ and Children‟s perspectives on phase I
       trials. The purpose of this research is to assess pediatric participants‟ and



                                                                                    7
      their parents‟ views of phase I research, particularly non-therapeutic
      biopsies. 25% Effort


      Co-investigator PO1 entitled “Targeting Cell Signaling in Lung Cancer to Enhance
      Therapeutic Efficacy”. Resubmitted June 1, 2005
      Principle Investigator: Fadlo Khuri, MD
      The goal of this research is to develop targeted agents to combat lung cancer.
      15 % effort



Previous Support
      PI, NIH, “ Ethical Concerns in Information and Tissue Storage Consents”
      Ethics Award, $15,000, 2002.
      The goal of this research is to ascertain potential participants‟ views,
      particularly the views those who are medically underserved, of the
      standard Emory tissue banking consent.

       Private
      Conference Award for the Caring Ethics at the End of Life: Crafting Ethical
      Guidelines for End of Life Research, $50,000
      The goal of this conference was to seat an ethics consensus panel to draft
      guidelines for research with the newly and nearly dead.
      PI, NCI R13 Conference Award for the Caring Ethics at the End of Life:
      Crafting Ethical Guidelines for End of Life Research, $3,000
      The goal of this conference was to seat an ethics consensus panel to draft
      guidelines for research with the newly and nearly dead.

      PI, Kleberg Allocation for Human Cancer Genetics, “Transition from
      Research to Disclosure in Human Genetics,” Development Award,
      $58,000, 1999-2001

      Co- P.I., NCI, “Informed Consent in the Children‟s Cancer Group,” RO1,
      $90,000, 1999-2000.

      P.I, SCI ( private) “Establishment of a Clinical Ethics Fellowship for Post-
      Doctoral Ethicists” $70,000, 1997-1998.

      P.I., Marguerite E. Cole Family Trust Fund ( private), Ethics Fellowship for
      Post-Doctoral Ethicists” $105,000, 1999-2001


Clinical Service Contributions
I began the Ethics Department at The University of Texas MD Anderson Cancer
Center and developed it into one of the most flourishing programs in the United
States, with a highly regarded and extensively used clinical ethics consultation


                                                                                     8
service. I was a member of the Futility Task Force that drafted the Futility Policy
that was the model for the Texas legislation and the AMA recommendations on
medical futility. I was instrumental in developing and implementing the Texas Out-
of-Hospital DNR policy and procedure.


Formal Teaching
American Society of Clinical Oncology
  2005     Author of Ethics Module for ASCO Palliative Care Curriculum

Grady Oncology
5-6/2005   Research Ethics Course for Staff

Medical Student Teaching

1995–2000    Ethics in Medicine for First Year Medical Students. The University of
             Texas Medical School-Houston; Houston, Texas. Lecturer.

1995-2000    Ethics Dilemmas for Fourth Year Medical Students. The University
             of Texas Medical School-Houston; Houston, Texas. Co-taught with
             three other professors.




                                                                                  9
Graduate Programs

2003         Lecturer, Ethical, Legal, and Social Issue in Responsible Clinical
             Research (EPI 593) in the Masters of Science in Clinical Research
             program for the School of Public Health.

2002-Present Lecturer for the Winship Cancer Institute Fellows Core Curriculum


1996-2001    Ethics Core Curriculum for Fellows at The University of Texas MD
             Anderson Cancer Center.

1998         Lecture Series on Informed Consent for Gynecological-Oncology
             Fellows

Rounds for Faculty and Fellows

2005         Ethics Rounds for Centers of Disease Control Fellows

1993-2001    Weekly bedside ethics rounds in the Intensive Care Unit at The
             University of Texas MD Anderson Cancer Center.

1998-2001    Bi Monthly “Just for Nurses” Ethics Rounds on the unit for bedside
             nurses.

1993-2001    Semi-annual Pediatric Ethics Rounds.

Supervisory Teaching

Oncology Fellows

Maria Reposta, Supervising Dr. Reposta‟s research at WCI, 2003

Ph.D. Students

Andrea Frolic, cPhD. Ms. Frolic is completing her doctoral dissertation.

Deborah Volker, PhD, Assistant Professor, School of Nursing, The University of
            Texas at Austin, Texas.

Post-doctoral Fellows

Anne Flamm, JD, Clinical Ethicist, The University of Texas MD Anderson Cancer
           Center.

Imre Szebik, MD, Physician and Ethicist, Hungary.


                                                                                  10
Mary Anderlik Majumder, JD, PhD, Assistant Professor at the Center for Medical
             Ethics and Health Policy, Baylor College of Medicine.


Masters of Science in Genetic Counseling
Amie Ortman, M.S., Genetic Counselor

Seminars Given
Physical Therapists of North Georgia, Marietta, GA. Ethical Principles, Codes
and Cases, 5/2005

Kennestone Hospital Tumor Board, Marietta, GA. A New Look at Patient
Autonomy. 5/2004

Cancer Center Administrators, Atlanta, GA. Research with the Newly and Nearly
Dead 3/2004

Advance Practice Symposium, Atlanta, Ga. Ethical Considerations in Cancer
Research and Treatment 3/2004.

Pace Academy Ethics Class, Atlanta, Ga. Genetic Engineering 3/2004

National Youth Leadership Forum on Medicine, Atlanta, Ga. “Medical Ethics
Issues” 7/2003

Georgia Social Workers‟ Oncology Group Meeting, St. Joseph‟s Hospital, “Ethics
and Clinical Trials” 5/2003

Emory Hospitals Social Workers Educational Meeting, Emory Hospital “Informed
Consent” 5/2003

Patient Navigation Training, Avon Comprehensive Breast Center, Grady
Memorial Hospital, “ Ethics and the Importance of Confidentiality” 4/2003

Hospital Administrators Course. Mercer College, Atlanta, GA. Invited by Anne
Adams of Emory HealthCare “Ethical Dilemmas in Genetics” 3/2002.


Houston Academy for Faith and Discipleship, Houston, Texas. “Ethics at the Edge:
from Embryos to Euthanasia.” 2002

Oncology Nursing Society Leadership Retreat. Annapolis, Maryland.,
“Organizational Ethics and Conflict of Interest.” 2001



                                                                                11
The University of Texas M.D. Anderson Cancer Center Development Retreat,
Galveston, Texas., “Finishing Strong: an ethical approach to end of life care.”
2001

The University of Texas M. D. Anderson Cancer Center Grand Rounds, Houston,
Texas, “Research Use of Tissue and Information: Ethical Mandates and Federal
Regulations.” 2000

The University of Texas M. D. Anderson Cancer Center, Division of Medicine
Grand Rounds, Houston, Texas, “Ethics Research,” 1999

Sierra/Providence Health Network, El Paso, Texas, “The Ethics of the
Patient/Physician Relationship in the Era of Scarcity,” 1999

The University of Texas M. D. Anderson Cancer Critical Care Grand Rounds,
Houston, Texas, “End-of-Life Decisions in the Intensive Care Unit,” 1999

Ethics Consortium of the Tarrant County Academy of Medicine, Fort Worth, Texas,
“End of Life Issues at Life‟s Beginning,” “End of Life Decisions in Adults,” “The
Intersecting of Business and Clinical Ethics,” 1999

Memorial Health System of East Texas, Lufkin, Texas, “Medical Futility,” 1999


Lamar High School, Theory of Knowledge Class, Houston, Texas, “Ethical
Dilemmas in Adolescent Health Care,” 1999

St. John‟s School, Houston, Texas, “Medical Ethics and Spirituality,” 1999

Hendrick Medical Center, Abilene, Texas, “How An Ethics Committee Can Help:
From Patient‟s Rights to Futility” and “Finishing Strong: Ethics at the End of Life,”
1999

The University of Texas M. D. Anderson Cancer Center Grand Rounds, Houston,
Texas, “How Justice Functions in Health Care,” 1999

American Association of Critical Care Nurses, Houston-Gulf Coast Chapter,
Houston, Texas, “Advance Care Planning: Advance Directives, DNR, Financial,
Ethical and Legal Issues,” 1998

Rice University‟s Pre-Med Society and the Department of Religion; the Israeli
Consulate; Holocaust Museum-Houston; and the Maimonides Society of Houston,
Houston, Texas, “Death and Dying: The Nazi Legacy and Today‟s Dilemmas”
1998




                                                                                        12
The American Cancer Society‟s Traveling Oncology Consultant Program,
Riverside, California, “Ethical Dilemmas at the End of Life – How an Ethicist Can
Help,” and “What Hippocrates Would Say to Collaborative Care Paths: The Ethics
of the Patient/Physician Relationship in the Era of Scarcity,” 1998

National and International Conference Speaking Engagements
Bioethics Summer Camp, Asilomar, California, “Research on Stored Biological
Samples: The Views of Minority Patients” June 2005

American Society for Bioethics and Humanities Annual Meeting. Philadelphia, Pa.
Consensus Guidelines for the Newly and Nearly Dead. October 2004.

2004 ASCO Annual Meeting, New Orleans, Louisiana. “Use of Stored Tissue and
Medical Records in Research: Ethics Symposium.” June 2004

Drug Information Association’s Annual Meeting, Washington, DC. “Phase I
Research: A Necessary Evil?” June 2004

49th Annual New England Council of Hospital Pharmacists Spring Seminar,
Chelmsford, MA. “Autonomy: Putting Bioethics Darling in Perspective.” May 2004

Tandem BMT Meetings, Orlando, FL. “Ethics and Bone Marrow Transplantation.”
February 2004.

Third Annual Hematology/Oncology Symposium ÍRBs and Informed Consent: from
Hindrances to Helps” AFLAC Cancer Center, Atlanta, GA September 2003.

Clinical Ethics: Reflections, Evolution and Prospectives. A Symposium in the 10th
Year of Ethics at MD Anderson Cancer Center, Keynote speaker: “Right to Know/
Duty to Know: Another Look at Patient Autonomy.” Lunch panel presenter:
“Ethics Consultation at MD Anderson.” September 2003

American Society of Clinical Oncology Annual Meeting, Chicago, Illinois.
“Oversight of Clinical Research.” May 2003.

Childrens Oncology Group Epidemiology Presentation, “Preemptive Ethics: How
Researchers can address Ethical Concerns in Genetic Research.” March, 2003

Oncologic Emergencies, The University of Texas M.D. Anderson Cancer Center,
Houston, Texas. “Ethical Issues in the Acute Care Setting.” 2003.

18th UICC International Cancer Congress, Oslo, Norway, “Ethics and Cancer: Are
we making progress?” 2002

16th New York Regional Ethics Conference, Mt. Sinai School of Medicine, New
York.


                                                                               13
“Spreading the Money Around: Incentives for Researchers and Subjects.” 2001

What Does it Mean to be Human, Sponsored by the Office of Theology and
Worship of the Presbyterian Church, Pittsburgh, PA., “Response to Ken Culver‟s
„Getting up to speed on Genetic Science.” 2000

NEH-Sponsored Summer Workshop, Medical Sciences Campus, University of
Puerto Rico, San Juan, Puerto Rico., “Gender Issues Facing the Beginnings of the
Twenty-First Century: A Global Perspective,” 2000

Second Annual Meeting of the American Society for Bioethics and Humanities,
Baltimore Maryland, ”The Institutional Ethics Committee and the Joint
Commission,” 1999

Annual Meeting of the American Society of Anesthesiologists, Dallas Convention
Center, Dallas, Texas, “Anesthesia for the Patient with Cancer: Ethical Issues,”
1999

Cancer Care: UT M. D. Anderson Approach, sponsored by The University of
Texas M. D. Anderson Cancer Center and the M. D. Anderson Associates,
Crowne Plaza Medical Center Hotel, Houston, Texas, “Ethics and Cancer: Cases
and Dilemmas,” 1999

9th Annual Cancer Symposium for Nurses, M. D. Anderson Cancer Center-
Orlando, in Orlando, Florida, “Ethical Issues in Oncology: Case Studies,”1999

4th Annual Human Dimensions in Cancer Care, Houston, Texas, “Texas State
Task Force on Advanced Directives: New Thoughts on the Natural Death Act,”
1999

New England Council of Hospital Pharmacists 46th Annual Spring Seminar,
Boston, Massachusetts, “Patient Autonomy and the Pharmacist – Is the Patient
Always Right?” 1999

Texas Alliance for Patient Services (TAPS) Annual Conference, Houston, Texas,
“Resources are Tight: Insurance Companies Say „NO.‟ What Is the Patient to
Do?,” 1999

Tandem BMT Meetings, Keystone Resort, Colorado, “Ethical Issues of
Transplantation,” 1999

CCOP 11th Annual Meeting, Houston, Texas. “Research Ethics,” 1998.

Tenth Annual Bioethics Summer Retreat, Brewster, Massachusetts, , “The Role of
the Clinical Ethicist in Institutional Change,” 1998.




                                                                                   14
19th Annual Health Law Teachers Conference, sponsored by the American
Society of Law, Medicine & Ethics and University of Houston Law Center Health
Law & Policy Institute, “Ethics in Critical Care,” 1998

3rd Annual Human Dimensions Cancer in Care, Houston, Texas., “Advance Care
Planning,” 1998

20th Pharmacy Symposium on Cancer Chemotherapy, Houston, Texas, ,
“Ethics/Case Studies in Oncology,” 1998

Sixth Annual International Symposium of Oncology Pharmacy Practice (ISOPP
VI), Washington DC, “Ethics Issues in Cancer Management,” 1998

Peer Reviewed Presentations
SIOP Annual Meeting. Fernandez CV, Santor D, Weijer C, Strahlendorf C,
Mohgrabi A, Pentz R, Kodish E. The return of research result to potential
research participants. Pilot study of adolescents and parent of children with
cancer. Vancouver, Canada. Sept 2005

9th International Meeting on the Psychosocial Aspects of Genetic Testing for
Hereditary Cancers, Peterson SK, Pentz RD, Blanco AM, Watts BG, Ward PA,
Marani SK, Strong LC. Impact of a decision aid for families considering p53
genetic counseling and testing. Presented June 9 2005, Philadelphia, PA.

The Seventh Annual Meeting of the American Society for Bioethics and
Humanities, M Wicclair, RD Pentz, A Flamm, “Research on the Nearly and
Newly Dead,” 2004.

2003 American Society of Clinical Oncology Annual Meeting, Chicago Illinois, RD
Pentz, SK Peterson, B Watts, S Vernon, P Lynch, ER Gritz, “Hereditary
Nonpolyposis Colorectal Cancer Family Members‟ Perceptions of the Duty to
Disclose Family Mutations,” May 2003. Poster

2002 Office of Research Integrity Conference on Research Integrity, Potomac,
Maryland, R.D. Pentz, A. L. Flamm, J. Sugarman, M.Z. Cohen, G. D. Ayers, R.S.
Herbst, J. L. Abruzzese, “Research Access: the views of prospective research
participants,” 2002.

 The Fourth Annual Meeting of the American Society for Bioethics and
Humanities, Nashville, TN, R.D. Pentz, A.L. Flamm, M. Smith, M. Anderlik. “How
I See this Case: an eight year old refuses stem cell donation for her mother”
2001.

The Fourth Annual Meeting of the American Society for Bioethics and
Humanities, Nashville, TN, R. D. Pentz, C. S. Finn, T. Engells, H. Kimmel, S.
Thorney. “Community Members of a Clinical Ethics Committee Speak Out” 2001.


                                                                                15
2nd Annual Southern States Knowledge in Nursing Conference. Galveston,
Texas, R.D. Pentz, M. Z. Cohen, A. L. Flamm, R. S. Herbst, J. L. Abbruzzese, A.
M. Woll. Patients‟ Perceptions of a High-Profile Phase 1 Trial. March 2-3, 2001 (
poster).

The Third Annual Meeting of the American Society for Bioethics and Humanities,
Salt Lake City, Utah, R.D.Pentz, A.L. Flamm, A. Valentine, D. Volker, “Ethics
Consultation:Sharpening Skills on Actual Cases”, 2000.

The Third Annual Meeting of the American Society for Bioethics and Humanities,
Salt Lake City, Utah, R.D. Pentz, A. Valentine, “How I see this case: A possible
suicide”, 2000.

32nd Annual Meeting of the American Association for Cancer Education, Portland,
Oregon R.D. Pentz, C. Verschraegen, R. Lenzi, F. Holmes. “Advance Care
Planning for the End of Life,” 1998.

First Annual Meeting of the American Society for Bioethics and Humanities,
Houston, Texas, R.D. Pentz “How I See This Case,” 1998.
       .
Bibliography

Published and accepted articles in refereed journals

Pentz RD, Peterson SK, Watts B, Vernon SW, Lynch PM, Koehly LM, Gritz ER,
HNPCC Family Members‟ Perceptions about the Duty to Inform and Health
Professionals‟ Role in Disseminating Genetic Information, (2005) Accepted
Genetic Testing.

Beskow LM, Botkin JR, Daly M,. Juengst ET, Lehmann LS, Merz JF, Pentz
RD, Press NA, Ross LF, Sugarman J,. Susswein LR, Terry SF, Austin MA,
Burke W. (2004) Ethical issues in identifying and recruiting participants for
familial genetic research. American Journal of Medical Genetics, 130A:424-431

Pentz RD, Chan KW, Neumann JL, Champlin RE, Korbling M. (2004) Designing
an ethical policy for bone marrow donation by minors and others lacking capacity,
Cambridge Quarterly for Healthcare Ethics Vol. 13, No 2.

Kodish E, Noll RB, Ruccione K, Lane B, Angiolillio A, Pentz RD, Zyzanski S,
Siminoff LA, Drotar D, (2004) "Communication of Randomization in Childhood
Leukemia Trials" JAMA. 291:470-475.

Pentz RD, Flamm AL, Pasqualini R, Logothetis CJ, Arap W. (2003) Ethics
framework for research in terminal wean patients and brain dead subjects, The
Hastings Center Report 33, no.1:2-8.


                                                                                   16
Pentz RD, Flamm AL, Sugarman J, Cohen MZ, Ayers GD, Herbst RS,
Abbruzzese JL. (2002) Potential Participants‟ Perceptions of a High-Profile
Phase I Trial, Journal of Clinical Oncology 20:3785-3791.

Pentz RD, Lenzi R, Holmes F, Verschraegen. (2002) Discussion of the Do-Not-
Resuscitate Order: A Pilot study of Perceptions of Patients with Refractory
Cancer Supportive Care in Cancer 10:573-578.

Arap W, Kolonin MG, Trepel M, Lahdehranta J, Cardo-Villa M, Giordano RJ,
Mintz PJ, Urdelt PU, Yao VJ, Vidal CI, Chen L, Flamm A, Valtanen H, Weavind
LM, Hicks ME, Pollock RE, Botz GH, Bucana CD, Koivunen E, Cahill D,
Troncoso P, Baggerly KA, Pentz RD, Do K-A, Logothetis CJ, Pasqualini R.
(2002) Steps toward mapping the human vasculature by phage display. Nature
Medicine, 8:121-127.

Simon C, Eder M, Raiz P, Zyzanski S, Pentz RD, Kodish ED. (2001) Informed
Consent for Pediatric Leukemia Research. Cancer, 92:691-700.

Anderlik MR, Pentz RD. (2000) Revisiting the Truth-Telling Debate: a study of
disclosure practices at a major cancer center. The Journal of Clinical Ethics,
11:251-259.

Pentz RD. (2000) Core Values: An Ethics Committee‟s Foray Into Management
Theory, Healthcare Ethics Committee (HEC) Forum: An Interprofessional Journal
on Healthcare Institutions‟ Ethical and Legal Issues, 12: 225-234.

Pentz RD, Young L, Wei, Q, Amos, C. (1999) Research Letter: Informed Consent
for Tissue Research, JAMA, 282:1625.

Pentz RD, (1999) Beyond Case Consultation: An Expanded Model for
Organizational Ethics, The Journal for Clinical Ethics,10: 34-41.

Rieger, PT, Pentz RD. (1999) Genetic Testing and Informed Consent, Seminars in
Oncology Nursing, 15:104-115.

Pentz RD. (1998) Experience with a Nine-Step Policy Dealing with Requests for
Medically Inappropriate Interventions for Cancer, Annals, Academy of Medicine,
Singapore, 27: 725-728.

Pentz RD. (1998) “Expanding Into Organizational Ethics: The Experience of One
Clinical Ethics Committee,” HealthCare Ethics Committee (HEC.) Forum: An
Interprofessional Journal on Healthcare Institutions‟ Ethical and Legal Issues,
1998, 10:213-221.




                                                                                 17
Kodish ED, Pentz RD, Noll RB, Ruccione K., Buckley J, Lange BJ. (1998)
Informed Consent in the Children‟s Cancer Group: Results of Preliminary
Research, Cancer, 82:2467-2481.

Brody B, Halevy A, Atkinson G, Berseth C, Collins L, Gleason VR, Heitman E,
Jefferson L, O‟Donnell M, Olsen B, Pentz RD, Reilly R, Rosen L, Septimus S,
Storey P. Timpe-Brennan A, Vartian C., and Weeks L. (1996) A Multi-institution
Collaborative Policy on Medical Futility, JAMA, 276:571-574.

Chan, KW, Gajewski J, Supkis Jr D, Pentz RD, Champlin R. and Bleyer WA.
(1996) Use of Minors as Bone Marrow Donors: Current Attitude and Management,
The Journal of Pediatrics, 128: 644-648.

Pentz RD. (1994) Bioethics Reformation Style, Christian Scholar's Review,
23:267-274.

Pentz RD. (1994) Veatch and Brain Death: A Plea for Soul, The Journal of Clinical
Ethics, 5:132-134.

Pentz RD (1991) Hick and Saints: Is Saint-Production a Valid Test? Faith and
Philosophy, 8:96-103.

Pentz RD. (1988) Jesus as Sophia, The Reformed Journal, 38:17-22.

Pentz RD. (1988) Potentiality, Possibility and Persons, APA Newsletter on
Philosophy and Medicine, 88:37-39.

Pentz RD. (1988) Women and the Cross, The Reformed Journal, 38:3-4.

Pentz RD. (1982) Rules and Values, Sophia: A Journal for the Discussion of
Philosophical Theology, 21.

Referred presentations published as articles in anthologies

Pentz RD. (1995) "The Need for a Community-Wide Futility Policy, or, How Not to
Handle a Case of Medical Futility," The Search for Answers, ed. Misbin, Robert I.,
M.D., et al. University Publishing Group, Inc., Maryland, 41-48.

Review articles

Pentz RD. (1996) "Ethics and Decision Boards: Issues in Standardizing
Information," Gynecologic Oncology, 62: 327-328.


Book chapters




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Pentz RD, Flamm AL, Manzullo EF. (2002) “Ethical Emergency Care” in Oncologic
Emergencies, ed. Yeung SJ, Escalante CP, BC Decker Inc, Hamilton Ontario, 13-
24.

Anderlik MR and RD Pentz. (2000) “Genetic Information, Legal, Genetic Privacy
Laws,” in Encyclopedia of Ethical, Legal, and Policy Issues in Biotechnology,
edited by Thomas J. Murray and Maxwell J. Mehlman, New York: John Wiley &
Sons, 456-468.

Pentz RD. (1999) “Genetic Counseling: Guidance for Chilling Choices,” Genetic
Engineering: A Christian Response, Crucial Considerations for Shaping Life, eds.
Timothy J. Demy & Gary P. Stewart, Kregel Publications: Grand Rapids, Michigan,
189-195.

Mills G B., Rieger P, Watt M, Graham C, Pentz RD. (1999) “Genetic
Predisposition to Cancer,” Manual of Clinical Oncology, 7th Edition, Edited by
Raphael E. Pollock, Wiley Liss, Inc. New York, 63-97.

Pentz RD. (1987) "Can Jesus Save Women?" Encountering Jesus: Live Options in
Christology, ed. Steve Davis. John Knox Press, Atlanta, 77-109.


Books edited

Kilner J, Pentz RD, Young F E, eds.,(1997) Genetic Ethics: Do the Ends Justify
the Genes?: (A Horizons in Bioethics Series Book), Pasternoster Press, Grand
Rapids MI.


Web based ethics courses

Research Ethics Course for MD Anderson and community physicians. Designed
                   a web based course as well as doing 1-2 lectures a year.

Invited Articles
Pentz RD, Khayat A. (2004) The Poster Child for the Need for Central Review of
Research Protocols: the Children‟s Oncology Group. Cambridge Quarterly for
Healthcare Ethics13:359-365.

Sharp SM, Pentz RD, Issues, both ethical and practical, in the development and
conduct of chemoprevention trials.Current Problems in Cancer, Volume 28, Issue
4, July-August 2004, Pages 186-200


Pentz RD, Spreading it Around: Money for Researcher and Subjects. Mount
Sinai Journal of Medicine, (2004) 71(4 September): 266-270.


                                                                                 19
Pentz RD, (2004) Centralized IRBs, The Lancet Oncology, Vol 4, p.3.
http://oncoloyg.thelancet.com

Tomlinson T, Michalski AJ, Pentz RD. (2001) Futile Care in Oncology: when to
stop trying. Lancet Oncology 2:759-64.

Pentz RD and Theriault RL. (2001) Research Ethics: Clinical Trial Abuse and the
Public Trust. Breast Diseases Quarterly,12:141-144.

Pentz RD. (1998) “A Code of Ethics and Prevention: What Should Be Said and
Why,” Cancer Prevention International, 3:123-129.

Pentz RD. (1998) Genetic Tests Demand New Answers, M. D. Anderson
OncoLog, 43:8.

Pentz RD. (1997) Comments on SBC/SHHV/AAB Merger, SBC, Newsletter of the
Society for Bioethics Consultation, 7-8.

Pentz RD. (1996) Prevention Needs Ethics Too, Breast Diseases: A Year Book
Quarterly, 7:116-117.

Pentz RD. (1995) The Vagaries of Informed Consent: Experiences in Oncologic
Care, Clinical Ethics Report , 9:1-6.

Pentz RD. (1994) Cancer in Pregnancy--Case Presentations with Ethical and
Legal Commentary, The Cancer Bulletin, 46:443-451.

Pentz RD. (1992) Presbyterians Address Problem Pregnancies, Perspectives, 7:3-
4.

Pentz RD. (1991) "Time to Go Home," Perspectives, 6:6-7.

Published Abstracts
Pentz RD, Flamm AL, Sugarman J, Cohen MZ, Herbst R, Abruzzese JL. (2002)
The Media and potential participants‟ perceptions of a phase I trial. ASCO
abstract.

Pentz RD, M. Z. Cohen, A. L. Flamm, R. S. Herbst, J. L. Abbruzzese, A. M. Woll.
(2000) Patients‟ Perceptions of a High-Profile Phase 1 Trial. Poster Session 23:
Other Clinical Studies; 11th NCI-EORTC-AACR Symposium on New Drugs in
Cancer Therapy, Amsterdam, The Netherlands.




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